Daily Diary of Joy

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ElaineQW
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Re:Daily Diary of Joy - Friday, April 04, 2014 3:47 PM
Found them Tricia - they were further down just like you said.  It's beautiful in your Ireland.

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:Daily Diary of Joy - Friday, April 04, 2014 4:49 PM
Thanks Elaine:) We made the most of the few days while Rena was here.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Pat Patterson
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Re:Daily Diary of Joy - Saturday, April 05, 2014 12:36 PM
Bon Voyage, Elaine!!!!!
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

ElaineQW
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Re:Daily Diary of Joy - Saturday, April 05, 2014 6:58 PM
Thanks Pat 

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Rena
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Re:Daily Diary of Joy - Saturday, April 05, 2014 7:06 PM
Hi everyone! My days with Tricia and Bren were wonderful--the company, all the places they showed me (Bren put a lot of miles on the car!), their home and their sweet kitties! I enjoyed it all and am so glad that I was able to go.

Elaine, have a wonderful trip. This is probably one of the nicest times of year to visit Italy--it won't be too hot. I know you'll have an amazing time!

I hope everyone else is doing well. I've been resting the past two days but have to force myself to get back to work tomorrow. It's good to be home with David and the beasts. 


Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Army Mom
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Re:Daily Diary of Joy - Monday, April 14, 2014 6:29 PM


Hi ladies !!  

Hope this finds everyone doing well. Rena and Tricia..thank you for sharing your visit via pics !!! Looks like everyone had a fabulous time.  Elaine, I hope you have a great trip as well !!

Doing ok here I guess. Boob wise..everything is good. I had a meltdown at my Rheumy doc this afternoon.. my emotions were all over. I am so tired of huring and being in pain.. I am stressed because I have not found another job and my severence is about to end. I am considering applying for SS disability. I really hate to do it.. I really love working BUT... no leads yet even though I have put out many many many resumes. I worry about a new job and having to ask for time off for doctor visits...also worry about being able to even do the job. Sometimes my brain still doesn't comprehend things.. some days it is just an insult to even get out of bed when I am hurting from the arthritis which is progressing and then my upset stomachs I get from the liver issues. I am so sorry to unload.. rare that I have a pitty party at the doctor's office.. I think I scared them LOL. Then the PA tells me if I continue feeling depressed I should see my reg doc and get something to help.. UGHHH really? Why is a pill always the answer? I am a strong person.. why is it so bad that I get upset because I hurt and I worry? A pill isn't going to make that go away.. Please know I am in no way knocking anyone who needs meds to help them.. I really get that.. however I have never needed it.. when I was first DX with cancer..that is the first thing my doctor offered to me..  Why is it so bad to worry? To be scared? I am not laying in bed in the fetal position 24-7... I am usually in a pretty good mood and a happy gal. Anyway..I am going to call social security and start the process... the Rheumy said she would support me.. I am also going to call my liver doctor and onco to let them know. Please pray this will go through for me.

On a bright note, my boys are doing well. Ryan is currently in Afghanistan.. this is his 3rd deployment.. hopefully his last. I just sent him another package with some U of FL sheets and a big bag of gummy bears (his fav), a sock monkey with bunny ears and an Easter card. 

Dogs are well.. just bred Athena for the last time.. we did a surgical implant !!  Hopefully will get some awesome corgi babies. 

Ok.. thank you all for listening.. I love you all.

Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Peki
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Re:Daily Diary of Joy - Monday, April 14, 2014 7:02 PM
Well, I just went for the last 6 month mammogram before I hit the 5 year anniversary of getting the news I had BC! AND everything is still B9 after 5 years. I still have the onc visit at the end of the month, but then I hope I am done with disease once and for all! So thankful I found this site, it really is a blessing when you need info, a shoulder to cry on or just bitch! Thanks ladies!--Peggy

Rena
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Re:Daily Diary of Joy - Monday, April 14, 2014 7:44 PM
Peki, congratulations! That's such great news! 


Grace, I'm sorry you're hurting so much. If you can go on disability and it works for you financially, then I hope you won't beat yourself up over it. Your body has been through so much. I wonder if you could find some kind of part-time work that you could do from home. I know that I'd have a hard time going out to work every day, but being able to work from home makes it so much better. But the priority is your health, and I hope that your doctor can find a way to ease your constant pain. On the brighter side, it's so good to hear that your boys are doing well. I'm sure you'll be very happy when they're both back home again. Sending a hug. Pals
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:Daily Diary of Joy - Tuesday, April 15, 2014 1:05 PM
Peki, thats awesome news and I'm really thrilled for you!!!


