Visit Komen.org
Lower Your Risk
Prev Thread Prev Thread   Next Thread Next Thread
 Introduce Yourself
Change Page: < 12345678910.. > | Showing page 6 of 136, messages 51 to 60 of 1351
Author Message
pinkbutterfly

  • Total Posts : 9
  • Reward points : 2630
  • Joined: 8/31/2009
  • Location: Washington, DC
  • Status: offline
Re:Introduce Yourself - Tuesday, September 01, 2009 7:14 AM
Hi I am new.  When I went for my first chemo treatment I met this wonderful women and she gave me some very helpful tips and one of them was to join this forum.
 
I was diagnosed (stage 1/bc) in June, surgery in July, and started chemo in August.  I have to do four treatments (C&T) every 21 days followed by 6 weeks of radiation.  I was anxious about chemo because I didn't know what to expect and what I envisioned did not compare to what I endured.  After chemo I have to go back the next day and get the shot Noulasta (sp) and it is awful.  I don't know which is worst chemo or the shot. 
 
Three things that helped me a great deal during chemo was prayer, water and ice chips (Thanks Tammy).  I can't even put into words how my mind and body felt those first few days after treatment.  Needless to say I am dreading my next infusion.
 
Jean, Washington, DC, 41, 56-day SURVIVOR
JulieS

  • Total Posts : 4392
  • Reward points : 5475
  • Status: offline
Re:Introduce Yourself - Tuesday, September 01, 2009 10:41 AM
Hi Jean and welcome!!!!!

I can't help out with the chemo but there is a thread on the Chemo forum "summer chemo" and there are ladies there going through chemo and they will welcome you and be able to offer advice.

Hugs to you!!!
Hope and strength,
Julie S :-)
Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-
MarieR

  • Total Posts : 783
  • Reward points : 1500
  • Status: offline
Re:Introduce Yourself - Tuesday, September 01, 2009 10:55 AM
Hi Jean,
Welcome to Komen, it's a nifty site with a ton of information on the home page. Lots of great people here to help you. 
Wish you all the best
MarieR
Joined 1.04

1953 Amputation below knee.  1995 Intraductial Carcinoma Biopsy (in-situ).  8.95 to 10.95 Radiation.  6.00 Rt breast Mastectomy.  6.26.00 to 9.14.00 Expansion injections.  9.00 Saline Implant.  12.28.00 Rt nipple & left lift. 1.01 Tattoo. 2002 Hasimoto's Thyroiditis.  7.02 Ablation for palpitations.  4.03 Osteoporsis. 2008 Cataracts. 

