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 Triple Negative-How are you doing?
Change Page: << < ..21222324252627282930.. > | Showing page 27 of 135, messages 261 to 270 of 1341
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tupelo

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RE: Triple Negative-How are you doing? - Wednesday, August 06, 2008 2:46 AM
Thanks, Karen. I'm so glad you feel well after your first chemo... You'll be surprised at how fast it will all go by. I  look forward to you joining me on the other side!   Stay positive and drink lots of water!
 
Lisa, thanks for the welcome
Veggie

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RE: Triple Negative-How are you doing? - Wednesday, August 06, 2008 4:26 AM
Hello TN ladies!  I am so glad to find this thread.  A thread for triple negatives.  Sometimes I feel isolated being TN.  I will be getting my last chemo treatment tomorrow. (ACx4 Taxolx4.) 
I have been wondering what kind of blood tests, scans, etc I should be getting after my treatment is completed for follow-up, since there is no meds for us, yet.  Is this through the oncologist? 
This is weird.  I am happy that I am about to complete my chemo.  At the same time, I feel kinda worried. 
Rena

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RE: Triple Negative-How are you doing? - Wednesday, August 06, 2008 9:27 AM
Hi Veggie! Congratulations on finishing chemo! I think we all have had that sort of empty feeling when treatment ends--what now? People sometimes say that hormone-positive women are lucky because there's something else to treat them with. Personally, I'm glad that I did not have to take more medications after chemo. The evidence is showing that we TNs respond very well to chemo. As for follow-up tests, I won't bother telling you what my regimen was because I finished chemo in 1987, and things are done so differently now. Your oncologist will tell you what his/her approach is.

It's completely natural to feel worried. The first few years were the hardest, but then I began to relax more and really believe that I was going to be OK. And I was--and am.

Wishing you all the best,

Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
karey

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RE: Triple Negative-How are you doing? - Wednesday, August 06, 2008 9:51 AM
Hi Veggie,

I had the same chemo treatment as you. I finished chemo on June 6. While I'm not 100% sure of what your oncologist will do, I can tell you what will be happening with me.
Four weeks after chemo, I saw my oncologist again and blood work was done again. During the interim I had been sent to the radiation oncologist for a consultation and to have the radiation prep work done. The mold was made for my arm and head, I got my tattoos, etc. I also had another MUGA done and my six-month mammogram was ordered. While that was painful, I did learn that I am still NED.

All of this was done before my first follow-up visit with my medical oncologist. When I met with him, he told me my heart was doing better than pre-chemo and everything was looking good. Since I am a TN, I would be seeing him every three months for two years. After that, I'd be seeing him every six months for the next three years. This sudden ending of treatment can be scary for a lot of TN's so he was quick to tell me that if I could still contact him or come in to see him if I had any questions, problems or concerns. That was reassuring for me actually as I did not feel like I'd been sent out to ride the cancer sea on my own!

My onc does not do blood marker tests. If I really wanted them, he'd do them. However, he explained about the high number of false positives, the screenings for something that likely is not there and the stress that involves. For the most part, it sounds like these tests generally aren't recommended as they are loose cannons.
I will be having mammograms every six months. If I recall correctly, I will also be having MRI's annually. Otherwise, that's it.

There's no evidence cancer has returned since my surgery in January so I am hopeful chemo/radiation has done it's job. It better after everything it put me through!
I agree, perhaps being TN is not such a bad thing. Hormone blockers really do not sound like fun and I'm not really having any trouble at all with the chemo-induced menopause. It didn't happen until the very end of chemo and I have so few symptoms of it other than the big one that I have a feeling that too shall return, even at my age. All of the other women in my family for at least three generations have gone until their mid to late 50's and I have a feeling I'll be in that group as well.

Personally, I think Triple Negative is a terrible name. It suggests nothing but gloom and doom and I just don't think that accurately portrays us!

Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!
Gail Srebnik

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RE: Triple Negative-How are you doing? - Saturday, August 09, 2008 11:55 PM
Hi there you wonderful Triples! I think we should come up with a different name for ourselves. Maybe ..hmmmm Non -hormone involved bc.? Anyways, I'm heading out tomorrow and who knows how far we will get but Jess wantrs to have breakfast with us so we will get off later then we usually do when traveling. Hello to the newer non-hormone involed bc gals! My best to you as you move on through treatment and back to finding a healthy life. Blessings to all, Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade
Patti Schimpf

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RE: Triple Negative-How are you doing? - Sunday, August 10, 2008 4:01 PM
Hello Triple Negative Sisters,

It's been 15 months since I finished treatments and everything is going well - well, at least I thought so. However my doctor seems to think that my thyroid is causing me some fatigue and sent me to an endocrinologist who did an ultrasound on my thyroid and determined I had Hashimoto's disease and now I'll be taking a pill every morning for the rest of my life. This isn't like my multi-vitamin or my calcium pill which I CHOOSE to take - it's something I'm being told I NEED to take. I really haven't come to terms with how I feel about this yet. I've always hated it when someone told me I HAD to do something (outside of taking chemo and radiation which I CHOSE to do to save my life.)

Am I being a whiny-baby about this? Or will the pill really get my body back in sync where I start feeling not tired all the time? Anyone else taking thyroid pills? If it does help regulate my metabolism where I can see results from exercising every day, I guess it'll be wort it.

Glad to hear the rest of you are doing well.

Patti
Diagnosed Oct. 2006
Lumpectomy Nov. 20, 2006
Triple Negative
Chemo Started Dec. 2006 - Finished March 2007
Radiation Started April 2007
Got early Radiation release May 29, 2007 - DONE!!!!!

carepage: PrayersforPatti
Big D, Texas
Rena

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RE: Triple Negative-How are you doing? - Sunday, August 10, 2008 5:17 PM
Hi everyone. Patti, I'm sorry to hear about your thyroid. My sister had Graves Disease I think it's called. She's 69 now and was diagnosed in her early 20s. She's taken thyroid medication all these years and has done well. There was one side effect that she didn't know about until maybe 10 years ago: certain thyroid medications taken long-term can deplete your bones and lead to osteoporosis. She had osteoporosis, but with medication and exercise, she gained enough bone mass to be out of the osteoporitic range. If your doctor says that your medication has this side effect, you can take steps to prevent osteoporosis and not get the nasty surprise my sister got. Good luck. I'm sorry to deliver more bad news, but if you know the potential problem in advance, you can avoid it. Take care. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
jdmelo

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RE: Triple Negative-How are you doing? - Sunday, August 10, 2008 8:26 PM
hi  new here,
 
I am triple negative and starting chemo on Aug. 21.  Scared but trying to look forward.  Everyone seems to have done well with chemo.  Anhything I should look out for?  I see my oncologist tomorrow to go over everything.  Want to know I will be ok.
 
Diane
Sadie Rose

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RE: Triple Negative-How are you doing? - Sunday, August 10, 2008 8:41 PM
Hi Diane,
Welcome.  I'm glad you found this thread as you are starting out.  There is a lot of wisdom and experience from the women that post here.  I know this is a very challenging time for you.  There are a lot of us to tell you we made it through treatment and still going.  I am four years out from the end of my treatments. 
 
Please post again and tell us more about your treatment. 
 
Again, welcome.
Sadie
Gail Srebnik

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RE: Triple Negative-How are you doing? - Sunday, August 10, 2008 10:35 PM
Hi Diane! There are a lot of good suggestions of question s to ask your onc on the Komen site. I used them when I first met my doc.Ask about any clinical trials open for triple negs..don't be afraid to speak up and if you don't understand something ask that it be repeated. Try and bring someone along with you. Once things get set you'll be able to feel in control. My best to you! gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade
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