Introduce Yourself

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c_kusky
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Re:Introduce Yourself - Friday, January 08, 2010 10:18 AM
Hi mmworley1,

My name is Chelsea and I was diagnosed at 26.  The first in my family as well.  I know it can seem so overwhelming right now when you are at the beginning but it is so worth fighting in the end.  I just finished my chemo in October and went through my bi-lateral mastectomy in December.  I too recently joined in the whole online posting thing and I can tell you that so far everyone on here has been so sweet.  This place seems like it has gathered the best group of women together.  Please feel free to Personal Message me if you ever want to talk.

Hugs and prayers,
Chelsea
Chelsea
Age 27,
Wife (3.5 years) to the most amazing husband in the world 
Diagnosed with Invasive Ductal Carcinoma 3/12/09, Triple Neg, Grade 3, Stage 1, Left breast, 8 rounds chemo (4 A/C mix, 4 Taxotere) Last chemo was Oct 14th!! :) Both BRAC neg & P53 neg with no family history. Had bi-lat mastectomy 12/2/09: impants 2/10/10 

mmworley1
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Re:Introduce Yourself - Friday, January 08, 2010 10:45 AM
Hey Chelsea,

I feel that there is still so much to learn and I know that will take time. This is something I NEVER thought about evening being a possibility for me. Even two months later I still wake up most days asking myself if it is real. I'm still in shock I think. I never imagined it would/could happen to me, not at 21. I don't know what to think most days.

Tricia Keegan
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Re:Introduce Yourself - Friday, January 08, 2010 5:49 PM
Hi Megan and welcome,

I'm sorry for your diagnosis at such a young age although whatever age you face this is devastaing.
You may not know people here now but will very soon, we've had a young woman your age before but has gone on and got married and is still doing well:)
There are many here happy to help you in whatever way we can and you're amongst friends here who understand what you face.
What treatments do you have ahead??   I wish you the best with them and hope you gain lots of support and advice from komen:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

MS_ALEXIS
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Re:Introduce Yourself - Sunday, January 10, 2010 2:13 AM
I'm here because of FaceBook and this is why:

 Laurie A Wagner Hey ya'll, your red, black,pink, blue, white, butterflied, cheetah printed, and clear bra colors made the channel 4 SLC news tonight. Facebook doesn't know who started it going but the Susan B Kolman foundation says it was a great way to raise awareness for breast cancer. Way to go! Post this on your walls and spread the word again!!!
 Alexis Miskin well it was a joke from my friend and she asked me to post it on my page-- here's the original post>>
Between You and Linda Myers Mitchell
Linda Myers MitchellL: January 8 at 4:24pm

We are playing a game...... silly, but fun! Write the color of your bra as your status, just the color, nothing else!! Copy this and pass it on to all girls/Females ...... NO MEN!! This will be fun to see how it spreads, and we are leaving the men wondering why all females just have a color as their status!! Let's have fun!! supporting breast cancer xx ...

Alexis Miskin: January 8 at 11:05pm
NONE 

 
 Alexis Miskin PS Note: I/We hope we didnt offend any 1 with this, but I see
from your post "Susan B Kolman foundation says it was a great way to raise awareness for breast cancer. Way to go! Post this on your walls and spread the word again!!!" glad this ended in positive way..


MS_ALEXIS

I have not lost a breast to cancer, but to a very bad butcher job Breast Reduction.
<message edited by MS_ALEXIS on Sunday, January 10, 2010 6:15 AM>

Tricia Keegan
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Re:Introduce Yourself - Sunday, January 10, 2010 12:49 PM
Hi,

Many of us who post here are also on FB as you may know and joined in the fun for breast awareness this past week:)

I know a few men there who are now posting the colour of their boxer's or whatever to raise awareness for testicular cancer so it seems to have had a great response and I'm sure no one was offended.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

mmworley1
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Re:Introduce Yourself - Sunday, January 10, 2010 1:38 PM
I am recovering from a single left side mastectomy right now. Next is 7 or 8 rounds of a/c chemotherapy. I am scared. The wounds make me feel ugly and horrible. It's almost like my world is spinning and won't stop. I came here looking for support during this impossible time in life from others who had been through similar experiences and I can already tell that I have found it.

Tricia Keegan
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Re:Introduce Yourself - Sunday, January 10, 2010 7:09 PM
Hi again,

Did you take a look on the surgery/recon forum and also the chemo forum??  There are lots of ladies there going through what you are and also lots of tips and advice on chemo.

I had a/c too, it's no picnic but is do able really and not as bad as you fear.  Please check out the chemo forum and join the other girls on the winter chemo thread, it really will help and they welcome all new members:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

nmb
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Re:Introduce Yourself - Sunday, January 10, 2010 7:24 PM
MMWorley, please come on the chemo forum - post a new thread or join us Winter Ladies.  We are all going through it (and sometimes vent... which is good but do get over it!)
I've felt the same as you.  Are you going to do reconstruction?  Many of us do so the reconstruct forum is great too.

Hang in there - it WILL get better.  Heck, I'm going to the surgery again -- not fun but it can save our life.

