Hi Peggy,
 
I'm sorry for the delay in replying to you but I had no internet connection the past few weeks which drove me crazy.  I also get a lot of stiffness and joint pain but mine is due to Arimidex and getting older I think lol...do you take hormone therapy??  I found it did ease a little by taking Glucosamine/chondroitin daily too!

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Sorry to bear bad news, but Monique lost her battle with cancer last week; here is the Facebook link re: services, this Fri at 10am: https://www.facebook.com/events/185100668282985/ "Monique's Service will be held on friday the 15th at Water of Life church in Heritage. We would appreciate if you could let us know if you can attend or not on here, we are trying to get a head count. There will be a website to view photos as well as leave a message for her. Thank you." Suzanne Nelson

Her full name: Monique Johnson Lackey

Suzz sadly most of us knew about Monique's passing and I have a thread on sound off about it:(

Thanks for posting the funeral arrangements and our thoughts are with her family at this sad time:( xx

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Its a long time since anyone posted, how are you all doing ladies??

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

I'm very unfaithful on this board, sorry! But I am doing 'maintenance' treatment with Faslodex & zometa monthly and still working full time. My thyroid is worse than it used to be, but most of the synthetic meds give me side effects so I'm not taking anything for it right now. I noticed more joint/bone pain when I was on Femara. I was told frankly that my joints will hurt when I exercise even on Faslodex, but I need to to do it much more than I am! I had been faithfully doing the recumbent bike but got out of it when taking care of my hubby (he had a sudden blockage in an artery...something similar to what killed John Ritter a few years ago...very rare artery to block, only 100 cases, etc...2 surgeries in Sept and 3 weeks in hospital, and I'm just so glad he's survived it! Now we are both survivors of something! But he's still had chronic diarrhea since being released and losing weight...so I'm concerned about that and open for any tips, as "they" are still trying to figure out when he will 'firm up.' Whew...sorry so long!

10/3/6 DX 1.1cm IDC +DCIS
Lumpectomy 10/26/6; SNB clear; ER/PR+; HER2neu-
Radiation/Mammosite 11/6-11/10/6
Alternative IV vitamin C infusions for over 1 yr
10/22/8-Bone mets to spine/sacrum@L5/S1&2,  fracture S1&S2
22 rads 11/24-12/24/8; 4 T/C chemo 1/22/9-3/26/9
BRCA1&2 neg
Monthly Zometa started 4/30/9 for 1-2 yrs
Femara 5/15/9; OOPH 6/26/09
5/2010: 12+ new spinal mets; swapped Femera for Faslodex

Good to see you here Suz and to know you're hanging in there!  I'm sure it's not easy.  So sorry to hear about your husband -- thank God they were able to hep him.  What more can I say?  Sometimes there just aren't any words and I don't understand why we get blindsided, some of us more than others  Ugh!

I hope all goes well from here forward. 

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 

Suzz I don't know where you get the energy and I get tired just reading your posts!!:) I'm so sorry to read about your husband and must have missed that on FB some how as I'm not getting everyone's posts I feel. Thank Goodness he survived although I do hope they get that problem under control soon, sending my best wishes to you both. xx

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

I started faslodex a month ago and got shots on day 1, day 15, and day 30 last Monday. Since those injections I've been in extreme pain in my left leg. I have metastasis in my pelvis, left femur, and lumbar spine. When I got the last 2 injections I had pain and soreness from the waist down but nothing like this. Last Thursday I could hardly put any weight on my leg and had to use crutches. Today I went to my oncologist and got an IV morphine injection. I'm already on Oxycontin 20mg two times a day, and Vicodin as needed. With this pain it's been every 4 hours, which isn't helping at all. The morphin helped minimally. I think now my sciatic nerve is irritated. I've had sciatica before cancer so it easily starts up. I was wondering if anyone else had this much pain with Faslodex. I'm really scared to get the next one. I had some pain in my left hip before the injection but nothing like this. I was getting around pretty well. I feel like I'm back to step one now bc I just got my right hip and pelvis straightened out enough to not need crutches and limp so bad. Thanks!

Wonderful husband, Jim, four dogs, and 8 cats and bubbies on the way!Living on the shore of Delaware.
Dx 11/4/08 triple neg.
Lumpectomy L breast 11/19/08 4.5 cm
3 lymph nodes +
Mastectomy 12/10/08
Chemo started 1/15/09 6 rounds ACT
Done 4/30/09 Yea!
Radiation 33 treatments starting 6/1/09
Done 7/21/09
Expanders 10/6/09
Implants 10/7/10
8/11 metastasis bones, Arimidex
9/12