Triple Negative-How are you doing?

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Nuzzys Nana
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RE: Interloping on your thread to say hi... - Tuesday, July 29, 2008 10:05 PM
I'll add my two cents here. Gail and her sweet husband dropped by on Thursday as they were coming through my area. We visited for about an hour and then arranged to meet for lunch the next day where we all schmoozed for a couple of hours (Sadie, Gail, JoGrif, Gail's hubby and I). Yes, David was very patient - but show me a man that does not want to hear about breasts no matter what! I am looking forward to their visit next year too.
 
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Sadie Rose
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RE: Interloping on your thread to say hi... - Wednesday, July 30, 2008 4:42 PM
Hi Gail,
 
I saw your post on another thread.  Sounds like you are getting to see your son play all over town.  I bet that his schedule is a dramatic change from your usual schedule.  Did you have a nice drive to the beach?  Hope you get to see all of the sights in Portland and Eugene.
 
Warmly,
Sadie

Sadie Rose
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RE: Interloping on your thread to say hi... - Friday, August 01, 2008 8:06 AM
Good Morning Everyone,
It is Friday morning and I don't have to go to work.   I'm getting my hair cut by my friend and then I have the rest of the day to just paddle around town going to little antique shops.  I'm trying to find a
 unique piece my husband would enjoy for his birthday. 
 
Our weather has been just perfect for me here in the Northwest.  It is sunny, but not too hot.  Just the way I like it.
 
Chris- I going to read more of my book today. (The Last Lecture).  I'm going to try to catch up to where you are.
 
I'm wishing each of you a peaceful weekend.
 
Warmly,
Sadie

Rena
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RE: Interloping on your thread to say hi... - Friday, August 01, 2008 8:29 AM
Hi Sadie and everyone! Sadie, your weather sounds so nice. I wish we could have some of that down here. Fog, fog, and more fog! I hope you enjoy your antique hunting. I've been up since 3:30 am. Drove my husband to the airport at 4:45 and will be on my own (with the three cats!) for about two weeks. I don't mind so much because it's good for me to have time on my own, but the evenings sure do get lonely. I have a ton of cleaning to do. It's easier to clean when David is gone. I'll do a lot of de-cluttering and hope that David (the pack rat) doesn't notice. Tomorrow I'm driving up to Morgan Hill (near San Jose). Judy (who posts on the Sunbearz thread) is having a 60th birthday party!! Happy Birthday, Judy!! Some good news: I think I've finally found a medication that works for my hiatal hernia. I'd tried four different ones and had no relief from the heartburn, but I started on Nexium before we left on vacation, and I feel so much better. It's not perfect, but it's SO much better than before. My cousin had a 9-hour surgery yesterday as a result of years of complications from a hiatal hernia. They ended up removing a large portion of her stomach. She came through the surgery well, but it was not easy. I confess that her situation scares me. I just hope that I can keep this under control with the medication and watching my diet so that it never gets too bad. I turn 59 this month--I have two sisters, 63 and 69, and a brother, 70. I used to feel so much younger than my siblings, but as we get older, the gap seems to close. Getting old(er) is such a mixed bag: on the one hand, the old body starts doing unpleasant and uncomfortable things; on the other hand, I'm alive and relatively well and am so very lucky that I have a good life. Gee, I'm sorry for rambling this morning--must be the lack of sleep! Love to you all. I hope everyone has a wonderful weekend. Love, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Sadie Rose
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RE: Interloping on your thread to say hi... - Friday, August 01, 2008 4:21 PM
 
Rena,
Well, my perfect weather changed to rain. The flowers needed it, so it was all good, but a surprise. My new hair cut was getting drizzled on. I'm used to that though.


I woke up early this morning too for absolutely no reason.


Hope you have some fun things planned to do while your husband is gone. Don't spend all of your time cleaning.


I reread your post and see you are going to a birthday party tomorrow. Happy Birthday Judy.


I hope Nexium continues to work for you. You don't want anymore surgery. How is your cousin recovering from her surgery?


