Daily Diary of Joy

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Rena
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Re:Daily Diary of Joy - Wednesday, May 07, 2014 9:31 PM
No more 90 degrees here! It lasted for about three days, but we're back to our normal 60s now. 

Tricia, thanks for asking: I just got home this afternoon after spending the night at Karen's and then helping out in her preschool this morning. The children were painting pictures (well, some were pictures and others were more "abstract"!) on white plates as Mother's Day gifts. I still have acrylic paint under my nails. The kids are so cute--some kind of shy and some very flirty. One adorable boy is going to be a "lady killer," we decided. What a flirt! It was a lot of fun, but very tiring, and I was there for only two hours. No wonder Karen is so exhausted when she gets home at night! She's so calm with the children, but still loving. It was wonderful to see her in her element. I'm a little concerned about her neck and back, though. She was in a bad car accident about a year ago, and her neck and back have given her trouble. She's had a lot of chiropractic and acupuncture, and both help temporarily. She's been hurting the past few days, and I know that after sitting on kid-sized chairs and getting up and down a lot, my back hurts, so I can imagine how she must feel. The MRI showed a bulging disc, so she may have to see a specialist soon. She wants to deal with it "naturally," though. Poor girl. Pain sucks!

I hope you are all doing well. I'm glad your mammo went well, Elaine.  Oh, that reminds me--I wanted to ask if any of you has information or an opinion on this: I was glad that Karen's doctor sent her for a mammogram. Even though she tested negative for BRCA, she still is higher-risk because I had cancer so young. But her doctor said that she should have a mammogram every year. Does that seem excessive? Even with her family history (David's mother died of breast cancer in her 50s), I wonder if the amount of radiation from yearly mammograms is worth the risk. I have to research it myself, but I wondered if you guys had any info about this. Thanks!

Take care everyone. 
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

ElaineQW
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Re:Daily Diary of Joy - Wednesday, May 07, 2014 9:44 PM
Rena - So glad Karen loves her work but I imagine her back isn't going to like it much.  I now have a bulging disc as well as the spinal stenosis and spondylolisthesis.  I hope she can find some relief although I don't  think "naturally" is going to do it.

Regarding the mammograms.  I don't think the amount of radiation is as much of a risk as that of missing a possible breast cancer.  One could use the same reasoning and say that women should wait until 50 or later to have annual mammograms since most breast cancer occurs in older women and that would save them years of radiation. How does Karen feel about annual mammograms?  The final choice is up to her of course.

No phone calls since mammo on Monday.  I'm hope that means there's nothing to talk about :)  I'll feel better when I get "the letter."

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:Daily Diary of Joy - Thursday, May 08, 2014 12:53 PM
Rena I'm so glad you enjoyed the experience and I'd say as well as tiring Karen probably needs the patience of a saint at times! :)  Sad to read about her back pain though, I really hope she finds something to help keep any pain down she's experiencing.

Re the Mammo, I haven't looked into it but think yearly sounds good and as Elaine mentiones, the modern machines use very little radiation I believe.

So far so good Elaine!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:Daily Diary of Joy - Thursday, May 08, 2014 6:45 PM
Thanks for your input, Elaine and Tricia. It's something Karen and I can talk about when we have some quiet time alone. 
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

scootersmom
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Re:Daily Diary of Joy - Thursday, May 08, 2014 8:13 PM
Rena:  I went for my first one at the age of 35.  Then it was every two years until age 40.  Once I hit 40 then it was every year until the bilateral.

Ps-the only incident of breast cancer was my aunt over thirty years prior.  Other cancers with in the immediate family were prevalent.


Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




sharonma
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Re:Daily Diary of Joy - Thursday, May 08, 2014 9:27 PM
Rena,
Your visit with Karen and her kiddies sounds beautiful!  I'm sure she is great with the little ones , and you must have loved seeing her in her element!

As far as the mammos, when I had my gen testing, even though I was negative, the report stated that any  daughters should start getting routine mammograms at age 28 ( ten years younger than the earliest bc in the Immediate family tree).   Since we won't reach that for another 5 years, I guess we will cross that bridge...
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

ElaineQW
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Re:Daily Diary of Joy - Tuesday, May 13, 2014 1:15 PM
Hi everyone!

I met Scootersmom (Tina) and her Mom this morning for breakfast. They are visiting San Diego and were on their way to the zoo today :)

It was wonderful as always to meet a sistah!  Tina is sweet and very funny - she regaled me with stories of how she made her docs laugh. I hope we can do it again next time she comes to SD.

Hug
Elaine

 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:Daily Diary of Joy - Tuesday, May 13, 2014 4:37 PM
Elaine I'm so glad you and Tina got to meet up and hope you both managed to get a pic, will keep an eye out on FB!!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Daily Diary of Joy - Tuesday, May 13, 2014 6:54 PM
Oh shoot. Never thought about a photo.  We were too busy chatting !

