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 Radiation Tips and Experiences
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Cindy D.

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RE: Radiation Tips and Experiences - Sunday, March 01, 2009 7:45 PM
When I was having rads, I got to meet a man who was having rads to his brain... he was using a cream called Recovery Cream, and his head looked great!! He gave me some and it was great!! It did not stain my clothes, was not really thick and smelled pretty good also.  My skin got a little sunburned, but never blistered and never felt too bad... you can get it online at:  http://www.recoverycream.com/

I have no interest in this product, other than it worked great for me...

take care,
cindy d.
Mass. 
56 yrs old
dx 1/10/07
Stage IIIa
ER/PR +,Her2 -
chemo: 4ac/4 taxol  5/24/07
lump: 6/18/07
mast: 7/16/07
tamoxifen: 7/25/07-2/9/09
rads:  10/25/07
clinical trial: avastin and xeloda, 12/07-11/08
arimidex/lupron: 2/09/09-12/28/11
clinical trial: femara 1/1/12 9 months on, 3 months off
kaydid

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RE: Radiation Tips and Experiences - Tuesday, March 03, 2009 8:45 PM
I just finished radiation treatments in January of this year. My doctor said to use utter balm. It worked okay, but I got a little red. I remembered using apple cider vinegar for sun burns, and started splashing a little on when it started feeling tender. It turned tan and didn't get any worse and made it feel better. Now I can just barely see a tanned area there. I was pretty tired all of the time too, but had to drive 50 miles round trip every day for treatments. At least they were in the afternoon, I wasn't working, and I could sleep late if I wanted. The worst part for me was being "exposed" to so many different people! I thought it would be all women like with the mammograms.
suz777

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RE: Radiation Tips and Experiences - Tuesday, March 10, 2009 6:53 AM
Try contacting an Arbonne dealer for some Intelligence lotion/oil...has tons of natural extracts and was just the thing for my little leathery patch...comes in a little 2 oz bottle
BlueTacoma

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Re: Krista - Wednesday, March 11, 2009 12:00 PM
My wife will begin chemo next week for Stage 2 DCIS.  At our first consultation, her oncologist also recommended radiation therapy after the completion of her chemo.

However, neither myself nor my wife are convinced the radiation is needed in her case.  Her oncologist, who is well-respected in the area, gave us only general explanations as to why radiation was a good idea which left us feeling like the rad treatment was just a "to make sure" step more for the doctor's conscience than my wife's well-being.

We are not talking about taking pills for a few weeks "to make sure".  This is radiation!  Serious stuff that could have serious side affects down the road not to mention costs.

We are looking into a second and maybe a third opinion.

If anyone has decided not to have radiation follow-up, or has had their Oncologist provide deeper insight into its necessity post-chemo, please post their experience.
DJW

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Re: Krista - Wednesday, March 11, 2009 12:07 PM
I opted not to do radiation. There are clear clinical guidelines that determine whether or not an onc will recommend one of the following:

Radiation needed
No radiation needed
"Gray area:" only if patient wants no stone left unturned

I fell into the gray area.

If you haven't met with a radiation onc yet, I suggest you do so. He/she can give you much more detailed information about the pros/cons. And you have several months to make a final decision while your wife goes through chemo.
Deborah, Albuquerque, 59, 5 year survivor!!

-Diagnosis: IDC & DCIS, Stage IIb, Grade 3, Triple Negative (3/19/08)
-No family history, BRCA 1&2 neg (Jun 08)
-A/C (4 DD Apr - Jun 08), Taxol (4 Wkly Jul-Aug 08), Taxol (2 DD Oct 08)
-Modified radical mastectomy with immediate saline implant (8/19/08), 3/12 nodes positive 
-NED!!! (Nov 08)
EllenJane