Hope your weekend and your next two weeks give you a chance to relax and
replenish your energy.


Warmly,
Sadie


Gail Srebnik
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RE: Interloping on your thread to say hi... - Friday, August 01, 2008 6:45 PM
Happy Birthday Judy! (hope I got the day right) I'm checking in and wanting to say that all is well. We have been pretty busy but when we have down time I am observing how different it is for Dave and me. He doesn't want to relax in the motel and feels we should be doing things. I sense he would rather have cut this visit short and he doesn't understnd that in some ways I am building memories with our son at every chance I get. I plan to be around a long time but none of us know when we may exit. I am grateful for whatever time I get with Jesse and in the inbetween times I always have school work along and a book. Tomorrow we will head to the ocean and hike and Dave will feel better. Jess is pretty busy tomorrow so we won't see him most likely. I had such a good time visiting with Komen sisters in portland. I wish the drive was an easier one or I'd drag Dave back there with me for another visit. I hope this finds you all doing well. Blessings,Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

Sadie Rose
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RE: Interloping on your thread to say hi... - Friday, August 01, 2008 11:13 PM
 
Hi Gail,


And Happy Birthday Judy!


Gail- glad to hear all is well. I understand your urge to build memories with your son. That is what I am trying to do with my kids and my grand babies. I want to surround them with love and positive energy so that they will always have that with them.


It must be so special to hear your son play, sing his songs, and to see how others react to him. I think music helps facilitate that transfer of loving energy. One time I was watching my son play his guitar and sing at a small ice cream shop when he was in middle school. He was belting out one of his songs, totally in his element. “One of the waitresses came up to me and said, You must be his mother. I can tell by the way you look at him.” What I was really delighting in was that he was so confident in front of people. I was a rather shy child and I had always wanted my kids to be relaxed in front of others. He's very relaxed.


I know you have formed some special memories with Jessie. He is so talented and it is always special to know that your parents are so proud of you. It must be hard to leave him when you must go such a long distance to go.


I do hope you enjoy the beach and take good care of yourself.


Warmly,
Sadie

KarenD
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RE: Triple Negative-How are you doing? - Saturday, August 02, 2008 2:05 PM
Hi Everyone,
 
Hard to believe it's the weekend again, not to mention August already (we'll probably start seeing holiday decorations in the stores soon...right next to the school supplies...and if any of you ladies are the type to have all your holiday shopping done already...I so do NOT want to know).
 
Rena, we have 3 cats (2 yr old med. haired tabby and 4 mos old kittens- orange tabby and a calico) and 2 dogs (all girls). I also live with a pack rat spouse and he has passed that trait to our daughter and they are both convinced that they simply cannot part with anything because they might need it sometime in the next millenia (and yes, I too do covert trash runs ). Hope your new medicine keeps on working for you and enjoy Judy's b-day party!
Sadie, good luck with you antique shopping. I love to go to the little shops and poke around, you never know what wonderful treasure you may find.
Gail, spending time with your hubby, your son and meeting with Komen sisters...sounds like an awesome vacation...Enjoy!
Penny, haven't "heard" from you here in awhile...hope everything is going well for you.
Nuzzy, Jill, Chris, Wendy, Barbcedar, Coco (and anyone I missed) hope you all have a wonderful weekend
 
Take care and Hugs to all,
Karen
 
 
Karen D
Wonderful Hubby and 4 terrific kids ages 17, 16, 14 and 12
Dx 6/23/08 Age 37
Lumpectomy 1.2 cm (Stage 1, Grade 3 IDC)& SNB on 6/24/08 (2 nodes, both neg)
Triple Negative
Taxotere/Cytoxan to start on 8/5/08 rads to follow

