Visit Komen.org
Lower Your Risk
Prev Thread Prev Thread   Next Thread Next Thread
 My tips for chemo...
Change Page: << < ..1112131415161718 > | Showing page 15 of 18, messages 141 to 150 of 179
Author Message
Wintersmom

  • Total Posts : 42
  • Reward points : 2570
  • Joined: 11/24/2012
  • Status: offline
Re:My tips for chemo... - Friday, January 18, 2013 10:57 AM
Hi everyone, all of this information is so helpful. I have my last infusion of ACT next week and then I move on to Picliatexel. My Dr at first said this woukd be like a cold compared to the flu like symptoms of the ACT and also at first said my hair would most likely start to grow back on this drug. Now he says I could still be as sick or worse and my hair could continue to fall out, I have been pretty lucky with not being too sick to handle and I have not lost my eyebrows or lashes. Just wondering if anyone has any experience with Paclitaxel.Thanks as always
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13515
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:My tips for chemo... - Friday, January 18, 2013 2:12 PM
Hi Wintersmom, do you mean you're finished a/c and now begin Taxol?? (short for paclitaxol) and if so I found it far easier to tolerate than a/c, I didn't need any anti nausea meds at all, my hair grew back but I lost my lashes and brows and a couple of finger nails! I had a shorter dose weekly for 12 weeks so my side effects were not too bad at all and hope you do well with this med.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Wintersmom

  • Total Posts : 42
  • Reward points : 2570
  • Joined: 11/24/2012
  • Status: offline
Re:My tips for chemo... - Friday, January 25, 2013 7:34 AM
Hi Tricia, yes that is what I mean. I just finished my last A/C yeasterday now on to the Taxol. I did not realize that was the short name. I will be glad for my hair to start growing back, but I will be sad to lose my lashes and eyebrows. I hope this will be more tolorable like you said. I had a pretty bad week after my last A/C Thrush, exhaustion, a cold that I still have, it was bearable , but that was my work of all. Thanks for all of the information
Donna
Mother of Winter
Liv

  • Total Posts : 10
  • Reward points : 240
  • Joined: 1/25/2013
  • Location: Australia _ Perth
  • Status: offline
Re:My tips for chemo... - Friday, January 25, 2013 10:23 AM
hello - drink gallons of water - after couple of doses you will see a pattern emerging when all the side effects come to play. that is when you need to listen to your body and nurture it, dont resist you will emotionally collapse. xx
~~~~luvs liv~~~~ IBC - Trip Neg - 10cm - 17/24 nodes - dx April 2012 6 months chemo - mastectomy - rads - finished.. Currently xeloda - navalbine - looking forward to reconstruction 12/2013
Wintersmom

  • Total Posts : 42
  • Reward points : 2570
  • Joined: 11/24/2012
  • Status: offline
Re:My tips for chemo... - Sunday, January 27, 2013 7:08 AM
Thanks ladies, as always you are all amazing
Donna
Mother of Winter
Her Dotness

  • Total Posts : 564
  • Reward points : 4525
  • Joined: 12/13/2010
  • Location: St. Louis, MO burb
  • Status: offline
Re:My tips for chemo... - Sunday, January 27, 2013 9:15 AM
There are probably a lot of individual variations as to when a person will lose eyebrows and eyelashes, much depending upon what drugs you have had, I'm guessing.

I had Taxotere and Cytoxan and was so pleased that I never lost my eyelashes or eyebrows....until about two weeks after my fourth infusion just as I was about to start rads! I didn't fully lose my eyebrows but sure did all my eyelashes. It just plain sucked! Luckily, I had been a theater major good with makeup so could do skillful camouflage.

Of course, the upside was that I lost all my crone chin hairs too. Those I did NOT miss!

Probably the worst side effect I had was extreme fluid buildup in my legs after the third infusion, common with Taxotere. Even with medication, it took much too long to suit me for that to reduce fully, several months after I finished rads. I even had to wear compression stockings for some time. Horrible things, those!
dx 11/29/10 DCIS/IDC
1/5/11 lumpectomy, SLND 2+, ALND - 
T1c, clean margins!
er +/pr + (My little nasty was an estrogen drunk, said my med onc.) HER2 -
Chemo: TC Done 4/30/11 
Rads:  Done 6/30/11 
Arimidex 7/11-? 
shan72

  • Total Posts : 23
  • Reward points : 2685
  • Joined: 10/30/2012
  • Status: offline
Re:My tips for chemo... - Tuesday, January 29, 2013 9:48 AM
It has been a really rough few days. Friday evening (first round of AC) I began feeling nauseous. I remember laying in the bathroom floor unsure if I'd be able to do this for three months. I spent the night watching the clock, taking my anti nausea meds every four hours. The nausea has pretty much passed. Now I'm just tired! I sleep a majority of the time. I can only manage to stay up for about an hour before I'm ready for another nap. Truly, though, I am feeling a little better each day. I did go ahead and buzz my hair to 1/2 inch all over. I just didn't have the energy to wash and deal with it. I still need your prayers and for you to help me remember that this awful chemo has the power to kill those cancer cells, and that this is temporary!
Wintersmom

  • Total Posts : 42
  • Reward points : 2570
  • Joined: 11/24/2012
  • Status: offline
Re:My tips for chemo... - Wednesday, February 06, 2013 7:28 AM
Hi Shan, I am so sorry to hear you are feeling so sick. I hope you are feeling better. Remeber no matter what this is just for now and it will get better
Donna
Mother of Winter
michelecuddy@gmail.com

  • Total Posts : 5
  • Reward points : 790
  • Joined: 11/18/2012
  • Status: offline
Re:My tips for chemo... - Monday, February 11, 2013 12:02 PM
I came through 4 rounds of dose dense AC with not too many terrible side effects but it also didn't seem to be doing too much.  My tumor markers kept rising.  I just finished my 3rd round of taxol and have had many side effects black fingernails, lost my eyelashes, terrible body aches for just a couple of days,  thrush, and blisters on my feet and nueropathy in my feet and fingertips but my tumor markers have dropped to below where I started this journey so I keep reminding my self that the Taxol seems to be doing the trick for me!
2008 dx DCIS  bilateral masectomy
2012 dx Stage IV Bone Mets  currently on AC and Zometa
Tricia Keegan

  • Total Posts : 19215
  • Reward points : 13515
  • Joined: 1/1/2005
  • Location: Ireland
  • Status: offline
Re:My tips for chemo... - Monday, February 11, 2013 1:51 PM
Hi Michele and I'm so pleased the Taxol is working so well for you despite the side effects, just remind yourself its all temporary. You may want to send Komen Admin a pm to change your username rather than have your e mail address?? I can't change it for you undfortunatly so you'll need to contact them directly.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Change Page: << < ..1112131415161718 > | Showing page 15 of 18, messages 141 to 150 of 179

Jump to:

Icon Legend and Permission
  • New Messages
  • No New Messages
  • Hot Topic w/ New Messages
  • Hot Topic w/o New Messages
  • Locked w/ New Messages
  • Locked w/o New Messages
  • Read Message
  • Post New Thread
  • Reply to message
  • Post New Poll
  • Submit Vote
  • Post reward post
  • Delete my own posts
  • Delete my own threads
  • Rate post

© 2000-2008 ASPPlayground.NET Forum Version 3.1.5