Radiation Tips and Experiences

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Tricia Keegan
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  • Location: Ireland
RE: Radiation Tips and Experiences - Monday, March 10, 2008 6:20 PM
Ladies here's another one who did'nt have a mold! I also felt the extreme fatigue from the first week and although it seemed endless looking back it did go by quickly. Good luck to you all for gentle tanning with NO burns!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Susan
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RE: Radiation Tips and Experiences - Tuesday, March 11, 2008 1:53 PM
HALF WAY...17 DOWN 17 TO GO. I am SO RED, but not really hurting. It feels tight in the mornings when I can only use something when I first get up and not again until after treatment at 11:45. As long as I am putting something on me every couple of hours, alternating the Biafine and aloe vera gel, I am ok. I asked today if there was ANYTHING I could use in the mornings and was told a polite, "NO. We do not want your skin greasy for treatment. It would only make matters worse."   OK...GOT IT. Now, find an earlier time for me!! I'm just kidding. I know that as long as this is all I have to complain about...ALL IS WELL.   HUGS.
 
 
Tricia, I am glad you spoke up about the mold because I don't recall ever hearing that from anyone else. I was a very long time here before I heard about that part and started asking questions. I think it was Gail or somebody making a comment about the "fine art" for the coffee table or something. Maybe it wasn't her, but it was around the same time she was doing her treatments. Who ever said it...they must have a much better "form" than I do...I don't want that thing. HA. [sm=laugh.gif]
 
HUGS TO ALL.
 
P.S. It was my one year cancerversary on 3/9/08. Not sure how to feel about that just yet.
<message edited by Susan Creed on Tuesday, March 11, 2008 1:56 PM>
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Sandefeet
  • Total Posts : 86
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  • Joined: 1/13/2008
RE: Radiation Tips and Experiences - Tuesday, March 11, 2008 8:01 PM
Yeah, for you, Susan!  Half way is big!
 
I did not have a mold either.  I asked my rad onc and he said it was different methods.  I laid on a thin HARD table with my hands holding onto bars and my head turned.  I have 3 tatooes and was lined up each day with the tatooes and xy axis on the radiation machine.  I got zapped in 3 directions.
 
Here's the good news - I am one week and one day out of treatment and my energy level is returning.  Only my boost area is faded pink, the rest of my skin looks normal.
 
HUGs to all of you!

DianeA.
  • Total Posts : 201
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  • Joined: 10/7/2007
RE: Radiation Tips and Experiences - Wednesday, March 12, 2008 7:37 AM
Did anyone feel really tired after just after two treatments.  I am not sure if it is the time change or radiation.  My first treatment was on Monday and today I feel sooo tired it was really hard to get up this morning. I can't recall my eyes being this tired even from chemo.  My husband thinks it's the time change since we are getting up in the dark. 
Dx'd @ 42 Now 46 - New Jersey
Dx'd 8/20/07 - Stage IIIa
Lumpectomy 9/7/07
ER/PR+, HER2 (Not Amplified)
4x A/C, 4x Taxol - DONE 2/8/08!!!
Radiation - DONE 4/25/08!!!
Tamoxifen 3/22/08
Started Lupron Shots - 10/2010
6/20/11 Dx'd Stage 4 to Lungs
6/31/11 Start Chemo - Gemzar

Susan
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Diane - Wednesday, March 12, 2008 8:39 AM
I felt tired during my second week. I am not sure why now, because it went away. This time change has messed me up. I go to bed at my normal time and lay there for an hour. Hopefully, it is just the time change and will only last a few nights for both of us. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

DianeA.
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  • Joined: 10/7/2007
RE: Diane - Wednesday, March 12, 2008 9:12 AM
Hi Susan, that's what i am hoping.  If the warm weather would start kicking in i think i will feel better ... but its just too cold.
 
For the past couple of days I have also gone to bed earlier because of being tired but it's just not helping.
 
Diane
Dx'd @ 42 Now 46 - New Jersey
Dx'd 8/20/07 - Stage IIIa
Lumpectomy 9/7/07
ER/PR+, HER2 (Not Amplified)
4x A/C, 4x Taxol - DONE 2/8/08!!!
Radiation - DONE 4/25/08!!!
Tamoxifen 3/22/08
Started Lupron Shots - 10/2010
6/20/11 Dx'd Stage 4 to Lungs
6/31/11 Start Chemo - Gemzar

Coco
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  • Joined: 10/31/2007
RE: Radiation Tips and Experiences - Wednesday, March 12, 2008 9:13 AM
Hi All,  I just had my 12th treatment and am starting to get pink.  I told the techs and they said yes that happens.  Just keep using the cream.  I am using the 5%steroid cream and the biafine 3 or 4 times a day.  My appointment is at 7am so I put it on after my treatment and then go to the gym.  I haven't felt tired but I think I'm getting  more sleep by going to bed at 9:00 and getting up at 5:30.
All the summer reruns will be new to me.
Take care and keep posting.
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

MN Girl
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  • Joined: 3/11/2008
RE: Radiation Tips and Experiences - Wednesday, March 12, 2008 12:38 PM
I didn't find it on this thread but has anyone had radiation with expanders in place?  My PS wants to expand me 100ccs over what I am going to end up with because of the need for radiation.  Wondering if anyone has any success or failure stories about radiation and expanders?  Sounds like the radiation can do a number on the tissue and my PS said can be a reason that they can't put in the exchange implants and would look at a different reconstruction option.  Anyone??

