I was diagnosed with ILC on 2/4/04. (I just responded to the "Invasive Lobular Club" message board as well.)
On 2/24/04 I had a lumpectomy in my left breast w/ sentinel node biopsy and biopsy of right breast because of fear of bilateral breast cancer. I will get results on 3/3/04. This will determine whether I need chemo (and/or mastectomy.)
Unfortunately, this cancer is not as common and I am desperate for information on bilateral ILC and survival rates. My limited advice is to make sure that you go to a "BREAST SURGEON" for your surgery, NOT a general surgeon.
Good luck to you.
I am happy to talk with you directly. My email is email@example.com
if you want to email me.
>>with breast cancer. My ultra-sound, needle-guided biopsy said my
>tumor was 1.7 cm so I was hoping for a lumpectomy, radiation and
>possibly chemotherapy if necessary. Today when I met with the
>surgeron, he told me that I have have "infiltrating lobular
>carcinoma", and recommends a mastectomy because he won't be able to
>get clear margins with a lumpectomy as the cancer is kind of
>scattered throughout the upper portion of my breast. He also said
>that my other breast may be affected and I'll be having an ultrasound
>on that side. I'm looking at bi-lateral mastectomy. I don't know how
>I'm staged yet and they won't know until I have surgery and pathology
>is done on my nodes and the tumor. From what I'm understanding, this
>cancer doesn't always show up on a mammogram as a lump, just as
>thickening, and I've had lumpy breasts for years. I had a mammogram 8
>months ago and was cleared of any abnormality, even though I went to
>the doctor specifically with a palpable lump. Does anyone know about
>this kind of