Introduce Yourself

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Tricia Keegan
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Re:Introduce Yourself - Monday, December 13, 2010 12:55 PM
I'd agree with Ann and echo her words to you, I found mine but not early enough to avoid chemo and radiation so early detection not only gives the best prognosis but also can lesson the treatments needed. 

Can you chat to your Dr about how you feel?  Maybe they can give you something to help relax you beforehand.  Please do have a mammo as it's well worth the hassle and stress:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:Introduce Yourself - Monday, December 13, 2010 4:33 PM
Hi. I read an article about how friends created their own "buddy system." They would go for their mammograms on the same day and then make a day of it--lunch out, shopping, a movie or whatever. Perhaps you have a friend that you could do that with--maybe a friend who has been putting off her own mammogram.  Ann and Tricia are right--if cancer is found early, it can be so much easier. AND, even better, if you have a clean mammogram, think how much better you will feel. 
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

daynanorman
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Re:Introduce Yourself - Wednesday, December 15, 2010 10:43 PM
Hi Juanita! You are the first that I have found on the site that is TNBC also! I am 34 years old and was diagnosed in October 2010 with TNBC and,after a double mastectomy, I am in the process of taking 6 treatments of Taxatere/Cytoxan - talk about a meltdown! But I'm good now.  I have had one treatment and am scheduled for #2 next week (if my white counts build up a little).  Just a little curious on your treatment you have listed, why are you having to take the taxol and then follow up with radiation?  Is it because of the partial mastectomy?  
 
 
Dayna Norman

Triple Negative Breast Ca (Right Breast)
Stage IIA
Double Mastectomy/Expanders placed
Taxotere/Cytoxan 6 Treatments
Negative Nodes
(Diagnosed 10/19/2010)

Rena
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Re:Introduce Yourself - Wednesday, December 15, 2010 11:38 PM
Hi Dayna. There are quite a few of us on the site who were/are triple negative, but we come and go so much that we don't always see the new posts right away. Anyway, welcome! I was diagnosed at 37 in 1986. At that time, there was no HER test, but my tumor was ER/PR negative, and my oncologist believes that I fit the TNBC profile: diagnosed young, BRCA2-positive. I had 22 positive nodes and am alive and well 24 years later. I hope that your chemo goes well and that this will all be behind you soon. If you go to the forum for less-common breast cancers, you'll find a thread for triple negative bc, but the traffic on that thread has been kind of slow lately. Have you been on the TNBC site? They have a very active message board: http://forum.tnbcfoundation.org/   Take care and best wishes, Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

daynanorman
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Re:Introduce Yourself - Thursday, December 16, 2010 8:51 PM
Thanks for the reply Rena.  You are amazing! Can't wait until I can put 20+ year survivor on my signature also!  So far chemo has been fine - just hope it stays that way.  I will be sure to check out the TNBC site also. 
 
Thanks!
Dayna
Dayna Norman

Triple Negative Breast Ca (Right Breast)
Stage IIA
Double Mastectomy/Expanders placed
Taxotere/Cytoxan 6 Treatments
Negative Nodes
(Diagnosed 10/19/2010)

Scooter 1
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Re:Introduce Yourself - Thursday, December 16, 2010 9:55 PM
I guess I'm a new kid on the block.  Just had double masectomy on Dec.6 and started reconstruction at the same time.
I had a DCIS show up on mammogram, bisopy that led to a lumpectomy.  thank God for a great surgeon who immediately did an MRI which showed up a spot in the left side.  She did an ultrasound, biopsy which was benign, took another look at the mammogram and saw a spot on the mammogram that was missed by the radiologist.  She biopsied it to be sure and it was malignant and invasive.  3 weeks later, surgery and removed 6 lymph nodes, all negative with clear margins.
So needless to say, if not for an aggressie DR, I  probably would be in serious trouble.  I have had my post op visits which were great and will start tissue expension next week.  Without the support of family and friends, it would be terrible.  I think a positive attitude is a MUST>

mary l
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Re:Introduce Yourself - Friday, December 17, 2010 10:18 AM
Hi Scooter, welcome!!!  You were very fortunate to have a great surgeon.  I am so happy for you.  Have a wonderful Holiday!!!  Mary L
Diag. Oct 2003 with 6mm mass, IDC grade III ductal carcinoma in-situ, Inflammatory Breast Cancer stage IIIB, Her2+++.   I had A/C followed by Taxotere (only had 2tx as I had heart problems from it); Left Mastectomy followed by 35 rads.  Recurence in 9 months as skin mets to mast. site. tx Carboplatin/Herceptin,  stayed on Herceptin every other week for almost 4 years only stopping when my ejection fraction would get too low. off herceptin & ned 3 years in 2010

