Radiation Tips and Experiences

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Tricia Keegan
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Re:Radiation Tips and Experiences - Tuesday, March 06, 2012 2:35 PM
Hi Vicki,
 
I'm so glad you're beginning to see a light at the end of the tunnel and must admit rads for me were a breeze after chemo too!!
 
My main side effect was fatigue but some people do complain of nausea, thankfully you have no redness yet (I did'nt either and used aloe vera) so hope that continues and please be sure to post when you're !
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Lady Godiva
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Re:Radiation Tips and Experiences - Tuesday, March 13, 2012 5:25 PM
Hi from a newcomer. I just now finished my external targeted radiation course, and I am euphoric about that! I really was not looking forward to the experience at all, and said so many times to anyone who would listen. After conferring with my physicians and doing my own research, I figured that for me, radiation after surgery would give me the best odds of survival.
 
Now that I am finished, I can say with all honesty that the process was not as bad as I had envisioned. The facility recommended Aquaphor, but I was allergic to the lanolin in it, and my skin seems to react to straight 100% aloe, so I looked for something which would keep my pale fragile skin as safe from redness, burns, etc, as much as possible. I settled on a new "Jergens Crema" product, which comes in 3 different formulas. I picked the formula which emphasized oat, shea butter, cocoa butter and a slew of ingredients which would keep my skin non-greasy, moisturized, and would absorb quickly. My daily routine was to apply this stuff immediately following treatment, and then again every several hours until about 3 hours before the next treatment was due. The Doc was amazed at how little my skin reacted to the radiation. Believe me, I was doing everything I could do to prevent skin damage of any kind, even if it meant losing a bit of sleep. I also drank lots of water to keep the skin cells hydrated.
 
Yes, my INNER affected breast is sore and I have "flash" pain and lots of fatigue. But hopefully each day I am recovering from the impact of radiation. And I remember that it was my choice to go this route to hopefully decrease the chance of recurrence.
Diagnosed with IDC: Oct 2011
Surgery: Jan 2012
Radiation: DONE!!!

Tricia Keegan
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Re:Radiation Tips and Experiences - Wednesday, March 14, 2012 5:51 AM
Congrats on finishing rads and glad this cream worked well for you!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

dalton22
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Re: Krista - Friday, May 25, 2012 3:40 AM
Everyone with has a same experience with radiation.Radiation will be different for everybody. Not every one of you will get a similar reactions, a few of course might be worse than the others. Remember all may be managed. Stay with alert for those symptoms.

Cindy62
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RE: Radiation Tips and Experiences - Thursday, June 07, 2012 9:58 PM
Hi...I just had the balloon catheter radiation.  Would love to know what you thought of it.  



printersss
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Re: Krista - Monday, February 25, 2013 3:47 AM

Tumor is the base of 80% cancer
Treatment as a palliative when eliminating the tumor is not possible. 
Help shrink the tumor before surgery
After surgery to treat any remaining cancer cells in combination of chemotherapy treatment.

LisaD
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Re: Krista - Saturday, April 13, 2013 8:02 PM
I just wanted to post for anyone who is going through rads now, or getting ready to start. I am 4 treatments away from finishing and after reading every single post in this forum, I decided to use Recovery Cream that you can order on line. It worked very well for me. I did have a bad burn in the crease under my breast and at my lymph node incision but they are healing quickly. One thing that no one mentioned was that you can (very rarely) get an infection in the breast during rads! I was lucky enough to do this... My advice however, is that if you have all over pain and swelling in the breast, not just shooting pains, talk to your Rad Onc about it right away. My Dr didn't thought it was from chemo at first but then realized I had a problem and needed antibiotics. Other than that, with Recovery Cream, I survived. Good luck to all,
Lisa, Age 51 @ DX Lumpectomy 8/30/12 
-1.5cm Stage 1a IDC Grade 2, DCIS Grade 3 
-ER/PR Poss, HER2 Equivocal 2(Borderline), FISH Neg, 
-Node Neg, OncotypeDX 25
- T/C x 6 (done 1/28/13)
-33 Rads (done 4/18/13)
-Tamoxifen (4/19/13 for 10 yrs)

Tricia Keegan
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Re: Krista - Sunday, April 14, 2013 6:39 AM
Thanks for the good tip Lisa and congrats to you on getting through it!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Pam R.
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Re: Krista - Sunday, April 21, 2013 3:34 PM
I just finished treatment #18 out of 30 and I am experiencing issues under my breast and in my armpit.  It is raw, red and weeping a little.  Did anyone experience this?  Also, I did not know about no BP or blood draws from that arm, that is my only really easy vein.  What effects will I have from doing them?

