Daily Diary of Joy

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Pat Patterson
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Re:Daily Diary of Joy - Tuesday, June 10, 2014 10:39 AM
Hi, ALL! SO much has been going on here, I feel as if I have been gone forever:-( I get so wrapped up with work and family drama by the time I get home I am beat! I am always thinking of you guys, so happy for Elaine and Tina, what a thrill to meet and spend time together. Sharon, so happy for Carla, she is going to grad school? And Grace, what a scare for you, I am so relieved to read the good news. Rena, I don't think any of our daughters can be too cautious, Erin has had a mammogram already but I honestly forget when they told her to come back. Can I still blame chemo brain? Tomorrow is the 6th anniversary of my FIRST treatment...years do fly by, don't they? And Thursday is mammogram...YIPEE! Thank you all for being my support for the last 6 years, will move to the Waiting Room now....
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

Tricia Keegan
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Re:Daily Diary of Joy - Tuesday, June 10, 2014 12:33 PM
Many many congrats to you Pat and everything crossed for your Mammo too, I had mine last week (9 years for me since dx) and will get my results on the 18th  when I see the Onc but the tech said if I don't get a call within five working days I can assume all is well. 
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

sharonma
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Re:Daily Diary of Joy - Tuesday, June 10, 2014 6:17 PM
It makes me so happy to see so many of us thriving!!! 

Pat, Miles  is starting year two!!!  Does that mean we are getting old?

I am getting too old to do these college moves, and hope this is the last... But at the same time, it means another chapter closing....and another year older:( :),  aggh!  Carla's graduation from psu a few weeks ago was more emotional than I thought it would be.  
Onward and upward!!! 
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Pat Patterson
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Re:Daily Diary of Joy - Wednesday, June 11, 2014 1:54 PM
Sharon, I think as they move from one Phase of their lives to the next it is always bittersweet.  Rob and V have separated, Sean's Colleen has many health issues, mostly liver related so doubtful they will ever be able to have any children, and yet there is much to be thankful for and I try to focus on that.  (Yeah, right!)  Miles is at Wake Forest for the next 6 weeks as a TIP counselor, actually getting paid and loving it!   He has already phoned home, or should I say "texted", begging for $$$.  And life goes on....
DX 5/13/08 Clearwater, FL HER2 +
IDC Stage IIIA changed 12/2/08 to IIB Grade 3
Taxotere, Carbo & Herceptin  6/11/08
Part Mas 11/5/08 SNB neg & addl node neg - CLEAN MARGINS!
Arimidex 11/25/08  35 Rads 12/15/08

sharonma
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Re:Daily Diary of Joy - Thursday, June 19, 2014 7:06 PM
Pat, it sounds like he is doing great!!! Much better than being home sick!
 The greatest thing IMHO we can give our children, or grandchildren, is wings, which makes it both joyful and sad.
dx ILC/dcis excisional biopsy 5/30/08
r segmental mast (partial) snb 6/4
node neg stage1 gr ll
er+/pr- Her2 - Oncotype Dx 11
R mast 9/22/08 w DIEP
tamox,now AI 
BRCA 1 & 2 NEG
davinci hyst/bso,  

Rena
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Re:Daily Diary of Joy - Friday, June 20, 2014 11:02 AM
I'm sorry I've been absent so much. The first half of 2014 has not been what I hoped for (with the notable exception of my trip to Ireland!). I'm recovering from pneumonia and sometimes feel as though I'll never feel normal again. It's been one illness after another, and when I had the chest x-ray last week, they said something about emphysema! My doctor said not to panic--I'll have a follow-up x-ray in a month, and we'll go from there. 

Pat and Sharon, I'm happy for your children doing well, and my heart goes out to those who are having a harder time of it. Karen is having a hard time. We are realizing how powerful genetics and family history are when it comes to things like depression. She is a strong person and is not giving up, so I have hope for her to find some peace and happiness. Here I am, almost 65, and still trying to figure out what the hell is wrong with me. I found an amazing therapist in San Jose, so I have to drive an hour and a quarter each way, but it's worth it. She is smart and no-nonsense, which is what I want. No more of this "you have to love your inner child" stuff. If I'm lucky, my inner child has maybe 20 years left to live, and I want to go to my grave with some peace of mind. I need to figure out how to feel happy in this life, even if those I love most in the world are unhappy. The first step is to reject a belief I've always held: You're only as happy as your least happy child. I don't believe that anymore. It's an excuse to keep worrying because worrying makes me FEEL as though I have control, when, in fact, I don't. The therapist also teaches a 6-week skills course that I'm going to take later this summer. So, aside from my editing work, that's my focus right now. 