MAYA_BLAKELY
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Re:Introduce Yourself - Sunday, December 19, 2010 9:54 PM
Hi my name is Maya .. Im new to this site, and I would like to thank everyone on here for taking the time to help others.. The more people work together the faster they can cure this horrific disease.. My mother was diagnosed with idc breast cancer.. she is triple negative... I know this is the most aggresive type of cancer.. I just really need to know more information about it.. i been stressing myself out researchin stuff online... my mom was diagnosed a week before thanksgiving of this year... she had a partial mysectomy or partial lym..  she is in stage one which is good.. but i heard the survival rate pretty much sucked.. so this is scarring me..She needs to join this group.. but she is so depress to even research anything... its been me and my dad mainly... ughh!! i dont know..im stuck!!
Have a blessed day, and may God bless!

Maya!!

Rena
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Re:Introduce Yourself - Monday, December 20, 2010 1:26 AM
Hi Maya. I'm sorry that this is such a tough time for your mom and for you. First of all, triple negative is not a death sentence. Yes, it's more aggressive, but it also responds particularly well to chemotherapy. Also, once a person with triple negative passes the five-year mark, the chance of recurrence falls dramatically. I am a 24-year triple negative survivor. I had 22 positive lymph nodes and was told that my prognosis was poor. Here I am, still alive and well. My advice is to stop searching the Internet--or at least ease off the research unless you are getting specific information that your mom needs. Much of what you read will be outdated, and much of it will not apply to your mother's situation. It only serves to scare you more when you need to feel hope. And there is hope! There are many triple negative women who post on this site who are beyond their cancers by four, five, seven years, and more. I wish you both well. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

ythao054
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Re:Introduce Yourself - Tuesday, December 21, 2010 9:02 AM
Well, I have no personal experience whatsoever, however my Anatomy & Physiology teacher has had breast cancer. Right now she is thinking about removing her breasts, and I think she's a wonderful inspirational woman. Throughout her whole experience, she seemed so strong and stubborn, and that's when I realized, I could never be like her. She took a few class days and told us about her procedures, and that's what really inspired me to join the movement.

Rena
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Re:Introduce Yourself - Tuesday, December 21, 2010 12:13 PM
ythao054, thanks for posting. I'm curious--how old are you? Your teacher sounds like a strong woman, and I admire her for sharing her experience with you. Hopefully, you will never need to face breast cancer yourself, but you will face other challenges in life, and I think you'll be surprised how much like your teacher you really can be. We rise to the occasion when we have to. Take care.
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

sq
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Re:Introduce Yourself - Sunday, December 26, 2010 9:04 PM
Hi, I'm Susan.  I was diagnosed with Inflammatory Breast Cancer October 29, 2010.  I just completed the AC of the ACT Chemo on the 17th.  Half way there.  I begin Paclitaxel (Taxol) 4 sessions, every 2 weeks, on Dec. 30th.  I will then have total mastectomy, radiation and estrogen inhibitory therapy for 5 years. 

kellyweeks
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Re:Introduce Yourself - Sunday, December 26, 2010 10:03 PM
Hello - I have not been diagnosed; however, my mother is a survivor. A 5.4mm lump was found in my breast.  I had an ultra sound and nothing could be found.  I am having a lumpectomy on Tuesday and, to be totally honest, I am very scared of the actual surgery.  I am having the needle placement first.  The thought of being put under and even having an oxygen tube inserted really scares me.

Tricia Keegan
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Re:Introduce Yourself - Monday, December 27, 2010 4:47 AM
Hi Kelly,

Most breast lumps found are benign, but I can understand your fear as felt a lot like that myself.

Maybe you could ask for something to relax you before having it done which may help, I had a lumpectomy and while we already knew it was malignant, the actual surgery and recovery really was not difficult or painful.

