Introduce Yourself

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Tricia Keegan
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Re:Introduce Yourself - Saturday, January 26, 2013 7:15 AM
Thanks Laura and I really don't know what make this one was, it wasn't available when I was dx so didn't get the choice anyway.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Wintersmom
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Re:Introduce Yourself - Sunday, January 27, 2013 6:59 AM
Thanks Laura and Tricia. Looking forward to getting my hair back !
 
Donna
Mother of Winter

swinkie55
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Re:Introduce Yourself - Wednesday, January 30, 2013 10:47 PM
My name is Carol and I was diagnosed last week with breast cancer in my right breast in the milk duct.  I met with the surgeon today and am scheduled for a lumpectomy Feb 7th followed with radiation (not sure the game plan on the radiation treatments yet)  The surgeon told me because of my being faithful to my yearly mammograms they were able to detect the breast cancer at stage zero.  I am doing better than I was last week when I got the call from the surgeon with the biopsy results but still in shock.  I am the first in my family to have breast cancer.

Tricia Keegan
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Re:Introduce Yourself - Thursday, January 31, 2013 5:16 AM
Hi Carol and welcome, I'm so sorry for your diagnosis but honestly if you're going to get get BC this is the one to get!! You should have an excellent prognosis and minimal treatment and do hope it all goes well for you and please keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Introduce Yourself - Thursday, January 31, 2013 7:15 AM
Hi Carol - Glad you found us!  As Tricia said, according to your diagnosis, your prognosis is very good.  That doesn't take away the shock value of hearing you have breast cancer!  Your radiation will be probably be about 33 sessions which is the usual protocol.  Time-consuming, but well worth it with little side effects.

Keep us posted and come here if you have an questions or concerns.

