- Joined: 11/28/2011
- Location: little cabin in the little woods
Re:Winter chemo ladies!
Monday, November 28, 2011 9:01 AM
Hi everyone! New here. Went to my gyn in September due to needing a mammo, plus I had a weird flaky spot of skin on my left nipple. Gyn told me I needed a mammo, obviously, and to see a breast surgeon. Say what??? I hadn't even had the mammo yet. Hubby said gyn just CHA (covering you know what). Had mammo following week, tech said wait, came back in room, need to repeat with smaller paddles on more localized area. Uh oh. Next, wait. Now need ultra sound right now. Double uh oh. Tech going over and over same spot. I'm laying on table praying. Tech leaves room. I'm trying to decipher image on screen. Tech comes back, says get dressed, radiologist needs to talk to you. Yikes!
Radiologist very nice. Points to area of films that looks like large constellation of stars. Lots of little white dots. He says prob will need lumpectomy, plus go see breast surgeon. I'm like "who"? He doesn't want to say. Says go ask gyn. I say I barely know her, first time to her office, had total hyster eleven years ago, haven't been to gyn in almost that long. I press him. Ask him who he would send his mother/sister/wife/daughter to. He gives me a name. I go out to parking lot, and call. Miraculously, they had a cancellation next day. I take it. Go with films in hand.
Breast surgeon very, very sweet. Looks at films. Says most likely DCIS. Does biopsy then and there in procedure room. Tells me very large area, will need mastectomy, nipple involved, Paget's disease, but 99% sure no further treatment, if sentinal node biopsy negative.
Breast surgeon calls me following week. Yes, biopsy shows DCIS. She's 99% sure no further treatment. Yippee!!! Everyone thinks I'm handling it amazingly well, having to have mastectomy. I'm thrilled no further treatment. Left mastectomy with immediate reconstruction done on October 11th. Sentinal node biopsy negative. Hurrah!!! Breast surgeon tells hubby she's 99% sure no further treatment, but of course, we need to wait for pathology.
Almost four weeks go by, finally go for post-op visit. Bomb drops. Breast surgeon says so sorry, area of invasive cancer found, a little over a centimeter, poorly defined borders, ER neg, Her2 pos, you need chemo. Say what??? Hubby & I think we are in a dream. We leave, in a daze, sitting in his truck, looking at each other like what the hell just happened?
Meet oncologist following week. Need six rounds of TCH (taxotere/Carboplatin/Herceptin), one every three weeks, with Herceptin for a year. Port placed on Nov 21st, first chemo Nov 22nd, Neulasta injection Nov 23rd, Happy Thanksgiving to me.
Six days post 1st chemo, and I'm soooo tired. Feel like truck hit me. Actually felt pretty good first three days, just very tired, in bed by 7:30, which is NOT normal for me. Fourth night up till 8:30, woo hoo!!! Had to use ativan the second, third and fourth nights, as felt very agitated and anxious. Saturday was a good day. Sunday I don't know what hit me, became anxious in afternoon, heart beating fast, lightheaded. Maybe dehydrated a little? Eating a lot of salty things, as everything tastes like crap. Also took Miralax Friday & Saturday night for constipation. Colace, fruit, & green vegs doing squat. Made sure to drink extra water all afternoon and evening. This morning don't feel too bad, but still very, very tired. This freaks me out. I'm use to going, going, going. What makes me more nervous is that I felt better days three and four post chemo,why do I feel worse days five and six?
Changed centers I'm having chemo at, same group, but one that is closer, so couldn't get appt until Wednesday, which is one week and one day post chemo, for herceptin treatment. Anxious for labs to be done to see if my counts are okay.