Hi Everyone, my name is Norma June I was dx withe IBC on Jan 10, 2008.
I had my first symtomps in November of 2007, itching, sore lymphe nodes in arm pits and got the rash of the right breast on Nov 10, 2007. I knew when I got the rash that I had IBC but it took 2 months to get the "offiicial" dx.
I had a mamo in Dec of 2007 which was clear, had a Breast MRI in early Jan of 2008 with located the cancer and got a positive biopsy on Jan 10, 2008. I thank God for an excellent Breast specialist that didn't give up or doubt what I had.
I had chemo in Jan 26 through June 13 of 2008, 4 dd of AC every 2 weeks, 8 single Taxol, 3 1/2 doses of Taxotere . I hated Taxotere, it really knocked me on my but and don't care to ever have it again.
On July 10, 2008 I had a BLM, simple on the left and modified radical on the right with complete node dissection on the right. I have PM-PS on the right side due to the node dissection.
In late Aug through Oct 2 I had daily radiation, with 5 scar boost. It was the scar boost that left me with an open wound that wouldn't heal and left me with a frozen shoulder because I was protecting the wound area. The recovery from the initial rads was painful but it came and went but the scar boost has been my biggest issue to deal with. Rads left me total exhausted and anemic.
In Jan - March of 2009, I had PT for the frozen shoulder and wound treatment. The shoulder is much better, but I still deal with a small skin issue to this day and it is very furstrating.
Oh, I almost forgot the most important part, I received the "ALL Clear Cancer Free" on Nov 10, 2008. One year to the day I new I had IBC!!!!
I am still recovering from the anemia from the radiation but I am slowly getting better and regaining my strength. It has been a long 2 1/2 years but I thank God that I am on this side of breast cancer. I thank God for a wonderful husband who is helping deal with my limitations. He too, is a cancer survivor!
I have a wonder husband of 32 years
, 2 awesome sons and 2 beautiful d-i-l
and 2 amazing granddaughters from our youngest son & d-i-l
<message edited by mrsnjband on Tuesday, April 27, 2010 1:44 PM>
~Norma June~ IBC Survivor~ Stage 3b
Nov 10, 2007 First Sympton of IBC, itching & peau d'orange
Dec, 2007 First Punch Biospy to skin, negative
Jan, 2008, MRI, 3mm mass close to chest wall
Jan, 2008, Second Needle Biospy to cancer site, positive
Jan 10, 2008 Diagnosis of IBC, IDC Right, ER-PR-, Her2-
4 rounds AC, 8 rounds Taxol, 3 1/2 rounds Taxotere
July 10, 2008 BLM-Simple Left, Mod-Rad Right, CND
7 weeks Rads
Nov 10, 2008 Caner Free!!!!