Introduce Yourself

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DJW
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Introduce Yourself - Wednesday, May 27, 2009 12:21 PM
This community may seem overwhelming at first and it may feel like you are joining a conversation in progress. We would love you to introduce yourself! Please introduce yourself to us, give your diagnosis, and tell us where you are in your fight against this awful disease. Someone will respond within a few hours (sooner if during the daytime) and welcome you to this community.
<message edited by DJW on Monday, July 13, 2009 6:06 PM>
Deborah, Albuquerque, 59, 5 year survivor!!

-Diagnosis: IDC & DCIS, Stage IIb, Grade 3, Triple Negative (3/19/08)
-No family history, BRCA 1&2 neg (Jun 08)
-A/C (4 DD Apr - Jun 08), Taxol (4 Wkly Jul-Aug 08), Taxol (2 DD Oct 08)
-Modified radical mastectomy with immediate saline implant (8/19/08), 3/12 nodes positive 
-NED!!! (Nov 08)

tiara
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Re:Introduce Yourself - Saturday, June 27, 2009 1:56 AM
Hi Everyone ~

My name is Tiara, I found out about 2 weeks ago that I have
breast cancer in my left breast. Needless to say I'm scared and
I want to make the right choice. I'm now waiting to see a
Plastic Surgeon which I will see on the 7th of July.

My husband is supported but my daughter is having a hard time
with it. I'm really trying to be positive and hopeful but its hard.

Tricia Keegan
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Re:Introduce Yourself - Saturday, June 27, 2009 3:22 AM
Hi Tiara and welcome to Komenville!

I'm sorry for your diagnosis but once you get an actual treatment plan and know all the details it will get easier.

if you'd like to copy your message and start your own thread I know you'll get many more replies as people will see it easier:)

Please take a look through the other forums for info/support and feel free to post any questions you may have as there's always someone that can help you.  As you can see below there are many other ladies just diagnosed too, you need never feel alone here and it's important to know you will beat this:)

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

JulieS
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Re:Introduce Yourself - Saturday, June 27, 2009 9:50 AM
Hi Taria!
Welcome! Sucks to be a member of this club......but this group of women are wonderful!  We even have a few guys here that support their wives and moms. 
We each deal with this disease differently, but all pretty much have the same fears, worries and we all occasionally panic, some after all treatment is finished, when everyone thinks we should be feeling fine.
So feeling however you feel is ok, and normal.  That is true for our families as well, each of them deals differently, some want to pretend "it"  doesn't exist, others want to be there to support you.   You don't say how old your daughter is but a lot of kids worry about how this is going to effect their lives, and they know it sounds selfish to ask that question so they don't but still wonder.  Maybe if you take your daughter out for a treat somewhere and have a girl to girl talk.......or maybe she would be more comfortable talking to her dad.  I am sure you would feel better knowing what is going on in her head so you can reassure her that yes, life may change for a while and she may have to help out a bit more but she still will be able to see her friends, play scoccer, or go to the movies.  Also she will take cues from you as to how to feel, I initally felt shame.....don't know why but that is how I felt so didn't want to tell people.  I got over that shortly and decided to tell friends and neighbors,  sometimes the gossip is worse than the truth. No, gossip is always worse. 
We are here 'round the clock and usually you will get an answer shortly if you post, and especially if you start a new thread.  Come back and see us anytime! Or private message someone if you want. 
Hope and strength,
Julie S   

Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-

WarriorDawn
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Re:Introduce Yourself - Saturday, June 27, 2009 10:46 PM
Thanks for being so welcoming. I've been reading posts for over a year now and just now joined Komenville. I was diagnosed with IBS February 2008. Started chemo in March 2008, right mastectomy in August 2008, 6 weeks of radiation that ended in October 2008. I continued on with Herceptin until April 2009. I have 2 beautiful children - ages 6 and 7 at time of diagnosis - that handled everthing so wonderfully. I'm a single parent so I didn't know how everthing was going to work out. The kids were great and with the help of my parents and friends the treatments were not that bad. I really blessed to have gone through everything relatively smoothly. Everthing was going along great and then just a few weeks ago - June 2, 2009 - I stared with a headache I've never had before. I tried to get rid of it with otc medicine and even tried some painkillers from my surgery, but they didn't work. I think I knew after a few days that something wasn't right. I called my oncologist on June 8 and told the nurse what was going on. They sent me for an MRI that Wednesday, I got the results on Thursday and was seeing a neurosurgeon on Friday. I had a 3 cm cancerous tumor on the right lower side of the brain. I definitely didn't think I'd be dealing with this. Luckily, it was a single tumor that was removed on June 17. Everthing went beatifully. So, now more than ever, I have to be more vigilant in recognizing any new symptoms, making sure my checkups are done, etc. I had planned to have reconstructive surgery in August but that will have to put off for now. I see my oncologist on Tuesday to schedule when to start the radiation. I know have new questions for him. Luckily, he's very patient and will answer anything you have to ask. I'll be home until after radiation, so hopefully I'll be keeping busy reading different posts and getting encouragement from everyone. Thanks for listening!
 
