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 My tips for chemo...
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.MARIANNE

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Re:My tips for chemo... - Saturday, May 02, 2009 1:04 PM
I need some help. Karen very graciously sent me the Glutamine powder. I need to talk to one of you who took the powder during your chemo. I noticed that the papers said that you needed to take another supplement with it. If you know anything about it please let me know.  Thanks





Marianne, TX-age 64
Mammy,Jan2009-lump in rt.breast
Lumpectomy-Feb 17,2009
Diag.,IDC,stage2,grade3,triple ng.HER (1+)
chemo starts 4/6/09 (CYTOXAN &TAXOTERA,W/Neulasta
Rad after chemo

LuCinda

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Re:My tips for chemo... - Wednesday, May 06, 2009 2:57 PM
My lumpectomy is May14 and I start Chemo 2 weeks after that.
Thank you to everyone for all of your personal and priceless information.
I may have to read this thread many,many times.I really learned alot today.Thank you.
Hugs,
Cindy (aka) LuCinda


Diagnosed-March 30,2009 Stage 2 ER/PR NEG. HER-2 postive
Lumpectomy-May 14,2009
Chemo-2 weeks after surgery
A/C- 4 treatments every 3 weeks-1st treatment June 3,2009
Last Treatment Aug.6,2009=DONE
Taxol + Herceptin weekly for 12 weeks
First treatment Aug.27,2009
Finished Taxol Nov.13,2009
Radiation-36 treatments-Start January 8,2010
Herceptin- every 3 weeks for 9 months

If it wasn't for the rain we wouldn't have rainbows.......
Deb Allen

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Re:My tips for chemo... - Wednesday, May 06, 2009 4:26 PM
Marianne, I personally don't know anything about Glutamine powder.  I'm trying to "bump" you up so someone who has taken this will respond.  If nothing else, PM Karen about her experiences, maybe?

Hugs,
Deb/aka Mimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all




.MARIANNE

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Re:My tips for chemo... - Wednesday, May 06, 2009 4:29 PM
Thanks Deb, I went back to when Karen first talked about it and found out the dosage. I also found out it is good to swish in the mouth for the soresl





Marianne, TX-age 64
Mammy,Jan2009-lump in rt.breast
Lumpectomy-Feb 17,2009
Diag.,IDC,stage2,grade3,triple ng.HER (1+)
chemo starts 4/6/09 (CYTOXAN &TAXOTERA,W/Neulasta
Rad after chemo

Deb Allen

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Re:My tips for chemo... - Wednesday, May 06, 2009 4:34 PM
LuCinda, thank your for your positive response about all our tips for chemo.  When I was "going through" everything, I bought a 3 inch binder, and began printing out helpful tips, thoughtful posts, inspirational messages, then expanded my binder to a 4", to include my oh-so-frequent lab tests, procedures, etc, but the bulk of the book contained posts I had printed from this site.  I carried this book everywhere, to every appointment, to every procedure, and it became my comfort and my strength.  I could sit waiting in a chair, and since I had the sections divided by tabs, (I know ... call me obsessive, unless you come to my house and see the mess!!!) ... I could read and immerse myself, plus I could highlight passages as questions, so I kept paper in the binder too...mostly it worked for me as a way to involve myself in my treatment, and carry my Komen angels with me.  To this date, I still have the binder, it is in a fireproof gunsafe in our house, and I treasure it as much as the Bible my grandmother gave me when I was 8 years old.