harleyamazon

  • Total Posts : 1
  • Reward points : 0
  • Joined: 9/3/2009
  • Location: Missoula, MT
  • Status: offline
Re:Introduce Yourself - Saturday, September 12, 2009 11:13 PM
Hi Ladies! Unfortunately I guess I have joined the ranks. I have been wanting to sit down at the computer and research and write for about a week now. I have finally found some free time, where I felt up to it. I had a mammogram and an ultra sound on Aug. 26. I found a lump in my left breast at about 9 o'clock, (that seemed to appear very suddenly) about a month and a half prior. I finally made a Planned Parenthood appointment, even though I wasn't extremely worried about it. I had been told I had very fibrous breasts years ago. I thought it was more of the same, except I haven't felt one of those in the past 3 years since I've been on the Depovera birth control shot.
  They scheduled me for a mommogram and ultrasound the next day. I only asked the doctor what about this lump made her nervous, as I didn't want to worry myself to death when the mammogram was the next day. She said the size and the edges, and I left it at that. Even then I wasn't too worried. The mammogram lady said we'll do you mammogram, and maybe the ultrasound. We may not need one, even though you are scheduled. I think hmm, OK- well here we go my first mammogram...finally. I am 39.5 years old, and do not know my mother's history. I had questioned PP several times before, as I had read you should have one early in my situation. I'm over being mad that they didn't seem to see the need to do one before. So I found my way through the mammogram, and she went to go talk to the doctor. She came back in and switched out the lens on the machine. That was probably my first warning bells. She took some more and went back to the doctor. She came back and said we were headed for the ultrasound- uh, oh...this might not be good!
  Sure enough, after the ultrasound the doctor came in. He said he would normally refer me back to my primary care physician, but he must have know I came through PP. He told me it had all the characteristics of cancer. and that it most likely was. He talked to me about wheere to go from there, that a biopsy was next. He also offered to call a good surgeon for me- he recommended 2 different ones. He explained that whether the lump was cancerous or not, that he believed it needed to come out. He said I could have time to think about it. I didn't know who to call, so I decided to put my trust in Dr. Pickhardt the surgeon. I figured the sooner the better. So I let the mammogram doctor go ahead and hook me up with the surgeon. I left the office with a biopsy scheduled for Aug. 31. My husband came and met me in town so I wasn't alone. I collected myself and made the call to schedule the surgeon's appointment. This appointment was on Sept. 1.
   I thought I should double check on the surgeon, just to be smart. I looked up the surgeon's name on the computer, and just confused myself. He isn't a bc specialist that I could see. He also is well known in Bariatrics and trauma, and cancer. I finally gave my dad his name and asked him to check, so I didn't go batty. Dad felt confident in his ability, and didn't think I was going to find any better in Missoula
  The biopsy was fine, no big deal. It was more important to me to find out what was going on in there. Still soaking everything in. I met with Dr. Pickhardt the next day. All he had was the prelims on the biopsy...but it was enough to start with. Yes, it is BC. We talked about building a team, and what the next step was. He examined me for himself. He was curious about the size, given my description, and the mammogram because of my breast density. His exam seemed to correlate his suspicions. Mammogram read 3cm, but he now felt it was egg shaped and more like 5 cm.
   Now suddenly we weren't talking about lumphectomy anymore. Because of the size, proximaty to nipple, and breast size- he does not believe he can remove this and still leave me a decent looking breast. Yikes, but it makes sense to me. I'd rather take as few of chances as possible anyways. He also felt my nodes, nothing in right, but he found the marbly guy in my left. He was n't very concerned, and told me he wanted to do a Sentinal node biopsy as well, jjust to make sure. I have learned so much in the last 3 weeks, from nothing nothing other then I knew someone else along the way. We talked and asked some questions. My husband and I felt comfortable with what he was telling us. We hadn't done a lot of research...but it seemed more important to get it out. I could research for another 4 months and still have this creep growing in my breast! So I left his office with consultation appointments for our team,(medical oncologist, and radiation oncologist) an MR and a tenative surgery date for 2 weeks later.
   Whew, OK - now what? It has been a really rotten year, and we had hoped we were done with bad stuff. I guess not yet. Now it is my turn to be 1 in 8. I have 3 half sisters, so hopefully I just fixed their odds and none of us girls have to go through this again! Still feeling like i'm walking in a weird daydream...down the rabbit hole, just like Alice. I talked to the breast care coordinator at St. Pat's. She sounds like an incredible woman...dedicated to helping us ladies through this. She made me feel like she was there for anything for me. She was quite comforting to talk to on the phone, as she is the first female doctor that I'd talked to. She even made me feel better about how/when to go about quitting smoking! She also was able to access my biopsy reports. She said it came back estrogen +/ and progesterin-. No HER2 report yet. She could understand why surgeon thought mastectomy was best, as did the medical and radiation oncologists.
  I had my MR yesterday...that was annoying, plus it was one of the rare moments that I really had alone to think on stuff. I was starting to get a bit twitchy...this is becoming reality very fast now...as I knew it would. I had an appointment with surgeon half an hour later. I was a bit dissappointed, as I was thinking that he would have MR results by then, which he did not. He asked me about my other consultations, and talked about what he still felt, as far as mastectomy. He felt my lump again, which now seems more pronounced and harder. He said it very well could be inflamed from biopsy, as the same with my lymph node still. He decided to go with the auxillary node dissection. He is still not too concerned, but he feels that it is 50% chance spread, and 50% chance reactive to the biopsy stress. This part disappoints me. I thought I was in the clear as far as worrying about Lymphedema. Darn it...this was the one part that I thought was good.
  I walked out with my husband in a daze. I left with a modified radical left breast mastectomy scheduled for 2 1/2 days from now. We went ahead and did my blood work, chest x-ray and pre- op appointment before we left. I didn't want to have any more appointments until check in time on Tuesday. We went and got chinese food, as we'd been there since 9. I was getting crabby and past starving by this point...I was trying to be nice! Normally I don't have that problem, but I was on the roller coaster. Shirts...oh, yea shirts...might be a good thing to think about. Great, what else now? I have no insurance, and this is going to get expensive, not even thinking about the little extras that will make this a little easier on me. I'm doing what the hospital is telling me about finances, and waiting patiently for my CPA to sent my taxes. No worry, no stress. Just keep nesting and and doing what is only within my reach. Wally World was the last place we wanted to go yesterday afternoon, Friday aftrenoon in Missoula, yuck! Off my mostly patient hubby and I went. I had to stock up you know. We live 20 miles out of town, so it had to be done. I know I'm not going grocery shopping this week. Gotta get my lawn mowed, and watered, catch up my book keeping for our business....gotta do a bit of scrubbing and cleaning so my house isn't filthy while I'm down for a few days. It has been a bit neglected lately, in the whirlwind of things.
  So that's that. It is what it is. Yes, it sucks...and yeah, I'm trying not to be scared. For whatever reason, I have to take this walk. Nothing I can do about it but go forward the best I can. Stay positive and laugh at myself. I want to walk away from this knowing I did the best to my ability. I want to learn, so I can help the next gal in my shoes...whatever I can pay forward. I was back in x-ray office yeserday waiting. I heard the nurse call a lady back, who tried to bring her husband back. He couldn't go as it is a women's only clinic. I then heard the nurse say something about the mamogram first, and then they would see about the ultrasound. I also heard her say it was her first mammogram. It was all I could do to not rush over and offer to go in with her. She sounded just like me almost 3 weeks ago. If only I could make it better for her! I refrained, realizing the last person she wanted to meet that day was a girl who's mammogram didn't go well, and was scheduled to have her boob removed in 4 days.
  So that's all I got for now. I will go talk to my hairdresser as soon as I can, and ask her to look for a suitable short haircut for me. We will be doing chemo. I have waist length hair that I've had for years. I'd rather take it off while it's still healthy. Kids are cruel, and somebody needs that hair out there way more then I do. It will be easier to take care of while my new chest heals. If I start losing it, I'll shave it and be done with it. In the big scheme of things- my breast and my hair are minor compared to my health. I am a survivor...and I have a lot more miles to put on my harley, and many more years to add to my 2 1/5 year marriage to my soul mate! Cross your fingers and toes for me ladies, as I will do the same for you!
Charmine
Charmine
DX-8/09- 3-5cm, left breast
estrogen+/ progesteren-
Modified radical masectomy scheduled 9/15/09
Deb Allen

