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 Sunbearz 2
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SpecialK

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RE: Sunbearz 2 - Saturday, November 01, 2008 11:57 AM
Why did things seem to get so difficult all of a sudden? Work, friends, home and now this! I'm hoping the new month and an extra hour of sleep will help make things better. My warrior shield seems to be a bit bent.... My feet are sore, my fingers cracked, my face looks like a dried zitty mess and my back aches. Days like today I struggle with the reason to get out of bed. I wish I could help make things better for the sisters here, but I have trouble even pulling up the zipper up on my jeans. In the sea, where I live, of "haired" people, I'm adrift alone on my own bald raft. If you see NED ask him to throw me a life preserver! 
K





DX 7/17/07
ILC: 7.3mm and 1.8mm
DCIS & LCIS near margin
ER/PR+ HER2neg
surgery 8/3,8/17/07
Butt tumor found 11/20/07;
Chemo done; tumor gone;
Mets found 12/19/07 
Erbitux summer 08
Cisplatin to start 1/22/09
Spots shrinking
More chemo on 5/11/09 
In PA, close to NYC
Expecting miracles for us all!
Shelf Life 2

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RE: Sunbearz 2 - Saturday, November 01, 2008 1:17 PM
Brenda - I used Bourdeaux's Butt Cream.  Put it on and put socks on.  Works great.  I got the Odea from the women on the bcmets.com site.  I use it about once a week now just to maintain.

Kay - I went bald for 10 months.  Know the feeling.  Even though there were other women in my town who were bald, they wore wigs and hats.  I just said f**& it and went bald.  I figured I was uncomfortable enough as it was muchless add to it by wearing a hot wig or hat.  Every now and then I would wear a dew rag.  But that was mostly when my hair was trying to grow in.  You know that weird stage.  I'll pray NED makes his rounds.

Tricia - Just got to get to the end of the month with out pulling what little hair I have out.  You know what sucks is my mammo is scheduled for the 6th.  Thats my youngest 21st birthday.  So hopefully it won't rear it's ugly head on that day.  

Jill - I'm hopeing it's just a matter of getting use to this format.  It's not taking me very long to get on.  It's just getting use to where everything is.  I would like an answer as to why we can't see the other posts when we are responding.  I guess I send them an email.  The one good thing is that it doesn't appear to time out as fast when your responding.  Gives my time to find my little guy's. Lol  

Gail - Thats so nice of you to make sure Rose gets her gift. 

Judy - Hope your not in to much pain sweetheart.  Wishing you the best for your MRI.  Keeping you in my thoughts and prayers.  Love Ya.     Get some rest on your comfy couch with Mr. Binks (I think thats right?   )

Well I finally have eyebrows.  But just one problem.  They are so blonde, well more like no color at all.  Makes it hard to pluck them and give them shape.  I have to tilt my head every which way in the sunlight in hopes they will shimmer just enough to see them.  I tried darking them, hoping it would help.  Yeah, not.  Just scared I'll remove to much.  Like it matters you can't really see them anyway.  Just causes a weird shadow when you put eye shadow on.  Uggggg    

Sadie, Sue, Susan Creed, Leslie, Lori, Gina, and anyone I may have forgotten - My best to you and hope your doing well.

Hope all are doing well.

Oodles of Hugs, Love, and Prayers for ALL.
Chris
Chris/47/Ret Air Force, dx Sep 07 Stage IV mets liver/lungs; ER/Pr+, Her2-, Arimidex, Jul 08: 6 AC, 9 Taxol complete, Nov 08: Lumpectomy Nov 08: NED, Mar 09: Rads complete, Apr 11/May 11: Liver spot biop  ER+, PR-, HER2+, Jun 11: Start Herceptin/Docetaxel/Carboplatin  Sep 11: Left lobe of liver removed.  Carepages: Calamitychris
Shelf Life 2

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RE: Sunbearz 2 - Saturday, November 01, 2008 1:58 PM
By George I think I've got it.

To view the post while replying do the following:

Go to "user control panel"
click on "Preferences"
Scroll down to "Posting preference"
Then "Posting/replying/editing style"
You have an option of "full page or pop up"
Select "Pop up"
Then go to the bottom of the page an click on save.

When you go to reply the reply box will pop up in the middle of the posts.  Just move the box where you want it by placing the cursor on the blu bar and use the arrow keys to move it.

