Introduce Yourself

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Tricia Keegan
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Re:Introduce Yourself - Tuesday, June 25, 2013 5:19 PM
Hi Justine, I'm so very sorry about your diagnosis and hope you have a good response to this chemo, I had Taxol too but haven't heard of your trial drug. I know you have lots to fight for in Kayla and I wish you well and hope you'll keep us posted on your progress.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Linda_Lee
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Re:Introduce Yourself - Saturday, June 29, 2013 8:04 PM
I am 47 was told a few weeks ago I have stage IV Breast cancer. I haven't started any treatment yet. Still waiting for the first available appointment with a surgeon and an oncologist on July 5th. I had had a mammogram in March which showed no sign of breast cancer. I was even in the hospital that same month for Hemoglobin level of 6.9 and received blood transfusions. Now after an MRI and a biopsy, earlier this month, I had to tell my three children who just lost their aunt (no blood relation)3 years ago to the same type of cancer.

Dennine
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Re:Introduce Yourself - Sunday, June 30, 2013 1:21 AM
.
<message edited by Dennine on Sunday, June 30, 2013 1:24 AM>
Dennine -2006 (age 31) BC ER+ 3 tumors in rt breast -mastectomy of rt side/10 of 12 lymph nodes removed positive for cancer -6 rounds of ACT/ 31 days radiation -2007 complete hysterectomy (precaution) -2007 left side removed (precaution) & reconstruction done -Several hormone therapies followed over the years -March 2012 new spots appear near trachea and rt bronchial tube / bronchoscopy positive as BC return -Faslodex injections till Nov and then switched to Xeloda to present - CA 21/27 numbers

Dennine
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Re:Introduce Yourself - Sunday, June 30, 2013 1:26 AM
Sorry Linda...my advice to you is take things one day at a time...sometimes moment by moment. It's all too much at once if you try and take it in that way. Praying for peace for you and your family
Dennine -2006 (age 31) BC ER+ 3 tumors in rt breast -mastectomy of rt side/10 of 12 lymph nodes removed positive for cancer -6 rounds of ACT/ 31 days radiation -2007 complete hysterectomy (precaution) -2007 left side removed (precaution) & reconstruction done -Several hormone therapies followed over the years -March 2012 new spots appear near trachea and rt bronchial tube / bronchoscopy positive as BC return -Faslodex injections till Nov and then switched to Xeloda to present - CA 21/27 numbers

Tricia Keegan
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Re:Introduce Yourself - Sunday, June 30, 2013 6:30 AM
Hi Linda and I replied more to you on the stage iv forum where you posted.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Phoenix
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Re:Introduce Yourself - Friday, July 05, 2013 9:07 PM
Hi Ladies,

I have not yet received a positive diagnosis of breast cancer but needed support.  I am in the "waiting" stage and am TERRIFIED!  I felt a lump in my right breast June 20, 2013.  A week later, June 27th, I went to my regular doctor to have it checked out and to have a well women's checkup.  She confirmed that there was a suspicious lump (she guessed it was about 1 cm) and reccommended a mammogram.  The next day (6-28-13) I had a mammogram and an ultrasound.  Doctor confirmed that the lump was 1.9 cm and was cause for concern (blurred edges, blood running through it, not solid).  Recommended a biopsy.  Went to surgeon and had consultation 7-1-13, core biopsy 7-3-13.  At the consultation, he said there was at least a 60% chance it was BC.  (By the way, biopsy was excruciating.  Couldn't stop my bleeding and had to press down hard on my breast for about 10 min to clot blood AFTER they had done biopsy...ugh).  Also did biopsy of lymph nodes because they were enlarged.  So now I have to wait until Monday to find out the results.  Like many of the women on this site it is sooooooo hard waiting and not knowing!  I'm extra worried because my MOTHER had BC so I've always been high risk.  She had a Halstead Radical Mastectomy 41 years ago...still alive and well.  Feel like I've lived my entire life just waiting for the other shoe to drop.  Also terrified because I have no local support network.  No husband, fiancĂ©e, boyfriend, siblings, parents, etc.  I'm a single mom raising three children (ages 15, 12, and 9) and a teacher living paycheck to paycheck.  Not to mention, I've heard the stats are less positive for African-American women...which I am.  Right now I am consumed with concern!  Needing some virtual hugs and words of encouragement.  Have read many posts and am inspired.

Thanks in advance,

Cheryl

Rena
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Re:Introduce Yourself - Friday, July 05, 2013 9:57 PM
Hi Cheryl. I'm really sorry that this will be short but my hand is in a cast and typing is hard. I couldn't read your post and not reply though. First, I'm sending lots of virtual hugs and encouragement. You are not alone! I am hoping that the news will be better than you expect. The waiting is very hard, and if it is cancer, it actually gets a little easier when you have a treatment plan in place. I had an aggressive type of cancer, and, like your mother, I'm a long-term survivor--27 years in September. Do you have someone--a relative or friend--who could come stay with you for a while, just until you get your bearings? Also, don't be shy about reaching out to other women. Almost every hospital has support groups. I wish you all the best. For more support, check out the other forums here, such as the "waiting room" thread on the Sound Off Forum. Sending you a huge hug. Pals
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

scootersmom
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Re:Introduce Yourself - Saturday, July 06, 2013 12:03 AM
Cheryl-

I'm sorry that your are going through this alone but know that we are here for you.  No one will disagree with you that the waiting is the hardest and scariest part.  It is hard not to think the worse while waiting.  Let your mother help you through this if she is able.  It helps to talk to others who are going through what you are going through or who have been where you are now.  

