The National Patient Advocate Foundation is a policy office located in Washington DC.  The companion organization, Patient Advocate Foundation, is a direct patient services organization that provides management to patients free of charge.  The trained case managers assist with medical debt crisis, job retention, insurance denials and many other issues.  Their website is www.patientadvocate.org
 
 This is from some research I did a while back seeking information for a Sister that was having trouble with her employer/insurance.  I just came across the paper that had all the info and wanted to post in case it would be of help to anyone.
The contact at that time was
Amy Boivin  (don't know if she is still there)
Director of Government Affairs   
 National Patient Advocate Foundation 
 725 15th Street, NW
Washiongton DC

dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Thanks Sharon,
 
I am definately going to look into it. 
 
Christy
 
 

Great info, thanks Sharon and I'm sure it'll be helpful to many posting here:)

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

I also highly recommend Livestrong's SurvivorCare program, which partners with the PAF and provides you with a case worker for several different areas of concern that cancer survivors have.
http://www.livestrong.org/Get-Help/Get-One-On-One-Support

Jennifer
DCIS
lumpectomy 5/02/05
32 rad tx comp 7/07/05
tamoxifen
comp. hysterectomy 4/04/06
Paducah, KY

Hello friends,,,sneha here,,,i like this post,,I think,,,its so great information, thanks Sharon and I'm sure it'll be helpful to many posting here,,,keep it up,,,,:) 

Vaastu Services | Pyramids Power | Website Development Company in india | Astrology Consultant  

This post dissappeared.  Komen, please repost

dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

bump

dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

bump

dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Thank you....I'm contacting them now....can't get United Health Care to cover BRAC testing but 2 independent doctors has said I should have it conducted.

Sharon I've pinned this thread to the top so others can avail of the info and to ensure it does'nt slip down again!

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia