Visit Komen.org
Lower Your Risk
Prev Thread Prev Thread   Next Thread Next Thread
 Radiation Tips and Experiences
Change Page: << < ..21222324252627282930.. > | Showing page 24 of 44, messages 231 to 240 of 432
Author Message
kerrilee

  • Total Posts : 353
  • Reward points : 14155
  • Joined: 11/21/2007
  • Status: offline
Re:Radiation Tips and Experiences - Sunday, November 09, 2008 6:53 PM
bumping this up for Kimmi.  Hope this is helpful.

Kerri
kerri age 47
NYC
mother of 4 year old boy
RB IDC 1.2 cm tumor
nodes negative
Stage 1, grade 2
er+ pr +/her -
12/4 lumpectomy clean margins but a little to close for comfort 1/25 additional surgery
5/1/08 finished rads. Tamoxifen
Bou1

  • Total Posts : 217
  • Reward points : 0
  • Joined: 12/23/2007
  • Status: offline
Re:Radiation Tips and Experiences - Thursday, November 27, 2008 6:55 PM
This is really a helpful thread. I will be starting radiation in December and I learned a lot from everyones input.

Thanks Cindy
Miami, FL 
IDC 12/20/07
Stage 2, Grade 3 strong fam. History
Triple -BRCA 1&2 - 
Chemo 6 rounds TAC, Carbo & Taxol 4 rounds
Bilateral mast. 7/29/08w/exp.
Exchange surgery 10/23/08
carepage Cindysjourney2008
Vera

  • Total Posts : 364
  • Reward points : 0
  • Joined: 6/17/2008
  • Status: offline
Re:Radiation Tips and Experiences - Saturday, January 24, 2009 2:31 PM
I wanted to bump this up for those having rads or starting soon. I just had my simulation & got my tattoos & start my rads on Wednesday. They gave me a tube of "Special Care Cream" & said they will give me something else to try if that doesn't work. Hope all goes well & I don't burn. Think I'll get the Aloe Vera gel mentioned here just in case.  Nice thing is the hospital I am going to, gives free valet parking for rads patients. 
Vera 54yrs - NE Ohio
married to a great guy
dx 5/27/08
IDC Stage II
Er+PR+Her2-
Lumpectomy clear margins 6/20/08
Tumor 2.3cm
2/9 nodes+
4 A/C &12 Taxol Done - Rads -DONE
Putting on the BIG GIRL PANTIES and Combat Boots
ElaineQW

  • Total Posts : 4705
  • Reward points : 10730
  • Joined: 4/1/2008
  • Location: San Diego, CA
  • Status: offline
Re:Radiation Tips and Experiences - Saturday, January 24, 2009 2:39 PM
Hi Vera,

Good luck with the rads.  It ain't too bad :)  I used X-claire cream prescribed by my doc (terrific) and also silver nitrate cream when the burn got bad (the last two weeks).  They both helped very much.  Even now, I put body lotion on every day and keep the boob extra moisturized.  I have my implant exchange later this year and I want to do every thing I can to keep the skin looking good.  

Hug,
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





Valjean

  • Total Posts : 162
  • Reward points : 6395
  • Joined: 11/27/2008
  • Location: MI
  • Status: offline
Re:Radiation Tips and Experiences - Saturday, January 24, 2009 11:56 PM
 
I have had 15 treatments so far & have just started to tan. I use Aloe Vera several times a day. I have a huge bottle in the bathroom & have a tube I carry with me to put on after my treatment before I get dressed to leave. I have had some minor itching & use Hydrocortisone 1% & that helps. I have no fatique; I do not wear a bra, only a cami/shelf bra (I'm a B cup so it works okay for me). I drink LOTS of water to keep my skin hydrated. I use Crystal Rock natural deodorant only on the weekend. Everything is recommended by my radiation onc.

Not quite half-way done, so far so good.

Take care,
Val  
Valerie  MI        
DX 11.5.08 IDC @ age 56
Stage 1 Grade 2
ER/PR+ HER2 -
Lumpectomy 11.11.08 >1.5 cm
0/5 nodes neg, margins clear
Oncotype Dx 14
Rads x33
Aromasin 2/20/09-
"Now I try to embrace life instead of just walking through it." ~ vivre
Vera

  • Total Posts : 364
  • Reward points : 0
  • Joined: 6/17/2008
  • Status: offline
Re:Radiation Tips and Experiences - Sunday, January 25, 2009 12:38 PM
Thanks Elaine & Val. I think I will see about getting a couple camisoles & good thing it's winter so the coat will hide the fact that I won't wear a bra. I think I'll go buy an Aloe Vera plant tomorrow. Good luck Val with the rest of your treatments!
Vera 54yrs - NE Ohio
married to a great guy
dx 5/27/08
IDC Stage II
Er+PR+Her2-
Lumpectomy clear margins 6/20/08
Tumor 2.3cm
2/9 nodes+
4 A/C &12 Taxol Done - Rads -DONE
Putting on the BIG GIRL PANTIES and Combat Boots
LisaF