I think of all of you often. I see some of you on Facebook sometimes, but I miss being here with you. That's my own doing, and I will be more present in the second half of the year.

Oh, by the way, my Medicare card arrived! It's official--or will be as of August 1. And I'm happy to say that the phone calls from people trying to sell me secondary coverage have finally stopped!

Love to all. Stay well.
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:Daily Diary of Joy - Friday, June 20, 2014 1:42 PM
Rena, I'm sorry to read you've been so unwell and still battling to feel better and I hope the second half of the year will be a lot better and healthier for you and also of course for Karen. Does a Medicaid card mean you now get free healthcare??  I should know all this by now! :)

Pat and Sharon, glad your kids are doing well which means less for us to worry about of course, Una begins school in August and I just came across a picture taken of Ian on his first day and wonder where did all those years go?? surely I'd have noticed getting this old...er!!!:)

As to joy, well for those not on FB obviously it was my good news this week on another year clear of cancer, a friend I met online sent me a gorgous flower arrangement which was a lovely surprise and next weekend we'll be spending the day with the girls and Noel and then out for a nice dinner to celebrate, both my news and the fact Louise got a new job with a major pay rise!:)

Sad news is we brought Louis the Maine Coon for what we thought was two extractions yesterday, we were shocked to hear our poor boy needed fifteen!!  He's recovering well and going for a post op check up on Tuesday, he must smell funny though as Jack keeps hissing and spitting at him and the other cats just give him a wide berth poor boy.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:Daily Diary of Joy - Friday, June 20, 2014 3:43 PM
Thank you, Tricia. Medicare is the health coverage for people over age 65 (or sometimes under age 65 if they're disabled), while Medicaid is health coverage for people below a certain income. Neither pays the full amount, so people on Medicare are strongly advised to buy a secondary plan. I'll be staying on David's plan at work--the same plan I've been on for 30 years. They will pay expenses that Medicare doesn't cover. 

I'm so sorry about Poor Louis! As I've said before, cats are amazingly good at eating without teeth. Audrey has a few teeth, but not many. And cats can be in so much pain and hide it from us, so my guess is that once he's recovered, you'll see a change in him for the better. Give the poor boy a nuzzle from me.

xoxo
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:Daily Diary of Joy - Friday, June 20, 2014 5:30 PM
Thanks Rena, both for the explanation and the good wishes for Louis, he's recovering well and eating a soft pate type cat food which I add some water to but I'm sure he's feeling a lot more comfortable now too.

Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

ElaineQW
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Re:Daily Diary of Joy - Friday, June 20, 2014 8:02 PM
Rena - I hate hearing that you've been not feeling well and battling pneumonia!  But happy that you've found a therapist you like :)  Mine is one of the most important men in my life....although I usually see him only once a year in November. What I call my birthday checkup ;)  I email him periodically to keep him up to date.  He is my touch stone. I hope between the therapist and meds (if needed) you'll find your happy place very soon.  I hope too that Karen won't have to struggle to be happy.  No matter what - we are affected by our chidren's happiness or lack of.... it's just part of being a parent.  But you are right -- we can feel for them, but we can also feel happy for ourselves at the same time.  Wishing you a happier second half of 2014!

Tricia - I'm sorry about Louis -- poor thing :(  But he will get on well without his teeth won't he?  I hope so.  I cannot believe Una is starting school -- are you kidding me?  

I'm happy to say that I'm doing fine.  Work is going well, my mammo was all clear as well, my kids are all happy at the moment as are the grandchildren.  So all is good.  Nicole will be here with the grandchildren in July for 2 weeks.  Can hardly wait to have them all descend on me - lol.    We will be in SD for a few days, the to Palm Springs and from there to Las Vegas to visit my almost 90 yr old aunt. It will be a whirlwind but very fun.

Hug
Elaine


 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 






Tricia Keegan
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Re:Daily Diary of Joy - Saturday, June 21, 2014 5:36 AM
Thanks Elaine and he'll be fine and doesn't hunt anyway as they all are contained in my back garden, well done on the clear Mammo and your July sounds hectic but very enjoyable indeed, enjoy!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:Daily Diary of Joy - Saturday, June 21, 2014 9:40 AM
Thanks, Elaine, for the good wishes. Congrats on your clear mammo! It sounds as though you have a busy summer ahead--full of family and fun! Enjoy!

Karen decided to come home for the weekend, and it's good to have my girl home. 
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

scootersmom
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Re:Daily Diary of Joy - Saturday, June 21, 2014 9:54 AM
Trisha--so sorry to hear about your poor kitty.  

Rena:  Glad to see you back on the boards and sorry for your recent medical bouts.

