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 The waiting room!!!
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LaudyLo

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Re:The waiting room!!! - Wednesday, August 04, 2010 10:59 AM
No doubt! I agree with you ya fight4myboys:)    I've actually been o.k. with the blood work thing and the markers, etc. I haven't had anxiety about it that part as yet for some reason.....of course I'm happy I don't.

But with the scans yes. I will get my first one since the dx in Dec. & I try not to think a bout it because that does make me rather nervous. 

For me going to the doc. every 3 mos. is to much. I do get what you're saying but for me I'm fine with every 6 mos. This appt. I have next week follow up should have been done middle of July, I made it for 8/11. Partly because I had planned a trip but also because I felt 4 mos was o.k.  I feel more anxious to honestly go sooner than that....it stays in my mind to much. I agree I want them to get sooner than later, but at the same time I do feel confident with twice a year exams and scans. I feel more at ease not keeping in my mind as often and at the same time feel it will be caught soon enough.
Laurie/S.Fl.
DX@ age: 46 on 8/17/09
IDC Stage 1, Grade 3, Node Neg. Hert2-
Lumpectomy R.B. 1.08 CM.  Er+ & PR+
Onca score:  "24"          BRCA-Negitive!
Chemo-(8) C.M.F...   DONE final 3/17/10
Rads x 36..............   DONE final 6/04/10
1200 UI Vitamin D    & Tamoxifen 5 yrs.



Tricia Keegan

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Re:The waiting room!!! - Wednesday, August 04, 2010 4:42 PM
Hi Susie,

At two years out a three ,month check up is fine I think, in Cindys case she's almost five years out so as these appts cause her so much stress I'd feel less is best in her case:)

Congrats Farla, thrilled for you on your first year !!!!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
kare369

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Re:The waiting room!!! - Thursday, August 05, 2010 8:00 AM
Thank you for all of the good thoughts ! I went in to get my pet scan and was all ready to go, iv in place, waited 2 hours and the computers broke down LOL. Waited another hour to see if they could fix it, no such luck. So I will be going in Friday morning to try again. When I had my mri they got me there 1 hour early. Funny how things like this happen to me. I am a patient person thank goodness. pet, muggascan and port surgery then on to chemo and out of the waiting room. They said I could keep my vacation plans for the U.P. Michigan for labor day weekend so I have that to look forward to !
LaudyLo

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Re:The waiting room!!! - Thursday, August 05, 2010 8:10 AM
Gosh that really stinks Kar36!! It is a good thing you are so very patient! I think I'm a patient person, but I don't know if I could be on this one. Glad you have your up and coming plans to look forward to:) It's time you had a break away from it all for sure!
Laurie/S.Fl.
DX@ age: 46 on 8/17/09
IDC Stage 1, Grade 3, Node Neg. Hert2-
Lumpectomy R.B. 1.08 CM.  Er+ & PR+
Onca score:  "24"          BRCA-Negitive!
Chemo-(8) C.M.F...   DONE final 3/17/10
Rads x 36..............   DONE final 6/04/10
1200 UI Vitamin D    & Tamoxifen 5 yrs.



farla

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Re:The waiting room!!! - Thursday, August 05, 2010 8:32 AM
Hi everyone,

I had sort of a great day yesterday - had my one year "birthday" - the day that my radiologist said that she saw something, and went to my onc and surgeon.   Got a good checkup - I'm OK, got my reclast (IV) and don't need a scan until Dec, and then they want to see me again.

Yesterday was the funeral of my son's good friend's father - murdered in that CT shooting, so the day wasn't all celebration.

And today - I feel like a mack truck hit me! My tooth began to hurt last night (root canal scheduled for tomorrow - and would you believe I forgot to tell my md about it!) so I took tylenol, which helped a little, but then other things began to hurt, so I layered some motrin on it a few hours later.  Then I finally get to the computer, look up reclast, and motrtin is a no no.  Damn!!!  Also dental issues are a concern, so like dang!  Anyway, I've got a call out to my onc, he'll call me back.
Today is not starting out well.....
Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!
Tricia Keegan

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Re:The waiting room!!! - Thursday, August 05, 2010 9:44 AM
Farla- sorry things are so tough for you right now, be sure to tell your dentist you are having reclast as in a lot of cases, they give an antibiotic as well.

Fingers crossed for you, things can only get better:)

Karen, you must have the patience of a saint lol, I hope things go more smoothly from here on for you:)
<message edited by Tricia Keegan on Thursday, August 05, 2010 9:48 AM>
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
Karenluhu

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Re:The waiting room!!! - Thursday, August 05, 2010 10:08 AM
Love, love, love the idea of a waiting room thread, Tricia!  Just checking in here this a.m. to see what's new on the boards.  Hugs and prayers to all those WAITING....so my least favorite place to be.
Karen, ("Lumpy McBoobykins"), dx @ 38 yo
3 kids-7, 10, 12
IDC, DCIS, stage 2, grade 3
ER/PR+, HER2-, BRCA neg  
Found lump 5/7/07
left mast, nodes 6/19/07
3+ nodes/21
(ACx4, Tx4), 7/17-10/22/07
Tamox 11/07
Delayed Rads 7/08
Lat Flap w/expanders 2/17/09
Exchange 8/27/09
Sharon

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Re:The waiting room!!! - Thursday, August 05, 2010 12:19 PM
Hello Farla

I hope the end of the day is a damn sight better than the start, OUCH!  Not sure how it works in other parts of the World, my dentist always gives me a big shot anti bio drink before any dental work due to the fact I am on a bone drug.

Congratulations on the one year!!!
Non Hodgkins Lymphoma Extra Nodal (Stomach + BM)
Stage IV C. Survivor x 5 years
T/ment: 8 cycles Rituxan CVP x 8 + Rads. x 30
Friends affected by Breast Cancer

farla

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Re:The waiting room!!! - Thursday, August 05, 2010 1:34 PM
Hey, y'all,
 I'm feeling better now, just having a lazy day in bed - really do not want to push right now.  My onc called back, and he is not worried about the motrin or the root canal, and the dentist called to confirm and I told them about the reclast, so we are good to go!
Karen, it is torture to wait like that - I think the waiting and the not knowing is the worst.  I remember my rad machine broke down and I went bonkers.  I agree with Tricia - you have the patience of a saint.  Please post when you have some news.
Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!
Tricia Keegan

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Re:The waiting room!!! - Thursday, August 05, 2010 2:08 PM
Good to hear all is good and you're sounding happier Farla.

Thanks Karenluhu, good to hear from you and glad all is well:) x
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia
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