Introduce Yourself

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jojomomcat
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Re:Introduce Yourself - Tuesday, September 29, 2015 8:26 PM
Hi Rena, a blast from the past. You were wonderful to me when I first sought support here years ago. So glad to still see familiar names in the advanced cancer threads.
I tried to steer a couple people here and couldn't find recent activity in the last couple years, so I thought it closed down. Stumbled here by accident, hope I can find my way back as I have a few cancer posse members who would love to have this available. 

You can get anywhere in life you choose, as long as you wear red high top shoes.

return trip, triple neg (by med terms only - triple positive in attitude), 17 nodes and gaining, clinical trial pro, and too darn mean to let it win (hence the nickname Mean Jolene)!

Tricia Keegan
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Re:Introduce Yourself - Wednesday, September 30, 2015 12:48 PM
Jolene,

If you have them send me a friend request or search for Komen breast cancer group on Facebook I can add them straight away to our private group there, only members see the posts as it's a private group.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

eowynshieldmaiden
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Re:Introduce Yourself - Wednesday, September 30, 2015 10:57 PM
Hi again! It's been a busy week, but with it has come some positive progress: my fourth and final bMRI attempt is booked for Tues 10/6, and I'm seeing my surgonc, radonc, and plasticsurg 10/14-10/15. I feel like this is progress.

I might should move this question to another category, but I'm curious what more experienced folks than me think of the NYT articles saying DCIS is waaaaay overtreated. Personally I'm not hugely convinced they're that reliable given their history with the Albany clusters disaster in Hodgkin's - their so-called news reporting, which was wild speculation, led to at least one - maybe more - suicide of a patient. :P My primary dr isn't impressed and is absolutely a believer that my DCIS needs to be removed by whatever means necessary, and the place I'm going is highly reputable and thinks so too. I'm quite inclined to agree. I'm curious what others have to say.

-Eowyn 

eowynshieldmaiden
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Re:Introduce Yourself - Wednesday, September 30, 2015 11:03 PM
Hey, Tricia - 

Good to know! I did talk to my breast NP who got this all rolling, and she clarified. They did NOT check the Her-2 status b/c it was DCIS. Most DCIS is positive for Her-2, so I asked her why it isn't as common in invasive DC, and she had to look that up, but we learned that it's just that most DCIS which progresses to IDC doesn't overexpress Her-2 as much. It's weird but interesting. So unless they find evidence of invasion, they probably won't check mine for Her-2 since Herceptin wouldn't be used for DCIS. I'm all right with that.

Thanks,
Eowyn :)

PS - Weekend "vacation" was awesome!


Tricia Keegan
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Re:Introduce Yourself - Thursday, October 01, 2015 3:01 AM
Thanks for clarifying Eowyn, glad you enjoyed your weekend break too and things are moving along now. I think I'd prefer to be over treated when it comes to cancer rather than not lol:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

cbassett57
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Re:Introduce Yourself - Saturday, October 10, 2015 6:30 AM
Hello! My name is Cindy and I am very new to this. I was diagnosed with triple neg breast cancer metaplastic which is spread to one lymphnode I am not familiar with the drs terms . I have not started chemo yet Im due to start on 10/21/15 needless to say I am very scared because generally I was very healthy, But they say its agressive so chemo every two wks for 4 cycles, then every week for 12 weeks then lumpectomy then more chemo/radiation I was happy to find this sight their running more tests before chemo to make sure it didnt spread anywhere else, at this point they say i am stage 3 which is scarey. Thanks for listening.

Tricia Keegan
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Re:Introduce Yourself - Sunday, October 11, 2015 7:22 AM
Hi Cindy and welcome,

I know lots of members here that were stage 3 and had many nodes affected and they're still doing well years later so hope that helps to reassure you. Triple neg ladies get most benefit from the chemo too, I know its scary but just take one day at a time and check out the chemo forum for lots of tips and advice to help you through.  I found it was no picnic but do-able and theres usually a med to help counteract any side effects you may have. Good luck and keep us posted:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:Introduce Yourself - Sunday, October 11, 2015 5:01 PM
Hi Cindy. I was also triple negative, stage 3, with 22 positive nodes. That was 29 years ago. Treatments were different back then, so my chemo regimen was different than what you'll have. But as Tricia said, triple negative responds well to chemo, so even though it's no fun, it's well worth it. I know this is a hard time--waiting is really hard. Soon, you'll be able to start crossing those treatments off your calendar. I think if I were to give you advice, I would say make sure you don't feel that you can't ask questions or ask for what you want and need. Your oncologist should know about side effects that are really troubling you. These days, they have so many medications for dealing with side effects. I wish you well. Please keep us posted.
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Rena
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Re:Introduce Yourself - Sunday, October 11, 2015 5:05 PM
Hi Jojo! I'm sorry that it took me so long to see your message. It's great to hear from you! I love the photo of you and your honey! Ever since Facebook became so popular, these boards have been much more quiet. Tricia is always here, though, as are a few others--Tina, Nuzzy's Nana and a few others. I come and go, but I will try to come more often. I feel bad that women might come here and not find support. Take care!
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

