Winter chemo ladies!

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Reading Mama
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Re:Winter chemo ladies! - Wednesday, January 19, 2011 4:50 PM
Hi, well yesterday was my last chemo!!! (and today is my birthday too!).  I know Dap had her last one yesterday also.  Excited, even though need to get through the bone pain later this week, it's still a milestone.
 
For me surgery is next, so I have my breast MRI tomorrow and meeting with the breast surgeon the following Monday. 
 
Right now, I'm mainly worried about not overdoing it at work and at home, over the next few weeks as sometimes I don't realize how tired I am.  I'll just have to try to be more aware!
8/4/10 found lump, 8/13 mammo&us, 8/31 biopsy
9/7/10 dx@ age 43 -  IDC - 2cm (4.6cm on MRI!), ER/PR--, HER2+, Grade 2, Likely Stage IIIa.  BRCA negative!
Neoadjuvant chemo - AC-dose dense, 10/10, 4tx - DONE!
Taxol - dose dense - 4tx - 12/10 - DONE!
Lumpectomy & ALND - 02/16/11 (No cancer left!)
Rads x34 - start April 2010
Herceptin for 1 year - started 12/7/10
Northern NJ, mom to dd(11) and ds(7)

Tricia Keegan
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Re:Winter chemo ladies! - Wednesday, January 19, 2011 5:18 PM
Wow congratulations to you and Dap and delighted you finished !!!!!

Good luck with the next step and know you've both achieved something thats very hard to do but will reap the rewards:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Dalysha
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Re:Winter chemo ladies! - Friday, January 21, 2011 5:46 PM
Reading Mama: Congratulations on your last treatment and I hope you had a good birthday (I would also like to give a “shout-out” to Dap)…I’m half-way done and am thrilled to see my sisters cross the finish line…well done!    
Age 39: Dx: DCIS/IDC 10/11/10
Bilat. Mastectomy w/Expanders 11/5/10
SNB x 2 - / BRCA -
ER/PR +/ Her -/Grade 2/Stage 1/Oncotype 19
Chemo: T&C X 4 (completed 2/16/2011)
Tamoxifen (3/11) & Reconstruction to Follow (4/11) 

If you don't like something change it;
if you can't change it,
change the way you think about it.
-Mary Engelbreit
 

rbolnick
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Re:Winter chemo ladies! - Thursday, January 27, 2011 3:58 PM
Hi winter chemo buddies!

I have been posting in other areas of the forum but thought I should join in the discussion here too.

I started A/C x4 (every 14 days) on December 30th, and have my 3rd treatment tomorrow. I'll do weekly Taxol x12 starting in late February.

Like someone said earlier, so far the 1st was the worst, the 2nd was WAY better, so I'm hoping the 3rd round goes even better. Definitely the fatigue is the worst on days 4 and 5. By day 6 I'm feeling good and the "off week" I actually feel back to normal.

One side effect I've had both times is around day 3 or 4, I get this feeling like I have a bruise all over my body. It makes it painful to sit or lay down, although once I'm actually sitting/lying down, I don't hurt if I don't move around too much. Anyone else have that?? any tips?

Keep it up!! We can do it!!!!!!!!

Hugs,
Rebecca
Rebecca in Phoenix
Age: 30 (yep, it can happen at 30)
Stage 2A, IDC;  ER+PR+HER+
Lumpectomy, sentinal + 7 axillary nodes (1/9 positive): 10/28/10
A/C dose dense x4: 12/30/10 - 2/12/11 FINISHED!
T+ Herceptin dose dense x12: starting February 2010
RADS; 1 year Herceptin; 5 years hormone TBD

"You can laugh about it, or you can cry about it. I choose to laugh"



Tricia Keegan
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Re:Winter chemo ladies! - Thursday, January 27, 2011 4:03 PM
Hi Rebecca,

Its possible this sore feeling is from the neulasta/neupogen shots if you get them???

I did'nt have this myself but hope it eases very soon for you, I found the taxol far easier to tolerate and hope you will too :)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

rbolnick
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Re:Winter chemo ladies! - Sunday, January 30, 2011 11:31 AM
Hi Tricia,
Yes, I do get the neulasta shot. I figured it's either that or just my cells being damaged, or the nadir period of low immune function? If it follows the first 2 treatments, I should have it starting tomorrow, so fingers crossed that maybe my body is getting used to it more?

glad to report basically no nausea this time! thank you Zofran!!

hugs,
rebecca
Rebecca in Phoenix
Age: 30 (yep, it can happen at 30)
Stage 2A, IDC;  ER+PR+HER+
Lumpectomy, sentinal + 7 axillary nodes (1/9 positive): 10/28/10
A/C dose dense x4: 12/30/10 - 2/12/11 FINISHED!
T+ Herceptin dose dense x12: starting February 2010
RADS; 1 year Herceptin; 5 years hormone TBD

"You can laugh about it, or you can cry about it. I choose to laugh"



Tricia Keegan
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Re:Winter chemo ladies! - Sunday, January 30, 2011 1:38 PM
Yes, zofran was my best friend too!!

