Introduce Yourself

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Tricia Keegan
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Re:Introduce Yourself - Saturday, September 07, 2013 7:53 AM
Hi Susan and welcome,

I'm so sorry for this diagnosis, at one time it was believed there was no point doing a mast or lumpectomy if the cancer had already spread but this thinking is old now and most Dr's do see the benefit of removing or shrinking the tumour first with chemo or hormone therapy if the cancer is hormone positive. If you're doing any research stick to reliable sites like www.breastcancer.org where they also have a very active stage iv forum.
I think with a good response to drugs your mets could shrink down almost to nothing and in general bone mets are the easiest to treat, my good wishes to you and please keep us posted.


P.S This link may help and has some questions on what to ask the Dr http://ww5.komen.org/IWasDiagnosed/IveBeenDiagnosedwithBreastCancer.html?itc=emoentpnt:5
<message edited by Tricia Keegan on Saturday, September 07, 2013 7:55 AM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

thblake
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Re:Introduce Yourself - Tuesday, September 10, 2013 8:58 PM
My name is Theresa Blake from Boscobel, WI.  Recently diagnosed with invasive ductal carcinoma in situ left breast, still undergoing tests needed to complete surgery so pretty new to this.  Looking for possible support groups close to Boscobel or online.  

scootersmom
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Re:Introduce Yourself - Tuesday, September 10, 2013 10:30 PM
Hi Theresa.  This whole process is overwhelming isn't it?  You could try to find a support group through your local hospital.  Sometimes churches or hospitals conduct them.  You might also check with your doctor's office to see if he/she knows of any.  You can also check with the American Cancer Society.  They have a program called Reach for Recovery where it connects you with a person who has gone through what you are going through.  They would be available to answer questions related to their experiences.

As always, there are a great many women on this site.  Someone surely has gone through what you are now going through.  We are here for support, hugs and advice.

Good luck with your upcoming appointments.
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Tricia Keegan
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Re:Introduce Yourself - Wednesday, September 11, 2013 5:43 AM
Hi Theresa,

I'm sure there are a few local support groups for you and would echo Tina's advice to you, also ask at your hospital, I found an online support group here suited me fine but I know others do prefer a one to one group so good luck and keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Phoenix
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Re:Introduce Yourself - Monday, September 23, 2013 8:06 AM
Hi girls,

I haven't posted in a while.  Sorry!  Running out the door but my signature/comment area tells what has been going on with me.  Really love and appreciate all your early supportive messages.  Hope I can be a support for someone else!



Cheryl- age 47
Divorced mom raising 3 children (15,13,10)
Second generation breast cancer, 11 1/2 yrs POST-menopausal
7/8/2013 Dx with IDC Stage I, Grade 3, Right Breast, ER/PR+, Her2 -
BRCA1/BRCA2 negative
8/22/2013 TRAM Delay surgery (prep for reconstruction)
9/3/2013 Right Modified Radical Mastectomy and TRAM Flap reconstruction surgeries.  1.8 cm tumor.  10 lymph nodes removed, all negative for malignancy.
10/?/2013 (exact date TBD) Beginning 4 rounds of chem

Lucy123
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Re:Introduce Yourself - Tuesday, September 24, 2013 10:50 PM
Hi:  My name is Charlene and I am 66.  I had a mammogram on August 8 where they found some calcifications in my right breast.  This was followed by a biopsy which showed a very small DCIS.  I then had a lumpectomy and their was no cancer found in the tissue that was removed.  Since it was so small the doctor said he was probably removed by the biopsy.  I do have atypical lobular hyperplasia.  I have an appointment to see the Radiologist on thursday to discuss treatment.  I have been looking at a lot of articles and am quite confused as to what I should do.   There are articles telling me that it is not necessary to have radiation for a small DCIS.  It was a grade 2, solid type, stage 0.  Any suggestions on how to go about making this decision?

sutherland
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Re:Introduce Yourself - Sunday, September 29, 2013 4:55 PM
Hello everyone, My name is Hillary Sutherland and I am currently undergoing the BRCA analysis testing to determine whether or not I have the breast cancer gene. Every women on my mother's side has had breast cancer and we have a high risk of breast cancer due to us being Ashkenazi Jewish women. If anyone underwent this process I would like some advice and what treatment options were suggested. Thank you!!Will keep you updated on my progress :)   Hillary Sutherland  

