Radiation Tips and Experiences

Change Page: < 12345678910.. > | Showing page 2 of 22, messages 21 to 40 of 432
Author Message
Susan
  • Total Posts : 2839
  • Reward points : 7205
  • Joined: 1/1/2005
RE: Radiation Tips and Experiences - Friday, February 15, 2008 11:57 AM
After reading another thread today, I remembered yet another side effect my rad. onc. discussed with me. LYMPHEDEMA.
 
He said, should I develop any signs of it, to be sure to mention it so he can refer me to the lymphedema clinic, there at the hospital. I know why I didn't remember this one...IT SCARES ME. It does need to be added to the list of possible side effects. GRRRRR.  CMFR, I may be changing my stress level post soon...HA. Lapse of memory can be good sometimes, but then we get a reminder. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Jennifer Mishe
  • Total Posts : 2585
  • Reward points : 9465
  • Joined: 1/1/2005
  • Location: Paducah, KY
RE: Radiation Tips and Experiences - Friday, February 15, 2008 12:05 PM
Susan,
Although some nurses discount it, my radiation onc warned me that even though I only had a lumpectomy and no nodes tested, that the radiation would put me at risk for lymphadema and to avoid all blood pressure readings and blood draws etc from my left arm.  I have to argue the point with some nurses at doctors offices other than my oncologists but so far no problems.  When I had my hysterectomy my husband wrote in black marker, "No BPs or needles in this arm"  The nurses thought it was funny but they respected it. You can not take it for granted that all nurses understand this.  A friend of mine went in for an unrelated surgery, had had a previous right breast mast. which they knew about and apparently they did bps and needles in that right arm and she developed lymphadema in the week after. Just more fun in the fast lane of the life of cancer survivorship.  Praying for smooth sailing for you during your radiation.[sm=pals.gif]
Jennifer
DCIS
lumpectomy 5/02/05
32 rad tx comp 7/07/05
tamoxifen
comp. hysterectomy 4/04/06
Paducah, KY

codetwinmom
  • Total Posts : 62
  • Reward points : 0
  • Joined: 1/12/2008
RE: Radiation Tips and Experiences - Friday, February 15, 2008 12:08 PM
Thank you for this thread!  I had 2 appointments yesterday, first was CT scan then onco.  It go in Tuesday for x-rays and tattoos.   I start rads next week and would love to hear everyone else's experiences.
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED

shirley caya
  • Total Posts : 518
  • Reward points : 4645
  • Joined: 1/1/2005
RE: Radiation Tips and Experiences - Friday, February 15, 2008 12:12 PM
hi
wonder if anyone else has the same experience.Had radiation seven weeks finished in april06 however still find any bra with even a bit of lace irritating and seems the same sixe doesent fit like it did is this normal>> just wondering?? thank you
shirley caya

JulieS
  • Total Posts : 4392
  • Reward points : 5475
RE: Radiation Tips and Experiences - Friday, February 15, 2008 12:52 PM
Hi
I finished rads last September.  I don't know if the lace on my bras bother me but it feels as if the bra is squeezing me and it terribly uncomftorable, even if it is loose.  Also for you larger breasted women, if you get a piece of soft cotton (maybe a old tee shirt from hubby) and put it under your breast so you don't have that skin to skin contact it will help the irration there. Also  use a mild detergent to wash your shirts and maybe even rinse them twice. I also walked on my treadmill 5-6 days a week. Made it through with just a little fatigue, and like some of the women have said it hits you suddnly and all at once you are exausted. With a quick cat nap I was all better again.
  Its not so bad and hope you all do well!
Take care
Julie S
 
Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-

Trishi
  • Total Posts : 218
  • Reward points : 0
  • Joined: 1/31/2008
RE: Radiation Tips and Experiences - Friday, February 15, 2008 12:57 PM
Hi All!  Thank you to Susan and Coco for starting this thread.     Has anyone here had Mammosite radiation?    I completed it almost four weeks ago and would be interested in comparing recovery experiences with someone else who has been through it.    
 
Best wishes to all!
 
Trish

Susan
  • Total Posts : 2839
  • Reward points : 7205
  • Joined: 1/1/2005
Trishi - Friday, February 15, 2008 1:08 PM
There have been a few others that did the mammosite radiation. If they don't see this post, try putting it on a new thread in a few days. I so wish it had worked out for me to have a lumpectomy and then the mammosite rads. but it was not to be. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Kerry
  • Total Posts : 921
  • Reward points : 0
  • Joined: 5/22/2007
RE: Radiation Tips and Experiences - Friday, February 15, 2008 1:24 PM
I just wanted to say good luck to everyone w/ rads.  I think the best advice I received was from here.  Anne told me to exercise and drink lots of H20.  It really helped w/ the fatigue.  I walked everyday and really only felt like I hit the wall during the 3rd or 4th week. 
 