My best wishes to you and please keep us posted:)
((((hugs))))
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

mary l
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Re:Introduce Yourself - Monday, December 27, 2010 12:40 PM
I Susan.  So sorry you have to go through all of this.  I was diagnosed 7 years ago with Inflammatory Breast Cancer.  I went through all the chemos, adriamycin, cytoxin and Taxetere.  They are no fun but they work and you have to get through it.  There are alot of new antinausea drugs that you can take and it really helps with the nausea.  Just remember to take them before you start feeling sick.  Do you have the HER2 cell?  I did and it really saved my life.  I did the mastectomy and 35 radiation treatments.  Once you get started it seems to go by so fast.  My cancer was non estrogen related so you will have different treatment than I did.  Keep a positive attitude and have faith in your oncologist.  That is so important.  I had to change oncologist after my 1st recurrence and I am so glad I did because I have a wonderful Dr. and I trust my life in his hands.  I want to wish you the very best.  Keep us posted.  There are many wonderful women and a few men on this site.  They will be there for you whenever you have a question or need a little support.   Mary L
Diag. Oct 2003 with 6mm mass, IDC grade III ductal carcinoma in-situ, Inflammatory Breast Cancer stage IIIB, Her2+++.   I had A/C followed by Taxotere (only had 2tx as I had heart problems from it); Left Mastectomy followed by 35 rads.  Recurence in 9 months as skin mets to mast. site. tx Carboplatin/Herceptin,  stayed on Herceptin every other week for almost 4 years only stopping when my ejection fraction would get too low. off herceptin & ned 3 years in 2010

Tricia Keegan
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Re:Introduce Yourself - Monday, December 27, 2010 3:15 PM
Hi Susan and welcome- I missed your post earlier but wanted to tell you to check out the chemo forum for lots of info and tips on Taxol!

We also have an IBC thread too so hope you'll check it out.

I found taxol to be far easier to tolerate than a/c and hope you will too:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

kellyweeks
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Re:Introduce Yourself - Monday, December 27, 2010 6:18 PM
Thank you, Tricia.  I think I needed to hear (from someone who has been through it) that it wasn't difficult or painful.  I do appreciate you replying to me.  :) 

Tricia Keegan
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Re:Introduce Yourself - Monday, December 27, 2010 6:53 PM
Kelly- over  80% of lumps found are benign, so hang in there.

If you get bad news it's still do able and we're all here to help you so you're not alone!!

((((hugs)))))
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Melissa H
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Re:Introduce Yourself - Friday, January 14, 2011 3:20 PM
Hi everyone!

My name is Melissa. I am a 2 year survivor. I was diagnosed with Stage IIA DCIS in Oct. 2008, 20 days before my 28th birthday. I had a lumpectomy and my sentinel & axillary lymph nodes. I did 4 rounds of chemo (Taxotere & Cytoxin) and 7 weeks (35 days....eck!) of radiation. I am now 2 years into the 5 year Tamoxifen regimen. I have no family history and was negative for the BRCA 1&2 gene. This has been a crazy ride and sometimes I don't really feel like I have anyone I can talk to. I feel like I've handled this whole thing pretty well, but there are 2 things that I have a hard time with. One is the fear that it'll come back and the second is that my oncologist told me I shouldn't have any more children because of the whole estrogen positive thing. I have a 3 year old son who I love dearly, but my plan was always to have another child.

Anyways, sorry for being a downer at the end there! I am hoping to connect with other survivors and just share my fears, etc.

Melissa

Rena
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Re:Introduce Yourself - Friday, January 14, 2011 3:48 PM
Melissa, first of all, you're not a downer at all--just honest. Of course these things weigh on your mind. The fear is the hardest part, I think. I can tell you that for me, the first three years were the hardest, and then, little by little, I started to believe that I would be OK. There are things you can do--support groups, seeing a counselor, and so on, which can really help you cope. But the main thing that helps is the passage of time. There's a fine line between wishing your life away so that you can be five or more years out and not so afraid AND living your life in the moment, knowing that you'll sometimes be gripped by the fear. I'd say choose living in the moment--find as much joy as you can in every day (your son will help with that!), and when the dark times come, as they do for anyone who has faced cancer, don't struggle too hard against the fear. I think that the harder we try to push those feelings away, the more they take hold of us. My experience over the years has been that it's better to accept the fear as part of life and to treat yourself with love and compassion when those feelings come. For me, being gentle with myself--and with the fear, for that matter-- makes the fear dissipate more quickly. I hope this makes sense to you. Being 24 years out from diagnosis, I've had a lot of time to think about these things and experiment with my feelings and behavior, and that is what works best for me.  As to your other question, one thing you might do is go to the website for the Young Survivors' Coalition:  http://www.youngsurvival.org/   This organization is geared toward young women like yourself, and they also have an active message board. I'm sure that you'll find other young women there who are dealing with questions about having children after breast cancer. I wish you all the best! Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

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