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 Radiation Tips and Experiences
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Re:Radiation Tips and Experiences - Monday, September 26, 2011 6:33 PM
Brandy:  I finished my rads on Aug 25 and had a bad burn, too.  A lot of peeling and I tried a lot of different things on it.  I also had pains I called pain spasms that felt like electricity shooting thru my breast at unexpected intervals.   They would be so sudden & sharp that it was hard not to cry out. My nurse at the rad center said that was normal pain from the rads and from scar tissue and that it would get better in 3-4 weeks.  Most of that has cleared up in the past 4 weeks.  I still have some pain but more like what you expect when you are still healing from surgery. Good luck.
<message edited by melliel on Monday, September 26, 2011 6:37 PM>
Diagnosed: 1/27/2011:  Invasive Carcinoma of left breast er/pr +, her2 - 
Surgery 2/7/2011:  Lumpectomy. Margins negative, 2 Lymph nodes negative.
1.8 cm  stage 1A
Oncotype Dx  34 
Chemo:Taxotere & Cytoxan - done
Rads - 30 treatments - done!
Arimidex for 5 years
Metformin/placebo trial - 5 years

God never closes one door without opening another but sometimes it is hell in the hallway!

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Re:Radiation Tips and Experiences - Wednesday, December 21, 2011 9:32 PM
just a quick update..I'm on my 3rd rad today..I have 6 weeks total, 5 days a week. I had a mastectomy, so it's just flat skin where rads go, no nipple or else..should I go ahead and ask for cream, etc. for this area before it gets to the burn point? I have Aquaphor here at home, but wondered if I smeared that on before rads, if it would mess it up? When would be a good time to use this or aloe so it won't interfere with the rad? The techs put a warm wet towel on the site before the rad, anyone heard of this? Tech said it helps to prevent burning and the treatment can still get through..And what is a booster? Any info on this would be helpful...

Wishing you all a Merry Christmas
Keep on keeping on!!

Cindy A
Cindy Ankney Chatsworth,GA

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Re:Radiation Tips and Experiences - Thursday, December 22, 2011 12:23 AM
Cindy, Don't put anything on before a treatment unless the doctor tells you it's ok. They should be giving you all the necessary instructions. When I had my rads 6 years ago, the booster was the last week of sessions--it was more targeted to just the area where the cancer was.****I haven't heard of the warm, wet towel, but since I burned very badly, it sounds like a good idea...hopefully, they're learning new things all the time. Hang in there and take it a day at a time. Joyce
Portland, OR. DX: 6/09/05 IDC lb Age: 54 PR/HR+ Her- Lumpectomy/SNB 6/22/05 Nodes Neg! 33X Rads Comp 10/12/05 Tamoxifen: '05-'10 PT for lymphydema in breast '06 BRCA Neg 7/08! Tamoxifen induced uterine issues '07-'11 Total LA hysterectomy 12/11
Kimberly Oliver

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Re:Radiation Tips and Experiences - Saturday, December 24, 2011 5:40 PM
Happy Holidays to my SGK friends!
I'm not saying, I'm just saying...

Dx June 30, 2009
Infiltrating Ductal Carcinoma - left, ER- PR 9%+ HER2+
7/9/09-lumpectomy, 4/15 nodes pos
7/23/09- Reincision for clear margins 
Chemo TCH DONE 12/09  
Rads DONE 2/10
Herceptin DONE 8/10
Start Tamox 9/10
Tricia Keegan

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Re:Radiation Tips and Experiences - Saturday, December 24, 2011 5:48 PM
Cindy you can only apply creams or aloe after treatment but never before as some have tiny metal particles that interfere with the machines!!!

