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 Lymphedema
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ElaineQW

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Re:Lymphedema - Friday, March 06, 2009 8:50 AM
Hey Rene,

Just wanted to say hi to you.  Sorry about the lymphedema.  After reading this thread I'm still amazed at how pro-active we have to be throughout this experience.  

I'm doing just fine, but after insisting on an ultrasound (not just a mammo) on my good boob, they found "a little something" 2mm, and I will have biopsy on Tuesday.  I figure it's a 50/50 crapshoot :)  

Take good care,
Hug,
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





RP66

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Re:Lymphedema - Friday, March 06, 2009 2:32 PM
Hi Elaine,
I'm sorry to hear about the biopsy.  Will be keeping good thoughts for you on Tuesday.  It does seem to always be something.  This lymphedema stuff is crazy.  Luckily mine has stayed mild but I have felt some changes and they wanted to see me.

Thanks for the message.  I will be watching for your update.
Take care.
Rene'~OH
dx 10/06 @ 40 yrs old
stage IIIa/grade3, 7/10nodes+
er/pr+,her2+
a/c/t&herceptin
rbrst mast/hyst 3/07
33rads 6/07 Tried the AI's for 18 months & switched to Tamoxifen~much better for me! 
Bilateral Tram-flap 4/08 Revision-left 7/08 
New surgeon revisions: 5/09-8/09-8/10  
Dec 2010  Finally finished! 
cp:RenePetrovich
Ruthie1956

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Re:Lymphedema - Tuesday, March 10, 2009 8:18 AM
Hi Rene'!

Sorry to be so long in answering this as I forgot, (duh) that I started it...LOL

In answer to your question, I wear my sleeve, but not the glove, to work.  That way I can wash my hands still.  Mostly I use the alcohol foam stuff, but I wash every 5th time or so, and put antibacterial lotion on when I do.  (Provided by the hosp where I work)  All of this will dry out your hands so use an antibacterial lotion or inlieu of that Keri lotion on those hands.  Keep them moisturized.

Elaine, I'm PM ing you today!
Love Ruth
Diag. 7/06 2 lumpectomies, no clear margins
Inflammatory BC, DCIS and IDC
Chemo Aug 06-Dec 06
bilat mast 1/07
Radiation 2/07-4/07
Tried all AIs (ER/PR +, Her2 -) 
NED thus far, have RA now

Cancer is like quicksand, the more you struggle alone, the deeper you sink; but if you relax, spread yourself out and reach for help you are rescued! (rufus mcaine)
fuzzypeach

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Re:Lymphedema - Friday, March 20, 2009 1:07 PM
Does lymphedema last the rest of ones life? Or will it eventually lesson up? Just wondering...
Linda age 61
Hixton,Wisconsin
Stage 1,early 1mm R.b
ER/PR+
wires/surgical biopsy July 24
R.Mastectomy/nodes Aug.21
All nodes neg/no cancer cells
Lymphedema,rt.arm- Tamoxifen
If you can DREAM it,you can DO it.
Ruthie1956

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Re:Lymphedema - Saturday, March 21, 2009 9:36 PM
LE can recur after going away for awhile.  You can  get the swelling down, but the skin kind of has a memory for this and any little cut, scrape bite etc, is gonna get it going again.  Thats why we need to be so careful.  If you have a decent sleeve, wear it when you do unusual activity with your arm.  Try your darnedest not to get sunburned or bit by anything nor scratched by anything.  The tiniest innocent poke or break in the skin (I mean you MUST moisturize that arm at least!) can let in a bacteria that may set up shop right where you can't get at it easily.

There are those who have LE of the trunk or another limb...this goes for these areas as well.  Sunscreens are a must, summer is almost here!

Watch how you go thru daily activities...cutiing up food for dinner, heck walking thru doors..I'm clumsy and I bounce off walls and door jambs all the time.  Once I careened off a door jamb and hit my bad arm, bruised up a bit didn't even notice because its NUMB ya know?  My onc was very stern with me. 

It sounds scary, but really its just common sense.  Take it easy, don't be in a hurry, be careful with that arm.
Love Ruth
Diag. 7/06 2 lumpectomies, no clear margins
Inflammatory BC, DCIS and IDC
Chemo Aug 06-Dec 06
bilat mast 1/07
Radiation 2/07-4/07
Tried all AIs (ER/PR +, Her2 -) 
NED thus far, have RA now

Cancer is like quicksand, the more you struggle alone, the deeper you sink; but if you relax, spread yourself out and reach for help you are rescued! (rufus mcaine)
terri67

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Re:Lymphedema - Saturday, April 18, 2009 9:27 AM
I think I am experiencing my first flare up. It happened real sudden. My arm is swollen, red, hot and in pain.
 
I just put in a call to the Dr. it is Saturday so I don't know when I will get an answer back.  I have been taking advil pretty regular to help with the pain.
 
I keep reading that once you have it it can NOT be cured,   What does this mean ?
Does it mean my arm will always be swollen like this from now on , or does it me it can happen again at any time. ? 
 
Thanks,Terri67
age:41
Dx: 9/24/07 IDC
10/17/07:lumpectomy & sentinel node.
10/22/07:re-excision. & 1/18nodes+
Stage: 2a.,ER/PR+,HER2+
11/12/07: port
11/15/07: 1st.chemo.
Taxotere,Carbo.,Herceptin
5/12/08:Radiation finished.
Tamoxifen
JulieS

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Re:Lymphedema - Saturday, April 18, 2009 12:37 PM
Terri,
I don't have lymphadema but did find this for you on www.breastcancer.org.

http://www.breastcancer.org/tips/lymphedema/

If you click on the sections to the left there is more information, including how to manage at home.
If it gets to bad, go to the ER......it could be something else, so don't put it off.

Let us know..........and hopefully someone with first hand knowledge will be here soon.

Hope and strength,
Julie S




JulieS

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Re:Lymphedema - Saturday, April 18, 2009 12:45 PM
Terri,
After re-reading your post, I have been thinking it could be infected and you really should be seen by someone.....the infection could spread (like it says in the sudden onset part of the lymphadema link I sent for you)  If I were you I wouldn't wait till Monday.  The longer something like this goes on the harder it may be to get rid of.

Good luck......please do let us know!

terri67

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Re:Lymphedema - Sunday, April 19, 2009 8:58 AM
Thanks JulieS for the information.

The Dr. on call called back rather quick and said I should go to the ER because since it happened so sudden it could be a blood clot. 
I went to the ER where they did an ultra sound of the arm and did some blood work, there was no clot, thank goodness. they said it was cellulitis that is mentioned on the site you gave me. 

they gave me an IV of antibiotics and a prescribtion of antibiotics for at home. if it doesn't improve by monday I need to go back so I can get the IV treatment again.
age:41
Dx: 9/24/07 IDC
10/17/07:lumpectomy & sentinel node.
10/22/07:re-excision. & 1/18nodes+
Stage: 2a.,ER/PR+,HER2+
11/12/07: port
11/15/07: 1st.chemo.
Taxotere,Carbo.,Herceptin
5/12/08:Radiation finished.
Tamoxifen
B4

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Re:Lymphedema - Monday, April 20, 2009 1:29 PM
Good morning, Terri,
How's it going this morning? Hope things are clearing up well. Please let us know!
Hugs,
B4
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