We are here for you.
Nancy
DX 7/15/09, IDC at age 47
Tumor 3.5 x 2.5 x 3 cm
ER/PR +, HER-2 neg, Stage II, T2, N1 (3 of 9 positive)
Right Modified Radical Mastectomy w/expander 8/27/09 
BRCA1/2 Negative w/strong family history
4 Dose Dense A/C DONE 11/10/09!!! 
4 DD Taxol DONE 1/12/10!!!
28 Rads DONE 3/18/10!!! 
Ooph Feb, 2011
Prophylactic left mastectomy & reconstruct hoping 2011
Tamoxifin (a few months) and AI (5 yrs)

Danere
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Re:Introduce Yourself - Friday, January 29, 2010 10:25 PM
My name is Danere. I am 27yrs old and 2 days ago I got diagnosed with BC. I am waiting on the Dr. office to call me as to when my MRI is scheduled. I don't know what the plan is and I wish I had so much more information. The tumor is approx 5cm and the Dr. said that we may start with radiation to try and shrink it then do the surgery but that isn't a for sure thing. I am very worried because I can't seem to cry. I know I want to but I haven't. What is wrong with me? All I worry about is how this is going to affect this semester of college. School is so important to me and it's all I have besides family and a few real friends of course! I am just so lost and confused and scared that I may have to loose my breast at age 27. My thoughts are all over the place and I hope they don't sound dumb! Anyways, thanks for listening.    Danere

medic2846
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Re:Introduce Yourself - Saturday, January 30, 2010 7:29 PM
Hi Everyone...
My name is Ellen and I have been diagnosed with Invasive Lobular Carcinoma and Lobular Carcinoma in situ.
I am 52 years old and to tell you the truth, I am scared as hell. Everyone keeps telling me how strong I am and what a fighter I have always been, but now, truthfully, I just want to melt.
For the last 29 years I have worked in the medical field as a nurse and for the last 6 years as a paramedic. Maybe that is what scares me so much, the knowledge but yet I feel like I am clueless.
Surgery is Monday (the day after tomorrow).. bilateral mastectomy with reconstruction. My surgeons are wonderful, skilled, professional, kind, with great reputations. (did I also mention compassionate) The hospital is one that I have worked at for years, so the care will be top notch.
Its still the unknown that is so scary. What will they find when the sentinal node biopsy is done first? Just overwelmed is how I feel right now.
The Wellness community has been wonderful and so helpful.
And just sitting here writing all these feelings and thoughts out has also helped.
Thank you for letting me vent.

Rena
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Re:Introduce Yourself - Saturday, January 30, 2010 7:43 PM
Welcome, Danere and Ellen. You two show that this disease doesn't discriminate according to age. You'll meet women here both young and old(er), with different types of BC and at different stages. I wish you both the very best and hope that your node biopsy reports come back negative. There are many women who do have positive nodes, of course, and we go on to do well anyway. I was diagnosed with 22 positive nodes 23 years ago, and I'm alive, well and going strong. Please feel free to vent or ask questions any time at all. There are separate boards for questions about surgery, treatments, etc., as well as the Sound Off board where you can raise any issue or question or just ask for support. Take care. Rena
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

nmb
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Re:Introduce Yourself - Sunday, January 31, 2010 8:29 PM
Hi Danere, So sorry to hear and such a young age... hard.  I'd probably feel like you with the college part.  But if you need to take a break it will be temporary.  This does take over your life but it's worth it at the end.  NOTHING sounds dumb, this is a safe place to come and say whatever is on your mind.  Keep us posted; this is wonderful group off ladies with a wide span of real life experience.

Hi Ellen, Bet I am too late for you to read this before surgery but my prayers will be with you tomorrow (Monday)  Hope your nodes are clear and you have a comfortable recovery.   Check out the Surgery/Reconstruct thread and post any questions you have (or the Sound off thread)  Biggest thing... take it EASY after surgery (but I bet you already know that from your med experience)
Nancy
DX 7/15/09, IDC at age 47
Tumor 3.5 x 2.5 x 3 cm
ER/PR +, HER-2 neg, Stage II, T2, N1 (3 of 9 positive)
Right Modified Radical Mastectomy w/expander 8/27/09 
BRCA1/2 Negative w/strong family history
4 Dose Dense A/C DONE 11/10/09!!! 
4 DD Taxol DONE 1/12/10!!!
28 Rads DONE 3/18/10!!! 
Ooph Feb, 2011
Prophylactic left mastectomy & reconstruct hoping 2011
Tamoxifin (a few months) and AI (5 yrs)

paola
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Re:Introduce Yourself - Thursday, February 04, 2010 3:23 AM
Hi DJW!

It's a few days I'm trying to present myself without success... I'll tray again hoping a better luck!
 
 
Hi!(and Ciao!)
My name is Paola, fityfive, and I'm wrinting from Rome
(Italy); I apologize until now for all my probable (sure!)
errors and english misspelling ... Sob!
 
I had a cancer diagnosis on january 2009; in the same month
a had surgery (quadrantectomy); negative nodes.
From March to July 2009 Chemo (EC protocol) and Radio.
 
