Introduce Yourself

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MRSDEE
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Re:Introduce Yourself - Wednesday, October 27, 2010 8:03 PM
HELLO I'VE JUST FOUND OUT THAT I HAVE BREAST CANCER. I TOOK IT HARD AT FIRST THEN I GOT IT TOGETHER AND TOOK IT TO GOD. I KNOW THAT HE DID NOT BRING ME THIS FAR TO LEAVE ME LIKE THIS. SO I GOT DEEPER INTO MY BIBLE AND FOUND BOOKS THAT FIT THE SITUATION. THAT IS TO ACCEPT AND WALK IN THE HEALING THAT GOD SAYS I HAVE. ABOUT TO TAKE SECOND CHEMO TREATMENT.

Tricia Keegan
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Re:Introduce Yourself - Thursday, October 28, 2010 2:59 AM
Hi Mrs Dee and glad you joined us, you'll find many people going through chemo right now too if you check out the chemo forums.  There's also lots of tips to help you:)
Good luck with your next treatment!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

njmom
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:Introduce Yourself - Friday, October 29, 2010 9:55 AM
Hi all,

I was diagnosed on 10/7/10 with invasive ductal and insitu lobular, 2 ml (yes, ml not cm!) Estrogen & progesterone +, ki-67 23%, HER -, grade 2 stage t1a. My mother was diagnosed in August with DCIS which prompted me to go for a mammo. I was on the fence about mammograms and didn't feel they were really worth the radiation. But I was scared so I went. THANK GOD FOR MAMMOGRAPHY. It came back that I had a questionable area and recommended a biopsy. That came back atypical so my oncologist/surgeon insisted on a lumpectomy. Well, that came back invasive ductal cancer with insitu lobular. Unfortunately the entire specimen was sprinkled with atypical cells. 
I'm going on Tuesday for my lymphscintography and for my bi-lateral mastectomy on Wednesday November 3rd with immediate latissimus dorsal reconstruction. I feel like the luckiest woman alive.  I cannot stress enough how mammography saved my life, my husband's 43 year old wife and my kids' mom. Oh and my three dogs' mom too. :)


It's great to join the message board! 

Annemarie

franklin pa
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Re:Introduce Yourself - Sunday, October 31, 2010 11:16 AM
Hi all.  Definitely a newcomer here. 
I am not sure where to start but have many questions and I thought this may be a good place to start.  I am 43 and I just had a recent mammogram that said that previous microcalcs that I had were now increased in number.  I had a stereotactic biopsy last Monday and received a call on Friday saying that I had atypical ductal hyperplasia.  They told me that it was not cancer but that I needed to have an excisional biopsy and schedule an appointment with a surgeon.  I did make my appointment but I cannot get in until December 3 :(  didn't want to wait that long of course.  I have done internet reading...don't know if that is good or bad...just wondering if anyone out there can give me some info.  I do not want to have to take any medication.  does anyone know if my ADH diagnosis always means having to take tamoxifen (or whatever) after the biopsy or can they just take the biopsy, confirm the diagnosis and just be vigilant about future care?  I did have a cousin on my father's side that had breast cancer but I don't think that counts as a near relative, does it?  Any help you all could give me would be much appreciated.
Chris

Tricia Keegan
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Re:Introduce Yourself - Sunday, October 31, 2010 2:01 PM
Hi Franklin,

Some people choose to take meds if its found the cells are hormone positive in order to reduce their chances of developing invasive cancer, but your Dr will discuss all your options with you. 
Many of us here had no history of cancer at all in our families but still got it!

Can you ask for a nearer appt if there's a cancellation perhaps?   If not I it's doubtful a few weeks will make a difference anyway. Here's a link with some info from the Mayo clinic
http://www.mayoclinic.com/health/atypical-hyperplasia/DS01018/DSECTION=causes


Hi Annemarie, its good to welcome you here too and I'm so glad you found this at such an early stage.
My best wishes to you and your Mom :)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Jwatrlily
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Re:Introduce Yourself - Wednesday, November 03, 2010 12:27 PM
I am new to the Koman Forums although I am a member of other online TNBC groups.  My stats at the end of this post will tell you more about me and so I won't repeat it here.  I am handling this as best I can.  I had a major meltdown on Monday but am doing better now.  The overwhelming fact of my having Triple Negative Breast Cancer is what spurred the meltdown.

I am in my 2 week break before I start Taxol every week.  My A-C part of chemo has been completed.  I will check on the other boards and hopefully get some information and comfort there about Taxol because I'm scared of it for some reason.  The SE's from A-C were managable but not the most fun to go through.