Elaine--Have a wonderful time with everyone.  I am planning a Vegas trip for September. Mom wants to go and of course she is twisting my arm to go with her (lol).

I was sent for a DEXASCAN last week to check bone density.  Those results came back the same day as all is well.  Yippee! This was a baseline test so now they have something to compare against in the future.

As for me, this is turning into a busy day.  I work up this morning and started in the kitchen before even having breakfast making things. 7:00 am Sangria Slush for a party later (now in freezer slushing).  Nothing like the small of two bottles of wine before breakfast.  I have make a Strawberry Buckle cake and a Pumkin bread and just took those out of the oven.  Now the chocolate pound cake is in the oven baking.  This is the fist time making all of these so I hope they turn out well.  I've already heard the dish for the strawberry cake being klinked as it was being cut.  I know I'll find a chunk out of it when I go back into the kitchen.

Birthday party last night for my nephew.  Today is a party for my niece and then the ACS Relay for Life tonight.  I signed up for the survivor's lap so that will be nice.

I am hoping this day gets better.  It is supposed to rain but I hope it holds off.

Gotta run, hear a timer going.  Everyone have a pleasant day.


Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Rena
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Re:Daily Diary of Joy - Saturday, June 21, 2014 10:32 AM
Tina, you sure are productive. If I'd done everything you did--before breakfast, no less--I'd have to lie down for the rest of the day! I hope the weather holds and that you all have a wonderful day!
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:Daily Diary of Joy - Saturday, June 21, 2014 1:22 PM
Wow Tina, you're like the energizer bunny, have fun and hope the rain holds off and thanks!

Rena so glad Karen got a chance to get home for the weekend and know you'll enjoy her stay.
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

DJ64
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Re:Daily Diary of Joy - Saturday, June 21, 2014 3:23 PM
Rena,

I hope the 2nd half of 2014 will be better for you.  My sister has fought a lifetime of depression and she is the same age as you are.  My son also suffers from depression so I can understand how awful it is.

Wishing you the best.

DJ
"Prepared for the worst, hope for the best and, live each day to the hilt"


Stage IV  lungs, lining, ribs, left scapula and left clavicle - Used all the hormonal drugs - tamoxifen, arimidex,  , Faslodex 250 mg,  femara, , drug break using own estrogen (progression in 7 months), rebooted femara (progression on next scan) Faslodex 500 mg ended 18 1/2 years on hormonal therapies - 2013,  Taxol - 2014 now on Doxil. 

scootersmom
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Re:Daily Diary of Joy - Saturday, June 21, 2014 7:26 PM
Update:

Finished the baking and went to the birthday party.  We had to move inside and then suddenly everyone's cell phone went off alerting them to bad weather.  Tornadoes were coming our way.  We ended up in the lower part of the house, four children 5 and under as well as ten adults.  The kids were watching a movie and we just waited it out.  The only time the rains stopped was during the sirens. Not sure how far away the tornado was or if it touched down.  Glad it missed us.

We to the relay on the way home and they had called it off because of the weather.  Don't blame them.  Safety first.



Tina    
dx 2/1/11 DCIS
Lumpectomy 2/27 results DCIS/LCIS Stage 0 ER+ PR+
Bi-lateral Mastectomy 4/26 with expanders 
6/3 Surgery to remove contaminated expander due to infection.
7/22/11 Surgery to reinsert the expander. 
10/11/2011 Surgery to replace tissue expanders with implants.
 
 




Tricia Keegan
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Re:Daily Diary of Joy - Sunday, June 22, 2014 5:14 AM
Oh Goodness Tina, what a shame but glad you all are safe and the tornado didn't hit you but what a time to get a  weather warning!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Rena
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Re:Daily Diary of Joy - Sunday, June 22, 2014 11:24 PM
DJ, thank you for your kind comments and understanding. How are you doing? I hope that you're feeling all right and that things are stable for you.

Tina, I'm glad that you were all safe. That must have been scary for you all. It sounds as though you all made the best of a difficult situation.

We ended up having such a nice visit with Karen. She was a little under the weather, but we played some games, watched some junk TV and took it easy. Thanks to my pressure cooker, I was able to throw together a pot of soup for her to take home. They are always our babies, no matter how old they get, aren't they?

Love to you all.
Rena age 66 California Central Coast
29-year survivor
BRCA2-positive
Dx 1986 IDC ER/PR negative 22 positive lymph nodes
CMFVP chemo weekly for one year, 7 weeks radiation
October 2007: New chassis and spark plugs!

Tricia Keegan
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Re:Daily Diary of Joy - Monday, June 23, 2014 12:53 PM
They certainly are Rena and I'm glad you all had such an enjoyable weekend!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

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