Now I've Herceptin (weekly) and Arimidex.
 
Nevertheless, I'm very fine now!
 
Is it strange?
No. I think not.
 
I'm having my life, my job, my family (also a daugher 29
years), my boyfriend (!), my friends, my study and all my
interest and curiosity about the world... so I'm happy!
 
Now, the last week I was contacted for an experimental study
about a new molecole; its name: Neratinib. So I'm looking
for information about it. I know it's for Her2 positive
cancer like Herceptin and I sow same experimental procedure
with this new drug. But not much.
 
Do you know better this experimental trials?
 
I thank you very much in advance,
 
a large smile to all you!
 
Paola


IBC January 2009
HER2 positive
quadrantectomy
Chemo & Radiation March-July 2009
Now Herceptin (one year) and
Arimidex (5 years)



Ann B.
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Re:Introduce Yourself - Thursday, February 04, 2010 11:57 AM
Hi Paola--I don't have an answer to your question but I did want to welcome you to the Komen message boards.  It's unfortunate that we have to meet in this way, but it is wonderful that the internet gives us an opportunity to meet people from all over the world and some of them become good friends.  You might want to post your question on the chemo forum where it won't get lost and someone may have an answer or information for you.  Just one other thing--your English is fine and much better than my Italian.  (I don't know any Italian except for a few common words--pizza being the one I would use the most.)  Anyway, good luck.
                                                                                Ann B.
Ann B.
12/89--Lumptectomy of left breast for 2 sites of DCIS followed by radiation and 5 years of tamoxifen. ER/PR +
12/2002--Mastectomy of Left breast for recurrence. Nodes negative. ER/PR+ Her2-. Arimidex.

Tricia Keegan
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Re:Introduce Yourself - Friday, February 05, 2010 6:45 AM
Hello Paola and welcome,

Your English is wonderful, I live in Ireland and am also her2+

I know many people on this trial and you can find out lots more about it on www.her2support.org

I'm glad you have come through all this so well and enjoying your life again.  I'll be five years out this summer which I'm sure I have herceptin to thank:)

Good luck and keep us posted:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

paola
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Re:Introduce Yourself - Monday, February 08, 2010 4:18 AM
Hi and thank you for your very nice welcome!

I've just seen www.her2support.org site where I found some information about Neratinib that may be useful to me... thanks!

A big kiss

Paola



Carolyn Projansky
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Re:Introduce Yourself - Wednesday, February 10, 2010 11:11 PM
Hello, My name is Carolyn. I am in the process of being diagnosed.  It's a recurrence - from stage 1 five years ago to stage 4 now. It's in my lymph nodes and my spine (the bone). I'm shocked, scared to death and really panicked because we are in the midst of the biggest blizzard I can ever remember which is slowing down my getting into treatment. All the doctors are closed down. I am very very frightened that my tumors are growing while I wait for test results, wait for doctors appts, etc. 

When I had cancer five years ago it was tiny bits, but "multifocal" so I needed a mastectomy.  They told me my sentinel nodes were clean. But obviously they were not or maybe they missed some cells?  No one suggested chemo because the nodes were "clean."  I feel really misled by that.  Now I'm stage 4. 

I read the survival stats on the web and I am terrified that I won't survive this. I need to hear from other women who have stage 4 and are surviving.  It's midnight and I can't sleep. Anyone out there? 

Ann B.
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Re:Introduce Yourself - Thursday, February 11, 2010 8:42 AM
Hi Carolyn--I want to welcome you to the boards and tell you how sorry I am that you have to be here.  Although I had a recurrence 7 years ago. our stories, so far, are different.  I do, however, relate to your teror.  I want to assure you that the few days delay in starting treatment will not make things worse.  I also wanted to suggest that you might want to post on the Stage 4 forum.  There are a number of wonderful women on this board who are surviving with stage 4 bc and can offer advice and support.  Good luck.
                             
                                                                                    Ann B.
Ann B.
12/89--Lumptectomy of left breast for 2 sites of DCIS followed by radiation and 5 years of tamoxifen. ER/PR +
12/2002--Mastectomy of Left breast for recurrence. Nodes negative. ER/PR+ Her2-. Arimidex.

Tricia Keegan
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Re:Introduce Yourself - Thursday, February 11, 2010 2:01 PM
Hi Carolyn,

I'd like to echo Ann's words to you and hope you join us on the stage iv forum.   Stage iv is generally treated as a chronic rather than terminal illness now, and while it must be so scary for you please know there are many here to help you.

Many people are surviving for years as stage iv so it's not the death sentence it once was and drugs and treatment have come a long way since your first bout with cancer.
Good luck. xx
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Jme1210
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Re:Introduce Yourself - Tuesday, February 16, 2010 10:27 AM
Hi, my name is Jamie. I haven't been disgnosed with breast cancer but my mom has. She actually called me yesterday to confirm THE news. My mom is so strong, I know she's terrified, I got on this website for her. I will be there to support her throughout. We don't know the stage of her cancer, she goes to see a surgeon this Thursday. We'll know more then. I want to get all the info I can for her and for me and my family. And since it runs in the family, I can be more informed if it happens to me too.

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