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 Radiation Anxiety
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testRachel Esther

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Relax! - Saturday, January 28, 2006 7:59 AM
> >I had my first consultation with the radiology oncologist
> tuesday. He seems ok, answered all my questions and took
> lots of time with me. He said they will do a CT scan to help
> plan the radiation. He also said I will have a small area of
> my lung pemanently damaged due to the way they have to
> radiate (he said most people never notice it, even it they
> are exercising). He also said because I had chemo, I will
> probably have more fatigue than someone who didn't have
>
> I have my last taxol treatment on the 1st, and I think I am
> more afraid of radiation than I was of chemo.
>
> The doctors all act like all the treatments are no big deal,
> so I don't have alot of faith in any of them. He said very
> few of his patients get burns.
>
> Anybody have any advice? What can I expect? Is it easier
> than chemo?
>
> Thanks


For me, radiation was a BREEZE, a walk in the park, a day at the beach!

The rads do not hurt when you are getting them - like an xray at the dentist, you don't feel a thing.

You will probably get an itchy rash about 4 weeks into it. Annoying, but not terrible. Use hydrocortisone cream.

I got red, sensitive, like a bad sunburn, in the last week of rads, and it continued to get worse for 2 more weeks, then went away. It was ok, I got silver sulfadiazine for the burning.

During the ENTIRE time, from Day 1, you must moisturize. Morning, evening, and after your radiation. You can use Biafine, or Eucerin, or whatever your rad onc suggests. But use it religiously.

If you had a lumpectomy, and your breast skin touches your other skin at the crease, the place where the skin touches is a prime place for irritation, and you must be extra careful to prevent rubbing. And in any case, wearing a bra makes for irritation around the bottom as it is tight. You are much better off not wearing a bra during this time. I wore soft cotton tank tops with over shirts to disguise the floppiness, and that is what alot of women do.

I never got tired, never had any other side effects.

Good luck! I think you are going to be pleasantly surprised by what a non-event the radiation is.

Rachel
G. Mensing

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Re: Re: Radiation Anxiety - Friday, January 27, 2006 1:41 PM
Dear C. Roberts,
I just completed my last of 30 radiation treatments on January 16th. I too was terrified of the long term effects of radiation. I had to will myself to show up every day for the treatment. I had to come in for a simulation at which time they did the CT scan and then mapped out the areas they would irradiate. It is not that the treatment itself is difficult, it is quite easy and only lasted 10 to 15 minutes a time after they first set things up. I had a harder time with radiation than with chemo probably because of all the years I have been told to stay out of the sun and that radiation is bad for you. Emotionally, it was more difficult for me. I was very afraid to damage my lung. So far, I only had a cough for a few weeks. I have very light brown skin. It turned very dark in the area under the arm and to the outside of my right breast which is where I was treated. I also had the supraclavicular area treated. Where my shoulder folded when I held it in position is where I had the worst burn. It did not blister, only peeled. You can email me if you want more details.
G. Mensing
Tricia Keegan

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Re: Re: Radiation Anxiety - Friday, January 27, 2006 2:19 PM
HI Cherie
I just want to wish you well with your Rad treatments.I finish chemo next Mon week so due to begin Rads in roughly a month from then so was glad you put this post up as all the positive feedback has reassured me too.Please let me know how you get on.Good luck and hope it is a breeze for you.:)
Tricia


> >Hi there C. Roberts,
>
> I really do hope that your radiation is not hard for you. It
> is totally different than chemo that is for sure.
>
> I think like everything else it depends on each individual.
> I had a little bit harder time than some and kind of felt
> bad because I heard so much about it being a breeze and sooo
>
> For some it is. The every day thing got to me. I had more
> skin reaction than some and not as much as others but for me
> it was tricky. I was up on the table for a minumum of 25
> minutes and sometimes on days they took x rays it was 45
> minutes or so. I had 6 fields a day radiated which not
> everyone has that many. I would find out how long they
> predict you being on the table.I took Ibuprofin on the long
>
> I faithfully did the lotions too which helped a lot. I was
> told that for some of us our skin is going to break down no
> matter what we do, but this keeps it from being any harder
> than it needs to be.
>
> I wish you all the best and if you need any more support
>
> Jodi :)
>
>
>
>
>
>
>
>
> > >I had my first consultation with the radiology oncologist
> > tuesday. He seems ok, answered all my questions and took
> > lots of time with me. He said they will do a CT scan to
> help
> > plan the radiation. He also said I will have a small area
> of
> > my lung pemanently damaged due to the way they have to
> > radiate (he said most people never notice it, even it they
> > are exercising). He also said because I had chemo, I will
> > probably have more fatigue than someone who didn't have
> >
> > I have my last taxol treatment on the 1st, and I think I
> am
> > more afraid of radiation than I was of chemo.
> >
> > The doctors all act like all the treatments are no big
> deal,
> > so I don't have alot of faith in any of them. He said very
> > few of his patients get burns.
> >
> > Anybody have any advice? What can I expect? Is it easier
> > than chemo?
> >
> > Thanks
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Peggy70

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Re: Radiation Anxiety - Tuesday, March 10, 2015 3:01 PM
I am having surgery tomorrow and the radiation treatments are scaring me more than the surgery!   I had no idea your lung could get damaged.   I have stage 0 dcis and chose lumpectomy but now wondering if i should have had mastectomy?   Any advise welcomed!
Tricia Keegan

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Re: Radiation Anxiety - Wednesday, March 11, 2015 6:05 AM
The chances of any lung or heart damage is slim to none really and these machines are very precise indeed, they have to tell you all the risks of course but the worst I had was a slight cough ten days in which only lasted a few days. Some of these posts you're reading are up to ten years out of date so hope this reassures you and good luck.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Peggy70

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Re: Radiation Anxiety - Monday, April 13, 2015 6:20 AM
Thank you!
<message edited by Peggy70 on Monday, April 13, 2015 6:22 AM>
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