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Re:Radiation Tips and Experiences - Friday, March 13, 2009 11:59 AM
Hi to all. I have not posted in awhile due to other health issues and a complete computer breakdown so I wanted to update.
When i was posting regularly during rad treatments I asked if anyone had ever experienced numbness in their hands from the rads, not chemo. No one had. I had to have an EMG in Dec. and it showed carpal tunnel in both hands. The left, the side of rads, had 0% reaction! Well, guess what? I hung in there and now have 0% sign that i ever had carpal tunnel! It so definitely was a side effect. As was the elevated calcium levels and my thyrois meds strength has been decreased. Guess the rads shrunk that too!
I only had radiation. No chemo.
I am posting this to let you all know that you are not crazy if you have these symptoms and don't let your radiologist tell you "that's not from us", as mine did! Grrrrrrrrrrrrrrrrrrrrrrrrrrrrr.............................
DCIS LB,
lumpectomy 6/14/08,
radiation
tamoxifen.
Vera

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Re:Radiation Tips and Experiences - Monday, March 16, 2009 12:40 PM
Well, I burned in my clavicle/collar bone area pretty bad. It was a relief to know I was moving on to the boosts & they would just target my inciision & give the other areas a rest. My chest & collar bone area burned so bad & turned a deep red, almost purple. That area has peeled & the skin is bright red. Not really all that uncomfortable now. Underneath my breast, I also burned & the skin cracked from the breast touching the skin. It's very hard to air that area. LOL The rad onco gave me Carra Gauze pads which have some gel medication & I would just lay with those on my chest & neck & under my breast. After 2 days it did start feeling much better. I was also using Biafine & Silvadene. I had my last treatment today (YIPPEE) and had to stop in to have the rad onco take a quick look at my skin. I'm healing nicely & the nurse gave me a tube of Aquaphor to use for some areas. Other than the fatigue & the couple of days when I was really burnt, I found this much easier than chemo. I see the rad onco again in a month. Good Luck to everyone starting this part of the journey.
Vera 54yrs - NE Ohio
married to a great guy
dx 5/27/08
IDC Stage II
Er+PR+Her2-
Lumpectomy clear margins 6/20/08
Tumor 2.3cm
2/9 nodes+
4 A/C &12 Taxol Done - Rads -DONE
Putting on the BIG GIRL PANTIES and Combat Boots
elsie

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Re:Radiation Tips and Experiences - Tuesday, March 24, 2009 1:43 AM
Ellen Jane,
Just read your message  and was wondering if the numbness ever went away.  I finished 25 rads a month ago and find that my arm is going numb at night.  Since this started near the end of my treatments I wonder if it is caused by the radiation and also if it is temporary or permanent. 
Dianne
BlueTacoma

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Re:Radiation Tips and Experiences - Saturday, May 02, 2009 8:10 AM
After exhaustive research and discussion, my wife has decided not to do radiation, simple as that.  Her oncologist could not convince her (or me) that it was needed in her case.
Victoria (spouse), Dallas, 54
-Diagnosis: DCIS, Stage II,  (Nov. 20, 2008)
-Strong family history, BRCA 1&2 neg (Jan. 2009), Skeletal Scan neg, Liver ultrasound neg
-Bilateral radical mastectomy, 3/19 nodes positive  (Jan 30, 2009)
-Chemo TAC start (March 24, 2009) 
.MARIANNE

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Re: Krista - Saturday, May 02, 2009 1:36 PM
I found your post so interesting and it sort of shows that ONC's and the cancer centers have different opinions. I was told that chemo was my option under the cancer guidelines but they recommended it,  but yet according to the guidelines they said I would have to have radiation (no choice). It is just the opposite of you yet we have same dx. I guess I am glad I chose chemo. I'm covered either way and really after all I have read I wouldn't consider not having radiation. We are all just very different  individuals and we need to be informed and make our own decisions.





Marianne, TX-age 64
Mammy,Jan2009-lump in rt.breast
Lumpectomy-Feb 17,2009
Diag.,IDC,stage2,grade3,triple ng.HER (1+)
chemo starts 4/6/09 (CYTOXAN &TAXOTERA,W/Neulasta
Rad after chemo

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