Rose,I would bring all.Watch the weather channel. I changed clothes 3 times today.It was crazy.The first cold front and i was thinking of South America or Africa.
   Jill

sig Jill
age 54
Dx98,Mast 12 pos nodes
Her- ER-pr-BRCA-
Stage iv bone mets 2003 rads to hip
chemo-A/C Xeloda,Zometa,Taxol. Taxotere
Gemsar,Doxil-Abraxine
Spot liver and lung-gone
2008 met to subclav nodes-Rads
5/08 Taxotere
Faslodex
Taxols again,scalp mets
Liver,lung, lymph mets 2009
Femara
Ixempra
Testosterone ,Zometa-stable

Jill and everyone, as Rose says so eloquently we're all here for you whenever. I haven't posted as much or as often as I was trying to keep my promise to Jill  on leaving sunbearz2 free for those with stage iv cancer who needed to hear from other's in the same situation....I confess I've been itching to jump in and encourage you all facing trials right now.
Thanks again for having us ladies.

Patti, take a break and a deep breath, you have friends here who will still be here for you when you are ready and able to come back here..

Chris, have been watching your little guys and loving them lol...keep laughing and seeing the funny side of this if you can.

Rose, I was'nt aware you were undergoing tests but you have my thoughts and good wishes for only negative results!

Judy, I can only second what everyone has said, it hurts us all to know you're suffering.  If the bulk of this pain is the uterus it shoulds ease once thats gone. I recall being in agony with gall stones for months while still working and would have ran to the O.R and jumped on that table to get it out lol...I know in your case it's far more serious than that but I know too there's a good chance once you have that op you'll wake up free of pain and  renewed again to fight the rest of these little bugger's!!

Becky, I've missed seeing you here too and hope you're just busy enjoying life...

I think I said  hi and welcome to our new ladies on their own threads but if not welcome again girls and I look forward to getting to know you all better in the weeks ahead. There's so much support here no one need ever feel alone.

Gail,Rena  Brenda, Sadie and anyone else I'm forgetting, hope you all are doing well and Gail and Rena, I look forward to hearing the full story of the breast fest!!!

P.S...Jill, yes this is a mets site and often the realities of that can be too much for some but I think the mix of celebrations/good news gives a clear picture there is life after mets which can only be positive for anyone coming here...despite having the sadness when things go badly for someone too. Whats important is having a "safe haven" with a welcome and willingness to share I believe.

((((((hugs)))))

P.S...Jill, take your time too and sort your own problems, I'm sure we can all manage for a while but are here if you need us.

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rose,

I just saw your post on sound off and am copying my reply here to you to be sure you see it and know we're all praying for good results for you.

 Rose, I just saw this having replied to you on the sunbearz2 thread
without knowing the full details. I completly understand as I too, am a
private person and soemtimes it's easier to deal with these concerns
alone until we know the full picture.

Of course you're distressed and feeling vulnerable, I also have
wondered at times abouthis so called "scar tissue" and the difficulties
in making a correct dx from that. I have nothing to offer except my
full support and good thoughts through this awful time for you. Please
mail me if you need to and of course this could be just scar tissue so lets hold that thought and hope thats exactly what it is and your Dr is being overly cautious.

(((((hugs)))))

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

OK Ladies
       Time to step up and offer all the love and support you can muster.  There are a few sisters on this sight who trying to be couragous and suffer in silence.  In an effort to respect their privacy I'm requesting you show support for theses sisters in their time of need.  Please address your response to sisters (whether you suspect some one or not, no names, remember privacy)  I know times are difficult right now.  But thats what this place is about love and support thru the good times and bad.  A true sister hood.  So I will close this post so I can kick it off.
 
Oodles of Hugs, Love and Prayers
Chris

Chris/47/Ret Air Force, dx Sep 07 Stage IV mets liver/lungs; ER/Pr+, Her2-, Arimidex, Jul 08: 6 AC, 9 Taxol complete, Nov 08: Lumpectomy Nov 08: NED, Mar 09: Rads complete, Apr 11/May 11: Liver spot biop  ER+, PR-, HER2+, Jun 11: Start Herceptin/Docetaxel/Carboplatin  Sep 11: Left lobe of liver removed.  Carepages: Calamitychris

Chris/47/Ret Air Force, dx Sep 07 Stage IV mets liver/lungs; ER/Pr+, Her2-, Arimidex, Jul 08: 6 AC, 9 Taxol complete, Nov 08: Lumpectomy Nov 08: NED, Mar 09: Rads complete, Apr 11/May 11: Liver spot biop  ER+, PR-, HER2+, Jun 11: Start Herceptin/Docetaxel/Carboplatin  Sep 11: Left lobe of liver removed.  Carepages: Calamitychris

I'm struggling because of the onc doc. She's a good doctor, but she is soooo realistic. Butt cancer has a survival rate of 2 years. Period. It's been one year for me. Does that mean this is my last year of life? I know this is a very rare cancer, but come on, there has to be a treatment plan out there. I feel good...with the exception of no hair, I look good, too! Spent most of the weekend in bed....I was so upset. Is it unrealistic of me to believe I could be cured? Or should I just give up and get this over with???
Kay

DX 7/17/07
ILC: 7.3mm and 1.8mm
DCIS & LCIS near margin
ER/PR+ HER2neg
surgery 8/3,8/17/07
Butt tumor found 11/20/07;
Chemo done; tumor gone;
Mets found 12/19/07 
Erbitux summer 08
Cisplatin to start 1/22/09
Spots shrinking
More chemo on 5/11/09 
In PA, close to NYC
Expecting miracles for us all!

