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 The waiting room!!!
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Sharon

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Re:The waiting room!!! - Wednesday, August 11, 2010 8:46 AM
Hi Joy,

Wishing the good results continue through to September and beyond :)
Non Hodgkins Lymphoma Extra Nodal (Stomach + BM)
Stage IV C. Survivor x 5 years
T/ment: 8 cycles Rituxan CVP x 8 + Rads. x 30
Friends affected by Breast Cancer

farla

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Re:The waiting room!!! - Wednesday, August 11, 2010 1:14 PM
Good luck, Joy, I'll be thinking of you!
Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!
MariannaR

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Re:The waiting room!!! - Wednesday, August 11, 2010 5:48 PM
My Onc ordered a PET for me and an MRI of my breast.  
At first she said she thought my breast tissue was just getting thick because of the changes in me hormonally. She was touching me very lightly with long motions, when I took her hand and showed her the lumps specifically she agreed it was more than thick tissue she said...oh yes, there it is, actually I think there are three..duh.
I then, pointed out the lymph nodes that are also enlarged and she said oh yes, I feel it now.  geez.  seriously if there was another place to go, I'd be so out of there.
Anywaaay,  I have a PET for next Wed, and an MRI for next Friday.
Hopefully, it won't take forever to figure out what is going on.
I just don't see how it can be more cancer since I've just gone through all that chemo.
Marianna (the unicorn) 
idc grade 3, 3.8 cm  stage 3  dx2/10
metastatic ductal carcinoma to 4 of 17 axillary lymph ,    
left modified radical mastectomy     
chemo was 
A/C dd done 5/10
taxol dd  done 7/10
then radiation   33 doses, done 10/10  
then Tamoxifen for 5years or until natural menopause
 began 11/10 then Arimidex   for 4years



LaudyLo

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Re:The waiting room!!! - Wednesday, August 11, 2010 7:00 PM
Hey there Marianne:) Gosh I'm so sorry you're going through more crap!! Of course update when you can. You're in my heart as I will be thinking of you and hoping everything will turn out o.k. Sending you (((HUGS)))XO
Laurie/S.Fl.
DX@ age: 46 on 8/17/09
IDC Stage 1, Grade 3, Node Neg. Hert2-
Lumpectomy R.B. 1.08 CM.  Er+ & PR+
Onca score:  "24"          BRCA-Negitive!
Chemo-(8) C.M.F...   DONE final 3/17/10
Rads x 36..............   DONE final 6/04/10
1200 UI Vitamin D    & Tamoxifen 5 yrs.



thinkpink

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Re:The waiting room!!! - Wednesday, August 11, 2010 7:18 PM
Marianne - that is crazy!  Hope all works out and that the professionals key into what is happening....

Stay strong and calm...............
ThinkPink - Mammo /Ultrasound- 6/29/09 Core Biopsy - 6/30/09 a-hyperplasia DCIS/LCIS Lumpectomies Left Side 9/9/09, 10/7/09, 11/11/09 (sentinel lymph node biopsy & auxillary lymph node dissection)Bilateral mast & Beg. Reconstruction (TE's) 1/26/10 Exchange Surgery (gummyimplants)-6/22/10 Diagnosed surgery - skin cancer 8/16, 1/18, 4/6 surgery 5/16,5/23 Clear Margins Yeah! BRAC/Neg, Gummy Implants FDA Approved![/colo
ElaineQW

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Re:The waiting room!!! - Wednesday, August 11, 2010 7:29 PM
Marianne - WTF??  Pardon my French.  I hate that you just went through chemo and now this??  Whatever happens, you will take care of it and you will be fine.  That's the bottom line --- Also, if you are not feeling confident about your docs please make a change if that is possible for you.  

Hug
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





malcolm2009

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Re:The waiting room!!! - Wednesday, August 11, 2010 7:55 PM
Hi all,
  I'm like Marianne but my reaction is similar to Elaine's. WTF!!!  I found a lump in my other breast and had my onc check it out.  He said it didn't feel like anything to worry about so we should wait and see.  I waited a week and went back at which point he referred me back to my surgeon.  The surgeon was concerned until he felt another lump and then another lump.  For some reason that made him feel better.  He sent me to have an ultrasound.  The radiologist says that two of them are clearly benign but he wasn't 100% on the other one.   The surgeon called and said that they were "probably" benign but to schedule an appointment to discuss possible removal.  Should I push for a PET or MRI?  Can they really tell if it's cancer through those tests?  Or is a biopsy the only way?
3/1/10 DX IDC.  Age 42 at DX
3/10/10 Lumpectomy, Sentinel/axillary node removal
Sentinel node and axillary nodes all negative
Stage II, Grade 2, 2.5cm, ER+/PR+, HER2-
6/9/10 Four rounds of TC complete
8/16/10 Thirty three sessions of radiation complete
Married to most loving husband.
ElaineQW

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Re:The waiting room!!! - Wednesday, August 11, 2010 8:06 PM
Malcolm2009 - go for the biopsy.  Sorry you have to do this, but you need to know so you can kick it's ass!

Hug,
Elaine
 A person's greatness is the power to stand alone;to be able to make her own choice; in action,to write anew her own law; to choose her own sacrifices; run her own dangers; win her own freedom; venture her own destruction; to choose her own happiness 
 





farla

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Re:The waiting room!!! - Thursday, August 12, 2010 3:18 AM
Marianne - thinking of you - oh it is so stressful to go through tests so soon.  Try to be strong and calm, we are all praying for you.
Malcolm - I am not a radiologist, and know little about MRI, but I believe that they can tell by the type of uptake if something is suspicious.  The other advantage is that the MRI can find other, real little areas of concern. The gold standard is the biopsy - because you actually have the tissue there to look at.  I believe they want some imaging because of the number of lumps.  I'd get the MRI first, but remember the biopsy is definitive.  Good luck, I'll pray for you, too.


Farla
dx 8/09, R double lumpectomy, invasive mixed DCIS/LCIS
ER + PR + Her -
1/3 Sentinel pos. 1/15 nodes pos
 Stage 2A  Grade 2, Nottingham 6
chemo A/C x4, Taxol x 4 started 9/21/09 DONE!!!
femara  started 2/5/10
rads  2/8/10 DONE!!!
Now - osteoporosis?  Vit D, calcium, and a baby aspirin to boot!
MariannaR

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Re:The waiting room!!! - Thursday, August 12, 2010 7:58 AM
Malcolm, I think they'll biopsy me if the scans indicate they should.  Not sure why they don't just biopsy it to begin with, except that they are just looking closely first.
These tests are scheduled for me, I half expect them to call me and tell me the insurance won't cover them both.  It seems a really expensive way to explore these lumps that the dr. doesn't really think could be cancer because of the chemo I just did.  I was wondering why they don't simply do an ultra sound and a biopsy.


Marianna (the unicorn) 
idc grade 3, 3.8 cm  stage 3  dx2/10
metastatic ductal carcinoma to 4 of 17 axillary lymph ,    
left modified radical mastectomy     
chemo was 
A/C dd done 5/10
taxol dd  done 7/10
then radiation   33 doses, done 10/10  
then Tamoxifen for 5years or until natural menopause
 began 11/10 then Arimidex   for 4years



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