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NEW HELPLINE! Breast Cancer Clinical Trial Information Thursday, June 01, 2017 12:46 PM

On June 1, Susan G. Komen launched its new Breast Cancer Clinical Trial Information Helpline for breast cancer patients and their loved ones. This helpline aims to 1) increase understanding of breast cancer clinical trials; 2) empower patients with information and resources they need to make an educated decision about clinical trial enrollment; and 3) make it easier for breast cancer patients to participate in and potentially benefit from, promising research. Komen’s Bold Goal is to reduce the current number of breast cancer deaths by 50% in the U.S. by 2026. Clinical trials are critical to the development of new cancer therapies and can help us work toward that goal. Yet very few breast cancer patients participate in clinical trials, either because they’re unaware of trials, are overwhelmed by the information they’re receiving, or not sure how to bring up the subject with their doctors. This Clinical Trial Information Helpline is here to help patients and loved ones get the answers they need, and potentially advance breast cancer research. The service is provided in Spanish and English, Monday – Friday from 9:00 a.m. – 10:00 p.m. ET. This helpline is answered by the current Komen Breast Care Helpline staff and the number is the same – 1-877 GO KOMEN (465-6636). Callers will hear the options for both helplines.

Komen Breast Cancer Group on FaceBook Tuesday, November 29, 2016 11:41 AM

Welcome! My name is Tricia and many of you already know me as the Message Board moderator. While we have great information and support here, I also wanted to let you know about another great resource we have available. I also moderate a closed Komen Breast Cancer Group on FaceBook. This group is for those with breast cancer, their family members and friends as well as those at risk of developing breast cancer and is for the purpose of supporting those living with breast cancer. You can find it here (https://www.facebook.com/groups/1588741974737166/ or you can search for "Komen Breast Cancer Group" on Facebook). We hope you will find this group to be another valuable source of friendship, comfort and support.

**Please Read** Important message regarding the use of our forums! Monday, July 07, 2014 3:03 PM

The komen.org Message Board forums are ONLY for those with breast cancer and their family members and friends as well as those at risk of developing breast cancer, and are for the purpose of supporting those living with breast cancer. These forums are not for use by industry or the media. We are not research subjects, so these forums are not for use by researchers. If you have questions about these forums, please use our Contact Us page located at ww5.komen.org/contact.aspx.

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Welcome to the Komen Forums
Access the most frequently asked questions (FAQ's) / Read Moderator T&C's
9 9 Link for Komen main site..
Friday, June 19, 2015 4:41 AM
Tricia Keegan 

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Introduce Yourself (1 visitors)
Share your stories about how breast cancer has touched your life, as either a survivor or co-survivor. Susan G. Komen also offers a breast care helpline at 1-877 GO KOMEN (1-877-465-6636).
2815 14026 Re:ONCOTYPE DX..
Friday, December 23, 2016 4:38 PM
Tricia Keegan 
Moderators Tricia Keegan
Family/Friends & Caregivers (Co-Survivors)
Share your unique experiences and challenges as a family member, friend or caregiver for those living with breast cancer.
2584 7777 Re:concern about a friend's st..
Thursday, November 24, 2016 3:07 PM
jillh 
Moderators Tricia Keegan
Women at Higher Risk of Breast Cancer
A place for women to share their stories and talk to other women about their fears, and challenges for being at higher risk of breast cancer.
32 155 Re:Insurance denied biopsy aft..
Thursday, August 25, 2016 5:08 PM
Tricia Keegan 

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Surgery/Reconstruction (1 visitors)
Share your experiences, thoughts and advice on surgeries and reconstruction.
693 5438 Re:post-surgery tips..
Saturday, September 10, 2016 8:07 PM
SarahP31 
Moderators Tricia Keegan
Chemotherapy
What are your experiences with Chemotherapy?
603 9167 Re:My tips for chemo.....
Saturday, May 27, 2017 9:33 AM
nikkiw1973 
Moderators Tricia Keegan
Radiation (2 visitors)
Discuss your experiences with Radiation Therapy, including side effects and benefits.
184 2195 Re:Radiation Lumps..
Tuesday, May 16, 2017 12:33 PM
Tricia Keegan 
Moderators Tricia Keegan
Hormone Treatment (2 visitors)
Share your thoughts and experiences on Hormone Treatment, such as how you prepare, side effects experienced, and benefits.
308 2249 Re:Ibrance..
Monday, March 27, 2017 2:13 PM
Tricia Keegan 
Moderators Tricia Keegan
Dealing with Insurance, Employment and Disability (1 visitors)
Discuss how being a breast cancer survivor or co-survivor impacts your career/job, health insurance issues, and how you deal with long-term and social security issues.
93 525 Re:PATIENT ADVOCATE INFORMATIO..
Thursday, September 01, 2016 10:05 PM
Nate jacob 
Moderators Tricia Keegan
Targeted Therapy
Discuss your experiences and thoughts on targeted therapies such as the drugs trastuzumab (Herceptin) and lapatinib (Tykerb®).
12 26 Re:Kadcyla..
Saturday, May 27, 2017 1:39 PM
Tricia Keegan 
Moderators Tricia Keegan
List of Upcoming Surgeries
Review a list of upcoming surgeries scheduled for Komen Message Board Members, post your well wishes and provide support to those in "Komenville."
84 1105 Re:April 2013 Surgery..
Thursday, July 16, 2015 3:52 AM
Tricia Keegan 

