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 Radiation Tips and Experiences
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lymphdema5

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Re: RE: Radiation Tips and Experiences - Saturday, November 07, 2009 1:19 PM
sports bras are not the answer to our D size they have alot of bras they mostly list these under mastecomy
acteacher

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Should I quit radiation treatments? - Saturday, November 14, 2009 9:47 AM
Is there ever a time when it's better to stop radiation treatments before you have reached the end?  I have been in a lot of pain the last few days and have been taking Lortab just to make it through the day.  I had 21 treatments and then the radiation oncologist told me to lay off for 4 days.  In the middle of my chest, where I was receiving electron treatment, it was very red, sensitive, and blistering.  I had 2 more treatments and when I went yesterday, the radiation therapists asked me if I wanted to wait a few days again.  (The radiation oncologist was already gone for the day.)  There are places where my skin is peeling, turning various colors, has become very hard, and it hurts unless I am completely still.  I don't even like to look at it!  I don't know if I can take 10 more treatments!  Do you have to completely finish the treatments to reap the benefits?
lymphdema5

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Re:Should I quit radiation treatments? - Saturday, November 14, 2009 10:55 AM
teacher if your radiation oncologist has given you days off, and his nurse has asked you if you want to then do it. I had six weeks five days aweek. About the fourth week, I was driving myself over 100miles and I was in so much pain and my best was raw, so I stopped for about five days this was my decision, my radiation doctor did not agree at that moment but I am here five years later. I also was vomiting and couldn't eat, so it is up to you but if your onclogolist is saying okay well medically it sounds like the right thing to do you can only do what is physically possible for yourself.
JulieS

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Re:Should I quit radiation treatments? - Saturday, November 14, 2009 12:34 PM
Teacher,
Wow sorry you are in such pain!!!! I can't really advise as I sort of flew through my rads (ok kick me now.)  I know some of the women's onco's have prescribed different creams for burns that have helped.  Did your onco prescribe you any type of healing cream???? Do be gentle on that skin....if it is hard it must be dry so maybe doing the lotion or cream (I used 100% Aloe, inexpensive and worked great for me.)  I think asking your onco what % of benefit you have gotten at this point......no fun for sure to be in that much pain.  I know some about that pain......I sunburn really easy.....and as a kid would blister.  
Please read through the tips on rads and see if there is something there that may help you.   Let us know what your onco has to say.
Wishing you quick painfree healing.
Hope and strength!
Julie S
Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-
acteacher

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Re:Should I quit radiation treatments? - Saturday, November 14, 2009 1:09 PM
Thanks for the encouragement!  I have used Miaderm (a water-based cream recommended by the rad onc) 3 times a day.  I have used a pain-relieving form of Neosporin and the doctor also recommended lidocaine.  I think that all of them give some degree of relief.  I'm just wondering how much more pain and damage to my skin will result.  I can't help but wonder why burning the skin is necessary to treat cancer cells in the breast tissue. 
Tricia Keegan

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Re:Should I quit radiation treatments? - Saturday, November 14, 2009 4:36 PM
Teacher, I'm sorry you've had a bad reaction to the radiaiton.

The reason we have this is to zap any cancer cells left around after surgery, whereas the chemo goes right through our bodies to hopefully kill any cells there.   It's unfortunate that some skin types burn as a result of this.
If you're in this much pain it sounds like you may need to stop, have you spoken to your rad onc about it?
I also want to mention to continue to use whatever cream you have even after you stop as the skin sometimes can continue burning for two weeks or so after tads:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
susan g

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Re:Should I quit radiation treatments? - Sunday, November 15, 2009 10:50 PM
i just finished rads 2 weeks ago tomorrow, and my skin felt much like you describe. i had the weepy wet burns in between my breasts and under my arms where my nodes were removed. the rad onc nurse gave me "cool magic" gel pads, i kept them in the fridge, and cut to fit. they stick to the skin but do not tear it when removed. also i had something called "mepilex  lite" , a kind of foam pad that sticks to and protects w/o tearing the skin. the worst was under the arm, i couldn't really wash it like i wanted, or the baby skin cells could be washed off, i just had to gently wash, and it was so nasty and it smelled bad, too. i'm so sensitive about it, and it was so hard to get anything to stick on such a large area as the underarm! finally, after i finished rads, i could use the silvadene cream, and the healing began, though i thought it never would! i used aquaphor cream (like vaseline) to keep the areas moist, too, i never realized how much the skin on your chest moves as you go about your daily stuff-it burned and felt itchy and like it was tearing for quite some time! but there is hope!!
Army Mom

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Re:Should I quit radiation treatments? - Monday, November 16, 2009 12:20 PM
Teacher,

I am so sorry you are having a difficult time. I just had my 16th treatment today. So far I am a bit red but nothing major. I will say I am completely exhausted right now. I went to a dog show this weekend, really didn't so that much (my friends make sure I don't lift or over do it.) Even took the golf cart so I wouldnt have to walk much. I was so tired when I got home yesterday afternoon. This weekend was harder on me than when I went to a show the weekend before my last chemo. I also had to go back out on short term disability from work. I just have such a hard time concentrating and doing my job, I am so tired and everyone at work is sick with the flu of some sorts etc.
I hope you get some pain relief soon and that it gets better for you.
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)


lisalovinlife

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Re:Should I quit radiation treatments? - Tuesday, December 15, 2009 2:58 PM
i am on treatment #11 and I was wondering when you all started noticing burns or even redness.  i am not even pink, gosh are they giving me enough?  I am tired though.  I sure hope you all heal up quickly. much love, lisa
Lisa 44 years young, happily married, mom of 3 teens IDC 6/09 1.5cm er/pr+ her2-, nodes not totally sure , partial mastectomy, Chemo taxotere/cytoxan 4 rounds, 30 rads, Tamoxifen 5 years  A self exam followed by a mammogram saved my life!!!
smaas707

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Re:Should I quit radiation treatments? - Tuesday, December 15, 2009 7:38 PM
I had a very hard time when I was going through radiation, I have stage 4 with mets to my spine and was getting radiation on my lower spine which was burning my stomache and causing me all sorts of issues with my digestion, I asked my oncologist about stopping and she wouldnt let me, I had to keep going..It was soo hard..Keep your head up we will make it through...
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