The Survivor movie

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Tricia Keegan
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The Survivor movie - Tuesday, November 24, 2009 9:12 AM
http://www.youtube.com/watch?v=TWGqETd6oxk

(The survivor movie)
<message edited by Tricia Keegan on Sunday, January 02, 2011 9:23 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

JulieS
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 10:30 AM
thanks Tricia!  Good for even us oldies......I think we need to sticky this to the top of one of the forums, so we can watch it when having one of "those" days.
Hope and strength,
Julie S
Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-

Tricia Keegan
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 11:38 AM
I thought so too Julie, I may make the suggestion to Zach and posted it here so all the new ladies could see it easily and hopefully find it as inspiring as I always have:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Kimo
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 12:23 PM
Tricia,
 
It took me a while to stop crying after watching this. Thank you, al lot of this I keep trying to tell myself, but my inner voice gets pretty soft some days.
 
Definitely post this out where we can all touch base with it.
 
you are a special person, you know,
 
Kim
From extreme NW corner of US in Wash. State
56 yr Grandmother and mother died of BC - no BRCA gene
4 kids 21-30, 2 boys 2 girls - 6 grandkids 
2002 b/c, 8 mo chemo & rad, femara till 1/2008 
"You should now be free of cancer"
3/2008 "sciatica" became
metastisized bone cancer
Radiation, Xeloda (bad se)
Zometa monthly
3/2009 12 wks taxol, carboplaten, avastin
 Avastin 6/09-9/09
9/2009 iexempra w/ avastin
11/2009-12/2009 doxil &

Jean Southward
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 12:23 PM
I agree.  I just posted it to my facebook page.  It says so much about what we all think and feel.  This on the news of a busy week of tests for me starting Monday. MRI, Bone Scan and Mugga.
Jean S

Hope is that thing with feathers that perches in the soul and sings the tune without words and never stops...at all.

Emily Dickinson

IDC Stage IIB Grade 3 BC DX on 2-10-09
HER2+++
ER/PR+ 90% 
2 of 6 Node Positive
Double Mastectomy 2-23-09
Completed Chemo TC 7-10
Herceptin until 3-20-10
Arimidex for 5 years Started 8-09 

Tricia Keegan
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 1:00 PM
Oh Kim I'm sorry I made you cry lol...you big softie:)

Jean, best wishes on all your tests and hope they go well.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Pookie1
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 2:24 PM
Hi Tricia, I'm new to the site. Very touching video.  I was diagnosed in June/09, did not have surgery until 10/9/09. I had a mascetomy with reconstruction. Currently have the skin expander, still experincing swelling and discomfort. I had a appt. with the plastic surgeon this past friday and he wanted to use the needle to do the expansion. I said no. I was afraid. Can anyone tell me what to expect?

Tricia Keegan
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 2:39 PM
Hi Pookie,

I'm glad you liked the movie and welcome to komen although I'm so sorry you had to find us.  I'm sure you'll find all the support you need here to help you through:)
I'm sorry I can't help with your question as I had a lumpectomy and have no personal experience to offer on recon.
Did you see the recon/surgery forum??   if you post your question there I know many of the other ladies will be able to advise you on what to expect.  You'll get lots of tips there too.
I'll ask a few of the ladies to stop by here in the meanwhile and read your question and reply of they can.
Good luck Pookie, you'll get through it and survive although I know right now it's very tough so hang in there:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

nmb
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 2:56 PM
Hi Pookie!  I had my surgery on 8/27 did take a while to heal (wish I could remember how long, had drainage issues but no infection) 
 
Have only had one fill (on 11/10) the area was completely healed. 

Yes, PS uses a needle but it goes into a port (similar to chemo port I guess but no bump!) so all I felt was a pinch.  He was very gentle and since it was my first only put in saline till I could feel it -- so I only got 50 cc's. 

Sent me home with muscle relaxer (and anti biotic since I'm on chemo.)  I never needed the relaxer or any pain med.  My 2nd fill was cancelled last week due to low blood counts but I go back on Monday and am hoping to get 100 cc's since the 50 was so easy.
 
My advice is what my PS told me.  For this step you are in COMPLETE control.  It does not matter how long it takes (though he wants to get it done before my radiation) and you should be totally comfortable with the process.  If you are not comfortable, I’d wait…
 
Nancy
DX 7/15/09, IDC at age 47
Tumor 3.5 x 2.5 x 3 cm
ER/PR +, HER-2 neg, Stage II, T2, N1 (3 of 9 positive)
Right Modified Radical Mastectomy w/expander 8/27/09 
BRCA1/2 Negative w/strong family history
4 Dose Dense A/C DONE 11/10/09!!! 
4 DD Taxol DONE 1/12/10!!!
28 Rads DONE 3/18/10!!! 
Ooph Feb, 2011
Prophylactic left mastectomy & reconstruct hoping 2011
Tamoxifin (a few months) and AI (5 yrs)

vegas113
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Re:Newly diagnosed may like this - Tuesday, November 24, 2009 4:07 PM
Hi Pookie..... I had expander and fills.... I used to tease that I was going in for a "fill up".... I started fills about 4 weeks after surgery - they do use needles but I just didn't watch - all I ever felt was a slight prick - It didn't hurt at all - each fill I got 50 cc's, and only the last 2 fills were uncomfortable.

The unknown is definitely the scary part - once you get the first one out of the way you'll probably wonder what in the world you were scared of! ha! I was pretty worried until the first one - then - pfffft - piece of cake!  And... it only takes a minute and you are done.

