Introduce Yourself

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Wendi45
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Re:Introduce Yourself - Monday, February 17, 2014 9:52 PM
Hi everyone, my name is Wendi.  I'm 45 years old and was just diagnosed with Invasive Ductal Carcinoma.  I have no family history of breast cancer, but have been having mammos faithfully every year since I turned 40.  This was caught during my last Mammo, so my doctors think it was caught extremly early.  I had a MRI needle biopsy that came back negative, but the radiologist recommended a lumpectomy, which came back with the IDC.    What are the chances of this spreading into my lymph nodes since it was caught so early?  If it's not in my lymph nodes, is there a good chance it highly treatable and can be cured?  Forgive my ignorance.  I have an appointment to decide my course of treatment this Friday.   I'm in a tornado of emotions right now.

Tricia Keegan
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Re:Introduce Yourself - Tuesday, February 18, 2014 2:22 AM
Hi Wendy,

Its better of course if it hasn't spread into your lymph nodes as treatment may be easier, however even if it has there's every chance you'll be fine and get through this as many of us have, we can't use the word cured, but there are many long term survivors out there who had chemo and are still doing well, even with a spread to the nodes its still classed as early stage bc. Good luck on Friday and keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Mimdrach3
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Re:Introduce Yourself - Wednesday, February 19, 2014 12:01 PM
Hi-

My name is Miriam and I live outside of Boston. I am 57 years old and was diagnosed with Stage 1 IDC in May of 2012. I am triple positive. I had a lumpectomy (tumor was 0.02cm) and radiation. I started on Arimidex and could not handle the joint issues. Am currently on Tamoxifen and find myself fatigued and many got flashes but better than Arimidex!

Have a great husband and four mostly great kids! I have. 20 month granddaughter who makes everything worthwhile.

I know I am very fortunate that my cancer was found so early on and I mostly remain very positive but I feel like I will never be the same. Not the lumpectomy but other (maybe silly) issues. My memory seems different, I'm more fatigued than ever in my life, depressed (on medication) and I just feel 20 years older!

Just needed to speak to "someone" that might understand. Thanks. Miriam  

Tricia Keegan
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Re:Introduce Yourself - Wednesday, February 19, 2014 2:19 PM
Hi Miriam, 

I also am triple positive and a little concerned you didn't mention having Herceptin??  this is a miracle drug for anyone her2+ and given to everyone (as her2+ can be aggressive) regardless of what stage the cancer is found. I think you should ask your Onc about this or get another opinion, you can learn more at www.her2support.org 

I'm almost nine years out but had to have chemo and rads as well as a year of Herceptin, I agreed to continue the Arimidex up to the ten years which is showing early promise in the trials although I do get joint aches too. I decided to have my ovaries out as a preventative and have had no regrets about that, I think the fatigue you're feeling is normal and it can take each person different lengths of time to recover from treatments, I'm glad you have a strong supportive family too.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

irishlady25
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Re:Introduce Yourself - Wednesday, February 26, 2014 9:13 PM
Hello everyone. My name is Shannon and I'm 32 years old currently living in fort worth Texas.. A few days before Christmas 2013 I was diagnosed with in situ and invasive breast cancer. I had one tumor in my left breast and two in my right. A few days after being diagnosed the father of my children was killed in a horrific car accident so I've been dealing with all of this on my own. I just had my bilateral mastectomy and I'm trying my best to deal with all the feelings I have and everything else that's going on as well. Some days are better than others, but this to shall pass.

scootersmom
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Re:Introduce Yourself - Wednesday, February 26, 2014 10:38 PM
Irishlady--

Oh my!  You have a great deal to contend with.  I am so sorry on so many levels.  What a terrible blow.  

As you have said "this too shall pass". You are right.  It will take awhile but it will get better.  You didn't say if you are having reconstruction or not.  Once your doctor's visits begin to calm down you will find that you can make it through this.

As far as your children's father, I hope that you will be able to find a support group or a counselor that you can talk to.  

Good luck to you.