For skin care:  for me 100% fruit of the earth aloe worked the best.  I brought it with me to rads and put in on immediately afterwards and 2-3 times a day.  If I was too dry and sometimes overnight I would use unscented Lubiderm.  When I got that itch 1% hydrocortisone only on the itchy spots.  When it got really itchy they told me I could use Dermaplast or Solarcaine.  That was a god send!  Cleared up quickly b/c then I went on to the boosts so that area healed.  bc.org also recommended putting cornstarch in an old nylon knee hi stocking or similar and dusting yourself w/ that, which was also helpful.  (especially if you sweat or it's hot).
 
I have large breasts so I felt I needed to wear a bra and had no problems w/ that.  just wore an all cotton one w/ good support.  I used those shelf bra camis too at night time.   For me, no skin to skin contact was better.  I also took time out each day to lie down and just air out the  entire treatment area for at least 30 minutes (I listened to a book on CD), it was very relaxing too!  Put your arm up over your head to air out the area under your breast.  I am happy to say that I did not burn at all, and had only mild "dry peeling." underneath my breast.  Watch that area carefully, it is easy to forget, but it is where they always look during your weekly rad onc visists during rads. Take care!
Kerry 
40yo(now 42)
dx 3/07 (thought DCIS)
lumpectomy4/07 1.5 cm tumor,sentinel node bx
stage I,node - OncoDX score 18 ER/PR+, Her2-
TC 4 rounds DONE 9/18
Radiation DONE 11/27
b/l ooph 6/08
Arimidex 7/08
brca1/2 -
carepage: ringofkerr

Suzie Q
  • Total Posts : 926
  • Reward points : 0
  • Joined: 8/27/2007
  • Location: San Diego, CA
RE: Radiation Tips and Experiences - Friday, February 15, 2008 2:04 PM
Thanks Susan for creating this thread, lots of infomation! 
My rads won't be until April so I wanted to know about the "dye" that was mentioned that ruins your clothes?  I thought we were getting tattoos to mark us, what's the dye for?  I just want to be prepared. 
And for those ladies who gone through this, is it better to schedule your rad appt late in the day so you can just go home and rest?  That's what I'm hoping I can do, but I guess we'll have to see since it will depend on when there's a opening. 
Thanks!
Suzie Q  (my surgery will be in March and rads in April)
Susan James, San Diego
Biopsy 5cm RB & Lymph 8/14/07
Dx + in both 8/17/07
HER2+, MUGA Scan & EKG(trial)
Chemo 9/13/07 EC(4), T&A(4), H(12)
Lumpectomy & nodes 3/14/08
Port for H&A (1yr)
Carepages: SusanJames1952

codetwinmom
  • Total Posts : 62
  • Reward points : 0
  • Joined: 1/12/2008
RE: Radiation Tips and Experiences - Friday, February 15, 2008 2:38 PM
Susan, I work full time and my plan is to go late in the day, for now.  I talked to the doc and he said the fatigue probably won't hit until week 2 or 3.  I am scheduled for 4:45 for the time being.  If I start to get fatigued, I plan to move it up to 3 or so, so I will have time to come home and rest before the family needs me.  I'm afraid to try first thing in the morning, just in case I don't feel good.  I guess we just have to listen to our bodies.
 
 
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED

codetwinmom
  • Total Posts : 62
  • Reward points : 0
  • Joined: 1/12/2008
RE: Radiation Tips and Experiences - Friday, February 15, 2008 2:44 PM
Here are some things I remember from my appointments yesterday:
 
Drink lots of water
Take Vitamin D and Tums for calcium
EXERCISE!
 
 
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED

Ann12015
  • Total Posts : 385
  • Reward points : 2000
RE: Radiation Tips and Experiences - Friday, February 15, 2008 4:16 PM
hi ladies,
There are some really good tips here,I finished 3 three years ago.The one thing I wished I had done ----if you are radiating on the left side get an x-ray before and after this way you will know if you have had your heart or lung knicked.I always wore zipped shirts down the front(like a jogging shirt) it was very easy in and out.Sign up with the American Cancer they will reimburse you money for gas,if I remeber it may have been up to 300.00 hundred dollars.I was given a cream called Silidine it is used for burn patients it worked very well.Try not to use an deoderant at all even the natural.I was so worried about smelling when I got to my appointment at 2:00 that I went and got an all natural one and the doctor felt that was why my arm pit burned so badly....so they thought they would have to stop for awhile and told me not to worry about any odor and stop using it.The one positive thing I have not had any pit hair grow back for 3 years now and never use deoderant on my left arm because it burned all sweat glands as well.Good luck to all of you. Ann K



Trishi
  • Total Posts : 218
  • Reward points : 0
  • Joined: 1/31/2008
RE: Trishi - Friday, February 15, 2008 4:37 PM
Thank you Susan.    
 
