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 Triple Negative-How are you doing?
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Sadie Rose

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RE: Triple Negative-How are you doing? - Tuesday, August 19, 2008 9:55 PM
 
Hi All,


Rena- I want to wish you a very Happy Birthday!!! I hope you have a great trip. I look forward to your posts when you get back.


Cyndi- How are you doing? Have you started your treatments? I hope things are moving along for you.


Texas Granny and Patti- How are you doing?


Just want to say hi to anyone I might have missed.


Warmly,
Sadie
Texas Granny

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RE: Triple Negative-How are you doing? - Wednesday, August 20, 2008 8:51 PM
Hello Sadie
 
Thanks for asking about me - I am doing great - Had a 3 month appt with the onco the first of this month - everything looked good and the tumor markers went down - Yea.  I am still working, but this week giving much thought to retirement, but will probably change my mind next week.  It is so good to read what everyone is doing - Your trip to the coast sounded like a good change of pace.  I don't see how Gail did everything she did this summer - she was a busy lady.  My heart is heavy when the newbies join - especially the young ones with young children. 
 
Much good wishes, thoughts and prayers for everyone.
 
Texas Granny
Rena

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RE: Triple Negative-How are you doing? - Wednesday, August 20, 2008 8:57 PM
Hi all. Texas Granny, that's great news about your 3-month checkup. I just wanted to stop by and wish you all a good weekend! Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!
Sadie Rose

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RE: Triple Negative-How are you doing? - Wednesday, August 20, 2008 9:53 PM
Texas Granny,
 
What good news you had.    Everything is moving in the right direction for you.  How are you doing during recovery?  Is your energy coming back?  It takes awhile.
 
Rena- I hope you had a wonderful day!
 
Thinking of you all.
 
Warmly,
Sadie

 
karey

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RE: Triple Negative-How are you doing? - Thursday, August 21, 2008 1:40 AM
I finished rads today! yippee! I have to go in and get my glucose tested again a week from tomorrow. My blood sugar has always been in the low normal range but recently it spiked. They told me steroids taken during chemo can sometimes trigger diabetes in people who have a family history and my mom got diabetes a few years ago. On a good note, sometimes it will go back down to normal the further you move away from chemo. Also it was caught in the beginning stages, probably within weeks of onset. I knew all of those countless blood tests would come in handy sometime. This is a huge plus in my favor.

Well, I already have my plan of action started. It's a good plan regardless of the outcome. Also, if I did develop diabetes, it sounds like at this point it will be pretty easy to manage and at least treatment does not involve being sliced, diced, pickled and fried!
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!
Sadie Rose

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RE: Triple Negative-How are you doing? - Thursday, August 21, 2008 8:53 AM

Hi Karey,
I was diagnosed with diabetes after chemotherapy.  I was able to control it at first by watching my diet and increasing exercise.  Just a couple of weeks ago I had another test that shows my sugar is rising.  I have an appointment in a couple of weeks with my physician to determine a new treatment plan.  It is frustrating to finish treatment for cancer and then have a new diagnosis.  One thing positive though, it helps me focus on what I eat more.
 
I hope your sugar level just settles for you over the next few weeks.
 
Warmly,
Sadie
karey

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RE: Triple Negative-How are you doing? - Thursday, August 21, 2008 11:09 AM
Hi Sadie,

Thanks for sharing about the diabetes. I asked about this on the sound-off board but it didn't seem to really be an issue anyone faced. At least this feels much more manageable than cancer. A healthy diet and exercise is beneficial for everyone and my first line of defense actually will make me look and feel better as well as make me stronger. I can't help but think how contrary that is to chemo! [sm=whacky.gif]

This is something I knew I would probably develop eventually, chemo probably just speeded up the the ETA. This is doable but you're right, it's just one more thing. Of course, right now I feel like I can conquer the world so I'm ready for a fight!
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!
JED

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RE: Triple Negative-How are you doing? - Thursday, August 21, 2008 1:21 PM




  Hi everyone... Haven't written for awhile. I just started my chemo last Thursday and have not been doing so well. Very dragged out- Migraine h/a on friday- nausea - and VERy sensitive stomach the whole week. Lost 7 lbs- ( Not that i don't need to lose) Last night I broke my back molar and because my WBC are at 1.1 I cannot get fixed until next week when they hope the Neulasta will have kicked in.  I am just a bit anxious, because if my 1st week is going like this How will I make it through the next 4-5 mo.
 
My husband and I are fighting cancer at the same time - He has had a recent recurrence of bladder cancer and we are both wiped out. He is having surgery on 9/10 and my 3rd chemo will be on 9/11
Anyway- just whining a little- You ladies are a good source of " Keep your chin up!!



signature: Janet
56 yo, dx= 5/16/08
IDCz:Mulitfocal-1.8/1 cm- Stage 1 grade 3
Partial Mastectomy 5/30
Bilateral mastectomy- 7/8
Began A/C-8/14 w clinical trial/then taxol-12
Triple neg
Clean margins- 0 nodes
Sadie Rose

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RE: Triple Negative-How are you doing? - Friday, August 22, 2008 8:19 AM

Hi Jed,
I just wanted you to know I was thinking about you  I am so sorry your first treatment was so rough.  I wonder if you have talked to your doctor about it.  My doctor gave me three medications for nausea.  One for it was mild, one for if I was increasing in discomfort and a third one for severe nausea.  I never got to level three, but it helped me to know I had that available.
 
Everyone has different foods they liked during treatment.  I ate a lot of chicken soup,but the most soothing food for me was a tapioca I got from a health food store-Wild Oats.
 
My treatments were  every three weeks.  By the second week I was feeling better and during the third week I felt pretty normal.  Then it was time for the next treatment.  I would have my treatment on Thursday and return to work on Tuesday.  I hope things improve for you and I hope you are feeling better today.
 
Warmly,
Sadie
Kristin570

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RE: Triple Negative-How are you doing? - Friday, August 22, 2008 9:57 PM
Hi Sadie,
I know this was posted a long time ago, but I'm new here and just reading it.  I am 38, triple negative, grade 3, and BRCA 1 positive.  I am scheduled for a bilateral mastectomy on 9/19/08.  During the surgery, they will insert tissue expanders and a port.  After I heal, my treatment will be FAC every 3 weeks for 12 weeks and then Taxol weekly for 12 weeks.  After all of that, I will have my reconstruction with the TRAM flap and have my oopherectomy (maybe hysterectomy?) at that time.  My grandma and two aunts died in their 30's and 40's of metastasized breast cancer so I'm scared.  Good to see so many positive stories on this thread  :)
Kristin 39 years old
12 yr old daughter  
Diagnosed 7/3/08
BRCA 1 positive
2 cm Invasive Ductal Carcinoma
Stage 1 and Grade 3
Triple Negative
14 nodes removed and all negative
Bilateral Mastectomy - DONE 9/19/08
4 rounds FAC - DONE 1/2/09
12 rounds Taxol - DONE 3/09
TRAM Reconstruction - DONE 10/7/09
Oopherectomy/Hysterectomy - Upcoming
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