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Tricia Keegan
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Re:Introduce Yourself - Thursday, February 27, 2014 5:47 AM
I'm so very sorry for all you're having to deal with and agree with Tina in that a counsellor or support group may help you. 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

lashondra
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Re:Introduce Yourself - Friday, April 04, 2014 9:17 PM
Hi my name is LaShondra! I am a 39 year old cancer patient. I have a real odd story. I will make it short by my dates:

9/27/2013 ER/PR+HER2- Invasive Ductal carcinoma (stage 1)
11/1/2013 BRCA1+
02/21/2014 Triple negative Invasive Ductal carcinoma (stage 1)
double mastectomy w/reconstruction

I will start chemo April 10 (TC)

I feel like I'm going to break if I receive anymore bad news. I know I have a long road ahead. I just need to talk to people who are going through or have gone through breast cancer.

Thank you in advance!!

scootersmom
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Re:Introduce Yourself - Saturday, April 05, 2014 12:08 AM
LaShondra, welcome.  I understand the feeling of needing to talk to someone.  The boards are wonderful and the ladies here are extraordinary.

Since our diagnosis are different I can't speak on the Chemo but would suggest checking out the forum on it.  You will not face this alone.  We are here to help you along.  Just know that you can do this and there will be a light at the end of the tunnel.

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Rena
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Re:Introduce Yourself - Saturday, April 05, 2014 7:19 PM
Welcome, LaShondra. I'm so sorry to hear about your new diagnosis. You are clearly taking good care of yourself to have both cancers be found at stage 1. That's good news. I just want you to know that I was diagnosed with triple negative when I was 37, and mine was stage 3. I later found out that I am BRCA2-positive. That was 27 years ago, and I've never had a recurrence. You're very wise to have chemo even though you're at an early stage. Chemo has been shown to be especially effective against triple negative tumors, so you can see the treatment as an insurance policy. I know you have a lot on your plate right now--just take it one treatment at a time, one day at a time. A very helpful website is www.facingourrisk.org. They have a very active message board for people with genetically-linked cancers like ours. I wish you all the best. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

mlutton04
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Re:Introduce Yourself - Thursday, April 10, 2014 7:07 AM
Hello everyone. My name is Molly. I am 33 years old, and am 33 weeks pregnant. I was diagnosed with breast cancer at 30 weeks and had mastectomy 3 days later to my left breast. I'm currently waiting for the results of my oncotype DX testing and am going stir crazy waiting for what it says. Pathology showed 2 sites, a 1.5 cm Invasive Ductal Carcinoma and a DCIS. Grade 3 tumor, nodes were negative. Estrogen receptor positive so it is Stage 1. Tested negative for BRCA. I know every cancer is its own story, but my mother just passed away in December after a 17 year fight with breast cancer....2 separate occurrences in each breast when then metastasized to her spine, then liver. I'm scared! I also am super special since I'm pregnant and trying to figure out what to do for all people involved. :) Thankful for support of other women going through this!! 

mlutton04
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Re:Introduce Yourself - Thursday, April 10, 2014 7:07 AM
Hello everyone. My name is Molly. I am 33 years old, and am 33 weeks pregnant. I was diagnosed with breast cancer at 30 weeks and had mastectomy 3 days later to my left breast. I'm currently waiting for the results of my oncotype DX testing and am going stir crazy waiting for what it says. Pathology showed 2 sites, a 1.5 cm Invasive Ductal Carcinoma and a DCIS. Grade 3 tumor, nodes were negative. Estrogen receptor positive so it is Stage 1. Tested negative for BRCA. I know every cancer is its own story, but my mother just passed away in December after a 17 year fight with breast cancer....2 separate occurrences in each breast when then metastasized to her spine, then liver. I'm scared! I also am super special since I'm pregnant and trying to figure out what to do for all people involved. :) Thankful for support of other women going through this!! 