Denise
DX 11/13/07 Age 34
IDC tumor 3.1 cm Grade 3 (Stage IIb)
ER+ PR+ HER2 -
3 lymph nodes +
Bilateral mastectomy w/expanders 12-7-07
4 AC done/4 taxol
Radiation likely
Mom of 15 yr old boy & 10 yr old girl
Married to HS Sweetheart 16 years

skbadger
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  • Location: Waukesha WI
RE: Diane - Thursday, March 13, 2008 10:05 PM
Hi Ladies,
 
I had my 2nd sim/test run today and will start rads on Monday 3/17.   I know this is going to be easier than chemo but I've been totally depressed all week about starting rads.  I'm sooooooooo not looking forward to this.  [sm=whew.gif]
 
 
Sara, dx 6/07 @ 39 yo
BRCA neg ER+ PR+ Her2+++
lumpectomy 7/31/07
Stage IIA grade 2 1+/32 nodes
4 AC; 12 Taxol+Herceptin-DONE!
31 rounds of Rads-DONE!
Herceptin thru 11/08 - DONE!
Tamox & Lupron shots

codetwinmom
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  • Joined: 1/12/2008
RE: Radiation Tips and Experiences - Friday, March 14, 2008 12:33 PM
This afternoon I will have treatment #18...HALF WAY MARK, YEAH!
 
Fatigue hit end of last week (about #10).  I find that the more I do, the better I feel.  I spent Saturday reading (read Valerie Bertinelli's book in 1 day) and doing nothing.  I think I felt worse doing that.  Working helps, as does a nightly walk. 
 
Two days ago, slight rash under my arm and above breast.  The area around my scar is very red (12 o'clock).  No real pain, just discomfort.  I still have this dang cough!
 
How is everyone else doing?
Mona
45 years old
Stage 1/Grade 1 IDC
Lumpectomy and sentinel node removal 1/16/08
Clear margins
Start rads 2/20 (36 total, 28/8 boost), done 4/9/08
Tamoxifen and Lupron started 2/14/08
Living with NED

Susan
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RE: Radiation Tips and Experiences - Saturday, March 15, 2008 7:54 AM
Mona, I am just barely ahead of you. I have 19 down instead of 20. The machine broke on Thurs. so it was cancelled. I have 15 to go.
 
I am VERY RED and ITCH. I have to see the rad. onc. on Monday to decide if my skin needs a break.
 
I have never developed the sore throat. I am having the nodes above the collar bone radiated, but so far no problems at all in that area. It is not even red. I just began turning red under my arm this week.
 
As far as fatigue, it comes and goes. I felt great on Thurs. when my appt. was cancelled. I did yard work for about 2 hours. If I don't stay busy, I get sleepy around 2 p.m. [sm=sleeping.gif] A nap messes me up for going to bed at night, so I am trying to stay busy.  HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Dana Timmerman
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RE: Radiation Tips and Experiences - Saturday, March 15, 2008 8:13 AM
These messages are full of good advice in every post.
Can anyone suggest a good deorderant? I've read to buy Fruit of the Earth 100% Aloe Vera. But missed the deorderant reccommendation. Where to buy or order too?
 
Thank you,
Dana
Dana
northern Indiana
Dx'd 11-2-07 @ age 45
ER/PR -  Her2+++
Taxotere, Carboplatin, Herceptin
Radiation
NED!
3 daughters
great husband