Kim great to see you posting here again and Merry Christmas!!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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Re:Radiation Tips and Experiences - Sunday, January 22, 2012 9:26 AM
Hi All, I know that it has been awhile since my last posting. Just trying to get back on my feet again and also the holidays and extra company took me away from things. I am finally doing better. Seems the further away from chemo I get, the better I am feeling. I had to cut my chemo treatment from the scheduled 8 treatments to only 5 because it was making me very toxic. I ended up with grade 3 neuropathy that has not gone away in almost 2 months along with other issues. I started radiation and have gone thru 3 of 33 treatments. So far, so good. Hoping I will not have the side effects that I had from surgery and then from chemo. My rib cage is sore to touch right now, but that could be from the other issues that I have. I expect the sunburn, I expect the fatigue and even the shooting pains. Hopefully I will not have any other side effects. Hoping that everyone is doing fine and are continuing with any New Years resolutions.
Sue K
Invasive Ductal Carcinona
Diagnosed 7/1/2011
Stage III Grade 2
Tumor Size 6cm
2+/18 nodes
HER2 Negative
7/28/2011 - Right Modified Mastectomy w/ lymph nodes removed.  Left Prophylactic Mastectomy
Not a candidate for reconstructive surgery. 
Chemo 5 out 8 completed.
Radiation completed.
Lymphedema and scar tissue issues

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Re:Radiation Tips and Experiences - Sunday, January 29, 2012 9:06 AM
Hello all.  Looking for some input here re radiation.  After my "run through" on Friday the nurse had her session with me and told me that Dr. Philips "doesn't really like creams and lotions other than Aloe Vera gel and a little cortizone cream".  I didn't really absorb the statement until later when I though, "Gee, this is MY breast and there are wonderful products out there that will take the pain out of this.  Who the heck is HE to not like creams...etc!

Am I out of line?  I do plan on discussing this with him on Monday to at least set the ground rules that this is my body he's treating and that I want to be an active rather than passive participant.

Input?  Your experience?


DX June 20, 2011
IDC, E+P-, HER2-, Ki67 49%
Lumpectomy 7/26/11 & 8/23/11   
Lymph nodes clear!   
BRCA 1-/2-
Stage 1, Grade III 
Oncotype: 36%
Taxotere/Cytoxn 1 2 3 4 12/12/11
33 Rads completed 3/16/12
Start Arimidex 3/17/12    


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Re:Radiation Tips and Experiences - Wednesday, February 15, 2012 8:55 PM
Hi Marian, my doc didn't want me using even aloe Vera. The reason they gave was because some creams have small particles that could make the radiation burn. Also, the thought is that aloe is an antioxidant and every other day they treated my skin. All my docs are against antioxidants during treatment cuz they might make the cancer stronger.

When my skin did start to breakdown they gave me prescription products to use on the burns. So I just followed their advice cuz I figure if I want to beat this permanently, they have more experience and I just chose to trust them. You know?

(Hugs)hope you finish quickly!
Bx Confirm Invasive Breast Cancer 5.13.11
ER+ PR+ HER2- on 6.10.11
KI-67 22% 6.13.11
Chemo x 4 - Adriamycin/Cytoxin, 
Chemo x 4 - Taxol 
Bilateral Mast with Expanders 11.1.11 - 12/31 nodes with active cancer. Grade 3 tumor. Stage IIIC. Radiation finished 1.25.12  Femara Generic started 11.24.11

I can do all things through God who strengthens me. Phil 4:13

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Re:Radiation Tips and Experiences - Thursday, February 16, 2012 7:34 AM
Marian - my radiation doc prescribed X-Clair cream which I used every day the entire time.  At the end she also prescribed a silver nitrate cream which helped me heal very quickly.

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 


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Re:Radiation Tips and Experiences - Tuesday, March 06, 2012 12:54 PM
Hi Everyone on Radiation.  Today was my 14th and have 6 more to go.  My breast is tender and the the nipple sore but I have no redness yet.  I have had some stomach problems since starting and my radiation team tells me it is not from the treatments.  Since I feel a little dizzy after each treatment and my stomach problems tend to hit me when I get home I figure this is the cause but it's not bad enough to really worry me.

After the chemo I figure this radiation is a breeze and just another small stumbling block before I can move on with my life. I started talking to the other ladies in the waiting room and it has been helpful also to hear their stories and feel that we are all in this together in some small way.

Take care.


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