  • Total Posts : 3188
  • Reward points : 3830
  • Joined: 7/16/2007
  • Status: offline
Re:Introduce Yourself - Sunday, September 13, 2009 12:04 AM
Each new introduction is a huge step...

Well, hell, I was going to throw out some terms and throw a blanket hug over everyone, welcome you all, and pray that I comforted or somehow helped. 

Now, my goal is to assure, or at least try to, each individual, unique human being here that you ARE heard, and while so much of this @$#$@%#$@ (fill in the blanks) is about numbers and stats and this and that, no two rivers run the same path.  Feel what you feel.  This is your life.  If there is anything comforting to say about breast cancer, it is the mere fact that you found your way here, where the strongest, most diverse, most intelligent, often stubborn, experienced human beings in the world are here for you...

Believe it...

Deb/aka Mimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all




JulieS

  • Total Posts : 4392
  • Reward points : 5475
  • Status: offline
Re:Introduce Yourself - Sunday, September 13, 2009 2:00 AM
Charmine,
Sorry and welcome!  Sounds as if you pretty much have educated yourself by doing lots of research.  I hope you have stayed away from some of the scary sites.  This one is good and also www.breastcancer.org  and also the Dr Love's website. 

I am guessing you live in Montana???? Since you mentioned Missoula, I grew up in North Idaho and have been through your beautiful state many times, have to say though that western MT is much prettier than eastern MT.
Don't worry about the lymphedema.....it is a possiblty even when they take 1 or 2 nodes.  As with much of this disease it seems there is no rhyme or reason as to who get it and who doesn't. 
Glad you found us and know we will be here for you for any questions you may have and also let us know when you feel up to it as to how your surgery went.  You are a "sister" now and we all worry about our sisters. 
Sending you hugs.
Hope and strength,
Julie S

Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-
lisalovinlife

  • Total Posts : 182
  • Reward points : 0
  • Joined: 7/23/2009
  • Status: offline
Re:Introduce Yourself - Sunday, September 13, 2009 10:41 AM
Hi Jean and Charmine, you have come to the right place for support in your journey. 

Jean, I am going through the same treatment as you are and just had my 2nd treatment this week, so ughh, know how you feel.  I do recommend getting Neupogen instead of neulasta if you can.  I was going to get neulasta and instead got Neupogen and when that caused me pain , my doc then told me that Neulasta is 10 times as strong due to only getting one shot. The Neupogen is given in a series and does not cause as severe pain.  I just got Neupogen on Friday of this week and will get two more shots Mon. and Tues. and the pain wasn't bad this time, 10mg of norco has always taken care of the pain for me.  Chemo is bad enough, why do we have to suffer with s/e of other drugs.  I know that everyone is different and what worked for me may not for you , but check it out.  I was very surprised at what I learned.  I will keep you in my thoughts and prayers.  We can do this, we have to do this.

