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 Triple Negative-How are you doing?
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Sadie Rose

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Re:Triple Negative-How are you doing? - Thursday, July 08, 2010 7:54 PM
Hi Lisa,
I bet it could be lymphedema.  I didn't have any trouble with it until about a year ago so that was my five year mark.  My oncologist suggested a bra that didn't cut in.  Early on before I even had a concern with lymphedema she sent me to a lymphedema specialist who taught me exercises and massage techniques to lessen fluid build up.  I use them early on when I feel any pressure to prevent discomfort.  Salt really impacts the build up too.  I hope that is all it is because there are things to do to help.  They also suggest wearing an arm sleeve especially if you fly anywhere. 

Warmly,
Sadie

<message edited by Sadie Rose on Thursday, July 08, 2010 7:56 PM>
sazbro

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Re:Triple Negative-How are you doing? - Thursday, July 08, 2010 8:09 PM
Hi everyone

Just checking in.   I have my last day of radiation Monday, then it's my three month checkup in August.
Diagnosed 7/16/09 Triple negative, stage 3,
A/C 4 rounds 10/16/09
Taxotere 4 rounds 1/8/10 last round 3/12/10, partial mastectomy, 4/19/10,6 out of 11 nodes positive, 33 rads ending 7/12/10.
Sadie Rose

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Re:Triple Negative-How are you doing? - Thursday, July 08, 2010 10:13 PM
Sazbro,
    
Thanks for checking in.  Monday is your last radiation treatment!!  I hope you get to plan something fun to do with your new spare time.  How are you feeling energy wise?  I took off to the beach after my last treatment.  I mostly stayed inside reading a book, but it felt so healing to be by the water and fresh air.  I think we have to have the cheerleaders come to cheer you to the finish line.



Warmly,
Sadie





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Scooter123

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Re:Triple Negative-How are you doing? - Friday, July 09, 2010 9:05 AM
Checking in...All's well here.  I see the onc on 21 July for my regular 4 month check and don't expect any problems.  (God willing.)  I've been visiting my mom in Iowa, so it's been a nice break from the heat we'd been having at home.  Glad to hear everyone is doing well. 

Anna
<message edited by Scooter123 on Friday, July 09, 2010 9:07 AM>
Dx 8/2008,  IDC,  3.6 cm,  Grade 3,
0/8 nodes,  Stage II,  ER-PR-HER2-, 
Epirubicin/Cytoxan X  4,  Taxotere X 3









Diamond2Wheels

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Re:Triple Negative-How are you doing? - Friday, July 09, 2010 4:01 PM
Hi...Tia here...and  dx with TNBC 2/2006. 
 
Lots of surgery Loads of Chemo ...Mastectomy 5/2010
Just went into the lottery for the PARP inhibitor Clinical Trial TODAY!  I'm excited, yes...but really NO...it only means MORE chemo GEMZAR and CARBO...along with this PARP inhibitor which is going to destroy the gene that mutates and makes the cancer!  This PARP was designed for TNBC patients!  Crossing fingers!!! The drug itself is called INIPARIB.
 
Meahwhile since I got a RADICAL mastectomy in May...I thought it would be best to get to  radiation therapy...however, 3rd treatment I was hospitalized - couldn't breathe and my neck was feeling like it wasn't screwed on right!  Huge head and neck problems...DO said I could use some Xanex...Not a drug/pain killer kind of person...I'd rather feel the pain so I know I'm still here!  AND to feel what my body is telling me! 
 
Anyway, Left MSKCC where I originally was getting the rads...and went to a local radiologist...I do not give up!  Sim is this Tuesday. 
 
Do not know when I'll be picked for the lottery but the lab where I applied is one of the first in the country and there are only two OTHER candidates...so, it looks good...time will tell.
 
With other prior complications before surgery...The TNBC spread to my other side (lymph node) and to my lungs 6mm & 7mm and 3 other nodules measuring under 2mm.
 
Hey Lance got over his cancer.  I can too!  Lance not only had the manly cancer down there but also spread to his brain and his lungs...he is a walking miracle! 
 
Great inspiration isn't he?
 
Hope all is well with everyone here who has TNBC...I am also on the TNBC Foundation site where there are MANY of us TNBC and surviving just wonderfully!
 
Have a nice weekend...headded to Jones Beach for a concert!
 
 
 
 
Peace & Hugs of Love,
Tia
LRM216

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Re:Triple Negative-How are you doing? - Friday, July 09, 2010 7:44 PM
Rena and Sadie - ah - thank you - the two of you always lighten my load!  I look forward to the day I can just live it without pushing cancer out of my mind many times a day!

To all others - so glad to hear you are all doing well.  May we all enjoy the rest of the summer uneventfully!

Tia - Sending you nothing but the best of wishes.  I want it all to go away - forever - for you. 
 
Linda
...and miles to go before I sleep. 

Linda - diagnosed 2/23/09, age 62, IDC 1.2 cm, stage 1, grade III, 0/1 nodes, ER-PR- 2her-, Lumpectomy 3/25/09, reexcision 4/8/09 for clean margins.
4 DD A/C and 1 DD Taxol, switched to 3 DD Taxotere, rads x 33.
Gail Srebnik

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Re:Triple Negative-How are you doing? - Tuesday, July 13, 2010 5:52 PM
Hi fabulous triples! I have not had internet from our home here in Colorado until today!!!!! Of course we leave tomorrow. First to Berkeley and Sf and then driving up the coast to Eugene,OR. From there up to Seattle and Vancouver,BC and back to Colorado by August 5. We will be in Eugene from July 20 through August 1. I plan to see Sadie and Nuzzys Grandma and anyone else who lets me know where they are on my path. I am doing well and have a oncology visit back here on August 12. That will be 4 years since diagnosis of bc. I am having blood work done a few days before and pray for it to show that the CLL is leaving my body; or totally gone. I will be happy with just a slight elevation in my wbc count but since I am working on miracles I do believe it is gone! I always think of you all and hope today has been a good one for all.
Blessings, Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade
Nuzzys Nana

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Re:Triple Negative-How are you doing? - Tuesday, July 13, 2010 7:50 PM
Gail,
 
I am busy until noon on July 24 and on the 31st I am supposed to pick someone up at the airport. Just let me know ahead of time what your itinerary is between here and Seattle. I hope Sadie can join us too.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History
Diamond2Wheels

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Re:Triple Negative-How are you doing? - Tuesday, July 13, 2010 7:57 PM

Thank you Linda!  That is very sweet of you to include me in your mail.

I am also hoping this all goes away.  I've been fighting this since 2006 and now that I had a mastectomy on the left side everything seemed to go haywire and it went to my lungs....I don't know if radiation is the answer...do you or anyone you know had radiation for TNBC? 
Peace and Hugs of Love,
Tia

Peace & Hugs of Love,
Tia
DeLois

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Re:Triple Negative-How are you doing? - Tuesday, July 20, 2010 7:15 PM
Tia,
I had chemo., area where lump use to be removed and radiation. 1 yr. later all is ok.
DX Nov. 2008 RB
Triple Neg. stage 2
Chemo 2008-2009
Lump remains removed March 2009
Radiation 2009
6 month check up all clear

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