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Liv
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Re:Introduce Yourself - Saturday, February 02, 2013 3:22 AM
hello carol im new here too but if you think i could help in any way just ask away. best wishes. xx
~~~~luvs liv~~~~ IBC - Trip Neg - 10cm - 17/24 nodes - dx April 2012 6 months chemo - mastectomy - rads - finished.. Currently xeloda - navalbine - looking forward to reconstruction 12/2013

Tricia Keegan
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Re:Introduce Yourself - Saturday, February 02, 2013 4:13 PM
Hi Carol and glad to welcome you here:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

crissio
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Re:Introduce Yourself - Sunday, February 03, 2013 12:47 PM
Hello and welcome.  I know you probably feel very alone, but we are here!  I was the only one in my family to ever have breast cancer, too.

mrsparis
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Re:Introduce Yourself - Sunday, February 03, 2013 6:02 PM
Hello! I am not sure where to start. I am 24 years old, married with two kids. I found a lump in my left breast one year ago (jan 2012) they said my breast were fibrocystic. I had one breast completly larger than the other. I was in so much pain. They said there was nothing they could do. So last month I went to the dr again. They said I have hundreds of cysts in my left breast and 15-20 in my right. The only soultion is surgery. My sugeron has recommonded a double mastectomy. I am going through so much pain. I am on several pain meds. I cant wear a seat belt, cant hold my kids, I am not living my life. What really gets me is they havnt tested any of my lumps for cancer. They say they dont look like cancer, and most cancer lumps are not painful. They are waiting until they remove the breast to put them under the microscop on test then. In the meantime I am waiting and waiting and we still dont know for sure if its cancer or not. I dont know where to turn...I need someone to talk to who can relate to me! This is so hard!

Rena
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Re:Introduce Yourself - Sunday, February 03, 2013 6:32 PM
Mrs Paris, I'm so sorry that you're going through this. My best advice, if you haven't already done this, is to go to a major medical center and consult with a breast specialist--not a GP, a gynecologist or even a general surgeon, but a doctor who does nothing but deal with breast issues. I see that you're in Colorado, so there must be some good breast specialists in the major cities. This sounds so painful. I feel terrible for you, but I wouldn't do the mastectomies without first getting another opinion from the right kind of specialist. I wish you the best. Please let us know what you decide.
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

sjgere
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Re:Introduce Yourself - Sunday, February 03, 2013 9:06 PM
Hi I am Sandi from Des Moines, I was diagnosed with low grade invasive carcinoma on dec 12.2012. I have seen the surgeon and the reconstructive surgeon. I have decided on a mastectomy both breast and reconstructive surgery to be later on. I have a question. I am afraid of this spreading and feel like I should have surgery scheduled asap. I have not heard from the surgeon and wondering If I should pursue other treatment centers. Or does this usually take this long. Any of the ligature I have read it doesn't tell you any time frame which surgery should fall into. any one have any knowledge of this?

Tricia Keegan
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Re:Introduce Yourself - Monday, February 04, 2013 2:49 AM
Hi Sandi, I don't think a few weeks either way will make much difference but if you're concerned do call the Dr's office and see what the delay is. I think I had my surgery about a month after my initial dx which seems to be about the norm here I think.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

sharonma
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Re:Introduce Yourself - Monday, February 04, 2013 7:39 AM
hi Sandi,
i agree with Tricia in that a few weeks shouldn't make much difference , especially if it is a low grade (slow growing) cancer.
 
they have to coordinate the dr schedule with available or time, and if immediate reconstruction is done, it can take as much as 8 weeks to coordinate their 2 schedules,.  So likely you would face the same issues at another center.  have you sought a seond opinion?
 
i think my time frame was appx 4 weeks from bx to partial mast, and 8 weeks between partial mast and full(single) mast w/immediate reconstruction.
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

mrsparis
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Re:Introduce Yourself - Friday, February 08, 2013 11:37 AM
Rena,
Thank you! I went seen a breast speicalist in denver, I seen 3 for a matter of fact lol. 2 out of the 3 think a subcutaneous mastectomy is needed. I am due to see a plastic surgeon who will be there after the mastectomy this coming up week. They are also doing a gentic test to see if I have the gene for bc.

Wendorian
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Re:Introduce Yourself - Tuesday, February 12, 2013 5:44 PM
Hello all, my name Wendi and I am in my sixth year of survival.  I was diagnosed in July 2007 at age 47 with cancer in my left breast (interestingly my docs and I had been watching my right breast since my mid-20s). After several weeks of learning what I could, I chose to have a double mastectomy plus reconstruction and chemo in Sept 2007.  Results:  2cm lump, stage 2 cancer, 3 lymph nodes removed, triple negative, no BRCA gene.  My surgeon, plastic surgeon and oncologist were forthright and extremely helpful and supportive with all info and points of view on my course of treatment.  I even signed up for a clinical trial for the chemo resulting in 2 drug chemo therapy - I avoided Adriamycin, and had Cytoxan and Taxotere.  Only had moderate nausea, no vomiting, lost all my hair everywhere (very nice reprieve from shaving, plucking and waxing I might add).  My family, friends,  employees and coworkers were amazingly supportive.
Fast forward to today, staying healthy, losing weight, and managing stress in my life are my biggest challenges.  Part of staying healthy is managing what I believe is mild/ moderate lymphedema in my left arm/ pit, breast and now my lower back.  I had latissimus flaps for my breast reconstruction and what feels like thick, dense swelling or a mass is forming in the area of the incision on my back on the left side. My family doc ordered an MRI from which I will get the results next week during a complete physical.  I've researched lymphedema, lipomas, seromas, truncal lymphedema, and ligament and tendon inflammation due to over exertion (I swim laps for exercise) in relation to breast reconstruction surgery.  Does anyone have any information, experience or other pertinent information on this?  I like to go into discussions with docs as informed as possible.



Other that all this, I feel blessed to be alive. I've never written on online message boards or blogs before. Komen's looked interestingly and chocked full of info.


Wendorian
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Re:Introduce Yourself - Tuesday, February 12, 2013 5:56 PM
I recommend tracking down your surgeon and asking him.  I asked mine and he advised me to weigh all my options and that I could "take some more time to make a decision".  You should know all that you're facing Nd the most prudent time frame for all you're facing.  Mine was a fairly fast growing cancer - I had a mammogram in Dec 2006, found a lump myself in July 2007.  I also choose to do the reconstruction while I was still on the table from the mastectomy.  Even with that decision, it took me 3 days before I could look at my bandages or even look in the direction of my chest.

Mama Gail
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Re:Introduce Yourself - Tuesday, February 12, 2013 11:58 PM
Hello Ladies, my name is Gail and I am a 57 year old wife, mother of three grown children, "Mama Gail" to five grandchildren, and a credit union employee. I was diagnosed Jan. 2 with IDC and had lumpectomy Jan. 30. When I was diagnosed initially it was thought to be stage 1, but then my MRI and, of course surgery, revealed that the tumor was larger than the mammograms and ultrasound showed. It was 3.3 cm, so it turned out to be stage 2. I just had my two week followup with my surgeon today and learned that since my cancer was stage 2, I will likely be having chemo, followed by radiation, followed by Tamoxifen, since the tumor was also ER positive. My lymph nodes were clear. Of course I will know more after I see the oncologist next week, but the part of this that is a bit of a surprise and disappointment to me is the likelihood of chemo. I guess that I was still thinking I'd be having just radiation followed by Tamoxifen, but I guess those were assumptions on my part from when we thought the tumor was smaller and I was stage 1. I'm wondering how sick I'm likely to get from chemo, if losing my hair is a given and how much work I'm likely to miss. I'm sure that is all completely different from one individual to the next. And maybe I'm getting ahead of myself since until I see the oncologist I don't know chemo is a given.
Gail in San Antonio, Diagnosed 1/2/13 at age 57, Rt Brst IDC, 3.3 CM, ER+, Stage 2, Lumpectomy 1/30/13, Clear margins and Clear lymph nodes

Tricia Keegan
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Re:Introduce Yourself - Wednesday, February 13, 2013 3:26 AM
Hi Gail, do check the chemo and rads forums here as there are lots of tips and advice to help you. Re your questions though if you ensure you take the anti nausea meds even if you feel you don't need to, the chances are you'll be fine as its easier to prevent the nausea than stop it once it begins.....I'm sorry to say with the drugs they use for BC the chances are you will lose your hair but you have to remember its temporary and you will get over that and with such a lovely family and support you have everything to fight for! I hope chemo is not needed but do keep us posted and we're all here for you!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Tricia Keegan
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Re:Introduce Yourself - Wednesday, February 13, 2013 3:28 AM
Hi Wendorian and welcome, I'm glad you're doing so well post treatment but sorry I can't help with your question, however I swam lengths all through tx and since and all my Dr's say its the best thing post bc but I didnt have recon so not sure on that, hoep you get answers soon.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Mama Gail
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Re:Introduce Yourself - Wednesday, February 13, 2013 4:01 AM
Thank you Tricia, I'll be sure to check out those threads. Thanks!

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