Hoping to have a resolution on Wed

Re:Hoping to have a resolution on Wed (Tricia Keegan)

Tue, 10 Jan 2012 12:58:30 GMT

Grace I'm so pleased the specialist was able to reassure you and what she says makes perfect sense so I'm glad this is one worry you can put aside for now.

I had the scope too but had sedation and felt nothing at all and thankfully it was nothing more serious than a hiatal hernia so good luck for tomorrow!

Re:Hoping to have a resolution on Wed (Army Mom)

Tue, 10 Jan 2012 09:22:49 GMT

Morning ladies !!

Ok... well I went to the liver spec yesterday. She was very nice and went over everything then turned to me and asked what questions I had... I said.. so what do I do? She said... "you live your life". She explained that this is not that uncommon and that it could stay at the stage 3 for many many years and that it may never go into stage 4 cihrosis. She said I should be monitored every 6 months with blood draws and ultra sounds and if any changes we would proceed from there. She did tell me it would help if I would lose about 25 lbs and did more excersise. She also said I should have another liver bx in 5 yrs unless things change dramaticaly. I felt like a huge boulder was lifted off my shoulders. She also said that she is not certain that the tamox caused this issue and that taking care of not getting cancer again is more important at this stage. I explained that I am not comfortable with going back on the tamox and will prob have the ooph.
Sooooooooo that being said, I did sleep a bit better last night. My back is still bothering me but seems to be a tad better.
Tomorrow I have my scope down the throat so will be off work all day. Hopefully this is the last of the "big" test.

Thank you all again for being "with" me through this.
Love you all,
Grace

Re:Hoping to have a resolution on Wed (Tricia Keegan)

Fri, 06 Jan 2012 12:17:00 GMT

Grace I'm so glad you got an earlier appt and think the ooph is the way to go too, keep us posted on what the Dr says Monday!

Re:Hoping to have a resolution on Wed (ElaineQW)

Fri, 06 Jan 2012 10:43:16 GMT

Grace -

Good to hear from you and sooooo glad that you got an appt for Monday!

I too have chronic back pain which is eased by a lumbar epidural every three months. Mornings are the worst. Just want to stay off the operating table! :)

Let us know what gives after your appt on Monday.

Hug
Elaine

Re:Hoping to have a resolution on Wed (mary l)

Fri, 06 Jan 2012 10:30:28 GMT

Grace, I am so glad that your onc was able to get you an appointment for Monday. It is hard to have to wait especially when you are worrying. That was good news!!!

What is going on with your back? I have low back pain and mine was diagnosed as ossteoporis. I had never had back pain like this before. Hope you back feels better. I will be thinking about you on Monday. I'll be in the waiting room. Hugs, Mary

Re:Hoping to have a resolution on Wed (Army Mom)

Fri, 06 Jan 2012 10:03:06 GMT

I am here !! So sorry ladies... I am a tad out of sorts this week. I am having major back issues and could not even go to work Tues or Wed... I came in yesterday and this morning but it is even worse. UGH.

Anyway... So, I see my Onco Wed. I told him about the liver bx and outcome. Also told him that they are ref me to thier liver specialist in the practice and that they can not get me in until March.. ohhhh Dr. Mahajan did not like that one bit. So, we discussed going to Mayo here in Jax. Unfortunatly it is out of network thru my insurance so instead of a 2000. deductable it would be 4000. As much as I would like to go to one of thier doctors, I just don't have the funds to do so. Dr. M called the gastro doc and told him he wanted me to see the liver specialist ASAP. They said they would see what they could do. Still no word. I may just look into another at Baptist hospital. We also discussed options as I told him I would not go back on the tamoxafin. He agreed and said my options were the Luprin shots or an Ooph. I think I will go for the Ooph and just get it over with.
I also told him how discouranged I was feeling about all of this. I have never been a drinker and have never done drugs except for prescriptions etc. He said that it can happen to anyone even when not a drinker etc.
OHHH I just got a call from the Gastro doctor's nurse. Seem's my wonderful Dr. Mahajan's call to them got me an appointment with the liver specialist on Monday !!! I love it when a plan comes together !!
Anyway, so glad and I am feeling a bit better about all of it. I just hate not knowing the "plan of action".
I will be having a scope on Wed to rule out any issues with the small intestine. Gonna be a busy week !!

Grace

Re:Hoping to have a resolution on Wed (ElaineQW)

Thu, 05 Jan 2012 15:49:06 GMT

Anyone heard from Grace?

Hug
Elaine

Re:Hoping to have a resolution on Wed (mary l)

Thu, 05 Jan 2012 15:43:08 GMT

Cathy, when I was diagnosed I also went to a well known cancer center. I felt exactly the same as you do. I did my chemo there and had my mastectomy done there. I came back to my wonderful cancer that is 5 miles down the street and did my radiation and when my cancer recurred, I did my chemo for several years. I love my cancer center and my wonderful oncologist.

I had problems with depression when I went through my original treatment. I saw a grief counselor and I joined a support group for cancer patients and survivors. It really helped me a lot and I met so many women who were going through what I was. I also was prescribed an antidepressant which helped me a lot. It is not unusual to go through this.

I agree with the others that PT will help you restore your range of motion. I worked in PT so I knew what I needed to do and I had no problems with that.

I wish you the best and hope you will soon be feeling better. Keep us posted, OK? Mary

Re:Hoping to have a resolution on Wed (ElaineQW)

Thu, 05 Jan 2012 15:21:54 GMT

Grace - What up?

Hug
Elaine

Re:Hoping to have a resolution on Wed (Tricia Keegan)

Thu, 05 Jan 2012 13:44:27 GMT

Cathy,

I don't like to be aggressive either as think most Dr's and nurses etc do a wonderful job but there are times when he who shouts loudest gets his needs met so it may be time to kick some ass and demand the tx you need hard as it may be!