Tricia Keegan
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Re:Introduce Yourself - Monday, September 30, 2013 1:49 AM
Good luck and hope its negative results Hilary, if you google facing our risk you should get a good informative site that may help you.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

PamKP
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Re:Introduce Yourself - Monday, September 30, 2013 9:19 PM
Hello, my name is Pam and I am from Mississippi.  I was diagnosed with DCIS after a spot on my annual mammogram was suspect.  The lumpectomy confirmed it.  I am taking Letrozole (Femura) for the next five years and have begun radiation therapy just last week.  I am not sure what to think about all of this. I am not scared, I haven't cried. All I know is this is not my mothers cancer, Thank God!  I do have a family history which is why I have been so diligent with mammograms and self exams.  I had my first mammogram at 35 and am 47 now.  I've had biopsies previously, but this is the first cancer dx.  My biggest fear is my daughters.  I have decided against genetic testing since there is a history on their fathers side as well and if I should have a negative result, I don't want them to become complacent in their own care, thinking they won't have cancer.  I am glad to find this site.  I dislike telling people I have cancer because I feel like I have to comfort them and I don't want their emotions to color my attitude, which I am trying to keep as positive as possible!

Tricia Keegan
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Re:Introduce Yourself - Tuesday, October 01, 2013 4:43 AM
Hi Charlene,

Sorry for my late reply but I would do the radiation, people often dismiss early dcis as harmless but it should be take seriously and rads will zap any stray cells around the surgical site so hopefully you won't have to face this again.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Tricia Keegan
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Re:Introduce Yourself - Tuesday, October 01, 2013 4:45 AM
Hi Pam and welcome and I wish you well with your treatments and do keep us posted.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

kneecancer
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Re:Introduce Yourself - Tuesday, October 01, 2013 1:38 PM
Hello all, I'm new to this board (well, really new to all of this). Earlier this year, I had a routine dermatology exam and had a bump removed from my knee (looked like an ant bite - but, had been there for about a year).
3 days later, I got the call that crumbled my world. The pathology came back as adenocarcenoma typing as breast cancer. WHAT?? I have breast cancer on my knee??
It's been a tough 6 months trying to figure out what is going on. I had a full PET scan head to toe that came back negative. I had an MRI which resulted in 3 biopsies - all negative. I'm scheduled for a Preventative full hysterectomy in November.
So, i'm a Breast Cancer patient with no breast cancer. I feel very lucky, as this is the best thing that could occur. However, I'm scared to death. With everything I've read - if you have Breast Cancer showing somewhere else in your body (in my case - the skin), there is an origin point. However, we cannot find an origin point. My oncologist has basically given me an all-clear bill of health. But, how can that be.
Honestly, I'm just looking for someone who may have advice for me. I'm on a monitoring basis for now - Blood draws 2 times a year and MRI every 6 months. I think my major fear is the unknown.
While Googling - I keep finding that Metastic Breast Cancer is uncurable and generally deadly. But, with no origin point - am I just a major anomoly?
Thanks for your advice!!

Tricia Keegan
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Re:Introduce Yourself - Tuesday, October 01, 2013 3:50 PM
Hi,

Please disregard most of what you read on the web about stage iv cancer which is usually very outdated, a reliable info source is www.breastcancer.org 

Did they remove or treat the area on your knee??  I have heard of cases where the primary tumour couldn't be located so you're not alone there but never have it travel to knee which I think is very unusual as generally breastcancer mets don't travel beyond the hips/thigh area and then usually in the bone. I think I'd consider a second opinion which can't hurt and realize how frustrating it must be for you not knowing the details of your diagnosis or having access to more drugs to help treat it..ie, hormone therapy or Herceptin if her2 positive. 

I'm not a Dr or health professional but it sounds really strange and in eight years I haven't come across anything similar, I can tell you though I have many stage iv friends with bc mets that are doing well years out from diagnosis and the newer drugs now really treat this as a chronic rather than terminal illness which it once was. 
Please keep us posted on how you get on!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

suzette58
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Re:Introduce Yourself - Tuesday, October 01, 2013 6:19 PM
Hi.  My name is Suzette and I was diagnosed almost 3 weeks ago with DCIS breast cancer.  It is stage 0 cancer.  I have a hard time acknowledging the fact that I have cancer.  I am participating in a study that my surgeon is heading up.  It is called the PINC study.  They are looking at using a drug normally used to treat Maleria.  After that is over I will have a lumpectomy and radiation.  I am hoping to learn a lot here.  