Charmine, wow, what a road you have traveled in such a short time.  Sounds like you have a team and a plan and that's so important.  Also sounds like you have a wonderful husband who is there to support you.  You will get through this.  I did not have a mastectomy, I had a partial, but I did have 4 surgeries in less than two months so it can be hard to recover from.  Do you know how many lymph nodes they are planning to take out?  Not everyone gets lymphedema, I had 6 nodes removed and I have not had a problem, yet.  Do you know what chemo you will be on?  I have learned so  much from the women here and the chemo thread is amazing.  Lots of great tips.  I love that you are donating your hair, great idea.  Best wishes to you as you begin your life saving fight against cancer, and thank God we have the opportunity to fight this and win. 
Both you ladies will be in my thoughts and prayers, hang in there...Smiles Lisa
Lisa 44 years young, happily married, mom of 3 teens IDC 6/09 1.5cm er/pr+ her2-, nodes not totally sure , partial mastectomy, Chemo taxotere/cytoxan 4 rounds, 30 rads, Tamoxifen 5 years  A self exam followed by a mammogram saved my life!!!
momof3fl

  • Total Posts : 1
  • Reward points : 0
  • Joined: 10/1/2009
  • Status: offline
Re:Introduce Yourself - Thursday, October 01, 2009 11:09 AM
Hi Everyone
 
About 6 weeks ago I noticed a lump in my right breast. My sister passed away with breast cancer four months ago, so needless to say I was very scared. Went to my family doctor and did the mammogram and ultrasound I had a 1.5 cm mass. I was referred to a breast surgeon and he ordered a breast mri. It came back positive for malignancies in both breasts. I have two masses in my left breast as well. I had the biopsy yesterday, doctor says it definitely looks malignant and has grown from 1.5cm to 4.8 in the last six weeks. I am still waiting on the results. Guess I am just wondering if this all could be a big mistake. Can an MRI be wrong about malignancy?
 
Thank you for listening.
MarieR

  • Total Posts : 783
  • Reward points : 1500
  • Status: offline
Re:Introduce Yourself - Thursday, October 01, 2009 11:16 AM
Hi momof3fl,

I can't offer an opinion about the MRI, but I did want to welcome you to the boards. There are many wonderful people here. I don't know if this is helpful, maybe you will find some information on the Komen homepage.

Hugs,
MarieR
Joined 1.04

1953 Amputation below knee.  1995 Intraductial Carcinoma Biopsy (in-situ).  8.95 to 10.95 Radiation.  6.00 Rt breast Mastectomy.  6.26.00 to 9.14.00 Expansion injections.  9.00 Saline Implant.  12.28.00 Rt nipple & left lift. 1.01 Tattoo. 2002 Hasimoto's Thyroiditis.  7.02 Ablation for palpitations.  4.03 Osteoporsis. 2008 Cataracts. 

MJG

  • Total Posts : 1296
  • Reward points : 7310
  • Status: offline
Re:Introduce Yourself - Thursday, October 01, 2009 1:37 PM
Mom of 3,
 
I think an MRI could possibly be wrong --- but you will know for sure with the biopsy and you've had that -- and will know soon.
 
I want you to know there are so many treatments and so much can be done. The fact that you just had a sister pass away with this beast - is making it much harder on you now.
You are not your sister and every person is different. There are many survivors out here with similar situations to yours.
 
This is a hard journey and we all understand what you are going through now. The waiting and wondering is the worst.
 
God bless you and give you Peace and please let us know how you are! You will be able to get lots of answers here.... and support.
 
MJG
Dx. in 04 - age 63 IDC/grade 3/stage 1/HR+PR+HER-/16 nodes all neg./lumpectomy/36 rads w-boosts/ Arimidex 5 years/5 other biopsies on same breast all (inflammation and fibrosis from LE and rads- scar tissue) LE of trunk, breast and arm..(under control) 2014 angiosarcoma from radiation treatments. Surgery and scans May 2014...all clear.. watch closely and PRAY!
Change Page: < 12345678910.. > | Showing page 6 of 136, messages 51 to 60 of 1351

Jump to:

Icon Legend and Permission
  • New Messages
  • No New Messages
  • Hot Topic w/ New Messages
  • Hot Topic w/o New Messages
  • Locked w/ New Messages
  • Locked w/o New Messages
  • Read Message
  • Post New Thread
  • Reply to message
  • Post New Poll
  • Submit Vote
  • Post reward post
  • Delete my own posts
  • Delete my own threads
  • Rate post

© 2000-2008 ASPPlayground.NET Forum Version 3.1.5