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 Triple Negative-How are you doing?
Change Page: << < ..131132133134135 > | Showing page 134 of 135, messages 1331 to 1340 of 1341
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Tricia Keegan

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Re:Triple Negative-How are you doing? - Tuesday, November 24, 2015 5:31 PM
No, not over kill at all Gordon and as this is an aggressive cancer it's worth treating aggressively too as you only get one chance to beat this.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
gordon

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Re:Triple Negative-How are you doing? - Monday, November 30, 2015 2:50 PM
Thank you all for the replies. My wife did get her surgery's teams radio-oncologist's opinion and he want to irradiate everything but was'nt specific on what/why/. My wife's main concern is she will lose her port and she can't have it on the other side clavicle area b/c she had radiation in 2008 on other side. He said they can use the neck or ankle for a port in the future, if needed. She has lymphedema in other arm so wrist can't be used. She has collapsable veins in good wrist, hard to acess without several tries. But if she needs clavicle area nodes irradiated, that's going to be done. Do they do the under-sternum ones? The margin was clear to 1cm, which I know means not much with this aggressive cancer, after masectomy. She's getting weekly Taxol now for 12 weeks. Also, we heard a thyroid shield is a good idea? thanks for all info on this. Gordon.
Tricia Keegan

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Re:Triple Negative-How are you doing? - Tuesday, December 01, 2015 3:25 AM
Gordon I haven't heard of anyone using a thyroid shield so can't help you there, the rads are to zap any stray cells after surgery that may be lurking so is worth doing if recommended.  I can understand your wife's concern about her port, maybe she could have a PICC  line in her good arm? I had rads to three area's, under arm, breast and clavicle.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
gordon

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Re:Triple Negative-How are you doing? - Saturday, December 05, 2015 4:01 PM
Thanks for you reply. My wife doesn't think she has a "good arm" because she got lymphedema in her left arm in 2008, she does not want to get it now, in her right arm, where they took out 5 nodes, they did use her hand, near the thumb on her left arm, during surgery/masectomy. That is her lymphedema arm. The surgeons and oncologists and anestiesologiasts are trying their best to avoid he geting lempedema again in her arm, my wife just doesn't want them to use this new arem, after surgery, to avoid anothe lymphe-arm, she has a phisio-therapist availaiable if any swlling in her new arm. Apparantley, even taking blood-pressure around the thigh is not accurate, I'm sure they will decide on something... thanks.
karey

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Re:Triple Negative-How are you doing? - Saturday, December 05, 2015 11:14 PM
This wasn't for chemo but I had to have a neck port a few years ago after having a subarachnoid hemorrhage due to a ruptured brain aneurysm. According to what my husband says, they did not want to use my left arm due to the high-risk of lymphedema even though I only had two lymph nodes removed. They tried to use my right arm but due to its history of being a pin cushion over the past few years plus my physical condition, all attempts to use it failed so they did a neck port.
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!
gordon

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Re:Triple Negative-How are you doing? - Monday, December 07, 2015 6:29 PM
thanks for you reply, I will tell my wife
Three dogs

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Re:Triple Negative-How are you doing? - Wednesday, March 16, 2016 8:53 AM
I'm new to this forum.  I've actually never done a forum before.  I was diagnosed with Triple negative in January 2016.  I am on my 4th A/C chemo.  I am grade 3, Stage 2 and 3 cm tumor in left breast.  I am 56 years old and BRCA 1 and 2 negative.  I was looking for some statistics which are hard to find.  Any help?
Tricia Keegan

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Re:Triple Negative-How are you doing? - Wednesday, March 16, 2016 10:11 AM
Hi and welcome, I'm sorry for your dx but can't help with your question but I think just about all the triple neg members that were dx with me almost eleven years ago now are still doing great and enjoying life.  We often say here not to pay attention to stats as they're just a number and we all will react differently to treatments.  Good luck with the rest of yours, I had a/c too and was glad to get the last one finished.  This is a triple neg site so if you're determined to read stats they may have some here http://forum.tnbcfoundation.org/
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
nuzzysnana

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Re:Triple Negative-How are you doing? - Wednesday, March 16, 2016 7:41 PM
In April, I will reach my 11th cancerversary since diagnosis and treatment. Triple negative tumors respond very well to chemo. I found out I carried the BRCA2 mutation two years after treatment. So far, no more problems. I celebrated my 80th birthday in January and am looking forward to at least another 11 years! If you have questions you can contact me with a Private Message. Best wishes.
Diagnosed in 2005 at age 69 Two Centimeter IDC, Stage 1, Grade 3, Lumpectomy, Dose dense chemo, radiation. No family history. Tested positive for BRCA2 in 2007 Who knew?
MarciLyn

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Re:Triple Negative-How are you doing? - Thursday, May 05, 2016 6:36 PM
Was just diagnosed 2 weeks ago with Triple Negative grade 3 stage 1. Had a lumpectomy on Monday and a port placed for chemo. Things have moved so quickly, I meet with the oncologist next week to get my chemo set up. Just nice to be able to get on this site and to read about POSITIVE outcomes. "Walk in Faith not in Fear"
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