Dawn
IBC February 2008
HER2 positive
1 year of Herceptin
Chemo & Radiation March-October 2008
Right Mastectomy August 2008
Diagnosed & Brain Surgery June 2009
Set to start radiation on brain July 2009

Deb Allen
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Re:Introduce Yourself - Saturday, June 27, 2009 11:16 PM
Dawn, while you are still online, I wanted to shout out a Komenville Welcome.  You will find much more here than you ever expected, and each time you post, someone will learn more and be more.  In case you go offline before I get to catch up on all posts and responding to your post in the way it deserves...(AND THIS GOES FOR THE OTHER POSTS HERE I'VE BEEN SLOW IN RESPONDING TO...SHAME ON ME!!)  hugs and love...



Deb/aka Mimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all





Deb Allen
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Re:Introduce Yourself - Saturday, June 27, 2009 11:21 PM
Tiara, you are in the most difficult part of this shit.  Newly diagnosed, still in shock, trying to figure out what to do.  And add in a child, and becomes even worse.  My first diagnosis, my youngest son was just 11, and a big time "mama's boy".  How old is your daughter?  Do you have a family support system nearby?  Please respond, because we ALL truly do care, and will help in any way we can.  Several survivors here (and you are a survivor, because you received the diagnosis, and are still here), have children as young as less than a year old, to grown kids and grand kids.  No matter, mothers are always mothers.

Read, ask questions, feel what you need to feel, and come back often. 

Deb/aka Mimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all





Tricia Keegan
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Re:Introduce Yourself - Sunday, June 28, 2009 5:42 AM
Hi Dawn,

It sounds like you've really been through a lot but well done on getting through all that which must have been a scary experience.

There are many people on the her2 website who have had brain radiation so you may like to check that out for info www.her2support.org
Are they going to begin herceptin again as maintenance???
Tykerb is a drug like herceptin which is often given to her2+ as it crosses the brain/bloood barrier. 
I hope you continue to do well and I'm looking forward to getting to know you better, thanks for posting :)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

WarriorDawn
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Re:Introduce Yourself - Sunday, June 28, 2009 3:08 PM
Thanks for the info on her2 and the brain. I'll have to put the question of more Herceptin on my list to ask my oncologist. Thanks for the encouragement!
IBC February 2008
HER2 positive
1 year of Herceptin
Chemo & Radiation March-October 2008
Right Mastectomy August 2008
Diagnosed & Brain Surgery June 2009
Set to start radiation on brain July 2009

HilaryD
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Re:Introduce Yourself - Wednesday, July 01, 2009 9:36 PM
Hi Dawn, I just registered so I can let you know about something I am doing with my treatment.  I was diagnosed back in 02-09 and am HER2+ I am on a trial for a drug called Lapatinib (brand name Tykerb).  What they are doing with me is they gave me 12 treatments of Herceptin that I am finishing in 3 weeks to be followed by a year of the Tykerb drug (pill form).  I have been told that the Tykerb is better at stopping and aiding with the brain tumors so they are thinking it is actually more effective than Herceptin.  At this point, it is just needing the final steps for approval and then...some are hoping...it might just replace the Herceptin.  Definatey worth looking into in your case I think.
 
But, no matter what you and your doctor choose GOOD LUCK you are now a survivor of my fears!  I hope if I do get a reoccurance, I will be as strong as you are.  Thanks for all your positive and supportave posts!  Again good luck and best wishes...
 
-Hilary

tiara
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Re:Introduce Yourself - Thursday, July 02, 2009 12:05 AM
Dear Deb:

Thank you so much for responding for my call of help ~ the 7th is almost here
but I'm so confused I know I have to have the surgery but the reconstruction is the
part I'm not sure what to do ~

My daughter is 22 not a kid but the problem with all of this is my step-daughter died
of cancer about a year and a half ago and my daughter and her older sister were
really getting close, and with me coming down with cancer is really hard on her.

I will fight this just as hard as I can cause my daughter still needs her mom, and I'm
not ready to go anywhere ~ I just need a little advise about the reconstruction ~
ideas etc. ~

Thank you so much for listening

Tiara


Deb Allen
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Re:Introduce Yourself - Thursday, July 02, 2009 12:44 AM
tiara, you are more than welcome...when is your surgery? 

You are in a world of conflicting emotions and situations.  I'm sorry I haven't replied sooner.  I'm a bit looped right now, but please, feel free to email me at dads1997@embarqmail.com for more personal information 

re advice about reconstruction, ~ ideas ~ life in general ~  I'm here...

