Introduce Yourself

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Nuzzys Nana
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Re:Introduce Yourself - Wednesday, March 04, 2015 11:27 PM
Dear Twilight: "Could be" is not an opinion I would be comfortable with. As Tricia suggests, see a breast surgeon for a more definitive answer. Good luck and please keep us posted.
Lumpectomy 4/14/05 at age 69
Stage 1, 2cm, Node Negative
Grade 3, Triple Negative
AC/Taxol, Radiation,
BRCA2 positive (It's always something!)
No Family History

tstwilight
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Re:Introduce Yourself - Wednesday, March 04, 2015 11:43 PM
Thank you Tricia. It helps to know I'm not being obsessive for an unnecessary reason. I'm going to start the process ASAP.  I'm scared, but I'm praying for the best outcome imaginable.  Prayers for everyone going through cancer and for their families/friends.  So many are touched by it now.  I'm thankful that this site is provided to women in need of answers, encouragement, support, and to simply voice concern.  You ARE making a difference.  Thank you for all that you do to help others!  Take care Tricia and again, thank you for listening.  

Tricia Keegan
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Re:Introduce Yourself - Thursday, March 05, 2015 3:24 AM
You're welcome and please keep us posted on what happens and I hope it'll be good news.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Peggy70
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Re:Introduce Yourself - Thursday, March 12, 2015 6:27 PM
Hi i just had lumpectomy surgery yesterday for dcis. Also snb.   It has been pretty painful for me today.  I know everyone is different but has anyone experienced this?  Seems like most did not have any pain.

Tricia Keegan
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Re:Introduce Yourself - Friday, March 13, 2015 10:25 AM
Hi Peggy,

I think pain is normal after this as you may have some nerves cut or damaged or just bruised and I know I had pain for a week or so. If they gave you pain meds do take them regularly rather than just when you need them, also be sure to do any exercises they gave you to, it will get easier!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Katalbny
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Re:Introduce Yourself - Sunday, March 15, 2015 9:42 AM
Hi.
I'm new to this site and breast cancer.  My name is Kathleen, I found out on February 13, 2015 that I have stage 0 DCIS when I was recovering from brain aneurysm surgery.  Total shock and very overwhelming.  I live alone with my dog and have elderly parents.  I'm pretty much alone during this frightful time of my life.  I start radiation on march 17 and I'm a wreck.  No matter what stage cancer is, it is scary.  My fear is it coming back to another part of my body and how did I get it in the first place.  Would love to chat with anyone with BC during this difficult time. 

scootersmom
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Re:Introduce Yourself - Sunday, March 15, 2015 1:15 PM
Hi Kathleen.  I am sorry about your diagnosis especially with everything else that was going on.  Believe it or not, you are fortunate because it was caught so early.  The fear of cancer returning is one that we all face.  The only thing we can really do is fight like hell and be more diligent in followups as well as paying more attention to our bodies.  Treatments have come along way and more information is available now then when our grandmothers and great grandmothers were diagnosed.  Did you have a lumpectomy?  With radiation and drugs it can help keep the disease in check.

Don't feel that you are alone.  While we may not be there in person, we are here for you in spirit.  There are many women on this site who have or are under going what you are.  We can comfort the best way that we can whether it is advice, an ear to listen, a shoulder to cry on.  We are here.

Good luck with the radiation.  