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






scootersmom
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Re:Daily Diary of Joy - Thursday, May 15, 2014 12:46 PM
Back home and sorry to say that I really miss the weather in SD.  Came back home to so much rain it is unbelievable.  It is as if someone turned on a faucet and forgot to turn it off.  One of the train viaducts around here is 14 feet tall and it has standing water in it of twelve feet.  It's going to be about a week before that part of the road is open again.

Elaine--It really was a pleasure to meet and talk with you.  Mom and I really enjoyed our visit with you.  After we got in the car it dawned on me that we should have taken a "selfie".  Crap!  Missed opportunity.    We made it to the airport evidently right before the roads were closed.  Our plane actually left early.  We were delayed in Denver due to the incoming flight being late and all the idiots that don't understand the "carry on " policy.  They don't get a suitcase that can hide a body will not fit in the overhead no matter which way you can turn it.  Or one personal item and one carry on does not mean: one purse, one computer, one suitcase and a duffel bag.  

I hope everyone else is doing well.  I am trying to catch up on all the messages while I've been away.  Have a wonderful day.

Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




sharonma
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Re:Daily Diary of Joy - Thursday, May 15, 2014 2:43 PM
So glad you got to meet!

Omg Tina, that is so funny.  That's the one thing that irritates me almost as much as people who drive 10 miles under the speed limit in the passing lane.   That's why I'm nuts about getting zone 2 boarding.  Cuz you know that overhead is going to be stuffed full of the guy's(or woman, not trying to be a sexist here)  who brought the body bag onto the plane, along with his computer, European carry all, aka purse, and his stinky lunch.   USAirways just eliminated their first checked bag fee for cardholders.  We'll see if that frees up some more space.  I say throw them out the window if they won't fit!!

Joy, Carla graduated on Sunday, sad to see our 8 years at Penn State has ended, but ready to open another chapter!  She's home for the summer, then off to Dusquene in pittsburgh in August

Texas is recovering, albeit very slowly.  He'll be on 2 antibiotics for three weeks then back for another chest X-ray to be sure the pneumonia has cleared.

Hugs to all
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

scootersmom
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Re:Daily Diary of Joy - Thursday, May 15, 2014 7:05 PM
Sharon--I was in the first row where we had to put our stuff in the overhead. I brought a tote bag with us just to put the two purses in since me had to put them in the bin behind us.  I wanted to make sure no one could reach into them easily.

Glad to hear Texas is doing better. It is so tough to watch when our beloved pets are not feeling well and they can't tell you what the problem is.

I too am glad that I met Elaine.  It is so nice to put faces with names as well as hear a voice that goes with the typed words.  We will have to try to get together when you visit your son again.  BTW-how is he doing?
Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Army Mom
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Re:Daily Diary of Joy - Friday, May 16, 2014 6:58 AM
Happy Friday !!!

Well... this week the Athena saga continues. Monday night I came home from a meeting. I sat down and she put her paws up on my knees.. I looked down and blood was pouring out !!!!  I about died. So, I covered the bedroom floor in towels and old sheets.. stayed up watching her all night. She had an appt sched at 8am to have stitches out. Normally I would remove them myself but in light of everything I wanted her to be checked over. So.. we are at the vet at 8am. She is listless, her gums and tongue are white.. I wasn't sure she was going to make it. They looked at her.. trying to figure out what the issue could be. Did a CBC on her.. white blood count way way up. They mentioned she needed a blood transfusion and would have to go to the specialty hospital where they would do the transfusion, an ultra sound and a scoop up through her vagina. I was so upset.. I don't have the money for this ... I applied for care credit and got 1200.00. So in mean time my friend who is a vet calls me.. I tell her what is going on.. she calls another friend and she calls me telling me to take her to Dawne's practice..where they were already making a plan. I decided to go to Dawne's.. it was her day off but her associate and his wife (who had helped Athena last week) were both working. Immediatly they went and got thier own dog a GSD named Liesel to be the blood doner. We got her lines set up and they did xray.. which really didn't show much. So decision to do exploratory surgery. I left her in capable hands. Surgery was at 4, Dawne even came in even though it was her day off. So, the end of the stump where they cut the uterus had a terrible infection, a granuloma which attached itself to her bladder... it was a tough surgery but Athena came through it great !! I got to pick her up Wed afternoon. She is eating and acting pretty good. She is very sore but on the mend. I pray this is finally over. 
Now some happy news !! Athena became a Grandma yesterday by one of her puppies from 3 yrs ago !! The really cool thing is that the mama dog belongs to Dawne, but my friend linda whelps the litters for her. So, we had a scheduled c-section for Monday. Linda called yesterday and said Tara was nesting, wasn't eating, temp dropped below 100.... so basically she was in labour. Met linda and we drove to St. Mary's GA to the vet that would do the C-section. I got to be in the OR from start to finish... It was so interesting and his surgical team pretty much took care of the puppies as they came out. I had seen this on TV and pics but never the "live show". We had 5 babies, 3 girls, 2 boys. Really a miracle to watch.

