Triple Negative-How are you doing?

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Nuzzys Nana
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Re:Update on my wife's condition - Thursday, December 17, 2009 1:26 PM
Tom,
 
Thanks for posting your "story". I too am in a high risk group and wanted to have my ovaries removed. Unfortunately, Medicare would not pre-approve since it was a purely preventive measure. I urge anyone who wants this type of surgery to get it taken care of prior to going on Medicare. Medicare is great, it is just that it does not do much in the way of prevention.
 
I found a company that does ultra sound scans of various body "parts". It cost me $45.00 to have an ultra sound of my ovaries. They not only sent me a report but the pictures as well. So I feel this is a great alternative to surgery. What I liked most is that they do not have lots of overhead like that of a hospital clinic or imaging center. They simply come into town, set up shop in a hotel and take all paying customers. I also had my pancreas scanned for an additional $45.00. It was well worth it. BTW: the company is called Ultra Life for anyone who is interested.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Rena
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Re:Update on my wife's condition - Thursday, December 17, 2009 6:36 PM
Hi Tom. I'm so glad to hear that Geri is all right. What a scare that must have been for you both. I wish you both continued good health and happiness. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

sazbro
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Re:Update on my wife's condition - Thursday, December 17, 2009 6:45 PM
Sheryl,
I am having A/C 1 every three weeks for four rounds.I have my last round tomorrow. Then I am having 12 consecutive rounds of Taxol starting January. Surgery will be around March, April.

Make sure you stay hydrated, these chemos are very dehydrating.

Gail Srebnik
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Re:Update on my wife's condition - Friday, December 18, 2009 6:32 AM
Tom, Thank you for posting. We all benefit when people share. I have been super busy with school and not posting. I always have all my triple sisters in my heart. I wish you all the best of holidays and a new year ahead with health and joy. On a personal note my newest cholesterol test is still very elevated and I now need to get back to all the doctors and see what else I can try. I have already done so much but I may have to rish prescription drugs which I really do not want. Having balanced my life with 2 cancers I cannot 'handle' the thought of becoming a cardiac patient. Anyway, it is freezing here in CT today and I am glad to be indoors and alive!
Blessings,Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

outdoorstom
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Re:Update on my wife's condition - Friday, December 18, 2009 7:08 AM
Thanks for the kind words and support everyone.

 I didn't realize I was changing the name of this thread when I posted. Maybe the Mods can change it back to what it was?  Thanks again.
Tom


Rena
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Triple Negative: How are you doing? - Friday, December 18, 2009 8:11 AM
Tom, I've tried to change the thread's name back--we'll see if it works. Gail, Sorry about your cholesterol. Because I tend to get so many side effects from drugs, my statins are low-dose three days a week. Even a small dose seems to make a big difference. But I understand your concerns. I'd much rather not be taking drugs. In the great scheme of things, it's hard to know which is more harmful--taking them or not taking them. Rena
p.s. thank you for the lovely Hanukkah card, Gail
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Sadie Rose
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Re:Triple Negative: How are you doing? - Tuesday, December 29, 2009 10:27 PM
Hi Everyone,
I haven't been posting too much, but I wanted to drop in and say hi to everyone.  Hope you all have enjoyed the holiday season. 

Warmly,
Sadie

Gail Srebnik
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Re:Triple Negative: How are you doing? - Thursday, December 31, 2009 2:27 PM
♥ ♫♫♫☆ ░H░A░P░P░Y░☆♥°◦※◦°♥☆ ░N░E░W░☆♥°◦※◦°♥☆░Y░E░A░R░!!!! to all the fabulous triples! I hope the year finds us all in good health and spirits. Blessings,Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

Sadie Rose
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Re:Triple Negative: How are you doing? - Thursday, December 31, 2009 11:31 PM
 Happy New Year My Friends!!!!
Warmly,
Sadie

Nuzzys Nana
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Re:Triple Negative: How are you doing? - Friday, January 01, 2010 10:49 PM
Gail,
 
I just started taking a statin drug. My cholesterol level is just slightly elevated so I take the lowest dose - 5mg of simvistatin once a day. So far I have not noticed any side effects but I have only been on it about 10 days. My drugs are really starting to add up because I had to switch to a brand named prescription for my blood pressure. I had been trying various kinds and doses of generics for years and they never really controlled things.  So now I take 1 pill per day of something that costs $1.00 each and follow with a generic that also lowers my heart rate. That plus my happy pill, something to let me sleep all night, a thyroid med and various OTC concoctions are going to put me in debtors prison some day. I keep telling everyone not to grow old!
 
Happy New Year to all!!!!!!
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Gail Srebnik
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Re:Triple Negative: How are you doing? - Sunday, January 03, 2010 10:49 AM
NN, My naturapath is prescribing something similar to a statin. I don't have it yet but my cholesterol is very high and has been this way since chemo. We'll retest the end of February. I see my oncologist in a few weeks and she too is monitoring this as well as the CLL and bc. I almost expect her to push me to see a cardiologist but then again she knows my primary is a naturapath so she may not push. Meanwhile the winds are wild here today and the snow is falling and being pushed all over. I am indoors and nice and warm; going back to work tomorrow.