Grace, I agree with Rena and we have a similar system here called Invalidity Pension which I decided to apply for after my own dx and felt I just couldn't take the stress and rush of my old full time job and decided to out my health first and don't feel bad at all, its the best thing I could ever have done for myself. We may not get as many holidays or meals out as we used to, but thats okay and find just having time is worth so much, hoping this all works out for you.  I've (thankfully) never had to resort to taking meds myself but feel sympathy with those that do of course, but if you feel able to cope then there's nothing wrong with feeling upset because you're stressed and concerned, I'd say it makes perfect sense and sometimes a good cry is all we need.Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Pat Patterson
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Re:Daily Diary of Joy - Wednesday, April 16, 2014 10:40 AM
Peggy - congratulations and good luck at your oncologist apt! I had mine yesterday and all is good...labs came back perfect :-) Now looking forward to mammogram in June and then free til October! We live our lives from apt to apt it seems but I am thankful as always.... Grace- what a nightmare for you. The SS Disability process is tedious but it seems worthwhile for you to pursue it. My thoughts and prayers are with you, My niece has RA and so I have an idea of what you are going through. Mt daughter's Lucy had another litter of Rhodesian Ridgebacks...I just love puppies but managed to keep my head and not take one. My grandson, Miles, was offered a counselor position with the Duke University TIP program this summer at Wake Forest...we are so proud of him, plus he gets paid! Love you all and wishing you a Happy Easter, Passover, or whatever it is you are celebrating this week.
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

Army Mom
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Re:Daily Diary of Joy - Sunday, April 20, 2014 8:37 PM
Happy Easter to my fav gals !!

Well, I did it.. I made my disability application. Now to collect all my medical records etc. I go for my Onco appt tomorrow.. fingers crossed for me !!!

Been dealing with a sick dog all week. Poor Athena went off her food.. she is a chow hound.. not unusual about this time of pregnancy for her..but it was more than that so she went to the vet on Tuesday.. antibiotics, I had to give her sub q fluids under the skin all day.. good thing I remembered how to do it !! I have a great vet that shows and teaches me these things so I didn't have to leave her there. She has cystitis, UTI... praying she keeps the babies.. BUT... at this point I really don't care .. if we have to spay her for whatever reason.. or if she just doesn't carry..I am going to spay her anyway and not try again. She is far more important than puppies. And I just want her to feel better and back to normal.

Hubby and I didn't do much today. Hit a couple of flea markets, went to see Heaven is Real and watched some TV tonight. 

Anyway, off to bed. Have a great week all of you. 

Love,
Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Army Mom
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Re:Daily Diary of Joy - Tuesday, April 22, 2014 7:13 AM
Morning !!! 

Just an update.. Onco appt yesterday. Everything is good..My doctor still wants me there every 4 months though.. I figured almost 5 yrs out he would push it out further. He said he felt it important for the more frequent visits due to the type of cancer I had and also my other health issues.  Also, I am so sad. Dr. Mahajan is going to retire so this was my last visit with him. The man is so wonderful, he is a very calm being that has empathy and is so caring to his patients. Very smart man, he gets calls from all over the world, Mayo and other cancer clinics. 
I remember my first visit to him. My friend was with me. He was coming in and out.. I was having to soak in the shock of needing chemo. He said I also qualified for a study and the study nurse came in to talk to me. She went over the info then said.. go ahead and sign it.. if you change your mind we will just tear it up. As she was going out the door she met Dr. Mahajan and told him what she was having me do. He said.. No.. she doesn't sign anything until she reads and makes a decision. That gave me so0 much trust in him. When I went for my first treatment.. he asked about the study, I told him I elected to not do it.. no questions.. he said I agree with you and we went forward. I have had friends that were "shamed" into doing these types of things by thier doctors. 
So.. do my dear Dr. Mahajan... CHEERS and thank you. He does have me set up with his collegue for my next visit. 

Athena is still running a bit of fever, but she is eating a little more and seems a bit more peppy. 

I hope everyone has a great day and ttyl.

Love ya,
Grace

Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Army Mom
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Re:Daily Diary of Joy - Tuesday, April 22, 2014 7:14 AM
Morning !!! 

Just an update.. Onco appt yesterday. Everything is good..My doctor still wants me there every 4 months though.. I figured almost 5 yrs out he would push it out further. He said he felt it important for the more frequent visits due to the type of cancer I had and also my other health issues.  Also, I am so sad. Dr. Mahajan is going to retire so this was my last visit with him. The man is so wonderful, he is a very calm being that has empathy and is so caring to his patients. Very smart man, he gets calls from all over the world, Mayo and other cancer clinics. 
I remember my first visit to him. My friend was with me. He was coming in and out.. I was having to soak in the shock of needing chemo. He said I also qualified for a study and the study nurse came in to talk to me. She went over the info then said.. go ahead and sign it.. if you change your mind we will just tear it up. As she was going out the door she met Dr. Mahajan and told him what she was having me do. He said.. No.. she doesn't sign anything until she reads and makes a decision. That gave me so0 much trust in him. When I went for my first treatment.. he asked about the study, I told him I elected to not do it.. no questions.. he said I agree with you and we went forward. I have had friends that were "shamed" into doing these types of things by thier doctors. 
So.. do my dear Dr. Mahajan... CHEERS and thank you. He does have me set up with his collegue for my next visit. 