I'm no different then anyone here.  I love my husband, children, and grandchidren and want so badly to see them grow up.  I know somewhere it said you are a survivor from the minute you are diagnosed but I don't feel like one yet.  I still feel like I'm in the icy grip of this dreaded disease and it hasn't let go of me.  And I live with fear of recurrence and yet don't want to live my life that way.  I am a Christian and believe in the power of prayer and pray and study the Bible every day. 

Juanita
Diagnosed June 4, 2010
IDC
Partial Mastectomy Aug. 9, 2010
1.1 cm. tumor
Stage I
6 cm clear margins
0/2 Node Negative
Grade 3
Triple Negative Breast Cancer
4, A-C Chemo, completed 10/28/2010
Taxol x 12 weekly beginning 11/11/2010
25 Regular Radiation w/8 boosts to follow chemo


Rena
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Re:Introduce Yourself - Wednesday, November 03, 2010 4:53 PM
Dear Juanita, Welcome to the Komen boards! I so often hear women with a triple negative diagnosis assume that it's the worst possible news, but I want to tell you a few hopeful things. First of all, studies have shown that triple negative cancers respond particularly well to chemo. Also, they have found that once you pass the five-year mark, the risk of a recurrence falls dramatically for triple negative cancers. I know that five years sounds like a long time right now, but you'll be surprised by how fast it goes. There are a number of women who frequent this site who are triple negatives who are three, four, five years and more from diagnosis. I was diagnosed in 1986, before the HER2 test was developed, and my tumor was ER/PR-negative. Since then, I've found out that because I'm BRCA2-positive and because I was 37 when I was diagnosed, the odds are very high that my tumor was triple negative. I saw my oncologist yesterday, and he actually used the word "cured" about me because I had 22 positive lymph nodes and have been cancer-free for 24 years. Doctors hesitate to use that word because there is no definitive cure for cancer yet--they prefer to use NED (no evidence of disease) or "in remission." Whatever you call it, though, it's all good! But I also want to say that melt-downs are not only normal, but also very healthy. Crying is good--it's so much better than always putting on a happy face and pushing the feelings down. It will get easier with time. I didn't have Taxol, so I can't comment on that, but I'm sure someone else will be able to. I'm glad you came here. Just keep taking it a day at a time. I'm wishing you the best and sending a hug... Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Pat Patterson
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Re:Introduce Yourself - Saturday, November 06, 2010 6:29 AM
Good Morning, everyone!  I just wanted to send positive thoughts and prayers to all and a special congratulations to Rena..."CURED"!!!!  What a beautiful word    





[link=http://www.smileycentral.com/dl/index.jhtml?partner=ZSzeb098_ZNxdm801YTUS&utm_id=7926][/link]
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

JoyBul
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Re:Introduce Yourself - Wednesday, November 10, 2010 4:48 PM
Hello, My name is Joyce and I have a Breast Infection.  I have green pus coming out of both of my nipples.  I have taken 2 sets of heavy duty antibotic's and I still have green pus and sharp pains in both breasts.
 
Can anyone help me find out what is going on with my breast's?
 
I am 50 yours old, a white female.
 
I appreciate your help. 
                                                    Joyce
 
                                                    

Tricia Keegan
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Re:Introduce Yourself - Wednesday, November 10, 2010 5:19 PM
Hi Joyce,

This does'nt sound like breastcancer but if it does'nt clear up it may be helpful to see a breast specialist as one or more of the ducts may be infected. I've copied some info below that may help-


An inflamed duct (mammary duct ectasia)
Mammary duct ectasia is one of the most common conditions related to abnormal nipple discharge.
It causes one or more of the ducts beneath your nipple to become inflamed and clogged with a thick, sticky substance that's green or black. Most often, it affects women in their 40s and 50s.
You can relieve some of your symptoms by applying warm compresses to your breast.
Taking aspirin or nonsteroidal anti-inflammatory drugs, such as ibuprofen, may help relieve some symptoms. Also, your doctor may prescribe antibiotics to clear up any [style="color: rgb(0, 108, 200) ! important; font-family: arial; font-weight: 400; font-size: 13px; position: static;"]infection.
In some cases, surgery might be necessary to remove the affected duct.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

vickie6165
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Re:Introduce Yourself - Sunday, November 14, 2010 10:07 AM
Hi! My name is Vickie and I am from Louisiana!  I was diagnosed with Stage 2 breast cancer on June 30, 2010!  I just recently finished my fourth and final round of chemo and will be starting radiation next week.  My doctors are pleased with my progress!  I am so glad that I found this forum!  I have been lost during this entire process other than the questions my doctors have answered which I must admit sometimes I still didn't understand. 

