http://annonc.oxfordjournals.org/content/early/2012/03/29/annonc.mds055.abstract

dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Uh-oh - joint pain here, only hot flashes..... damn!

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 

Oops! meant to say NO joint pain....

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 

Postmenopausal here on Arimidex, so no hot flashes, but terrible joint pain.  I'm glad this is an indicator for an overall survival rate.  


I had joint and back pain as well as neuropathy in hands and feet before treatment of BC.  During treatment I had no neuropathy at all, very little joint/back pain.  Is any treatment available for this? For the neuropathy I took (still do) neurotin - 900mg per day.  It doesn't seem to be working anymore.


Help!

Marian 

DX June 20, 2011
IDC, E+P-, HER2-, Ki67 49%
Lumpectomy 7/26/11 & 8/23/11   
Lymph nodes clear!   
BRCA 1-/2-
Stage 1, Grade III 
Oncotype: 36%
Taxotere/Cytoxn 1 2 3 4 12/12/11
33 Rads completed 3/16/12
Start Arimidex 3/17/12    

[link=http://www.caringbridge.org/visit/

Thanks Sharon, I've never heard this before and glad to say I've had lots of joint stiffness and pain since starting Arimidex so hope this study is correct!

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

I have heard this theory before but now it's good to see a study that confirms we aren't suffering (mildly of course) for nutin! 

dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Sharon, I have neuropathy in both feet and my left hand. My onc has me taking Effexor 300mg for it. At first I didn't think it was helping so I started to reduce the amount and come off of it, but half way thru it I noticed my feet were feeling worse. So I started back taking the full 300mg. Right now it just feels like my feet are in sand all the time but nothing like it was before taking the Effexor.
I am on Arimidex and since being on it I've been having some hot flashes but not too bed. Happy to say no joint pain or stiffness.

DCIS, IDC Diag 4/12/11
Left Mastectomy 3 nodes positive removed 5/26/11
Stage 2, Triple positive (ER 80%, PR 70%, Her2 +3)
Chemo 6/30/11 Carboplatin/Taxotere/Herceptin Completed chemo 10/13/11
BRCA 1 & 2 Negative 
Herceptin for 1 year - completed 5/10/12
Arimidex for 5 years starting 11/3/11
Right simple Masectomy 11/29/12
Take one day at a time and always try to find something positive out of the negative!

Hi all - new to the forum, well recently anyway. I am a 10 year survivor. Did surgery, chemo, radiation followed by tamoxifen. After a few months on that one I was switched to Arimidex due to bone ache & stiffness. With Arimidex I had less, but still noticeable. Hot flashes were my main "affliction" and to this day I still have 2-3 per day with night sweats a couple of nights a week. By now, I just grin and bear it and keep a fan handy because nothing helped. We started with the herb dietary supplements and worked our way up through Neurontin with no success. I wish you all the best in your journey!

Hi Marsha,
 
I'm sorry about the hot flashes but many congrats on being ten years out which is wonderful!!!

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Well, I am on arimidex and have no side effects, no joint pain, no hot flashes. So now I feel worried!

diag 12/2010; lumpectomy and then re-excision to clear margins; 2.8cm; stage IIA; low grade; .85mm micromet; ONCO 15; ER 100%+/P+/HER-; TC x 4 started 2/24/2011; radiation ending on 7/8/11 then aromasin