Many people say the neulasta gave them a lot of body pain/aches so I'm fairly sure thats the culprit, I did'nt need it at all for taxol so hang in there!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

colormepink
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Re:Winter chemo ladies! - Monday, January 31, 2011 3:21 PM
Hello Winter Chemo Ladies:  I just had my 2nd round of chemo.  1st round went well.  2nd round hit me like a ton of bricks.  I am not liking this chemo one bit!

rbolnick
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Re:Winter chemo ladies! - Tuesday, February 01, 2011 12:20 PM
Hi Colormepink,
sorry to hear about round 2 :( What chemo are you doing? For me, it's getting a little easier each time, but a friend of mine who had different drugs said that each round was harder. So, it could depend a lot on what you are taking?

what side effects were the hardest? maybe we can offer some suggestions...

hang in there,
Rebecca
Rebecca in Phoenix
Age: 30 (yep, it can happen at 30)
Stage 2A, IDC;  ER+PR+HER+
Lumpectomy, sentinal + 7 axillary nodes (1/9 positive): 10/28/10
A/C dose dense x4: 12/30/10 - 2/12/11 FINISHED!
T+ Herceptin dose dense x12: starting February 2010
RADS; 1 year Herceptin; 5 years hormone TBD

"You can laugh about it, or you can cry about it. I choose to laugh"



Reading Mama
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Re:Winter chemo ladies! - Friday, February 04, 2011 12:27 PM
How long after you finished chemo did you start to feel not so exhausted?  I know it will take weeks, if not months, to feel like myself again, but I was hoping that the overwhelming feeling of exhaustion would go away quickly.
 
Tuesday will be 3 weeks since my last treatment and then I only have 1 more week before surgery.
 
I'm sure that it is not helping that it is so cold, and that I'm working and commuting over an hour (though working at home some days).
8/4/10 found lump, 8/13 mammo&us, 8/31 biopsy
9/7/10 dx@ age 43 -  IDC - 2cm (4.6cm on MRI!), ER/PR--, HER2+, Grade 2, Likely Stage IIIa.  BRCA negative!
Neoadjuvant chemo - AC-dose dense, 10/10, 4tx - DONE!
Taxol - dose dense - 4tx - 12/10 - DONE!
Lumpectomy & ALND - 02/16/11 (No cancer left!)
Rads x34 - start April 2010
Herceptin for 1 year - started 12/7/10
Northern NJ, mom to dd(11) and ds(7)

Tricia Keegan
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Re:Winter chemo ladies! - Friday, February 04, 2011 1:50 PM
Three weeks is probably too soon to expect to recover, some Dr's say it takes the same amount of time to recover as you spent in chemo!

Everyone's different of course but I began to feel more like myself about two months afterwards, I began walking for a short time daily to increase my stamina and then built up to more which helped.  However as you're working as well I'd imagine you're getting enough walking!
Try to be patient and you will improve little by little:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

lisaorock
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Re:Winter chemo ladies! - Saturday, February 05, 2011 9:12 AM
Hello Ladies,
I need some advice. I am a little more than halfway through my chemo treatments. I had 4 rounds of AC and already had one round of Taxol.  I have three more rounds of Taxol.  My side effects from Taxol were much easier to take.  I have started getting headaches and popping pain meds like candy. I called my onc. nurse to let her know about the headaches and the medication I was taking for them.  The sent me to get an MRI.  I was a bit freaked out by that.  I have a history of TMJ and wear a mouth guard every night.  I think ist's just a flare up due to stress.  I went to get tne MRI and the tech refused to do it because of my tissue expanders.  I was shocked.  I'm sure I'm not the only breast cancer patient with tissue expanders that need an MRI.  I'm having my left breast removed and reconstructed after chemo.  I'm going to need to be scanned on some way to make sure the cancer has not come back.  Any feedback you all have would be greatly appreciated. Thanks!              
Lisaorock
IDC 10/5/10,lumpectomy 10/19, age 44
stage 1 grade2 ,tumor 1.2cm
triple negative,BRACCA 2 postive
4 ac/4 taxol
rightbreast removed 11/4/breast reconstruction
chemo done! leftbreastmx/ovaries/uterus removed 4/21

