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 Radiation Tips and Experiences
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codetwinmom

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RE: Radiation Tips and Experiences - Friday, February 15, 2008 2:44 PM
Here are some things I remember from my appointments yesterday:
 
Drink lots of water
Take Vitamin D and Tums for calcium
EXERCISE!
 
 
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED
Ann12015

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RE: Radiation Tips and Experiences - Friday, February 15, 2008 4:16 PM
hi ladies,
There are some really good tips here,I finished 3 three years ago.The one thing I wished I had done ----if you are radiating on the left side get an x-ray before and after this way you will know if you have had your heart or lung knicked.I always wore zipped shirts down the front(like a jogging shirt) it was very easy in and out.Sign up with the American Cancer they will reimburse you money for gas,if I remeber it may have been up to 300.00 hundred dollars.I was given a cream called Silidine it is used for burn patients it worked very well.Try not to use an deoderant at all even the natural.I was so worried about smelling when I got to my appointment at 2:00 that I went and got an all natural one and the doctor felt that was why my arm pit burned so badly....so they thought they would have to stop for awhile and told me not to worry about any odor and stop using it.The one positive thing I have not had any pit hair grow back for 3 years now and never use deoderant on my left arm because it burned all sweat glands as well.Good luck to all of you. Ann K


Trishi

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RE: Trishi - Friday, February 15, 2008 4:37 PM
Thank you Susan.    
 
Take care,
 
Trish
Susan

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Suzie Q - Friday, February 15, 2008 4:54 PM
Real bad choice of words here...it is the permanent marker, hence I said dye, because I have already ruined a sports bra and cameo where the ink would not wash out. SOME folks, even with tattoos get drawn on. I was told that won't happen anymore to me, so now the t-shirts are for avoiding the rub under the breast from a bra and to soak up the extra cream I will be using. I suggest that you ASK your radiation onc. about whether you will be marked the entire time, or just until the tattoos are done. My radiation nurse did say that t-shirts are best, at least around the house. Since I cannot go nude, ha, I got the shirts. Good luck. I am sure this thread will still be going strong in April. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
Susan

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Ann - Friday, February 15, 2008 5:00 PM
My cousin was told 15 years ago when she had rads to use baby powder for her deoderant. I asked the nurse about this and she looked puzzled. I know my cousin never burned, so you have to wonder. I also have a deoderant that came from a health store. It looks like a candle without a wick. The nurse told me to bring it along with the list of ingredients and they could tell me whether or not it was safe. I guess winter rads. are good for one thing...less body odor. HA. I stopped using regular deo. along time ago because I already have to much aluminum in my body. I found this out through a hair analysis done by a naturapath. Thanks for adding about the gas allowance. I will check into that. Everyone is being so wonderful in sharing their experiences. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
Kerry

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RE: Radiation Tips and Experiences - Friday, February 15, 2008 5:11 PM
Hey Suzie!
I made my appt for 11:00.  I would go get the kids off to school, go for a  walk, shower and go.  It turned out to be a pretty good time, I think, not too busy, but I did notice a lot of younger people went earlier or later in the day.  good luck!
Kerry
40yo(now 42)
dx 3/07 (thought DCIS)
lumpectomy4/07 1.5 cm tumor,sentinel node bx
stage I,node - OncoDX score 18 ER/PR+, Her2-
TC 4 rounds DONE 9/18
Radiation DONE 11/27
b/l ooph 6/08
Arimidex 7/08
brca1/2 -
carepage: ringofkerr
Sue T.

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RE: Radiation Tips and Experiences - Friday, February 15, 2008 5:51 PM
Thanks Susan (and Coco) - I went today for my 1st appt with the rad onc and got all the info along with the tatoos and markings. All of this info comes at just the right time for me, too.
 
Nothing I can add - I'll be starting on the 26th - a total of 33 treatments but at least I'll be finished in time for my trip to  Disney World - celebration time!!
 
Again - thank you Sister Susan - you're the BEST!!
((HUGS))
Sue
Atlanta GA
Dx 7/23/07 DCIS&IDC
Lumpectomy & SNB 8/13/07-nodes clear
Strongly Triple +++
OncotypeDX 45
4 AC (dense dose)done 11/07/07
Taxol w/Herceptin x 12 weekly done 2/13/08
Rads x35 done 4/10
Herceptin thru 10/29/08
Arimidex started 10/12/08 - 10 years
Susan

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Sue T - Saturday, February 16, 2008 9:14 AM
Even if all you can add throughout is how easy is was, then do that. Many need to hear the GOOD side of all of this since we are all different. With all you have suffered and kept on working, I would say you might very well be one on here talking about how easy rads. are. BIG HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue
Sue T.

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RE: Sue T - Monday, February 18, 2008 1:38 PM
Bump - want this to stay near the top for a while
Atlanta GA
Dx 7/23/07 DCIS&IDC
Lumpectomy & SNB 8/13/07-nodes clear
Strongly Triple +++
OncotypeDX 45
4 AC (dense dose)done 11/07/07
Taxol w/Herceptin x 12 weekly done 2/13/08
Rads x35 done 4/10
Herceptin thru 10/29/08
Arimidex started 10/12/08 - 10 years
Jill36

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RE: Radiation Tips and Experiences - Monday, February 18, 2008 3:14 PM
Hi,
I had the mammosite inserted on Friday.  Unfortunately because of my breast size and not having enough tissue, the balloon was removed this morning.  (Having it in all weekend for nothing was a major pain)  I now have to have regular radiation.  Honestly, I am glad.  I did not have the best of luck with the mammosite.  I go in for my "tattoos" tomorrow the 19th.  I was told to only use pure aloe vera, purpose or dove soap and Crystal deodorant (which the Oncologist gave me).  Good luck to all of you! 
Jill 36, dx 1/15/08
ER+,PR+, HER2-
1/29 Lumpectomy & sentinel node removal
2/1 Margins not clear, Lymph negative
2/4 Re-excision for more tissue removal
2/7 Margins clear
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