I am wishing you good luck with your results and if they are not good, please feel free to reach out to us.  We will try to help you as much as we can.  Here is a hug from me Pals and a shoulder if needed.




Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Phoenix
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Re:Introduce Yourself - Monday, July 08, 2013 2:34 AM
Rena


Hi Cheryl. I'm really sorry that this will be short but my hand is in a cast and typing is hard. I couldn't read your post and not reply though. First, I'm sending lots of virtual hugs and encouragement. You are not alone! I am hoping that the news will be better than you expect. The waiting is very hard, and if it is cancer, it actually gets a little easier when you have a treatment plan in place. I had an aggressive type of cancer, and, like your mother, I'm a long-term survivor--27 years in September. Do you have someone--a relative or friend--who could come stay with you for a while, just until you get your bearings? Also, don't be shy about reaching out to other women. Almost every hospital has support groups. I wish you all the best. For more support, check out the other forums here, such as the "waiting room" thread on the Sound Off Forum. Sending you a huge hug. Pals





Hi Rena, I am so thankful for your encouragement!  You won't believe me but it took me a while to navigate the site to locate my post and your response!   Ugh!  Anyway, it's 3 am.  Just wanted to say thank you!  I have my appt with my doc tomorrow to find out results of biopsy.  I'll keep you posted!

Phoenix
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Re:Introduce Yourself - Monday, July 08, 2013 2:38 AM
scootersmom


Cheryl-

I'm sorry that your are going through this alone but know that we are here for you.  No one will disagree with you that the waiting is the hardest and scariest part.  It is hard not to think the worse while waiting.  Let your mother help you through this if she is able.  It helps to talk to others who are going through what you are going through or who have been where you are now.  

I am wishing you good luck with your results and if they are not good, please feel free to reach out to us.  We will try to help you as much as we can.  Here is a hug from me Pals and a shoulder if needed.



Hi Scootersmom,


It's so nice to hear your kind words!  Thank you!  Like I told Rena, it took me a while to navigate back to where I had posted!  But glad I figured it out.  Will update you on results from biopsy.  Thanks for your hug.  Might need your shoulder, too!




Tricia Keegan
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Re:Introduce Yourself - Monday, July 08, 2013 4:33 PM
Cheryl I can only echo all Rena and Tina have said to you and just wanted to send good wishes for your results and hope you'll keep us posted. 

If you click on the user control button above it should give you an option to have e mail notifications of a reply, also if you hover your cursor  over where it says forum menu above left, it will give you an option to view the posts since your last visit or todays posts, hope this helps!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

scootersmom
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Re:Introduce Yourself - Monday, July 08, 2013 9:21 PM
Cheryl, the shoulder is here as well.
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Phoenix
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Re:Introduce Yourself - Wednesday, July 10, 2013 10:17 PM
Hi ladies,

I'm back with an update.  I went to meet with the surgeon on Monday (7-8-13) and received the diagnosis.  I DO have breast cancer.  Still all new to me.  The pathology report is like Greek to me...but it says I have "infiltrating ductal carcinoma, grade 3" in my right breast.  They also did a biopsy of my lymph nodes and showed "no evidence of metastatic carcinoma".  It says that "Estrogen and progesterone receptor analysis and Her-2/neu analysis will be performed on a paraffin block and a supplemental report will be issued."  I told my kids and family.  News is slowly spreading to my friends.  All have been very supportive (from afar).  

Next steps...Bracha (sp?) test was done on Monday.  Results back in 2-3 weeks.  MRI scheduled for third week in July.  Meeting with another surgeon as a second opinion.  He also suggested that I talk with a plastic surgeon.  Set up a meeting with one also.

At the moment, I feel like I am going crazy because I feel like there is ANOTHER lump in my armpit less than 2cm from where the two biopsy punctures are. Could that be???  Not to mention, could they have missed it?  Willl be following up again.

When I arrived home today I got a letter from my Primary Care Physician that my Pap smear results were abnormal.  "Epithelial cell abnormality.  Atypical squamous cells of undetermined significance."  I think it says I tested positive for HPV, high risk???  What on earth?  One day at a time...might have to start taking things one HOUR at a time!


Tricia Keegan
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Re:Introduce Yourself - Thursday, July 11, 2013 4:41 AM
Hi Cheryl,

I'm sorry the news wasn't better but this is all treatable and still found early so just take one day at a time for now and breathe although the temptation is to panic I know. I think it important you have them check the other lump you suspect is there, it can be missed and much better to find it now before treatment than as a recurrance months later but it may well be nothing hopefully. 
I also think you should ask your Dr or surgeon to explain the details of all this to you in full, you'll know more once you get the final report so fingers crossed for that and please keep us posted and remember you can do this. 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

sharonma
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Re:Introduce Yourself - Thursday, July 11, 2013 7:49 AM
Hi Cheryl,
Agh when it rains.... It is a lot to deal with at once but one step at a time.  
Call you surgeon and ask to have the lump checked.  Maybe its something as simple as a swollen node in reaction to the surgery, or a start of an infection.  In any case, you will sleep better if it's checked. 