tupelo
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RE: Triple Negative-How are you doing? - Sunday, August 03, 2008 8:48 AM
I was dx'd with TNBC in 11/07. Had lumpectomy and then had to go back in for reexcision to clean the margins and have axillary node dissection because sentinel node had microscopic cancer cell. All 11 nodes taken were negative. I finished 4 A/C and 4 Taxol treatments. I have 5 more days left of my 33 radiation treatments and then I'll be finished!
So good to read all the success stories...especially Rena's...21 yrs! I do not have a family history and my oncologist didn't recommend BRCA test. However I have a sister with melanoma and am rethinking it. There is a good book called Uplift by Barbara Delinsky with all uplifting breast cancer stories... Keeping a positive attitude is key! Thanks for sharing and good luck!
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Sadie Rose
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RE: Triple Negative-How are you doing? - Sunday, August 03, 2008 8:59 AM
Hi tupledo,
Only 5 radiation treatments left, your close to the goal line.
 
I hope you plan something special to do for a few days after you finish.  I went to the beach and that was so healing.  It helped with the transition of finishing treatment and moving on to the next stage of the journey. It gave me time to refocus and to just rest.
 
If you can't go away light a candle, read a simple book, eat a favorite food, and do anything else you enjoy doing.
 
I hope these last five treatments sail by.
 
Warmly,
Sadie
 
 

Sadie Rose
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RE: Triple Negative-How are you doing? - Sunday, August 03, 2008 9:04 AM
Karen,
 
I haven't started Christmas shopping yet, but I am gathering ideas.  December is a huge month for out family.  I have two children with birthdays in December and my anniversary is in December.  The whole month if filled with celebrations so I have to get going.
 
Hope you get to wander through so antique shops soon.
 
Warmly,
Sadie

tupelo
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RE: Triple Negative-How are you doing? - Monday, August 04, 2008 10:49 AM
Thanks Sadie. When I first started to google TNBC I read stories I wasn't too thrilled about . Then I happened upon a site and I read your story and I can't tell you how relieved I was to see a success story. Then I read Rena's and I felt even more sure that I would be OK. So I thank you for sharing your positive outlook with the "newbies", although I am graduating soon and hope to be able to inspire other women just starting. The day after I complete radiation I am going away for a week in the mountains with my husband, 21 yr old daughter who will join us from college and my 15 and 13 yr old sons. What a celebration it will be..Bringing a bottle of champagne! Thanks to everyone for this forum.




Dx 11/07 Age 48
Lumpectomy 1.7 cm (Stage 2, Grade 3 IDC)& ANB in 1/08 (microscopic cell in sentinel node other 11 negative)
Triple Negative
4 A/C treatments 4 Taxol. 33 rad tx's to end 8/8/08



Rena
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RE: Triple Negative-How are you doing? - Monday, August 04, 2008 12:49 PM
Welcome, tupelo! And hi to all my other TN friends--please forgive me for not naming you all. I'm lucky if I can remember what I had for breakfast, much less all your names. But you are all distinct individuals in my mind, I promise. It's just that there's a disconnect between my mind and my typing fingers! Anyway . . .

Congrats, tupelo on being almost done. Your trip with your family sounds great, the perfect way to celebrate. I am so glad you found us because I've seen the other TN sites, too, and they are not generally very positive. There's so much to be positive about when you're negative, if you know what I mean. Karen, are we long-lost sisters? Three cats and married to pack-rats! I hope you're doing well. Sadie, how are things up in beautiful Washington? I hope you're still enjoying good weather. Gail, again, I'm so sorry about your misfortune--it's such a terrible feeling to be burglarized, and it's such a nuisance having to replace all your cards, etc. Just so glad that you and David weren't there and were not hurt. And to all of you other ladies, I hope you are well and enjoying your summer.

As I mentioned before, David is out of town for two weeks. I've gotten as far as cleaning out the fridge, but I have closets waiting for me, and I'm almost afraid to open them for fear of what I'll find. This morning, I'm going to pick up my friend Heather and go to the SPCA to visit the cats. (I know, I'm crazy) They have a new room there called "Cats in Wonderland," where the cats roam free and have all sort of toys and different levels to climb on. When we go in, some of them ignore us, but so many of them are just craving affection, so we'll have several purring cats climbing on us. After that we'll stop for lunch (after washing our hands!!). To me, that's a wonderful way to spend few hours. Then, when I get home, I have an editing job to do (that's my work--freelance copy editing), so I can avoid my closets a little bit longer!