I hope all the fabulous triples are doing well today.
Blessings,Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

Nuzzys Nana
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Re:Triple Negative: How are you doing? - Sunday, January 03, 2010 7:36 PM
Gail,
 
I believe we have already discussed this but just in case we have not - is your thyroid operating normally? Years ago, before being diagnosed as hypo-thyroid, my cholesterol was out of control. Really high. At the time, my doctor never connected it to my thyroid. What a ditz.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

c_kusky
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Re:Triple Negative: How are you doing? - Monday, January 04, 2010 9:42 PM
I just wanted to say hello to all the ladies that are triple negative, like myself.  I am new to the posts, but have been going through surgeries/treatments since march 09.  I have finished all of my chemo 4 A/C and 4 Taxotere and was supposed to move onto radiation but had a bi-lateral mastectomy on 12/2/09 instead.  I am currently undergoing the reconstruction and I am so glad to be here for 2010!! I wish all of you nothing but beautiful and happy days ahead! We are all survivors for a reason!  Happy New Year to ALL!!!

Hugs!
Chelsea
Chelsea
Age 27,
Wife (3.5 years) to the most amazing husband in the world 
Diagnosed with Invasive Ductal Carcinoma 3/12/09, Triple Neg, Grade 3, Stage 1, Left breast, 8 rounds chemo (4 A/C mix, 4 Taxotere) Last chemo was Oct 14th!! :) Both BRAC neg & P53 neg with no family history. Had bi-lat mastectomy 12/2/09: impants 2/10/10 

Rena
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Re:Triple Negative: How are you doing? - Monday, January 04, 2010 10:38 PM
Hi Chelsea and welcome! You're so young and have so many wonderful years ahead of you. I wish you and your husband a very happy, healthy 2010.  Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

c_kusky
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Re:Triple Negative: How are you doing? - Tuesday, January 05, 2010 7:17 AM
Thank You Rena, and same to you as well.  Yes I am young, that's what all the doctors kept telling me until I was officially diagnosed.  :) Guess cancer didn't care about that too much ;) I was just so lucky that I found it on my own and had the intuition to get it checked instead of waiting.  Congratulations on being a 23 year survivor! Happy 2010!

Chelsea
Chelsea
Age 27,
Wife (3.5 years) to the most amazing husband in the world 
Diagnosed with Invasive Ductal Carcinoma 3/12/09, Triple Neg, Grade 3, Stage 1, Left breast, 8 rounds chemo (4 A/C mix, 4 Taxotere) Last chemo was Oct 14th!! :) Both BRAC neg & P53 neg with no family history. Had bi-lat mastectomy 12/2/09: impants 2/10/10 

Gail Srebnik
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Re:Triple Negative: How are you doing? - Wednesday, January 06, 2010 7:19 PM
Hi Chelsea! I am glad you posted here and as more fabulous triples check in you will find a caring group here who share and support.

Nuzzy N: My naturopath had me do some more blood work including thyroid. He has always believed that my thyroid (though never quite diagnosed) is involved in the cancers as well as the cholesterol. I hope to have the results this week. He also believes the stress I live with is tied into all these conditions.

I find that I am getting more tired than I used to be after working.  i did not get to any bc support meetings in January and tonight I skipped on bernie's group (which I love). If we had a little more financial security I would seriously retire early. Oh well...I hope this finds all of you doing well and keeping warm.
Blessings,Gail
dx 8/11/06- 58 yrs young
62! yrs young now
lumpectomy 8/22/06
triple negative!
Clinical trial -AC and taxol with Avastin
Chemo done 1/25/07
33 rads done 3/30/07
Now - leukemia! 4/7/2008 carepage-GailSrebnikMeade

Scooter123
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Re:Triple Negative: How are you doing? - Monday, January 11, 2010 1:12 PM
Hi Ladies,

I would  like to introduce myself.  I'm new to the boards, but not to BC.  My journey began in Aug. 08 with a lumpectomy and a 3.6 cm tumor.  I opted for a bilateral mastectomy and had that done in Sep 08, followed by 7 rounds of chemo. 

I decided to join after the misguided guidelines on mammograms came out .  This seems like a great place to come if you want to sound off, get advice, or to give advice if you feel you have something to offer.  It's a club I never wanted to join, but glad to have a place come.

Anna
Dx 8/2008,  IDC,  3.6 cm,  Grade 3,
0/8 nodes,  Stage II,  ER-PR-HER2-, 
Epirubicin/Cytoxan X  4,  Taxotere X 3










c_kusky
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Re:Triple Negative: How are you doing? - Tuesday, January 12, 2010 7:33 AM
Hello Anna, and welcome!
Chelsea
Age 27,
Wife (3.5 years) to the most amazing husband in the world 
Diagnosed with Invasive Ductal Carcinoma 3/12/09, Triple Neg, Grade 3, Stage 1, Left breast, 8 rounds chemo (4 A/C mix, 4 Taxotere) Last chemo was Oct 14th!! :) Both BRAC neg & P53 neg with no family history. Had bi-lat mastectomy 12/2/09: impants 2/10/10 

Bonita
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Re:Triple Negative: How are you doing? - Tuesday, January 12, 2010 2:59 PM
Welcome Anna.  this is a great place for help and support.  Glad you found us, sorry you had to.
Bonita Baker
N E Indiana
dx bc 2006
chemo and radiation
dx bc mets 2009
bc on tummy, back, lung, chest and brain
Rads on head in Nov & Dec 2009
chemo started again Dec 2009
    Zometa, Zantac, Bendadryl, Decadron and Taxol

Scooter123
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Re:Triple Negative: How are you doing? - Wednesday, January 13, 2010 8:09 AM
Chelsea and Bonita....thank you for the welcome.

Anna
Dx 8/2008,  IDC,  3.6 cm,  Grade 3,
0/8 nodes,  Stage II,  ER-PR-HER2-, 
Epirubicin/Cytoxan X  4,  Taxotere X 3










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