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Sound Off! (1 visitors)
Express your thoughts or feelings here on other subjects related to breast cancer.
30248 274942 Re:How to deal with an insensi..
Sunday, April 30, 2017 9:51 AM
scootersmom 
Moderators Tricia Keegan
Fun and Games
Word games and other fun exercises to offer a temporary distraction from today's stressful moments.
65 5291 Re:New Message Board Game Idea..
Tuesday, November 15, 2016 9:24 AM
Tricia Keegan 

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Finding a New Normal
Share your experiences and advice on how you deal with life's daily challenges, including how you find a new routine of life while you deal with breast cancer.
4491 18436 Re:Finding a New Routine that..
Thursday, November 05, 2015 3:40 PM
Tricia Keegan 
Moderators Tricia Keegan
Healthful Living
Share your recipes and other ideas for nutritious living as well as ways you find to stay physically fit while dealing with breast cancer.
216 1778 Re:Really Need Your Guys Help..
Friday, August 12, 2016 3:33 AM
Nate jacob 
Moderators Tricia Keegan
Living with Persistent Side Effects
How do you adjust to persistent side effects while dealing with the problems experienced with breast cancer and breast cancer treatment?
76 539 Re:RIBP & CIPN - Nerve Damage..
Saturday, May 27, 2017 1:42 PM
Tricia Keegan 
Moderators Tricia Keegan
Young BC Survivors
What are your experiences with being a young breast cancer survivor?
895 3739 Breast Cancer in Women Younger..
Tuesday, April 29, 2014 11:13 AM
Komen Admin 
Moderators Tricia Keegan
Survivors of Less Common Cancers (Triple Neg / HER2+ / IBC)
Discuss experiences, thoughts and advice for dealing with rare breast cancer types such as Triple Negative Breast Cancer or Inflammatory Breast Cancer.
75 1778 Re:Her2 Positive and need info..
Saturday, May 27, 2017 1:41 PM
Tricia Keegan 
Moderators Tricia Keegan
Integrative and Complementary Therapies (1 visitors)
Discuss your experiences and thoughts on complementary therapies (also called integrative therapies) such as acupuncture, herbs and other holistic approaches used in addition to standard treatments.
54 410 Re:Alterative Treatments to Ch..
Friday, February 06, 2015 7:04 PM
Nuzzys Nana 
Moderators Tricia Keegan
Men Can Get Breast Cancer Too
Talk to other male breast cancer survivors about the challenges of living with breast cancer.
10 21 Re:Komen Perspectives - Breast..
Friday, August 12, 2016 3:37 AM
Nate jacob 

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Living with Stage IV Breast Cancer (1 visitors)
Share your unique concerns and experiences about living with metastatic (stage IV/advanced) breast cancer.
198 5817 Re:Stage iv?? This thread is..
Monday, April 24, 2017 12:46 PM
Tricia Keegan 

  Forum Description Topics Posts Last Post
Moderators Tricia Keegan
Clinical Trials
Clinical trials provide essential information about the safety and effectiveness of new and developing therapies and medical procedures.
217 326 FDA First,Keytruda approved fo..
Monday, May 29, 2017 7:51 PM
christine1111111 
Breast Cancer News/New Developments
Read about new developments, breakthroughs and discoveries in the fight against breast cancer.
644 646 New Komen Perspectives Article..
Monday, June 06, 2016 9:23 AM
Komen Admin 
Moderators Tricia Keegan
What am I doing to educate others?
Share what you are doing to raise awareness or funds for the fight. What are some creative ways you can share with how you educate others about this disease?
61 115 What you need to know: The tru..
Wednesday, October 14, 2015 8:42 AM
Komen Admin 


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