Best of luck!
Debbie P in Dayton, TX
Diagnosed Stage II, Grade 2
Invasive Ductal Carcinoma  Oct 2008
Mastectomy Nov 2008 (2 lymphs removed)
Cytoxin/Adriamycin 6 rounds started 12/08
    Final Chemo 4/2/09!  Femara started 4/16/09 for 5 years
Final reconstruction November 2009
February 14, 2011 Stage IV in bone liver and lung


bnells
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Re:Newly diagnosed may like this - Wednesday, November 25, 2009 7:18 AM
Pookie, I had my bi--lat with expanders April 14th, 09... started the first "fill up" about 4 weeks later... he put a little bit of something in before the fill to "deaden" the area... but the area is already pretty much numb so there was very little discomfort... I felt pressure mostly... he put in about 50cc each time... the needle itself did not hurt ...I just felt heavy pressure and as Vegas said I also had a little discomfort the last 2 times not due to the needle and the procedure in the office but from the muscle stretching...not enough pain for meds though.... this was my timetable and he was not pushing...it just was how smoothly it all went...
April 14..bi-lat
July 8  exchange for silacone implants....no big deal at ALL...however, he would not allow me to go back to until a week and a half after... just to make sure everything was healed...and to make sure I took it easy..he is VERY strict like that...
Sept 9  nipple flaps...30 minutes tops..nothing to it...
Nov 8  Tattoos...oddly enough I actually felt some mild pain with this... maybe some of my nerves have reconnected by now...
And I am DONE!...My PS is awesome and wonderful!
I go back in Feb for him to see if he needs to touch up the tats but I think so far they look great...

Now, bear in mind, my dx was DCIS so I didn't have rads or chemo...and  had very little  swelling or pain from the mast...everything went very smoothly...

Hope all goes well for you...it is such a new and different experience, all of this reconstruction stuff.....so being scared /apprehensive is so normal.....Good luck....

Bobbie




JulieS
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Re:Newly diagnosed may like this - Sunday, November 29, 2009 12:54 PM
bumping up so others can watch the video
Bothell, WA
dx 5/07 IDC
lumpectomy 6/14/07 1.5cm
er/pr + Nodes negative
finished rads 9/13
Tamoxfen 9/07- 8/09
Arimidex 8/09-

Pat Patterson
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Re:Newly diagnosed may like this - Monday, November 30, 2009 2:43 PM
Jean - thinking of you and your tests...hope all goes well for you!!!!!!
 
HUGS, Pat
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

mmworley1
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Re:Newly diagnosed may like this - Friday, January 08, 2010 10:52 AM
This is great. I was diagnosed 2 months ago and this is so wonderful and gave me hope for today. Something I struggle with each new day.

Tricia Keegan
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Re:Newly diagnosed may like this - Friday, January 08, 2010 6:56 PM
Hi Mmworley,

Glad you liked it, I still look at it after four and a half years and still find it inspirational:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

jbdog
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Re:Newly diagnosed may like this - Saturday, February 06, 2010 11:36 AM
awesome!
11/6/09 Dx IDC
11/24/09 Lumpectomy, Sentinel node
Stage 1, Grade 1, 1.6 cm, ER/PR+, Her-, Node neg (2) 
Oncotype 16, 12/22/09
Rads to start Jan 20 2010 -
Rads DONE March 5 2010!
Tamox 5 yrs, start March 24, 2010
BRCA neg
age 44 at dx
So WI

GoldStar
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Re:Newly diagnosed may like this - Thursday, April 01, 2010 7:56 AM
 i think i need help on this site. its kind of weird. see if it works.
 i am almost 32(sat). have a 6yr old daughter and 2 yr old son. was diagnosed the 22nd of march. opted for a mastectomy when i seen oncologist yesterday. meet with surgeon today at 2:20. first i have that blood test to check DNA.
 i am having a lot of emotional overload right now. i was told yesterday that i will definately live. it hasn't spread according to CAT scan. don't know about my lymph nodes yet. but after i was told that i didn't know how to feel. does that make sense anyone? i have been so worried for so long that i didn't know how to feel after the 'new high' wore down.
 anyway, i washed my husbands phone in his pocket this morning and it's ruined-little thing compared to this, i know-but it was the last straw. i am sooo tired of the drama this disease causes. i like quiet.
 well i won't write anymore for now in case this don't post right. thanks to anyone who reads this!
 and God bless you all

Tricia Keegan
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Re:Newly diagnosed may like this - Thursday, April 01, 2010 1:22 PM
Hi Gold star and welcome,

I know more people will see your post and reply to you if you post it on a new thread or on the "Introduce yourself" thread:)

It's perfectly normal to feel as overwhelmed and emotional as you are right now, in the early weeks and sometimes beyond!    I know you'll get lets of support here and info should you need it and make many friends.
There are many long term survivors here doing great so please take courage from that.  It's great news there's no spread and while it's better of course if the lymph nodes are clear it's still early stage breastcancer and most of us get over it fine in time.
For now take it one day at a time and just focus on getting through it, be kind to yourself and accept you've had a life altering and extremely stressful shock wiht this diagnosis but little by little you' will feel better and it gets easier:)
There are a few ladies around your own age on the surgery/recon forum and also on the chemo forum so check that out.  I hope you'll keep us posted and fingers crossed for clear nodes for you!  xx
Just know you're not alone, and we are all here to help you though this. 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

lrooney
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Re:Newly diagnosed may like this - Friday, April 09, 2010 10:18 PM
I wrote this poem in honor of my aunt, I thought it might bring hope to everyone touched by Breast Cancer
Best Wishes, remain strong, Liz



http://www.myheartspoken.com/poetry_gift_FP111.html

Tricia Keegan
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Re:Newly diagnosed may like this - Saturday, April 10, 2010 7:26 PM
It's a beautiful poem and dedication to your Aunt.
Thank you for sharing it:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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