Love to you all,

Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Sadie Rose
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RE: Triple Negative-How are you doing? - Monday, August 04, 2008 6:15 PM

Hi Rena,
 
Hope you enjoyed your day.  It must be quiet at your house in the evening.  I enjoyed your story about going to visit the cats.  We used to take our kids to visit the humane society as an outing.  We told them it was the dog and cat zoo.  We could come and play with the animals, but (we couldn't take a little critter home each time we came to visit.)
 
We are still having great weather.  The temps are starting to climb though.  We're having a simple dinner tonight so I won't be cooking. 
 
Do you edit for private writers or are you working for an agency?  I find your job intriguing.
 
Hope you have a relaxing and peaceful evening.
 
Warmly,
Sadie
.

Sadie Rose
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RE: Triple Negative-How are you doing? - Monday, August 04, 2008 6:23 PM
Hi Tupledo,
If I am counting right you only have four radiation treatments left and you will be done on Friday.  I hope you have a wonderful celebration with your family.  The timing for the end of your treatments works perfect for the kids I bet.  I am so glad you get to have that time together.
 
Warmly,
Sadie

Gail Srebnik
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RE: Triple Negative-How are you doing? - Monday, August 04, 2008 11:07 PM
Hello everyone! I am still in shock but calming down some. Thank you all for the support. Here is a link to the Triple Neg. recent confrence
If you missed the online conference, you can read the transcript here:
http://www. breastcancer. org/treatment/planning/ask_expert/2008_07/




dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

tupelo
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RE: Triple Negative-How are you doing? - Tuesday, August 05, 2008 10:38 AM
You are right, Sadie...now just 3 more left! Thanks for the good thoughts! I am sooo looking forward to Fri...thought it would never get here!

tupelo
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RE: Triple Negative-How are you doing? - Tuesday, August 05, 2008 10:51 AM
Thanks, Rena... I am almost done...I appreciate your positive thoughts!

Lisa11388
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RE: Triple Negative-How are you doing? - Tuesday, August 05, 2008 6:36 PM
Hello triple gals! 
 Lisa checking in here.  Thursday I go for my 3 month checkup, the last one before I switch to every 6 months.  Soon I will reach my 3 year anniversary.  Hopefully everything will be fine.  I'm sure it will be.  We have been busy trying to get our house ready to sell.  Lots to do, sometimes I just dont have the energy after working all day, so chipping away a little at a time.  We are hoping to move to something smaller and easier to take care of.  My 2 boys will be moving out soon, so no one to mow the yard, shovel the snow etc! 
Welcome tupelo.  Gail, sorry to hear of your misfortune.  Rena, I hope you enjoy your alone time, dont clean too much.  Hoping all of you are doing and feeling well.
Lisa Long
Central Illinois
dx 8-29-05 age 43
mast & lat flap 9-30-05
triple neg brca neg
4.5 cm node neg
6 a/c followed by 5 taxol 10/05-3/06
28 rads 5/06-6/06
Currently NED

KarenD
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RE: Triple Negative-How are you doing? - Tuesday, August 05, 2008 6:42 PM
Hi Tupelo,
Congrats on being almost doneyippee! !!! Your trip with your family sounds like a wonderful way to celebrate the end of one journey and the beginning of a new journey toward the new normal.
 
I'm at the beginning still...I just had my first chemo today and it went great (I feel great too and figure I will enjoy it while it lasts...have a feeling some things may sneak up on me in the next couple of days)....and I'm looking forward to joining you on the other side .
 
Take care,
Karen
Karen D
Wonderful Hubby and 4 terrific kids ages 17, 16, 14 and 12
Dx 6/23/08 Age 37
Lumpectomy 1.2 cm (Stage 1, Grade 3 IDC)& SNB on 6/24/08 (2 nodes, both neg)
Triple Negative
Taxotere/Cytoxan to start on 8/5/08 rads to follow

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