Susan
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RE: Radiation Tips and Experiences - Saturday, March 15, 2008 8:19 AM
Dana, I bought deo. at the health food store. It is aluminum free, but has mineral salts. My rad. team wanted me to try and find one without the salts. I had people suggest Tom's deo. (I think). I have had no luck. I haven't looked online. My deo. looks like a short, fat candle without the wick.  You dampen it and rub it on. Some have suggested baking soda. My cousin's rad onc. told her to use baby powder. Discuss this with your rad. tech nurses. They should be able to help you choose the right thing. The wrong product will cause you to burn. Good luck and BIG HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Susan
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  • Joined: 1/1/2005
Anyone else have their boosts in the middle of radiation? - Monday, March 17, 2008 6:19 PM
Well, I got 19 done (machine was broken last Thurs.) and now they have decided to do my "cone down" or boosts starting tomorrow. They drew on me with the lovely markers and got what they needed to have that set up by tomorrow. I will have 6 of these treatments (they drew an oval around my incision) and then finish up the regular treatments. STRANGE. They say they do this sometimes so as not to have to break up the cycle and get you off schedule. Anyone else ever had this done like this?
I also developed a rash on my back. Right shoulder. They say it is the exit area of some of the radiation. Put the Biafine on it...GREAT...hubby is out of town all week, so my daughter got the job today since she came over for her birthday. I CAN'T REACH IT. Guess I will have to figure something out. Any suggestions? HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

Cindy D.
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RE: Radiation Tips and Experiences - Sunday, March 23, 2008 5:55 PM
Just bumping this up in case some new folks need a look at all the great advice....
 
cindy d.
Mass. 
56 yrs old
dx 1/10/07
Stage IIIa
ER/PR +,Her2 -
chemo: 4ac/4 taxol  5/24/07
lump: 6/18/07
mast: 7/16/07
tamoxifen: 7/25/07-2/9/09
rads:  10/25/07
clinical trial: avastin and xeloda, 12/07-11/08
arimidex/lupron: 2/09/09-12/28/11
clinical trial: femara 1/1/12 9 months on, 3 months off

DianeA.
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RE: Radiation Tips and Experiences - Sunday, March 23, 2008 7:18 PM
Dana,
 
My onco told me to use Tom's deodorant.  My husband found it at the vitamin store.  It's called Natural Care Tom's of Maine deodorant which is unscented and aluminum-free. For those of you that can't find it, try www.tomsofmaine.com
 
Diane
Dx'd @ 42 Now 46 - New Jersey
Dx'd 8/20/07 - Stage IIIa
Lumpectomy 9/7/07
ER/PR+, HER2 (Not Amplified)
4x A/C, 4x Taxol - DONE 2/8/08!!!
Radiation - DONE 4/25/08!!!
Tamoxifen 3/22/08
Started Lupron Shots - 10/2010
6/20/11 Dx'd Stage 4 to Lungs
6/31/11 Start Chemo - Gemzar

LoriS
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RE: Radiation Tips and Experiences - Sunday, March 23, 2008 9:16 PM
I found Tom's at Walmart.  Bottom shelf of deod. isle.  15 down 18 to go for me.  Just a little pink of the skin.  So far so good!

Coco
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RE: Radiation Tips and Experiences - Monday, March 24, 2008 12:15 PM
Hi Dana,  How are you doing?
I just had my 20th rad and have 15 more to go.  I have a rash on the inside of my breast but nothing that the cream can't take care of.  I am going to get a double treatment one of the boost days so I can be finished the 11th of April instead of the 14th.  I ended up finishing up on a Monday because my first day of treatment the machine was down.  Luckily that hasn't happened since.  Have you started rads yet?
Claudette
Age 67
DX 10/8/07
10/29/07 LUMPECTOMY RT BREAST INVASIVE DUCTAL CARCINOMA
LYMPH NODES NEG Stage 1 Grade 3
Triple negative
4 cycles of Taxotere and Cytoxan Finished 1/29/08
35 Rads finished 4/11/08
Malvern, Pa

terri67
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  • Joined: 10/19/2007
RE: Radiation Tips and Experiences - Tuesday, March 25, 2008 4:59 PM
Hi, I start my Radiation tomorrow ,36 in all. Today I had my simulation. I have my new tattoo's. Can I wash off all the other lines and marks or should I leave them on for tomorrow ? I forgot to ask that before I left today. 
 
Thank you ,Terri
age:41
Dx: 9/24/07 IDC
10/17/07:lumpectomy & sentinel node.
10/22/07:re-excision. & 1/18nodes+
Stage: 2a.,ER/PR+,HER2+
11/12/07: port
11/15/07: 1st.chemo.
Taxotere,Carbo.,Herceptin
5/12/08:Radiation finished.
Tamoxifen

Susan
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  • Joined: 1/1/2005
Hi Terri - Tuesday, March 25, 2008 5:04 PM
Once my tattoos were done, I was told it did not matter if the marks came off. Maybe you could wait one more day before scrubbing them off, just in case.  Good luck. The time will go by pretty fast. I have completed 24 of 34. Hang in there and keep posting here to help others in the future. HUGS.
Susan in TN
dx 3/05/07
IDC 3 cm.,10% DCIS/Stage IIB/T2/G2
6/9 + lymph nodes
ER+ 90%/ PR-/ HER2-
A/C,Taxotere
Simple rt. mast.
Arimidex 
Radiation
carepage:blackeyedsue

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