  • Total Posts : 465
  • Reward points : 440
  • Joined: 7/29/2008
  • Status: offline
Re: RE: Radiation Tips and Experiences - Sunday, January 25, 2009 10:14 PM
i start tomorrow. I was told 28 treatments. I keep reading most everyone has a30+ so i know in the back of my mind that some time along they way they will mention the additional boosts. I think they don't want you to know ahead of time that you are looking at more like 7-8 weeks vs 6 in the beginning. I have to travel an hour for treatment so i am hoping beyond all hope that 28 stays the number but i know it won't.
I appreciate all the good words here and i hope to find some good aloe to combat the burns. I am more worried about the pain as my incision has been drawing bad since surgery in June and i know it will draw more once the rads start. My onco would not let me take advil during chemo for some reason only aleve and tylenol. Aleve bothers my stomach so i think i am going to go back to advil and hope for the best. I neeed the anti-inflamatory.
Lisa from georgia- 44 yrs old
dx 6/20/08 IDC Grade 3
SNB 7/08 2/3 nodes pos
bilat MX 7/16/08 0/10 nodes pos
Stage IIIA
Port 9/10/2008
chemo begin 09/18/08 3 FEC+ 3 T  DONE!!!!)!01-02-09!!!
28 rads begin date 01-26-09 DONE!!!!!!!!!! 03-06-09!!!!!
Begin tamoxifen 3-8-09
Vera

  • Total Posts : 364
  • Reward points : 0
  • Joined: 6/17/2008
  • Status: offline
Re:Radiation Tips and Experiences - Monday, January 26, 2009 8:24 AM
I know exactly what you mean Lisa. I've been told all along it will be 6 weeks of radiation. So I go for the simulation & they tell me I will start the rads this Wednesday. Well, that's not a full week, so I think those sneaky Dr's will have me going for 6+ weeks, probably for 33 treatments.
Sorry can't help you with the Advil, Aleeve problem. Good Luck to you!
Vera 54yrs - NE Ohio
married to a great guy
dx 5/27/08
IDC Stage II
Er+PR+Her2-
Lumpectomy clear margins 6/20/08
Tumor 2.3cm
2/9 nodes+
4 A/C &12 Taxol Done - Rads -DONE
Putting on the BIG GIRL PANTIES and Combat Boots
fight4myboys

  • Total Posts : 262
  • Reward points : 3535
  • Joined: 1/12/2009
  • Location: Central Valley, California
  • Status: offline
Re:Radiation Tips and Experiences - Tuesday, January 27, 2009 1:03 PM
I start Rads on Friday, has anyone used miracell oil?  My rad onc. said it is ok to use.  I have tissue expanders in place and want the exchange to go smoothly later this year(sept).  Thanks for the help.

Susie
43@ DX 7/18/08
No primary breast tumor
only found by biopsy of axilla lymph nodes
er/pr+ her-
Chemo 8/08 4 a/c 4 taxol finished 11/24/08
Bilat mast 12/08. w/ tissue expanders
5+/23 nodes
No signs of tumor in breast after pathology
pet, ct, and mri all negative for primary tumor 
 28 Rads started 2/2/09 finished 3/13/09  YEA!!!!!!!!!
hysterectomy April 24, 2009
 expander exchange for silicone 11/19/09
Aromosin May09- 5 YRS

Valjean

  • Total Posts : 162
  • Reward points : 6395
  • Joined: 11/27/2008
  • Location: MI
  • Status: offline
Re:Radiation Tips and Experiences - Friday, January 30, 2009 11:46 PM
I will give an update of my rads treatment & that will in turn bump this up for current January rads sisters. I have a rash now after 20 treatments. The rads nurse told me to stop the Aloe Vera for one week & use Hydrocortisone 2-3 times a day, "slather it on", she said. The itch was slight all week, but as I write this now, it is DRIVING ME CRAZY! I can really see the "box" of treatment on my right breast. The small portion of arm pit that is getting radiated feels like a bad sunburn, but doesn't look bad.

When I started the second half of my treatments last Friday, (GREAT - a hot flash as I type ), I was told I would have 14 of these Intensified Modulated Radiation Therapy treatments to go along with the first 14 regular treatments for a total of 28. The rads onc told me I would have a total of 33 treatments, so I figure I will have five boosts.

I can't wait until I'm done-can't imagine how my Thelma is going to look by then!

Good luck to all undergoing this lovely time in the tanner!  (just kidding, I know it's not funny...)

take care,
Val
Valerie  MI        
DX 11.5.08 IDC @ age 56
Stage 1 Grade 2
ER/PR+ HER2 -
Lumpectomy 11.11.08 >1.5 cm
0/5 nodes neg, margins clear
Oncotype Dx 14
Rads x33
Aromasin 2/20/09-
"Now I try to embrace life instead of just walking through it." ~ vivre
Change Page: << < ..21222324252627282930.. > | Showing page 24 of 44, messages 231 to 240 of 432

Jump to:

Icon Legend and Permission
  • New Messages
  • No New Messages
  • Hot Topic w/ New Messages
  • Hot Topic w/o New Messages
  • Locked w/ New Messages
  • Locked w/o New Messages
  • Read Message
  • Post New Thread
  • Reply to message
  • Post New Poll
  • Submit Vote
  • Post reward post
  • Delete my own posts
  • Delete my own threads
  • Rate post

© 2000-2008 ASPPlayground.NET Forum Version 3.1.5