Kay,
    Don't give up.  I know what you mean about stats.  For me average is 20-24 months.  So I'm with you in that second year boat.  But you know what we just need to keep on paddling.  Because that just an average.  And there is no reason why we couldn't be one of the longer ones.  Unfortunately we won't know til we get there.  So you keep on keeping on because you just never know.  So live life to the fullest and enjoy as many days as you can.  I for one don't want to waste any days if possible.  Some days I'm out and about and others I just sit home and relax.  Just what ever  floats my boat based on how I feel that day.  Of course I'm still working and that plays into it.  But I surely don't want the end to get here and have to say "Damn this came quicker, should of done this or that" or say "Damn if I would have known I had this long I would have...".  No regrets, just moving on.  Hope my thoughts on this helps.  
 
Oodles of Hugs and Love to you
Chris   

Chris/47/Ret Air Force, dx Sep 07 Stage IV mets liver/lungs; ER/Pr+, Her2-, Arimidex, Jul 08: 6 AC, 9 Taxol complete, Nov 08: Lumpectomy Nov 08: NED, Mar 09: Rads complete, Apr 11/May 11: Liver spot biop  ER+, PR-, HER2+, Jun 11: Start Herceptin/Docetaxel/Carboplatin  Sep 11: Left lobe of liver removed.  Carepages: Calamitychris

kay,

I could'nt agree with Chris more on this and am sure we all know people who were given a timeline by Dr's and far outlived that. I do, and if you need confirmation go to the her2 site anytime and you'll see so many people who have defeated the odds.
I wonder if your Dr is basing this on old stats though, each year that goes by brings more new drugs for all types of cancer...even if she were correct (and I don't believe she is) by the time you reach the two years there'll be another few drugs to try and so on and so forth.
I'm a realist by nature and like to stare things head on but truely feel the Dr's just don't know and can't really make that good a guess.
I hope you believe this too, why wait around waiting to die each day when you can just enjoy the time you have now that you fought so hard for.
Never give up!!  [sm=pals.gif]

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Hello Ladies, 
 
Just got back from Mexico.
 
First if anybody tries to persuade you to have one of those spray on tan's ...beware.
 
I won't sunbed tan and had been a little whiter than usual. My daughter thought my backless dress would look good with a hint of spray. And they assured me it was just sugared water (so no toxins). Thank goodness it had nearly all washed of by the actual nuptials. 
 
I did have to keep my mangeled boob padded out...they have these pads the super models wear for sale in Victoria Secrets, the young sales clerk asked me if I wanted the ones that looked like chicken cutlets....sexy:)
 
I now have a son-in-law; despite all my misgivings they had a wonderful day and seem very happy.
 
I so much tried to keep the focus to them and tried to make sure
I did not make the day bitter sweet for anyone. My daughter insisted on a mother daughter dance and everybody cried....well apart from me... I don't cry much now days....
 
We danced to "My wish for You."
 
Do you guys cry?
 
Having all day Saturday in the beautiful clear sea was an unexpected bonus. My pack pain eased...the plane journey upset it again.
 
I read  Spontaneous Healing by Andrew Weil on the plane home.
Anybody else read it? I read everything I can lay my hands on...I take nothing as gospel, but always keep an open mind.
 
Any recommendations?
 
I know some of you ladies have been truly struggling while I was relaxing in Mexico. I send you my very sincere heartfelt wish for an easier day today. I wish each of us periods of eased pain, things going our way and the opportunity to live each day with hope, love and what ever it is we individually  need.
 
 
 
 

12/4 GYN ignored lump
12/5 3cm EST+ RB
2/6 chemo 8 (6mths)
8/6 lumpec 11 ndes (6+) 9/6 reincis
12/6 rads 30 NED Tamox
2/7 OK PET 09/7 bck pain 11/7 OK PET
2/8 fract T3/5
03/8 bpsy bone METs back, ribs, 
4/8 rads back 30+
5/8/Arimidex/lupron/zometa
1/9 path retest HER + spot in liver
3/9 2nd spot liver.. prg bones/rib
switch Falsodex/HERC/lupron/zometa
6/9 3rd spot liver ..other two grown
7/9trial failed 9/9 all spots liver grown and

Hi Everyone,
I just wanted to drop in quickly to let you know I am thinking of all of you.  I want to honor your private space, so I won't write more,
 
Have a peaceful evening.
 
Warmly,
Sadie