Deb/aka Mimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all





theresac
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Re:Introduce Yourself My name is Theresa - Thursday, July 02, 2009 2:02 PM
Hi everyone. I'm so glad that this site is available. I am a mother of two children and a fiance of 13 years and I'm only 33 years old.  I found a lump in my right breast March 09 went to the ER freaking out, I had just lost my job in 12/08 so I had no insurance at all. They said that the lump was the size of a pea and did not know how I found it.
Basically they told me good luck and apply for medicaid. So I waited until last week when my right breast was hurting went back to another hospital here in Sarasota and they took wonderful care of me there was actually someone at the hospital that could help me. God must have sent her to me. So far I have had a core needle biopsy guided by ultrasound and found out this monday that I do have breast cancer. My angel Marie at the hospital went with me to the Oncologist and had the grants approved. The oncologist said that comparing the mamo's that from March up until now it has grown and the grade is a 2-3. I'm still getting the lingo down. The oncologist said to do the surgery first, yesterday I went and had my blood drawn for the BRACA test. My appointment with the surgeon is next week. I know that I want both breast removed so that it will not come back. There is no family history of breast cancer in my family.
I'm just worried that I will not be here to watch my children grow up (I'm in tears)
If there is anything you all can help me with I would appreciate it.
 

Tricia Keegan
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Re:Introduce Yourself My name is Theresa - Thursday, July 02, 2009 3:34 PM
Hi Theresa,

I'm so sorry you had to join us but glad you found us as I know for certain all the ladies here will help and support you as much as you need through this.
I do want to suggest that you start your own thread if you don't get many replies as many won't notice your post here:)

The early weeks are crazy as you're finding out, so take one day at a time as it's truely the only way to get through this and stay sane!!     The decision on surgery is a tough one and of course entirely personal but I do want to ensure you realize that even having a mastectomy does'nt guarantee no recurrance.
Lumpectomy with rads gives the same overall prognosis although the risk of recurrance is higher with a lumpectomy. Please do some research yourself and don't just panic into an early decision.  A good site is www.breastcancer.org
We also have a surgery/recon forum so please browse this too in order to help you understand whats ahead.
We all shared the same fears, but please know this is treatable and you can do it...we all discovered we were stronger than we ever thought we were:)
If you have any questions or I can help in any way please post or send me a private message, you can also e mail me by clicking on my name above. If you can try to get a copy of Dr Susan Loves breastbook as it's an invaluble resource through this.
My very best wishes to you and please keep us posted on how you do:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Deb Allen
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Re:Introduce Yourself My name is Theresa - Thursday, July 02, 2009 11:50 PM
Theresa, you WILL be able to watch your kids grow up.

Treatment of breast cancer has progressed so much in even the past almost 7 years I can claim as a survivor. 

Panic, initial inability to breathe, feeling like a deer in the headlights, IS okay.

Whatever you feel is ok.  There are threads here to help you with lingo, surgery, fears, family, and anything you want to sound off about.  I had no family history. 

That was 7 years ago, and I'm still here, watching my kids and grandkids grow.

You will be too!

Deb/aka Mimi
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all





WarriorDawn
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Re:Introduce Yourself - Friday, July 03, 2009 11:46 PM
Thanks for your encouragement Hilary! When I first started my journey I asked my doctor about Tykerb. At the time, he told me I wasn't a good candidate. But, I will put it on my list and ask about it again. It won't hurt to ask. I'm open to anything.
IBC February 2008
HER2 positive
1 year of Herceptin
Chemo & Radiation March-October 2008
Right Mastectomy August 2008
Diagnosed & Brain Surgery June 2009
Set to start radiation on brain July 2009

Tricia Keegan
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Re:Introduce Yourself - Saturday, July 04, 2009 2:24 AM
Dawn,

From what I can gather Hilary is in a trial for tykerb in early stage breast cancer. However it has been approved and used for some time for bc mets. It's particularly effective with xeloda for brain mets as it crosses the blood/brain barrier which herceptin does'nt.
Good luck and keep us posted:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Deb Allen
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Re:Introduce Yourself - Tuesday, July 07, 2009 1:28 AM


bump
Deb/aka Mimi
Dx '03, ER/PR+, Her2+, Grade II, Stage III
SNB, 18 wks chemo  36 rads; 
Rec in 07,
Bi-mast/DIEP 08/29/07; MRSA in abd incision w/resulting hernia, difficult healing
Still alive and kicking and ornery as ever...butterfly kisses to all





hunny0918
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Re:Introduce Yourself - Saturday, July 11, 2009 7:05 AM
Hi my name is Doreen and I am new to this and scared to death. I am in the process of setting up all of my appts for a mastectomy due to Brca1 and atypical hyplashia.  I just had a lumpectomy and they removed a 9cm mass. Family history is very strong just lost my sister sharon to ovarian cancer after a year and a half battle words cannot explain how I feel about this trying to keep it together but it is very hard.  Not really sure what to expect at this point so if anyone has any thing they think could help please let me know   thanks

Ananya_1328
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Re:Introduce Yourself - Tuesday, July 14, 2009 3:16 AM
hi

I am Ananya. My elder sister received the news of her Metastatic Breast Cancer (StageIV) on her 30th birthday, which  The cancer has spread to the bone (sternum) and liver. She's married and has a 5 year old daughter and wills herself to be cured. She had her first cycle of FEC Chemotherapy and is 10 days into it now. I am so scared and overwhelmed by the new responsibility of taking care of my sister. We're very close and i find it difficult to accept this stark fact that i could lose her anytime. I've been drawing hope and strength from all your posts and pray that my sister survives the ordeal.

Good luck to all you fighters and survivors!

-Ananya 

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