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 Radiation Tips and Experiences
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Coco

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RE: Radiation Tips and Experiences - Sunday, March 02, 2008 7:37 AM
Terri.  I believe it is a standard protocol to gibe 33 rads.  29 radiation the entire breast and the last 4 targeting the tumor area.  You can ask your radiologist this question.  I would be curious to hear the answer myself.
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa
Sandefeet

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RE: Radiation Tips and Experiences - Sunday, March 02, 2008 2:57 PM
When my rads are complete - 2 MORE DAYS - I will have had 36 treatments.  The last 8 have been boosts.  My rad onc told me boosts were either 5 or 8 - I drew the short straw and got 8. 
 
My tumor was right under my skin so the margin there was small.  All other sides, were large.  My surgeon and pathologist did not see the need to do more surgery to remove more skin.  I had a 5mm DCIS, low grade.  My rad onc thought I should have had another surgey to remove skin but since my tumor was on the aerola, this would have deforemd my nippled, etc.  I chose not to have the surgery so I got 8 boosts!  I'll live with that but boy I'm tired and am lacking energy.
Susan

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Sandefeet - Sunday, March 02, 2008 5:11 PM
Must be nice...two more!!! TRADE YA.  We will celebrate with you. I know you are going to be SO GLAD to be done. I thought my 34 was bad. When did the fatigue hit you? I thought since I had FOREVER between chemo and radiation that it would be later in the game for me. I just finished two weeks and I am beginning to feel tired already. I keep telling myself it is the trips getting to me, not the rads. Hope it works. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
Sandefeet

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RE: Sandefeet - Sunday, March 02, 2008 7:15 PM
Susan, I started feeling tired/lack of energy at 2 1/2 - 3 weeks.  I realized if I conserved my energy by trying not to overdue anything, I did pretty well.  BUT this last week, I got a cold and between that and the rad side effects (week 7), I've lost all energy.  I don't want to do anything.  Fortunately, I am not working right now but I do have things I want to do.  I hope I get past this stage fast; I'm used to being busy all day. 
 
Best to you!
 
 
Coco

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RE: Sandefeet - Monday, March 03, 2008 10:14 AM
Hi all,  I just had my 5th treatment and found out that I will be getting 35 treatments.  I was given biofine cream and told to apply it 3 times a day.  I have also been having muscle stiffness for the past week or so.  The radiologist says it has nothing to do with the radiation but with the chemo.  I don't know if I buy this as my chemo was over Jan 29th and the stiffness just started last week.  Has anyone else experienced this?
Keep posting.
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa
Susan

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Claudette - Monday, March 03, 2008 10:20 AM
If you are talking about muscle stiffness in the radiated area, YES, I have that, but expected it since the radiation dries out the skin. Of course, I can  tell that it is my skin that is drawing and causing the muscle stiffness feeling. Yours might be something else. I am drinking even more water than before the rads. and using Aloe Vera Gel too. SO, I am putting on creams and gels about 6 times a day, and it DOES GET OLD.  Hang in there. If your muscle aches are elsewhere, maybe you should see your primary care physician. Try to keep the area as moist as possible.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
codetwinmom

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RE: Radiation Tips and Experiences - Wednesday, March 05, 2008 2:24 PM
I would love to hear updates from my fellow sisters getting rads right now.  I have 9 treatments down and 27 to go!  For the most part, I feel fine.  My boob is a tad bit tender, but most days I don't think about it.  When I get home, I slather lotion and change into cotton tees.  No real fatigue yet, just normal day to day stuff I think. I have had a cough since day one. 
 
We are taking the kids to Disneyland on Friday. I figured we'd better do it while I still have the energy. 
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED
Susan

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Hi Mona - Wednesday, March 05, 2008 2:30 PM
I guess you can tell I update some.  I completed number 12 today, 22 to go. I am turning pink but was told with my very fair skin (redhead), this was normal. The rads. nurse told me she would watch it closely for when my skin needed a break. I DON'T WANT A BREAK. I WANT TO FINISH,  but, I also want to keep my skin as healthy as possible.
 
Go enjoy that weekend. I was really tired at the end of last week, but after resting up all weekend, I have bounced back for more. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
Indiana

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RE: Hi Mona - Thursday, March 06, 2008 2:47 PM
I had my first rad boost today.  This is #29 of 33 total rads and I've got some of the heat rash and itching going on.  Other than that, I don't really feel as tired as weeks 3 and 4.  Maybe it's just from knowing I'm closer to getting done that gives me a mental boost too.
Vickie
39 yrs old
dx 7-18-07 @ 38 yrs old
8-10-07 rt lumpectomy
nodes 7+ of 33 removed
er+/pr+/her2 -
8-29-07 rt side mastectomy
chemo started 9-25-07
4 A/C 4 Taxol Done 1-2-08!
radiation done 3-12-08
tamoxifen to start soon
Birdlegs

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RE: Radiation Tips and Experiences - Thursday, March 06, 2008 6:54 PM
Susan -
Thank you thank you for this radiation thread. Perhaps we could even make it a separate message board forum??
Started radiation today (first of 30-35) and am glad I checked because no one at the business end of the linear accelerator mentioned how often one ought to apply the aloe and ointments. Will continue to check this thread for suggestions on topical nostrums.
 
My husband made a delightful observation - he said the waiting area of the radiation facility is like a beauty parlour - except that most of us have no hair. Just lots of cameraderie and cheering up for each other.
 
Cheers and love to all -
Lynne
Lynne, 61, VA, dx 11/1/07
11/5/07 Invasive ductal carcinoma ER/PR positive, HER-2 neg. 12/14/07 LB Lumpectomy, lymph nodes, bilat recon. Stage IIa. 1/3/08 Chemo Taxotere, Cytoxan. 3/4/08 radiation 6 wk. Lyphedema 3/11/08. Arimadex.
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