I'm sorry you have to deal with the Hpv/pap too.  I guess if there is something positive about this, its that an abnormality is not cancer.  And knowing you are higher risk will provide for more frequent testing and early detection.   I think your gyn will want to eradicate those cells, with possibly a LEEP procedure.  If you go to Hystersisters.com, you will find a wealth of info and support from women with this condition.  

I hope you get all the answers and get a plan in place soon.  When you know what your treatments are will help quell the panic that uncertainty brings.
Also wishing you negative results on your BRCA test.
One day, hour, minute and one step at a time. There is light at the end of this tunnel.
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Phoenix
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Re:Introduce Yourself - Friday, July 12, 2013 4:46 PM
Tricia Keegan


Cheryl I can only echo all Rena and Tina have said to you and just wanted to send good wishes for your results and hope you'll keep us posted. 

If you click on the user control button above it should give you an option to have e mail notifications of a reply, also if you hover your cursor  over where it says forum menu above left, it will give you an option to view the posts since your last visit or todays posts, hope this helps!





Thanks Tricia for all your well wishes.  And thanks for the tip on viewing posts.  Helps a lot!  Now they won't get lost in space.  I'llmdefinetely keep you posted.  Won't have any updates until week after next.  Going on. Short vacay with my kids that was planned a while ago.  Will be good to decompress.  I hope you are doing well!  TTYL.

Phoenix
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Re:Introduce Yourself - Friday, July 12, 2013 7:55 PM
sharonma


Hi Cheryl,
Agh when it rains.... It is a lot to deal with at once but one step at a time.  
Call you surgeon and ask to have the lump checked.  Maybe its something as simple as a swollen node in reaction to the surgery, or a start of an infection.  In any case, you will sleep better if it's checked. 

I'm sorry you have to deal with the Hpv/pap too.  I guess if there is something positive about this, its that an abnormality is not cancer.  And knowing you are higher risk will provide for more frequent testing and early detection.   I think your gyn will want to eradicate those cells, with possibly a LEEP procedure.  If you go to Hystersisters.com, you will find a wealth of info and support from women with this condition.  

I hope you get all the answers and get a plan in place soon.  When you know what your treatments are will help quell the panic that uncertainty brings.
Also wishing you negative results on your BRCA test.
One day, hour, minute and one step at a time. There is light at the end of this tunnel.



Thanks so much Sharonma!  Seriously, you ladies are awesome!  You have given me such good advice and supportive words.  My mom had breast cancer but so much has changed since she did 41 years ago that's it's a whole new world.  I'll keep you posted.



scootersmom
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Re:Introduce Yourself - Friday, July 12, 2013 9:58 PM
Cheryl:

Sorry for your results.  When people used to tell me there was a light at the end of the tunnel, I used to tell them "I'm sure there is but with my luck it's attached to a freight train coming full speed". That's how I felt when first diagnosed and then with all the issues that I ran into.

Times have changed and I do see the light.  It's just blurry from time to time.  You are right in the fact that so much has changed in all the years.  We now have options that weren't there years before.  As Sharon said, this is a one day, hour, minute etc process.  The waiting is the hardest and scariest part.  

Good luck with the further tests and the meeting with the surgeons.  

Remember we are still here for you.Pals


Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




MamaT
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Re:Introduce Yourself - Saturday, July 13, 2013 3:00 PM
Hi there!  I am Teresa, I was diagnosed on Feb. 1st with breast cancer in my left breast .  They did the oncotypedxTest on my tumor and it came back with a 13 so did not have to go through chemo.  It was stage 1B and is both ER and PR positive .   I had a lumpectomy on Feb. 13th where they took out both the cancerous tumor and another spot that wasn't cancer..yet.  They took out the 3 sentinel nodes which were clear. PTL  I finished my 30 radiation treatments on May 24th and I have been  on Tamoxifen since May 30th.   I have my first check up after treatment with both my Oncologist and Radiation Doctor on July 31st.  I am a bit nervous as I have discovered a very tender  lump just under and to the side of the same breast that was radiated (it is in the radiation field).  It is actually more on my rib than in my breast tissue.  Hubby and I are away on an extended business trip so other than messaging my oncologist I am stuck away from home wondering what is going on.  I don't know if this type of thing is a normal side effect from the radiation or if there is more going on.  That is my story, thanks for listening.

Tricia Keegan
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Re:Introduce Yourself - Saturday, July 13, 2013 5:30 PM
Hello Teresa,

Sorry you had to join us but so pleased you found this early enough that chemo wasn't needed, many of us felt a lump around the radiated area which turned out to be scar tissue and I really hope thats the same for you, good luck and please keep us posted on how you get on!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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