Take care,
 
Trish

Susan
  • Total Posts : 2839
  • Reward points : 7205
  • Joined: 1/1/2005
Suzie Q - Friday, February 15, 2008 4:54 PM
Real bad choice of words here...it is the permanent marker, hence I said dye, because I have already ruined a sports bra and cameo where the ink would not wash out. SOME folks, even with tattoos get drawn on. I was told that won't happen anymore to me, so now the t-shirts are for avoiding the rub under the breast from a bra and to soak up the extra cream I will be using. I suggest that you ASK your radiation onc. about whether you will be marked the entire time, or just until the tattoos are done. My radiation nurse did say that t-shirts are best, at least around the house. Since I cannot go nude, ha, I got the shirts. Good luck. I am sure this thread will still be going strong in April. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Susan
  • Total Posts : 2839
  • Reward points : 7205
  • Joined: 1/1/2005
Ann - Friday, February 15, 2008 5:00 PM
My cousin was told 15 years ago when she had rads to use baby powder for her deoderant. I asked the nurse about this and she looked puzzled. I know my cousin never burned, so you have to wonder. I also have a deoderant that came from a health store. It looks like a candle without a wick. The nurse told me to bring it along with the list of ingredients and they could tell me whether or not it was safe. I guess winter rads. are good for one thing...less body odor. HA. I stopped using regular deo. along time ago because I already have to much aluminum in my body. I found this out through a hair analysis done by a naturapath. Thanks for adding about the gas allowance. I will check into that. Everyone is being so wonderful in sharing their experiences. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Kerry
  • Total Posts : 921
  • Reward points : 0
  • Joined: 5/22/2007
RE: Radiation Tips and Experiences - Friday, February 15, 2008 5:11 PM
Hey Suzie!
I made my appt for 11:00.  I would go get the kids off to school, go for a  walk, shower and go.  It turned out to be a pretty good time, I think, not too busy, but I did notice a lot of younger people went earlier or later in the day.  good luck!
Kerry
40yo(now 42)
dx 3/07 (thought DCIS)
lumpectomy4/07 1.5 cm tumor,sentinel node bx
stage I,node - OncoDX score 18 ER/PR+, Her2-
TC 4 rounds DONE 9/18
Radiation DONE 11/27
b/l ooph 6/08
Arimidex 7/08
brca1/2 -
carepage: ringofkerr

Sue T.
  • Total Posts : 532
  • Reward points : 14675
  • Joined: 8/16/2007
RE: Radiation Tips and Experiences - Friday, February 15, 2008 5:51 PM
Thanks Susan (and Coco) - I went today for my 1st appt with the rad onc and got all the info along with the tatoos and markings. All of this info comes at just the right time for me, too.
 
Nothing I can add - I'll be starting on the 26th - a total of 33 treatments but at least I'll be finished in time for my trip to  Disney World - celebration time!!
 
Again - thank you Sister Susan - you're the BEST!!
((HUGS))
Sue
Atlanta GA
Dx 7/23/07 DCIS&IDC
Lumpectomy & SNB 8/13/07-nodes clear
Strongly Triple +++
OncotypeDX 45
4 AC (dense dose)done 11/07/07
Taxol w/Herceptin x 12 weekly done 2/13/08
Rads x35 done 4/10
Herceptin thru 10/29/08
Arimidex started 10/12/08 - 10 years

Susan
  • Total Posts : 2839
  • Reward points : 7205
  • Joined: 1/1/2005
Sue T - Saturday, February 16, 2008 9:14 AM
Even if all you can add throughout is how easy is was, then do that. Many need to hear the GOOD side of all of this since we are all different. With all you have suffered and kept on working, I would say you might very well be one on here talking about how easy rads. are. BIG HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Sue T.
  • Total Posts : 532
  • Reward points : 14675
  • Joined: 8/16/2007
RE: Sue T - Monday, February 18, 2008 1:38 PM
Bump - want this to stay near the top for a while
Atlanta GA
Dx 7/23/07 DCIS&IDC
Lumpectomy & SNB 8/13/07-nodes clear
Strongly Triple +++
OncotypeDX 45
4 AC (dense dose)done 11/07/07
Taxol w/Herceptin x 12 weekly done 2/13/08
Rads x35 done 4/10
Herceptin thru 10/29/08
Arimidex started 10/12/08 - 10 years

Jill36
  • Total Posts : 8
  • Reward points : 0
  • Joined: 1/23/2008
RE: Radiation Tips and Experiences - Monday, February 18, 2008 3:14 PM
Hi,
I had the mammosite inserted on Friday.  Unfortunately because of my breast size and not having enough tissue, the balloon was removed this morning.  (Having it in all weekend for nothing was a major pain)  I now have to have regular radiation.  Honestly, I am glad.  I did not have the best of luck with the mammosite.  I go in for my "tattoos" tomorrow the 19th.  I was told to only use pure aloe vera, purpose or dove soap and Crystal deodorant (which the Oncologist gave me).  Good luck to all of you! 
Jill 36, dx 1/15/08
ER+,PR+, HER2-
1/29 Lumpectomy & sentinel node removal
2/1 Margins not clear, Lymph negative
2/4 Re-excision for more tissue removal
2/7 Margins clear

Change Page: < 12345678910.. > | Showing page 2 of 22, messages 21 to 40 of 432