placidway
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Re:Introduce Yourself - Tuesday, October 20, 2015 12:12 AM
Hi I am Joel of PlacidWay. PlacidWay, a leader in the medical tourism industry, offers extensive information related to medical travel, international medical providers, foreign treatment packages, as well as global destinations for health travelers.

lisab56
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Re:Introduce Yourself - Thursday, November 05, 2015 10:00 PM
I am a week and a half from my biopsy. I found a lump in my left breast two weeks ago. The nurse practitioner and doctor both said the ultrasound results were suspicious with the edges of the lump being irregular. Is suspicious just the word they use to convince you to continue with a biopsy? I don't know whether to be worried or not. I have adult daughters who obviously need to be told what's going on but I just can't figure out when, what and how to tell them.

Tricia Keegan
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Re:Introduce Yourself - Friday, November 06, 2015 7:32 AM
Hi Lisa,

When a lump is found its always best to have a biopsy as it's the only way to know for sure if its benign or malignant so you've done the right thing for sure.  Do remember though that over 80% of lumps are usually benign and I hope yours will be too. I think I wouldn't say anything to your daughters until you have the results as there's no point in worry them if its harmless, good luck and I hope you'll keep us posted.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

samgirl60
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Re:Introduce Yourself - Thursday, November 26, 2015 9:52 AM
Hi, 
My name is Charlene and I'm 55 years old.  I was diagnosed with invasive lobular carcinoma on 10/29.  I had a lumpectomy on 11/17.  My cancer was found on a 3D mammogram.  I had that kind of mammogram because my mom is a 12 year survivor.  The cancer was very small and my surgeon is very optimistic that it did not spread to the lymph nodes.  I can't help but worry while waiting for the results of the node biopsy.  My next step will most likely be radiation.  I'm not looking forward to it...my skin is VERY sensitive!  I am looking forward to putting all of this behind me!  Very THANKFUL this year!

Tricia Keegan
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Re:Introduce Yourself - Thursday, November 26, 2015 12:22 PM
Hi,

Its normal to worry and the waiting is the hard part I know, maybe check out our radiation forum for lots of tips to help you through, good luck and hope it all goes well and well done on finding it so early.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Shirlmitchell
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Re:Introduce Yourself - Saturday, January 02, 2016 12:21 PM
Hi all! My name is Shirl Michell I am from PA. My Mom was just diagnosed with breast cancer on December 15. She goes to the doctors for a consolation on Jan 5. We are really hoping that at this time she will get all her questions answered. This has been the hardest thing for me to learn. I am having a really hard time dealing with this I find myself just breaking down and crying, but I try so hard to stay strong for my Mom. It is really hard being so very far away from her but I have already told her when the time came that she really needed me that I would move done with her. For me it's really hard not having someone to talk to sometimes I really just need someone to listen to me. I look forward to getting to know people that is going through the same thing as my Mom and the rest of us .
Shirl Ann Mitchell

Tricia Keegan
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Re:Introduce Yourself - Saturday, January 02, 2016 1:26 PM
Hi Shirl,

I'm so sorry for your Mom's diagnosis and there's no doubt cancer affects everyone in the family and not just the patient!  Please remember that most people nowadays go on to lead very long lives after a cancer diagnosis, treatments have come a long way and there are many long term survivors here to prove that.  If you go to www.komen.org  you'll get lots of advice and info to help or simply click on the link at the top of the page to take you straight there.  It may be helpful for you to join a support group locally or get some counselling if you feel you need it but please feel free to send me a private message or post here if we can help with any questions you may have and good luck to your Mom!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