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




grace cee
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Re:Introduce Yourself - Sunday, March 22, 2015 12:04 PM
Hello everyone! My name is Grace and I'm on this forum because I would really need some advice about cancer.  Last December of 2014, my mom was diagnosed with a non-invasive ductal carcinoma (stage 0) type of cancer.  It was seen after a mammogram and a surgical biopsy procedure. Her doctors said that all the malignant cells were already removed during the surgery and her recent blood tests and a follow-up mammogram showed clear results with no more signs of cancer.  Me and my siblings are happy with the result but we are undecided whether we would let her undergo radiation therapy as a follow-up treatment to reduce the risk of the cancer coming back.  We were told that there is about 11% chance of it coming back so we are given the options to either not do it or go for it.  The radiation treatment should lower the risk of a recurrence down to around 2-3%.  My mom is 68 years old.  She has a high blood pressure and is diabetic, but she is regularly checked and consistent in taking her meds so overall she is in good health.  Aside from muscle aches and pains every now and then, she can function very well and can take care of herself.  Thinking about the side effects of radiation, I'm not really sure if she's better off not doing it?  The doctor said that since she doesn't have a very large breast then the exposure won't be that much.  If the cancer comes back, there's a chance that it will be invasive or the same non-invasive that she had.  My siblings are leaning towards getting the radiation treatment for my mom but I am still 50/50 about it.  So I am here asking for advice from people who have done it or have experience with it as a family member of someone who has been diagnosed (just like me).  The doctor said that there's only 1% risk to the lungs and almost 0% to her heart considering that her cancer was on the right side.  Is that true?  How about the side effects to the healthy tissues around, is it something that she will be able to tolerate moving forward after the treatment?  Sorry this is a long intro, but I would really appreciate every advice I can get since we are trying to decide if we're doing the treatment or not.  Thank you so much for reading!

Rena
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Re:Introduce Yourself - Sunday, March 22, 2015 12:38 PM
Hi Grace. This is such an individual decision because no two people have exactly the same situation, and no two people will react to radiation in the same way. I had very little trouble with it. I had a moderate "sunburn" followed by peeling skin, but it healed well. I was 37 years old at the time, so the experience of a 68-year-old might be different. Her doctor is aware of her other medical conditions and how they might affect radiation treatments. 

I'm giving you a link to a very reputable and useful site: http://www.breastcancer.org/treatment/radiation This has a lot of good information and good guidelines, but your mother will have to decide based on her particular case whether or not radiation will have enough benefit for her. Ultimately, her doctors are the best source of information. I'm a believer in peace of mind. If having radiation will increase her peace of mind, then it may well be worth it. I wish you all the best with this decision.

Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:Introduce Yourself - Sunday, March 22, 2015 12:47 PM
Hi Grace,

I found radiation to be a breeze and only tiring due to the fact I had to travel there each day, but have had no side effects from it all. I'd urge your Mom to have it, the rads can zap any stray cancer cells that may be lurking and it only takes one tiny cell to root somewhere and grow into a tumour. I'm very pleased my own cancer was treated aggressively which is why I'm still here ten years later and doing well. If you check the radiation forum on the site you'll get lots of tips and advice there should your Mom decide to do it.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

scootersmom
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Re:Introduce Yourself - Sunday, March 22, 2015 11:14 PM
Hi Grace:

It is possible for cells to still remain that are not detected.  Radiation is usually recommended as there is no way to predict that they removed 100%. If the cells are not "clumped" it is hard to see on a mammogram.  Better safe now than playing the what if games.  Check out the forums that Rena and Tricia recommended.  As for me, I cannot comment of the radiation treatments as I more extensive surgery.  I too was stage 0 and had I not had additional surgery I would have need radiation as well.

Everyone is different and must decide what is best for them.  Good luck with the decision.


Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




marcyme
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Re:Introduce Yourself - Thursday, March 26, 2015 11:08 PM

<message edited by marcyme on Friday, March 27, 2015 11:51 PM>

Kelleywilk
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Re:Introduce Yourself - Thursday, April 02, 2015 11:30 PM
Just heard from a friend with pancreatic cancer. Found a web site called Pyrexar.com I think anyone with any type of cancer needs to know about this treatment. I'm making it my new 'job' to let everyone know about this company and what their treatment offers.

CabinMomma
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Re:Introduce Yourself - Friday, April 03, 2015 12:58 PM
Hi,
I was diagnosed a week and half ago with stage 3a invasive ductal carcinoma, triple positive.  I have dense breasts and my mammogram from last September showed no change to the last one I had 4 years ago.  Indeed, after I noticed a change in my breast and went to my doctor, the diagnostic mammogram also didn't show anything, but the ultrasound did and a biopsy later told me that had breast cancer in my right breast and one lymph node.  I'm going to MD Anderson on Monday for a second opinion, but I doubt they are going to tell me anything radically different than the oncologists here, so I had my port installed yesterday and expect to start chemo next week.  I'm nervous about what to expect and how I'll be with it all.  I have a 9yo daughter and a 6yo son.  I worry for both of them.