Tricia Keegan
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Re: Krista - Sunday, April 21, 2013 5:16 PM
Pam your nurse's or Drs will know not to take your BP or draw blood from that arm but remind them if they forget. It does carry a small risk of lymphedema which is not life threatening but painful! Please tell your rad Onc about your breast burning issue's as there's some cream they can prescribe to help you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

LisaD
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Re: Krista - Sunday, April 21, 2013 6:14 PM
Hi Pam, I just finished 33 Rads on Thursday and also had a problem under my breast and at my lymph node incision. The Dr can prescribe creams for this and occasionally will delay treatment for the skin to heal. My Dr wanted to delay for 1 week but I put gobs and gobs of very thick Eucerin on the areas as well as gauze pads and was able to proceed. I used Recovery Cream on the rest of my breast. They do have prescription creams like Silvadene that they can use. Good luck to you.
Lisa, Age 51 @ DX Lumpectomy 8/30/12 
-1.5cm Stage 1a IDC Grade 2, DCIS Grade 3 
-ER/PR Poss, HER2 Equivocal 2(Borderline), FISH Neg, 
-Node Neg, OncotypeDX 25
- T/C x 6 (done 1/28/13)
-33 Rads (done 4/18/13)
-Tamoxifen (4/19/13 for 10 yrs)

shan72
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Re: Krista - Thursday, September 26, 2013 8:35 PM
Today was radiation number 24. I will have 28 treatments, and eight boosts. I'm beginning to burn pretty badly. The dr has recommended hydrocortizone cream. He says it should reduce inflammation and help with the itching associated with the burn. I hadn't seen that posted anywhere in this thread (although I may have missed it). I'm allergic to the sulpha in Silvadene, so that isn't an option for me. Hope my info helps someone!

Tricia Keegan
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Re: Krista - Friday, September 27, 2013 5:03 AM
Thanks Shan and good luck with the rest of the treatments, some natural aloa vera helped me too.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

PamKP
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Re: Krista - Tuesday, October 01, 2013 8:54 PM
Today was my 6th treatment.  My doctor has recommended putting hydrocortizone cream on my breast from the first treatment to help the skin not to break down as quickly.  It also helps tremendously with the itchiness.

Jijabrte
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Re: Krista - Wednesday, February 12, 2014 10:34 PM
Hi,  I'm Jill and I was diagnosed with stage 1 breast cancer just before Christmas.  I've had a lumpectomy and negative lymph nodes.  I begin radiation next week.  They are going to increase my dosage into 22 treatments instead of 33 .  Has anyone done this on this message board?   I can't locate new posts only several year old posts.  I'm wondering about fatigue and breast skin reactions.   Thanks.  We can all be strong together. 

Tricia Keegan
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Re: Krista - Thursday, February 13, 2014 3:15 PM
Hi Jill,

Its good news you only need 22 rather than 33 treatments, some people don't burn at all and I myself only gave went a little pink and itchy, I used natural aloe vera cream after treatments each day and feel sure it helped, good luck!

You can also get info on www.breastcancer.org
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Leah1907
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Re: Krista - Thursday, February 13, 2014 7:09 PM
Hi Jill,

Yes, that's great news to have your numbers of treatments reduced!  Good for you!

I used a product called Recovery Cream and it was awesome.  I applied it 5 or 6 times a day (didn't think I could over do it) and had no trouble wtih burning ~ just a little redness that would come and go quickly.  Here's the website if you're interested.  http://www.recoverycream.com/


Good luck with treatment,
Leah
Leah - Wisconsin
2/8/13 DCIS in left breast, ER+ PR+
3/11/13 skin and nipple sparing mast of left breast with expander
5/9/13 expander replaced with saline implant
5/28/13-7/5/13 radiation 
11/26/13 augmentation of the right, healthy breast with implant
12/2/13 LCIS in right, "healthy" breast
2/5/14 skin and nipple sparing mast of right breast with final implant

Jijabrte
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Re: Krista - Thursday, February 13, 2014 10:12 PM
Thank you your responses.  It made my heart smile.  The kindness of a stranger.  I looked at both recommended sites.  Has anyone had a higher dose radiation treatment and what was your reaction?

Tricia Keegan
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Re: Krista - Friday, February 14, 2014 6:30 AM
Jill I had 33 treatments and five "boosts" to the tumour site and really didn't burn at all but did find it very exhausting going each day as I had quite a journey there. Just remember not to use any creams or deodorant etc before your treatment as some contain tiny metal particles and can interfere with the machine.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

missy2010
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Re: Krista - Monday, May 05, 2014 11:27 AM
I finished radiation last Thursday.  My skin got a little pink and I am using Aquaphor.  I do not care for it as it is greasy.  It stained the sheets.
I was surprised to be fatigued soon after starting treatments. I have also had a lot of pain in my breast. The pain is worse now after finishing treatment. Very sore and raw under breast. The doctor gave me gel surgical pads which work great underneath. 
Cynthia

DCIS Stage 0
Left breast
Lumpectomy

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