Tina and Elaine, so happy you guys got to meet and have breakfast !!  Would love to meet up with some of you guys one day.

Glad it is Friday. A couple of good movies out this weekend. Weather should be decent. Nice and cool this AM. Prob one of the last until fall/winter.

Have a great weekend everyone !!!

Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



scootersmom
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Re:Daily Diary of Joy - Friday, May 16, 2014 9:07 AM
Grace-- Wow!  Hope Athena is on the mend this time without any further trauma.  Congrats on the puppies.  I hope all goes well for you soon.  

It was very nice to finally meet a sister.  When we talked it seemed as though we had known each other for such a long time instead of the three years that I had been on this site.

Maybe some day everyone will be able to meet.  Until then, stay strong.


Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Tricia Keegan
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Re:Daily Diary of Joy - Friday, May 16, 2014 12:29 PM
Tina, I'm so glad you enjoyed your trip and got to meet Elaine too, hope your rain has stopped by now.

Grace I was following Athena's illness on FB and very glad its nothing too serious and hope she'll be back to her usual self very soon.

Sharon, so glad Texas is doing better too, these furries really do worry us at times, hoping Matt is improving too and managing okay. 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

sharonma
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Re:Daily Diary of Joy - Sunday, May 18, 2014 9:14 AM
Tricia, 
Both Texas and Matts recoveries are slow.  He still has significant pain, but according to his PT hand therapist, this is normal for the type of injury he sustained. I hope Matt will be able to come on our planned vacation to st Barth in 2weeks.  I will twist his (other) arm if I have to.


Grace,
Glad Athena is recovering.  Texas had a close call last week with pneumonia.  I don't think he would be here if I didn't follow my instincts to take him to a large teaching hospital.  But that comes with a cost...I've spent $3,500 thus far on vet bills for this episode, not to mention the $3,500 for his elbow surgery in November.   We're calling him the million dollar dog!  Shoulda bought that pet insurance:(
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

ElaineQW
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Re:Daily Diary of Joy - Sunday, May 18, 2014 9:38 AM
Sharonma -  I'm happy to hear that both of your boys are on the mend :).  I think it would be good for Matt to relax in St Bart's and if he can't make it I, happy to take his place. 

Grace  - happy Athena is on the mend too. 

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:Daily Diary of Joy - Sunday, May 18, 2014 1:31 PM
Glad to hear they're both recovering Sharon (albeit slowly), we had a huge vet bill some years ago with one of our cats so I took out the insurance then, like most insurance policies we hope we never need it but its been very welcome a few times, lucky Tex having a caring owner.

Your vacation sounds wonderful and I hope you all enjoy it.:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Army Mom
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Re:Daily Diary of Joy - Monday, May 26, 2014 10:40 PM
Hi ladies !!  I hope everyone has enjoyed thier weekend. I find Memorial day to be bittersweet with having my children both in the Army. Knowing they have lost friends they served with and I just can't imagine the pain thier families have gone through. Being an Army mom, when I hear of a soldier lost, a little bit of my heart goes as well. Just like when we lose one of our sisters. I will be very happy when my youngest is back boots on the ground on US soil. Hopefully Sept or Oct. 

Athena has continued to get better and is almost back to her old self. She gets her stitches taken out tomorrow and a check up. I was so close to losing my sweet girl as she was so close to death that had I waited any ...she wouldn't be sitting by me now. Sharon, I am glad Tex is better and oh how I know about the vet bills.. I also have put about 3200.00 for both her surgeries etc the past few weeks. Being out of work I was so scared I would have to make a choice between saving or not saving her.. not a place I like to be in. Thank God one of my credit cards increased my line amount ..and I got care credit for the rest. It has been pretty rough lately but we are going to get through it. 
I just finished completing more paperwork for disability. I pray it comes through for me. 
Today hubby and I went to see X-Men with my oldest son, his GF and her mom, then had a nice lunch at Mellow Mushroom. It has been so hot, I can't stay outside for long. Anyway, hope all you gals are well. Love you all.

Grace
Grace 

Lumpectomy June 18,2009
4 rounds T/C DONE !
33 rounds of rads DONE !!
1 yr of Herceptin - DONE  !!!
2 yrs Tamoxafen/ taken off due to elevated liver enzymes.
oophorectomy 05/2012

March 27,2015 DX right breast
Lumpectomy April 16th 2015
To start chemo soon

54 years young  :)
Mother of 2 sons in US Army
Wife of wonderful husband
and of course I am now.
KOMAN STRONG  :)



Tricia Keegan
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Re:Daily Diary of Joy - Tuesday, May 27, 2014 5:03 PM
Thank you for updating us Grace and I'm so pleased Athena is doing well, vet bills can be such a worry and I'm glad you managed to get Athena's sorted one way or the other and also hope your son/sons are home very soon.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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