Triple Negative-How are you doing?

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Tricia Keegan
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Re:Triple Negative-How are you doing? - Sunday, April 21, 2013 5:02 AM
Huge congrats and love the pic!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Sadie Rose
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Re:Triple Negative-How are you doing? - Saturday, May 25, 2013 10:13 PM
Hello Everyone,
I haven't posted in a long time.  It feels good to come back and read the new posts and to see some old familiar names.  I noticed people were posting how long it had been since their diagnosis.  I was diagnosed in late 2003, but I count my years out from the end of my treatment which was in .  I am either close to 10 years out or a little over 8 years out.  

I have gotten to enjoy so much since my treatment.  My two sons got married, my daughter had twin baby girls and my oldest son also had a baby girl 6 months ago.  I just had a mammogram and all seems well.  My oncologist wants me to have an MRI in November though.  I think she is just very cautious.  

Tonight I am getting to sit by the southern Oregon Coast and listen to the waves hitting the sea shore.  It is 8:15 pm and still light outside.  I love the long days.  

Hope you are all doing well and looking forward to summer.

Warmly,
Sadie Rose


Tricia Keegan
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Re:Triple Negative-How are you doing? - Sunday, May 26, 2013 6:13 AM
Hi Sadie, its great to hear from you and to know you're doing so well! Many congrats on remaining with NED and enjoy those waves!!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Nuzzys Nana
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Re:Triple Negative-How are you doing? - Sunday, May 26, 2013 11:24 AM
I'm still here and enjoying every minute! I now have another grandson, seven months old, and my other darling will be 12 in September. So I have a lot more living to do. Best wishes to all of us.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

ctGailco
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Re:Triple Negative-How are you doing? - Sunday, May 26, 2013 1:35 PM
Sadie and Nuzzy, I hope to see you both when we get to Eugene on August 1. If it doesn't happen then I'll phone you both for a long hello talk. I am doing okay. I have surgery scheduled for mid-October to remove ovaries and tubes;and hopefully nothing more. Take care all, Gail
Life doesn't have to be perfect to be wonderful!

Nuzzys Nana
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Re:Triple Negative-How are you doing? - Sunday, May 26, 2013 4:29 PM
Gail, I did not recognize your picture. When we met a few years back your hair was shorter. Also, I believe you changed your "signature". I suppose the CT stands for Connecticut. Right?
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

karey
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Re:Triple Negative-How are you doing? - Sunday, May 26, 2013 11:54 PM
I just got the results from my most recent mammogram last week and everything appears to still be fine. Life is much slower since I had to go on disability but I actually savoring every moment of it!
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!

trkrgrl01
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Re:Triple Negative-How are you doing? - Wednesday, June 19, 2013 7:58 PM
I'M BAAACK  LOL  I was here 3 yrs ago and I am back again with stage IV cancer this time  I was diagnosed 14 yrs ago with triple negative BRCA positive breast cancer. Two mastectomys and lots of chemo and radiation later I am making my last stand. Dr appt today was a bummer, we are running out of chemo options. First time in 14 yrs that I actually feel a little depressed and that my life will be ending long before I was ready. But none of us are promised a tomorrow right? We just come to expect it. Feeling a little alone today I guess and came looking for my sisters in the fight.

Nuzzys Nana
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Re:Triple Negative-How are you doing? - Wednesday, June 19, 2013 10:22 PM
Dear 101, It is sad to read your post. I hope you have a support system that is helping you through your trial. It is disheartening to know that you have done all that could be done and still it was not enough.*******You are being so brave in reaching out to all of us here. I hope you have found joy during the past 14 years and find peace in however many days lie ahead.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

Tricia Keegan
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 5:21 AM
Hi, please give us your name so we can chat properly, I'm so sorry you've been dx with stage iv, what chemo have you done so far? there's usually still lots of options in new drugs and clinical trials etc. ...I'm sorry you feel sad today but its hardly surprising and please know we are all here for you. (((((hugs)))))
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

trkrgrl01
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 7:38 AM
My name is Julie. And today is another day :-)  In the last chemo I had the meds were gemcitibin and carboplatin. The carboplatin affected my blood counts so bad that I needed a transfusion. Before that was taxotere and cyclophosphamide cocktail. The one this coming Monday will be cisplatin and gemcitibin. If my tumor does not respond then trials are the option that is left. My tumor and affected lymph nodes are mets to the esophageal area. I am not sure that financially I can do trials since I would have to travel pretty far from home. This last year has wiped out my finances with all the copays. I cannot work and live on disability. I miss my job the most of everything I have lost. I have great friends but it's not something they have dealt with before thank God. My parents both died from cancer 8 yrs ago within months of each other. I only have a brother left who lives in a different state so we only talk on the phone.  My life these last 14 yrs has been wonderful and I have no regrets there. I should not complain now I guess. Thank you for the support. That's why I came here, I knew I would feel better

trkrgrl01
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 7:40 AM
Oh and I also recently had the cocktail Ixempra and Xeloda 2 moths before but my tumor stopped responding.