Deb/aka Mimi


Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all




LuCinda

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Re:My tips for chemo... - Friday, May 08, 2009 1:33 AM
Deb,
Thank you..... I think I will do that as well.That is a great idea.
Mine might not be as neat and organized as yours.lol And my house is a wreak too! My guess is that it's going to stay a mess for awhile!
Hugs to you,
Cindy



Diagnosed-March 30,2009 Stage 2 ER/PR NEG. HER-2 postive
Lumpectomy-May 14,2009
Chemo-2 weeks after surgery
A/C- 4 treatments every 3 weeks-1st treatment June 3,2009
Last Treatment Aug.6,2009=DONE
Taxol + Herceptin weekly for 12 weeks
First treatment Aug.27,2009
Finished Taxol Nov.13,2009
Radiation-36 treatments-Start January 8,2010
Herceptin- every 3 weeks for 9 months

If it wasn't for the rain we wouldn't have rainbows.......
pshelton

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Re:My tips for chemo... - Friday, May 08, 2009 11:34 AM
Thank you for the tips, I got the bad news yesterday that I do have to have chemotherapy afterall.  Several reasons came in to play on this, the largest mass being 2.0 cm, the second largest mass being 1.5 cm. and 5 of the 6 masses were all primary.  Also my age was a reason.  Fortunately the chemo is not cardiotoxic as some forms are, that was one of my first questions, I didn't ask about hair loss, I already knew that answer.  My treatments will start mid June, waiting for all the incisions to heal and the drain sites (finally drains pulled yesterday) to heal up.  
I will be on Cyclophosphamide (Cytoxan) and Docetaxel (Taxotere).  4 courses with 3 weeks in between each course.  

Paula, age 46, diagnosed at age 45, er/pr+, Her2-      
2/26/09 DX IDC multifocal, solid and cribriform type, 6 masses total, largest 2.0 cm
4/15/09 Bilateral skin sparring mastectomy with TE, 3 nodes removed, clear, Grade 1, Stage IIa
5/22/09 DIEP   5/26/09 Removal of failed left flap, TE replaced
7/2/09 Left Lat Flap with silicone implant
8/10/09-11/23/09 6 rounds chemo Cytoxan/Taxotere
3/5/10 More reconstruction
6/20/11 Final big reconstruction sur
Deb Allen

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Re:My tips for chemo... - Friday, May 08, 2009 4:33 PM
Lucinda, it doesn't matter if it's organized or not...it is YOURS.  You decide what is in your journal of your journey.  Like I said, I printed posts about tips, happy posts, posts that reminded me to ask questions.  Whenever you are in any doc's office, I found it soothing and calming to just flip through different posts, kept a highlighter and some of those post it note flags...so I could center myself, and still be able to get up and go to the appointment, carrying my notebook with me. 

I have to share this, my notebook contains optimistic, encouraging, personal posts and threads and private messages and emails from sisters who have since lost their battle.  They are still with me.  And nothing can take that away. 

Do what works for you!!  And @#$@ what the rest of the world thinks.  This is your life.

Deb/akaMimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all




Deb Allen

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Re:My tips for chemo... - Friday, May 08, 2009 4:37 PM
Paula, the bad news, can sometimes be the good news.  There is a treatment, and it is tough, but you can do this.  The chemo can put you into remission and a welcome date with NED.  I think I need to surf and post a photo of what NED looks like in our world.

Deb/aka Mimi

(so sorry, for the newbies, cuz I didn't know this for at least 2 months here...NED is our "go to guy"...he represents No Evidence of Disease)

Anyone want to join on what NED should look like? 
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all




cejkwj

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Re:My tips for chemo... - Friday, May 08, 2009 4:44 PM
I'd imagine NED to be tall, handsome and only have eyes for me.

KWJ
38 yo RI dx 12.1.08
Mixed IDC/ILC stage 3 Triple + (ER 60%, Her2 +++, PR+)
Taxol/Herceptin x 12 - done 3.5.09,RB Mastectomy and nodes 4.2.09 A/C April 23-June 25 2009,Herceptin done 3/24/2010 Rads 35  9/16/09,Tamox 7.09 5 years
Ibandromate study 7.09 3 years
TE placed 3/12/10 - recon TBD
Lapro hystrectomy 3/24/10 fibroids from tamox
POrt out 4/2/10
Yes, three sx in 3 weeks - worth it
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