Tricia Keegan
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Re:Introduce Yourself - Thursday, April 10, 2014 9:30 AM
Hi Molly, I'm so very sorry you lost your Mom to this disease and are now facing a dx of it yourself, particularly at a time which should be one of the happiest in your life, I hope you have lots of support to help you through. What treatment is your Dr suggesting ??  I assume you'll know more once you get your results back and have a clearer picture of what you're dealing with, thankfully treatments and drugs have come a long way since your Mothers dx and there are many long term survivors here doing well years after their own treatment. I hope you'll take some reassurance from that and please keep us posted and ask any questions you need to as we're all happy to offer you support and advice to help you through this.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

mlutton04
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Re:Introduce Yourself - Saturday, April 12, 2014 7:56 AM
Thank you Tricia! I am so very thankful for wonderful friends and family who are here for us and have been so supportive. This waiting is the hardest, we still aren't sure what the treatment will be. I am thinking the oncotype will help but my husband and I both think chemo can't do anything but increase my odds along with hormone therapy. We meet with the oncologist again this week and hopefully can continue the discussion about what we need to do. I am so thankful to have found this forum to ask questions and see what others' experiences have been. 

Tricia Keegan
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Re:Introduce Yourself - Saturday, April 12, 2014 11:38 AM
It was a lifeline for me when I was first dx too Molly and have been here ever since lol, I have made some wonderful friends here though and even got to meet a few.:) Keep us posted on how you get on and hopefully any treatment will be minimal!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

mpt33905
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Re:Introduce Yourself - Sunday, April 13, 2014 5:03 PM
I'm a 68 year old RN. Got diagnosed with breast cancer 27 Nov 2013. Biopsy showed triple negative and HER2 also negative.
Had lumpectomy on 6 Jan 2014 and stared chemo on 10 Jan. The surgical pathology decided that the tumor was Stage 1b with no nodes positive. I had 4 rounds of A/C every 2 wks, then started weekly Taxol x 12. So, tomorrow will be #6 of Taxol. 
I had the A/C nausea for the whole two months! I did take the Zofran 8 mg very frequently and have been able to maintain my weight. The pre chemo dose of Decadron 10mg was making me very emotional- anger, then tears, then depression and major sleep issues.. so I asked that it be cut in half. Doing MUCH better on 5 mg pre chemo. I took generic Claritin for the 2 months of A/C to help with the pain caused by the Neulasta. It really works! Taking generic motrin for the aching muscles and joints. The mouth sores get better, then worse… cold things help. I keep popsicles in my freezer. All foods are room temp, nothing acidic.. 

Tricia Keegan
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Re:Introduce Yourself - Monday, April 14, 2014 4:35 PM
Mpt, glad to know you're getting through this okay and hope that continues and glad you joined us here:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Sourdoughnative
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Re:Introduce Yourself - Saturday, April 19, 2014 7:53 AM
Hi all, new to this forum. I am hoping to get and possibly contribute as much as I can for myself and others. I've been on this journey for 20 years this year. I plan on at least 20 more, God willing. 
Hugs to all,
Kari
I am not defined by cancer, but I am encouraged by it to live each moment, each, day with joy, love and optimism.

1994-DCIS 2A, adjuvant Chemo, node dissection, lumpectomy, radiation. Age 34
1996 birth of third child
1997 birth of fourth child
2001- recurrent BC, opted for Bilateral Mastectomy, Chemo
Tamoxifen-3 yrs, Femara-2 years
2014-January suffered pathological fracture of Humerus, surgery installing plates, screws and cement. 10 rads, Herceptin every 3 weeks, Letrozale dai

Tricia Keegan
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Re:Introduce Yourself - Saturday, April 19, 2014 2:45 PM
Hi Kari, wow 20 years, huge congrats to you!!! I also had Herceptin and take a sister drug of Letrozole and will continue up to ten years out next year. You may like to also check out www.her2support.org and please keep us posted!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

scootersmom
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Re:Introduce Yourself - Saturday, April 19, 2014 8:45 PM
Hi Kari--

Congrats on the 20 years and I too hope that there are many more to come.

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




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