KellyL
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Re:Introduce Yourself - Wednesday, January 13, 2016 12:51 PM
Hello, First of all, my apologies for such a long introduction. ;) My tumor was discovered during my routine (3D) mammogram first part of September, age 45. Ultrasound guided biopsy was extremely difficult (8-10 passes with the core needle before 'sample was achieved'). I was told at the time it was 'suspicious for malignancy'. When the results came back as fibroid, both the radiologist and myself were surprised, but I was relieved. I followed up nearly 4 months later and thankfully a different radiologist on duty discovered my original biopsy was performed 2-3CM away from my actual tumor on both planes (based on my tumor marker/pin imaging performed immediately following the U/S biopsy). Incidentally, that first physician no longer works for that radiology group. A stereotactic biopsy was then performed by the other radiologist, she likely saved my life. I learned Christmas eve I have Invasive Ductal, Moderately differentiated, high proliferative rate (low high=21%), ER/PR+, HER2Neu - (negative) in addition to DCIS, which is where I likely was (DCIS) just 4 months before. Fortunately, my mass is small (approx. just under 1 CM) and hasn't grown by very much in the 4 months. I'm VERY optimistic. Trying to get in to see a surgeon over the holidays was pretty impossible, but after seeing a couple opinions I have chosen a wonderful surgical as well as medical oncologist, case manager and nurse navigator. I have an amazing team of medical professionals in addition to an army of supporters; friends, family, colleagues, many of whom are survivors and the greatest husband I could wish for. I have done my research (I am an RN and worked 10 of my 21 years in my profession in oncology) and have decided on bilateral mastectomies (removing nipples, maximum skin and all). I am a potential candidate for lumpectomy/RadTx, but have several young survivor friends who went the lumpectomy/Rad Tx route and later had recurrence and ended up having mastectomy and other treatment after all. I also have a questionable family history with one paternal cousin age 45 breast cancer and ancestry which places me at higher risk (BRCA pending). Clinically, I am a stage 1 (hoping pathology staging matches), which is an excellent prognosis. However, I just found a lump in my contralateral (other) breast, which will also be worked up. It is probably nothing, but another thing to deal with. I am optimistic I will be cured! My message: 1. 3D mammograms (2D does not show my mass and I am not alone) 2. Insist on a stereotactic biopsy if you have large and/or dense breast tissue and small tumor. Request all your records even if the physician tells you it is benign and look to ensure your tumor marker was placed in the bed of the tumor. If you are uncertain or it is off by even 1CM, get a 2nd opinion and get re-biopsied via open or stereotactic. 3. Most importantly, there is always hope, support and we are all courageous. Positive focused patients have better outcomes, more manageable side effects and do what you can to surround yourself with positive energy/people for those days you need a bit of picking up. Stay calm (as they keep telling us) as much as possible Thanks for reading my (albeit, very long) story! In Sisterhood, Kelly

Tricia Keegan
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Re:Introduce Yourself - Wednesday, January 13, 2016 3:42 PM
Hi Kelly and welcome,

I'm so glad you've found this so early, I was one of those who so far lumpectomy and rads has worked for, I'm ten years out now and so far so good. I had a bad prognosis, highly triple positive and three of nine nodes positive and IDC of almost 2cm, I have no regrets and was treated aggressively and so far so good. I just wanted to wish you well and hope you'll keep us posted.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Polly McMahon
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Re:Introduce Yourself - Friday, January 22, 2016 11:09 PM
Tricia!! So glad you are on the forums and are leading us!! We were active together here 10 years ago and I have always treasured your friendship. 
Just today my primary care doc called me with the news of a preliminary path report that indicated a new malignancy on the r breast - my previous one was on my l. breast and stage 0 (!) and smaller than a grain of salt. Lumpectomy and rads followed with easy recovery all around. Now...10 years later the journey begins again...so once again I am looking for my Komen friends for support. Again, so glad you are here.

Tricia Keegan
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Re:Introduce Yourself - Saturday, January 23, 2016 9:11 AM
Oh Polly I remember you well and its lovely to hear from you again but I'm so sorry the news isn't better for you, you came through it once and will do again as I know what a strong lady you are. The site here is very quiet these days as you can see, most of us are still in touch on Facebook as friends and I also recently helped set up a Komen private group there so only the members can see what is posted. If you are on Facebook please look for me there and I can put you in touch with others you'll know, or you can also search for the Komen breastcancer support group and simply ask to be added and I'll see it there:)
There are many there you'll remember, sadly one or two have recurred and are fighting this again too, a couple have sadly left us but I'm glad to say we're still offering support to those facing this. I hope you'll keep me posted, if you're not on Facebook and don't want to join then pm me here and I'll pass on my e mail address. ((((((hugs)))))dancingcat
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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