Suzette

Tricia Keegan
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Re:Introduce Yourself - Tuesday, October 01, 2013 6:42 PM
So sorry for your dx Suzette and hope you'll keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

CountryGirlsHeart
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Re:Introduce Yourself - Thursday, October 17, 2013 2:44 PM
I am 39 years old with a history of breast cancer in my family.  In May of this year, I found a lump in my left breast which was confirmed by my OB/GYN 2 weeks later.  I had my first mammogram in June which came back as an "all clear".  I returned for a follow up/re-check last week because I have experienced pain in the lump and lymph nodes closest to it since the middle of June.  I had an ultrasound last week which again did not show the lump at all.  Because both the doctor and I can feel the lump, she has referred me for a second opinion which is scheduled for November 19th.  I was wondering if anyone else has ever experienced anything similar.  If so, what did your doctor do in your situation?  Any advice or shared experiences will be greatly appreciated!  Thank you!

Tricia Keegan
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Re:Introduce Yourself - Thursday, October 17, 2013 4:23 PM
Hi Countrygirl,

I think it may helpful to request an ultrasound or MRI, many women have dense breasts and lumps may not show on Mammo's, I hope its nothing sinister but do request this or indeed a biopsy to be certain of what you're dealing with.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Lisajohn1
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Re:Introduce Yourself - Wednesday, October 23, 2013 11:29 AM
Hello,  My name is Lisa and I was diagnosed last year October 25th 2012.  This is the first time I have joined anything concerning my breast cancer.  I was wondering if anyone else has had extreme head/hair pain after chemo and radiation have been completed?  I have an appt today to see if it is my thyroid.  I have pain in both legs (sometimes can hardly stand up after sitting for any length of time). This all started a week into my radiation treatment.  I had both AC and Cytoxin (sp?) 4 treatments.  Then I had 12 weeks of Taxol and herceptin treatments.  Then 5 weeks of radiation, which I finished July 2013.  I  now have the herceptin every 3 weeks ending next March of 2014. My diagnosis was Invasive Ductal Carcinoma and I had a lumpectomy.  And I am 3 positive.  I was on the tomoxofin, but it made me kind of crazy,so they took me off it for a month to see how I am.  I was stage 1 with no nodes.  Any input would be great.
Thanks
<message edited by Lisajohn1 on Wednesday, October 23, 2013 11:48 AM>

Tricia Keegan
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Re:Introduce Yourself - Wednesday, October 23, 2013 2:09 PM
Hi Lisa and I'm sorry you're still suffering like this, I had some pain when losing my hair but thats all I remember, it can take many months or longer to recover from chemo as its so toxic so its possible your body is still urging you to rest in order to heal perhaps. I also am her2+ and think you may find this link helpful www.her2support.org 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

AmysFight2
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Re:Introduce Yourself - Thursday, October 24, 2013 11:41 AM
Hi Country Girl,
I just turned 40 in September.  I was diagnosed with breast cancer october 9th 2013.  I found a lump in my left breast that has been painful.  It is rather large so it can not be missed by touch.  I had a mammogram and sonogram.  The large mass showed on both however there was a small 7mm mass that only showed up on the sonogram and it still didn't look bad.  Just a lymph node.  I had a biopsy done there after.  The large mass is Moderate Invasive Ductal Carcinoma and the small mass is a lymph node positive for metastatic carcinoma.  They did an MRI of both breasts and lymph nodes but the only cancer that could be seen was the large mass.  The small one which is the most dangerous and is probably already spread to the other lymph nodes was not seen on the MRI.  But the large mass had got so big it may be blocking the view.  Definitley get a second opinion.  See if they will do the MRI.  The next thing would be a pet scan that would show cancer anywhere in the body.  Good luck!  If there is a lump there I would at least find a surgeon who will not give up to find in and biopsy it.


Amy 


CountryGirlsHeart


I am 39 years old with a history of breast cancer in my family.  In May of this year, I found a lump in my left breast which was confirmed by my OB/GYN 2 weeks later.  I had my first mammogram in June which came back as an "all clear".  I returned for a follow up/re-check last week because I have experienced pain in the lump and lymph nodes closest to it since the middle of June.  I had an ultrasound last week which again did not show the lump at all.  Because both the doctor and I can feel the lump, she has referred me for a second opinion which is scheduled for November 19th.  I was wondering if anyone else has ever experienced anything similar.  If so, what did your doctor do in your situation?  Any advice or shared experiences will be greatly appreciated!  Thank you!




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