I look forward to meeting you all.

Tricia Keegan
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Re:Introduce Yourself - Friday, April 03, 2015 2:20 PM
Hi CabinMomma and welcome, I'm sorry you had to join us though. I also was triple positive ten years ago this year with three nodes positive, after chemo I had a year of a targeted therapy called Herceptin which has really made a difference for our type of cancer. I think the protocol is still similar now but not sure, you can find out more about her2+  here www.her2support.org  and www.herceptin.com    but do stick to reputable sites for info as there's a lot of outdated info out there thats pre herceptin and can be quite scary.  I think children are more resilient than we give them credit for and although these treatments are not fun, you should get through it fine and put this all behind you. If you check out our chemo forum you can also see lots of advice to help you through, good luck and keep us posted!Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

seshaw41
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Re:Introduce Yourself - Sunday, April 12, 2015 6:10 PM
Hi I am new here. I was just diagnosed with IDC on April 3rd. Mastectomy needed on the left breast ...just waiting for the results from MRI to make sure right breast is in the clear. I am thankful that no chemo and radiation is nesessary for me. I have not met with the plastic surgeon as of yet but I am leaning to DIEP reconstruction immediately after mastectomy. If that is what the team and I decide together.  I am so very apprehensive and troubled about having the help I need when I get home from the hospital.  I have always been so independent and calling on others to help is hard for me but I am trying. So there it is .... My story...today was a hard day.

Tricia Keegan
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Re:Introduce Yourself - Sunday, April 12, 2015 6:34 PM
Kathleen we're here for you and please feel free to send me a private message if you want to chat or have questions:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

hbgmysite
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Re:Introduce Yourself - Sunday, April 19, 2015 10:43 PM
Thank you fr giving me this opportunity to introduce myself . Myself Nani I was born and raised in Nellore. I have some interest participating in co-curricular activities from the childhood. But to be honest I didn't get any appreciative from them. Recently I bagged a memento in my fest which is a non-technical stuff. My strengths are to be mingled with the people around me and I motivate myself when I faced hard situations. My weaknesses are blindly believing in people actually it costs me a lot in my bachelors now. Finally I prefer to be alone when I got free time.
<message edited by hbgmysite on Sunday, April 19, 2015 10:45 PM>

Kscountry
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Re:Introduce Yourself - Thursday, April 30, 2015 8:34 AM
My name is Elizabeth, I go by Beth most often. I was diagnosed with stage 4 breast cancer HER2+ with mets to the liver & lungs in Dec of 2013. After my breast biopsy my breast broke out in a huge black lesion. I did 6 months of chemo (Herceptin Perjetta taxotere) the lesion cleared completely and tumors shrunk. I was advised against a mastectomy, something I will never forgive myself for not getting. A few months of Perjetta & Herceptin then that stopped working, lesion came back. Tried TDM1. In mid December while on TDM1 I fell into seizures which we found were caused by a tumor on my brain covering. Underwent brain surgery to remove it the day after Christmas of 2014. Recent scan s show all is well except my breast lesion & a tumor under my arm which is growing. I will begin radiation treatments to my breast & under arm tumor- 5 weeks & will start new chemo treatment, a pill I will take at home. I saw a breast specialist/surgeon yesterday who was the most rude person I ever met, she basically told me of the horrible death I have to live thru. If there is anyone out there I'd love to meet you thru this forum. Need love, hope, support & someone out there who understands what this hell is like.

Tricia Keegan
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Re:Introduce Yourself - Thursday, April 30, 2015 1:08 PM
Oh Beth I'm so sorry and you deserve far better than than that Dr so please try to find another as its important to have a Dr that will help you fight and live, not one who'll help you to die! I think initially they may have urged you against the mast in case of seeding or spreading the cancer, sadly that has happened anyway.  I'm glad you had such a good response to the meds though and her2+ is an area that is getting huge funding right now and new drugs and trials coming on stream all the time so you're not out of options by a long shot.  There are other stage iv ladies who can relate to you and advise and support at this site www.her2support.org  and I hope you'll keep us posted.Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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