Athena is still running a bit of fever, but she is eating a little more and seems a bit more peppy. 

I hope everyone has a great day and ttyl.

Love ya,
Grace

Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Tricia Keegan
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Re:Daily Diary of Joy - Tuesday, April 22, 2014 2:36 PM
Hi Grace, 

It was so good you posted it twice lol!!!:)

I'm so sorry Athena is unwell and really hope she improves daily, well done to you for giving her fluids, I remember being shown how to by my vet but neither hubby or myself could bring ourselves to do it.

I'm glad you put in for the disability and hope the powers that be don't leave you waiting too long, sorry too that you're losing a Dr you trust, hopefully your appts will be getting less and less as time goes on anyway but its always tough to get used to a new Onc and I remember when my own was leaving too.

Keep us posted on how Athena is doing and I hope she'll be fine before long.Pals
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Army Mom
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Re:Daily Diary of Joy - Thursday, May 01, 2014 1:13 PM
Ok... Athena update... she is doing so much better.  I took her in on Monday for another ultra sound to see if we had any viable babies and to see if there was anything else. We saw 2 dark spots and no babies. So, the decision was made to do surgery Tuesday morning to spay and get her uterus and tubes out and see what was in there. 
She came through surgery well and both vets were there for her surgery just incase since they were not 100% what they were dealing with. Lynn (vet) called me right after and said she was doing well. One side of her tubes was def pyometra which is an infection dogs and cats can get. There is open pyo where there is a pus discharge... or closed pyo which is what Athena had and is most dangerous because the poision pus has noplace to go. The other side of her tubes had a hard dark area and when they cut it open it was like a giant blood clot. Was prob a puppy that died or was reaborbing. So, she is not spayed, no more babies which is sad only because she is a great producer... BUT.. she is most important. She gave me 2 beautiful litters of which all are doing great. 
I picked her up that afternoon and she has been resting and started eating some. I just took her cath line out of her as it was starting to bother her. (thank God I have vets that have taught me how to do all this stuff LOL  )  

She still has some recovery but I am sure she will be back to her silly self soon. Thanks to all of you for kind thoughts as always. Love you all.

Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Tricia Keegan
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Re:Daily Diary of Joy - Thursday, May 01, 2014 6:03 PM
Thank you for the updates Grace and I'm so pleased Athena is over her surgery and recovering as I know you are too:)

How is your job going ???
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Daily Diary of Joy - Friday, May 02, 2014 1:59 PM
Grace - So glad Athena is doing well.  Good to see you back on the boards :)

Me - I'm spending the weekend in the Happiest Place on Earth (and the most expensive :(  with my kids and grandkids.  Ain't nothin' better!
My kids birthday on Sunday -- lots of reasons for celebration.

Here's to a happy weekend for everyone.
Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Rena
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Re:Daily Diary of Joy - Friday, May 02, 2014 2:43 PM
Hi everyone.

Grace, I'm glad Athena is recovering well. It's so hard to see our fur babies feeling ill.

Elaine, I know you're having a ball! Happy birthday to the twins!

Nothing much new here. We're coming off a heat wave (no, really--90 degrees!). It's nice to have it back in the 70s again. I'm just working a lot. Next Wednesday, I'll go to San Francisco to help Karen do a Mother's Day art project with her students. Should be fun--the kids are 4 and 5 years old and adorable. I also hope to meet up with my friend Paul. We met in grad school in the late 70s and have been friends ever since.

I hope everyone is well and has a great weekend!
xo
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Army Mom
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Re:Daily Diary of Joy - Wednesday, May 07, 2014 2:29 PM
Well it has been a week and a day since Athena's surgery. She is doing well and is starting to get back to her old self. First sign of it is she is begging for strawberries again !! She is still on antibiotics, she goes back to doctor next week for stitches. Thank you all for your sweet words and kindness.

Tricia...I am unfortunatly not working again. I really enjoyed the new job but it really was not a good fit and so it wa a mutual decision. So, I am looking for employment... I have also filed for disability. Nothing is coming through on the job front and it is pretty discouraging.

Elaine, glad you are enjoying your family !!

Rena, we are hitting the 90s here in FL... UGH I want my winter back !!  LOL

Anyway, you gals take it easy. Love you all.

Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Tricia Keegan
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Re:Daily Diary of Joy - Wednesday, May 07, 2014 4:19 PM
Glad to read Athena is doing well Grace but sorry there's no move on the job or disability and hope something comes up soon for you.

Elaine, my Louise just celebrated her B'day last weekend too and we all had a lovely dinner together, hope you enjoy your family time:)

Rena, your weather sounds lovely but maybe a tad too warm for me, hoping your stint with Karen at the school went well and all the kids enjoyed it as I'm sure you did:)
<message edited by Tricia Keegan on Wednesday, May 07, 2014 4:21 PM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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