Tricia Keegan
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 9:17 AM
Hi Julie and thanks for the extra info, I assume the mets are triple negative too? in looking at the mix you've had it does appear to be resisting most of the aggressive drugs, maybe Navelbine may be an option to try perhaps. I'm sorry you've suffered so much with losing your parents to this disease as well and you're obviously very strong to have continued to fight this and I really hope your Onc can find something to give you a better response soon.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

trkrgrl01
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 10:59 AM
Thanks Tricia  Been a long road, but one with no regrets. The mets are also triple neg  I start cisplatin and gemcitabine Monday  So we will wait and see  I will let everyone know how the CT comes out. Fingers are crossed. In the end the result will be the same, but I am not ready just YET!!!  Loving life too much.

Tricia Keegan
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 12:13 PM
Good luck with the chemo and the CT Julie and keep that fighting spirit going, I just heard today that my friend with lung cancer who is six years out has just been declared cancer free by her Onc!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

trkrgrl01
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Re:Triple Negative-How are you doing? - Thursday, June 20, 2013 12:52 PM
WOW  Congrats to her  Gives us all hope and keeps us all fighting  That is truly a gift

Kristal69
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Re:Triple Negative-How are you doing? - Thursday, July 18, 2013 8:52 AM
Hi,

My name is Kristal and I am a 2 year survivor to triple negative cancer.  I am 43 years old now.  I only had a lumpectomy and chemo and radiation.  I am very large breasted and now am concerned about it coming back.  When I was first diagnosed I was told that if the cancer was in the center of my breast that I would never of found it.  I have an appointment today with my surgeon for my mammogram results and I am now thinking of having a double mastectomy and breast reconstructive surgery so I don't have to live in fear for the rest of my life.  Has anyone ever done this after all treatments have been completed.

Tricia Keegan
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Re:Triple Negative-How are you doing? - Thursday, July 18, 2013 12:09 PM
Hi Krista,

I just wanted to tell you that having a mast won't give a guarantee of  no recurrance although the risk is lessoned a little, its a big step and perhaps read our recon/surgery forums to know exactly whats involved with this. It sounds like you're doing great so far and although we all worry about recurrance I do think the further out you are the less it consumes you.  Good luck with your appt today and Mammo results!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Nuzzys Nana
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Re:Triple Negative-How are you doing? - Thursday, July 18, 2013 8:35 PM
I am an 8 year survivor of "triple negative" breast cancer. My life is good but lately I have become concerned about potential heart problems due to recent articles on the subject. I always knew that certain chemicals used in treatment could damage the heart and the effects could show up many years down the road. Also, since my bc was in my left breast I received radiation on that side. Radiation to the left breast is known to contribute to heart damage. So, the bottom line is that I am going to see a cardiologist to have an evaluation - maybe a treadmill test or whatever is deemed necessary.********* Other than that - I'm good!!!!!
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

karey
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Re:Triple Negative-How are you doing? - Friday, July 19, 2013 1:00 AM
Hi Kristal, Congratulations on reaching the two year milestone. It is a big one for TNs as our risk for recurrence goes down dramatically after that point. Like you I am very large breasted. My tumor was at 12:00 and in the middle. No, I did not detect my 3.5 cm tumor and neither did my doctor when she had done an exam a few months before. Mine was detected on a routine mammogram the end of 2007. I had a lumpectomy, chemo and radiation. Though I had considered a mastectomy, I decided against it when I learned what Tricia had said. It was no guarantee against recurrence and I decided for my own peace of mind, I wanted to be able to have mammograms. Like NN, my bc was in the left breast as well but so far any tests in relation to my heart have shown that it is fine. It is true that triple negatives have a poorer prognosis within the first two years and after surgery, chemo and radiation, we are done. However, like my oncologist told me, the bad news is we are not on meds for five years. The good news is we are not on meds for five years. As triple negatives, we often tend to look at the high risk of recurrence. What we forget is that triple negatives can also respond extremely well to chemotherapy and radiation and this is why our risk of recurrence drops so dramatically after the first two years. Only you can make the decision of what is right for you but since you have passed that two years milestone, you might really want to look at your odds of recurrence as a TN before making that decision.
Kathy
Diagnosed at age 47
DX: 12/13/07 IDC Stage IIa Grade 3 3.5 cm TN
Lumpectomy 1/30/08 SNB neg
Chemo-2/29/08: 4 A/C 4 Taxol-Done 6/6/08! NED!
33 Rads 7/7/08-8/20/08 Done!
12/10/09 Now Ruptured Brain Aneurysm Survivor!

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