Tricia Keegan
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Re:Introduce Yourself - Sunday, November 14, 2010 3:14 PM
Hi Vickie,

Its great to welcome you here and many congrats to you on finishing chemo!:)


Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

hydeskate
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Re:Introduce Yourself - Friday, November 26, 2010 7:01 PM
Hi all,

I am from North Carolina, dx at 29 with Stage IV Breast Cancer with Mets in lungs & liver.  I am now 32 and currently NED for 1 year, I didn't even think about looking up forums for Breast Cancer until a couple of weeks ago after I meet with my doctor and learned of the next treatment if/when my cancer comes back.

Tricia Keegan
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Re:Introduce Yourself - Friday, November 26, 2010 7:18 PM
Hi HydesKate,

I'm so sorry, you're very young to be dealing with this, but delighted you''re currently NED:)

There's lots of support here in what you've dealt with should you need it and advice in getting back to "Normal" too!

I hope you'll browse the forums and am sure you can give advice too where needed after all you've been through and so glad you found us:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Connie V.
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Re:Introduce Yourself - Tuesday, December 07, 2010 7:58 AM
Hi everyone!
I was diagnosed 11/11/08 with breast cancer.  Had left mastectomy along with radiation and chemo.

Fast forward to 11/11/10 and I was diagnosed with bone mets.....

So here I go again.

would love to hear from anyone!
Diagnosis of Breast Cancer 11/11/08
lumpectomy, mastectomy soon after
Chemo including Herceptin until 3/10

Recurrence 11/11/10 mets to sacral
Oral chemo 11/29/10
Began radiation 11/30/10

48 years old....

ElaineQW
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Re:Introduce Yourself - Tuesday, December 07, 2010 8:28 AM
Connie,

I'm so sorry about your mets diagnosis, but as many other ladies will tell you, it's definitely treatable.  This disease sucks big time and we have no choice but to always try to find the light at the end of tunnel.  Please get mad and kick it's ass!!  

Hug,
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






mary l
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Re:Introduce Yourself - Tuesday, December 07, 2010 9:37 AM
Hi Connie.  Welcome to our message boards.  You will be able to receive alot of support here.  There are so many who have bone mets and they will be sending you their stories and advice.  It is a great place for hope.  Best wishes!!!  Mary L
Diag. Oct 2003 with 6mm mass, IDC grade III ductal carcinoma in-situ, Inflammatory Breast Cancer stage IIIB, Her2+++.   I had A/C followed by Taxotere (only had 2tx as I had heart problems from it); Left Mastectomy followed by 35 rads.  Recurence in 9 months as skin mets to mast. site. tx Carboplatin/Herceptin,  stayed on Herceptin every other week for almost 4 years only stopping when my ejection fraction would get too low. off herceptin & ned 3 years in 2010

Tricia Keegan
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Re:Introduce Yourself - Tuesday, December 07, 2010 7:16 PM
Hi Connie,

As another herceptin lady I'm so sorry for your recurrance, we're all here for you and you may like to find more of us on the stage iv forum where we post daily. http://apps.komen.org/forums/tm.aspx?m=255581&mpage=286

Also check out www.her2support.org for more info on our type of bc and the various new treatments available.:)
<message edited by Tricia Keegan on Tuesday, December 07, 2010 7:17 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

mattnickmom
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Re:Introduce Yourself - Monday, December 13, 2010 12:16 PM
Good Afternoon: I feel very foolish on this site but it was the only one I could think of....I am ashamed to say I am 51 years old and have never had a mammogram....I am scared to have one and was wondering if there is any sort of go with a buddy program or something....I currently have 2 family members fighting but winning the breast cancer battle and it has gotten me thinking...I live in the southern most part of NJ...cape may and could find no local chapters near me....any advice would help and again I apologize for for taking time from those of you who are looking for support in your valiant battle..you are all in my prayers....

Ann B.
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Re:Introduce Yourself - Monday, December 13, 2010 12:37 PM
Hi--There is nothing to be ashamed of or to feel foolish about.  We are human and have our fears and foibles.  The "valiant battle" against breast cancer begings with a mammogram.  For most of us a mammogram finds breast cancer at the very first opportunity.  I am a 21 year survivor who has had breast cancer twice--the last time 8 years ago.  I want you to think about this--because my cancers were picked up at the earliest times they could be seen, I have never had chemotherapy.  What a gift.  You need to tell your doctor how terrified you are.  Mammograms can be read immediately.  Although that is usually reserved for those of us with a history of bc, perhaps they can accomodate you.  Is there a family member or friend who can go with you?  It's very common around here for us to be terrified and anxious at mammogram time.  My husband still accompanies me.   I wish you the best of luck.
 
                                                                                         Ann B.
Ann B.
12/89--Lumptectomy of left breast for 2 sites of DCIS followed by radiation and 5 years of tamoxifen. ER/PR +
12/2002--Mastectomy of Left breast for recurrence. Nodes negative. ER/PR+ Her2-. Arimidex.

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