Visit Komen.org
Lower Your Risk
Prev Thread Prev Thread   Next Thread Next Thread
 Triple Negative-How are you doing?
Change Page: << < ..121122123124125126127128129130.. > | Showing page 124 of 135, messages 1231 to 1240 of 1341
Author Message
ElaineQW

  • Total Posts : 4705
  • Reward points : 10730
  • Joined: 4/1/2008
  • Location: San Diego, CA
  • Status: offline
Re:Triple Negative-How are you doing? - Saturday, February 02, 2013 7:18 AM
Hi Gail - just wanted to say it was good to see you on the site again.  Glad all is well....keep it going girl!

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





karey

  • Total Posts : 557
  • Reward points : 11690
  • Status: offline
Re:Triple Negative-How are you doing? - Sunday, February 03, 2013 12:26 AM
A couple of days ago, I just passed the five year mark since my surgery. I was reading some of these posts by triple negatives who are more than five years out and was thrilled!

I remember when I was first diagnosed and reading up on triple negative breast cancer. It was pretty frightening and yet I remember my oncologist telling me that while the prognosis can be very poor... it can also be very good for triple negatives.

My primary side-effect from cancer treatment is neuropathy in both my feet and my left hand. However, I can't completely blame chemo for that as it was getting much better until I had a ruptured brain aneurysm and stroke. Then it came back with a vengeance and has remained ever since. I was also diagnosed with type 2 diabetes about a month after I finished rads. That doesn't help the neuropathy either but the good news was it really was literally caught at onset which means it has been pretty well-managed from the beginning.

Truthfully, I have more side-effects from the brain aneurysm and stroke than I do from cancer treatment. Still... life is good!
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!
Nuzzys Nana

  • Total Posts : 4498
  • Reward points : 10085
  • Joined: 1/1/2005
  • Status: offline
Re:Triple Negative-How are you doing? - Sunday, February 03, 2013 7:39 PM
I am doing great but remember well the "poorer prognosis" that always accompanied any information regarding "triple negative" breast cancer. I believe that was due to old studies and old stats because now the mantra is "chemo works best on triple negative breast cancer" I can live with that!!!!!!!!!!
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History
ctGailco

  • Total Posts : 6
  • Reward points : 350
  • Joined: 3/27/2013
  • Status: offline
Re:Triple Negative-How are you doing? - Wednesday, March 27, 2013 7:51 PM
Hi there fabulous triples! Tricia has prompted me to resign up so we can have a virtual get together. But, of course, I wouldn't just sign on for that since I feel so close to so many of you triples. I can't promise to post often but do nudge me if I can be of help. My best to you all, Gail
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13520
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Triple Negative-How are you doing? - Wednesday, March 27, 2013 8:15 PM
Gail thank you and I'm looking forward to meeting up with everyone here at our reunion!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
DJW

  • Total Posts : 942
  • Reward points : 6180
  • Status: offline
Re:Triple Negative-How are you doing? - Wednesday, March 27, 2013 8:53 PM
Hi all, I am a five-year survivor of TNBC. There are a lot of us long- term TNBC survivors out here!
Deborah, Albuquerque, 59, 5 year survivor!!

-Diagnosis: IDC & DCIS, Stage IIb, Grade 3, Triple Negative (3/19/08)
-No family history, BRCA 1&2 neg (Jun 08)
-A/C (4 DD Apr - Jun 08), Taxol (4 Wkly Jul-Aug 08), Taxol (2 DD Oct 08)
-Modified radical mastectomy with immediate saline implant (8/19/08), 3/12 nodes positive 
-NED!!! (Nov 08)
Nuzzys Nana

  • Total Posts : 4498
  • Reward points : 10085
  • Joined: 1/1/2005
  • Status: offline
Re:Triple Negative-How are you doing? - Wednesday, March 27, 2013 9:50 PM
I will have my eighth "cancerversary" on April 14. That is the day in 2005 that I had my lumpectomy.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13520
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:Triple Negative-How are you doing? - Thursday, March 28, 2013 8:53 PM
Hi Deb and NN, huge congrats to you both and thanks for posting this and inspiring others!!!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
karey

  • Total Posts : 557
  • Reward points : 11690
  • Status: offline
Re:Triple Negative-How are you doing? - Saturday, March 30, 2013 6:54 PM
Indeed there are a lot of long-term TNBC survivors! It has been more than five years since my lumpectomy and I will be five years post-chemo on June 6th.

I remember in those early years of diagnosis, reading some pretty grim things in regards to being a triple negative. I am very glad that I had an oncologist who told me that while being a triple negative can mean a poor prognosis it also can mean a you have an excellent prognosis as it can respond extremely well to chemo and you do not have to take meds post-chemo and deal with those side-effects.

Truthfully, I do wonder about things at times even though I had no lymph node involvement but I haven't had any sort of symptoms and when I've had cerebral exams (due to a ruptured brain aneurysm in December 2009) they have looked to see if there is anything unusual other than the known brain damage and have found nothing to date.
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!
crissio

  • Total Posts : 17
  • Reward points : 650
  • Joined: 12/21/2012
  • Location: Jay, OK
  • Status: offline
Re:Triple Negative-How are you doing? - Saturday, April 20, 2013 8:59 PM
Triple Negative and almost 8 years cancer free.  I'm going for my next blood tests, x ray and mammogram in two months and expect all good news.  I hope it's all good enough that I can wait a whole year for any further onc check ups!  Haven't been able to go that long due to all my other health problems, but I think I'm finally there.  Congrats to the rest of you, too.
Change Page: << < ..121122123124125126127128129130.. > | Showing page 124 of 135, messages 1231 to 1240 of 1341

Jump to:

Icon Legend and Permission
  • New Messages
  • No New Messages
  • Hot Topic w/ New Messages
  • Hot Topic w/o New Messages
  • Locked w/ New Messages
  • Locked w/o New Messages
  • Read Message
  • Post New Thread
  • Reply to message
  • Post New Poll
  • Submit Vote
  • Post reward post
  • Delete my own posts
  • Delete my own threads
  • Rate post

© 2000-2008 ASPPlayground.NET Forum Version 3.1.5