Judy and Mary,
I swear, it was both the receptionist hubby talked to yesterday and then the whatever she is that you talk to who apparently decides what calls really need to go to the nurse that I talked to today. I was really bordering on rude to that woman. She gave me the same song and dance about I had the "whole weekend" and would probably feel fine by Monday. BULL!
I do feel lots better today but still can hardly talk. At least, the antibiotic is working to the point that my chest doesn't hurt when I cough.
Anyway, whoever this woman was, she finally said she'd have Nurse Kelly, the one the receptionist said I had to talk to today, call me back. We had a nice chat, and Kelly agreed that I sound very ill and undoubtedly have a bad cough. She would reschedule my chemo as I originally requested, two weeks from Monday. I said I certainly understand that some people find the first infusion so intolerable that they want to put off the next, but I DO NOT WANT TO DO THAT. I'm simply so beastly ill that I could not sit up long enough to do the infusion and do not want what white cells I have wiped out right now. I have a feeling they wouldn't welcome me sitting in the chemo room even with a mask on coughing like a barking dog. She said she'd talk with my med onc as they'd like to help me get well sooner. Fine by me.
Well, I can tell it's largely viral, so unless there's some miracle drug out there now that works on rhinoviruses, I'm doing all I can to get over this sooner.
I assured Kelly that I would be more than happy to talk with my med onc if she'd like to call me so that I can explain my anger at having my treatments delayed like this as well as how I'd welcome any suggestions she has for hastening my recovery. Damn! but I hate how medical people talk to you sometimes as if you're a little kid trying to weasel out of taking medicine. I think maybe I got it across to Kelly that that is NOT me and I thoroughly resent being treated that way. I even threatened to pull out and go to the other major cancer center in the metro if I get treated like this again.
Ya think they got the message maybe?
This is really upsetting when previously everyone there has been so kind, thoughtful and helpful.
I learned something important, though. Should anything this serious happen again, I will simply call and demand a callback from my med onc herself. Screw messing with the little people in between.
<message edited by Her Dotness on Friday, February 18, 2011 1:58 PM>
dx 11/29/10 DCIS/IDC
1/5/11 lumpectomy, SLND 2+, ALND -
T1c, clean margins!
er +/pr + (My little nasty was an estrogen drunk, said my med onc.) HER2 -
Chemo: TC Done 4/30/11
Rads: Done 6/30/11