   

Oodles of Hugs, Love and Prayers to ALL.
Chris

PS - Credit goes to sound off "discoveries".  I followed the direction from one of the women more carefully.  Can't remember her name though.  Thank you 
Chris/47/Ret Air Force, dx Sep 07 Stage IV mets liver/lungs; ER/Pr+, Her2-, Arimidex, Jul 08: 6 AC, 9 Taxol complete, Nov 08: Lumpectomy Nov 08: NED, Mar 09: Rads complete, Apr 11/May 11: Liver spot biop  ER+, PR-, HER2+, Jun 11: Start Herceptin/Docetaxel/Carboplatin  Sep 11: Left lobe of liver removed.  Carepages: Calamitychris
sunbearz

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RE: Sunbearz 2 - Saturday, November 01, 2008 5:26 PM
Chris, you keep going girl.I still dont get it.Its the reloading time thats killing me.
Heres my Question.If Im writing a reply,I cant see what others have previously said.I have to try to remember.
My hair is now an inch long.Eyelashes grey or blonde.Im a big bandanna fan.The curls are coming.Looking like a chia pet.
Love yall,
Kay, Hang in there.
Ill be back later to play with this thing
  Jill
sig Jill
age 54
Dx98,Mast 12 pos nodes
Her- ER-pr-BRCA-
Stage iv bone mets 2003 rads to hip
chemo-A/C Xeloda,Zometa,Taxol. Taxotere
Gemsar,Doxil-Abraxine
Spot liver and lung-gone
2008 met to subclav nodes-Rads
5/08 Taxotere
Faslodex
Taxols again,scalp mets
Liver,lung, lymph mets 2009
Femara
Ixempra
Testosterone ,Zometa-stable
Shelf Life 2

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RE: Sunbearz 2 - Saturday, November 01, 2008 6:44 PM
Jill - If you do what I posted you will be able to see what others have written while you reply.  Also you may have to defrag your computer.  Should help it run faster.

Oodles of Hugs, Love and Prayers
Chris
Chris/47/Ret Air Force, dx Sep 07 Stage IV mets liver/lungs; ER/Pr+, Her2-, Arimidex, Jul 08: 6 AC, 9 Taxol complete, Nov 08: Lumpectomy Nov 08: NED, Mar 09: Rads complete, Apr 11/May 11: Liver spot biop  ER+, PR-, HER2+, Jun 11: Start Herceptin/Docetaxel/Carboplatin  Sep 11: Left lobe of liver removed.  Carepages: Calamitychris
JulieS

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RE: Sunbearz 2 - Saturday, November 01, 2008 10:30 PM
Hi to all of you wonderful ladies,

There are several threads on the "sound off" forum that discusses how to hide your profile from the public, and how to hide from the "member list"  that every one can see what you are viewing or doing.
Just a suggestion  for your own safety.
 
Hope and strength,
Julie
Tricia Keegan

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RE: Sunbearz 2 - Sunday, November 02, 2008 5:34 AM
Thanks Chris and Julie, I just did what Chrius suggested and the reply box popped up as requested and I can still see the other message's as I reply! 
I think Cindy on sound off has posted on tips for how to do this too!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Sadie Rose

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RE: Sunbearz 2 - Sunday, November 02, 2008 7:09 AM
  Good Morning Ladies,

I'm up way too early for a Sunday morning. No matter how late I go to bed, I wake up at the same time before dawn. My little Cairn Terrier was scratching at my door, wanting some company and a run out to the front yard.

I made a rich cup of coffee and settled, of course into my favorite chair. I love to watch the sun come up. I was thinking about all of you in these early hours.

I have a birthday party to go to at my daughters house today. Most of the guests will be under the age of seven. It should be fun and then I enjoy getting back to the quiet of my home.

I have a question, has anyone had eczema on the nipple of their treated breast? If you did how did you treat it?

Jill-enjoy those curls sticking out. I remember going outside and just taking in the sensation of the wind blowing my new hair and tickling my face. One of the simple pleasures I've learned to cherish.

Chris- Thanks for helping everyone figure out how to work this new system. Hope you are feeling well today. Do some thing fun......

Judy- I hope you are having a peaceful morning and resting comfortably. Let us know how you are doing. Sending you caring thoughts~~~~~~~~~~

Tricia-Are you getting down to the beach for a long walk or is the weather too cold? You are so supportive to everyone here and we all appreciate it.

Rena-I'm so glad you are able to see Judy and keep us posted. I hope you have a relaxing day too.

Becky, Gail, and anyone I might have missed have a wonderful Sunday.

Warmly,
Sadie
Gail Srebnik

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RE: Sunbearz 2 - Sunday, November 02, 2008 12:54 PM
Hi you lovely thrivers! Just a brief howdy and sending out lots of positive thoughts to one and all for a good week ahead.  I sure could use a good one myself. I just saw Rose's post on sound off and I am so happy for her. Blessings,gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade
Tricia Keegan

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RE: Sunbearz 2 - Sunday, November 02, 2008 1:41 PM
Sadie, I did'nt have that problem but recall reading somewhere that rads can cause this??  I'm sure the Dr can suggest a cream to treat it though.
It 's very cold today here but bright, however I did'nt get to the beach as had a late night last night so just having a lazy day today with the cats!   Hope you enjoy the party!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
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