Tricia Keegan
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Re:Winter chemo ladies! - Saturday, February 05, 2011 9:41 AM
Hi Lisa,

I saw a similar question on another site and it appears some expender's have some metal in the port/dome area which is unsafe for having an MRI or can give incorrect readings.

http://community.breastcancer.org/forum/44/topic/731971

Maybe check with your PS if your's come under this?
if so, maybe a ct or pet/ct could be a scan of choice for you in the future?    I'm sure your headaches are stress/chmo related as I had a few myself on chemo but maybe they can give you some stronger meds for it?
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

JF
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A new winter chemo lady - Monday, February 07, 2011 4:00 PM
I am new to Komen and am not sure that my emails are going through, nor can I figure out how to add the details of my case at the bottom.  I am scheduled to begin TC on 2/17/11 and am reading the posts by those who are just starting chemo and feeling less alone.  Let me know if this message is coming through...Judy
diag 12/2010; lumpectomy and then re-excision to clear margins; 2.8cm; stage IIA; low grade; .85mm micromet; ONCO 15; ER 100%+/P+/HER-; TC x 4 started 2/24/2011; radiation ending on 7/8/11 then aromasin



Her Dotness
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Re:A new winter chemo lady - Monday, February 07, 2011 4:30 PM
JF


I am new to Komen and am not sure that my emails are going through, nor can I figure out how to add the details of my case at the bottom.

 
You'll catch on very soon, I'm sure.
 
Here's how to add your case details as a signature.
 
--Look above to the toolbar for the User Control Panel tab. Click on that and then when you see the menu, click on Profile.
--You'll see the window Personal Info which will have another tab to the right labeled Signature and Comment. Click on it, and the window for typing your case details will open right up.
--Type away until you're satisfied you've included everything you want to share.
--Next, scroll down to the box below the window where you check that you want your signature to appear with each posting. You can figure that one out...giggle.
--Scroll down a bit more and be SURE to click on the SAVE button. It'll take a little while for the sig to add on to your postings, but soon you'll be able to see it just as you hoped.
 
Easy-peasy, huh?
 
The tab to the left of Sig & Comment that says Avatar is where you can choose a picture if you'd like to add one to your postings. That's kinda cool, especially if you're too lazy like I am to import a nice picture of yourself or something else personal. Have fun with that one!
 

I am scheduled to begin TC on 2/17/11 and am reading the posts by those who are just starting chemo and feeling less alone.  Let me know if this message is coming through...Judy

 
Message loud and clear, Judy. You're doing just fine here in Komenville. No problemo.
 
As for the chemo-thingy, hoooooo, boyee! I'm a raw newbie at that waving lots of encouragement to you. I just had my first infusion three days ago, and today is pretty rotten for me. But I know I'll get through it all as will you, largely thanks to the wonderful people here who are so supportive and encouraging. Lean on those who've gone before when you need to and feel free to brag about your good news, too. I sure have!
 
A hearty welcome to you!
Dot
dx 11/29/10 DCIS/IDC
1/5/11 lumpectomy, SLND 2+, ALND - 
T1c, clean margins!
er +/pr + (My little nasty was an estrogen drunk, said my med onc.) HER2 -
Chemo: TC Done 4/30/11 
Rads:  Done 6/30/11 
Arimidex 7/11-? 

Tricia Keegan
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Re:A new winter chemo lady - Monday, February 07, 2011 4:58 PM
Hi Judy and welcome to the chemo forum!!!:)

I'm sure you'll be fine as we all were once we began, the not knowing is the worst of course!!!

Post any questions you have here and someone will be along to help or share their experience's and much luck on getting the first one done:)

Glad Dot was able to direct you to post your details!!!:)
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Dalysha
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Re:A new winter chemo lady - Wednesday, February 09, 2011 4:40 PM
Hi Lisa: I had severe headaches radiating down my jaw with my first treatment. My onc. believed it was due to the antinausea medications (specifically, Zofran & Aloxi). After all, they block 8 receptor sites...anytime you go messing with brain chemicals and serotonin uptake, a headache is possible. Anyway, she told me that small doses of Ativan help ease the pain...odd, but it works. I also changed to Compazine from Zofran, but I don't know if this is a realistic option for A/C. I'm on T/C and my last treatment is next week (2/16!!!!!!). I haven't had any headaches to speak of since my first treatment. 
Age 39: Dx: DCIS/IDC 10/11/10
Bilat. Mastectomy w/Expanders 11/5/10
SNB x 2 - / BRCA -
ER/PR +/ Her -/Grade 2/Stage 1/Oncotype 19
Chemo: T&C X 4 (completed 2/16/2011)
Tamoxifen (3/11) & Reconstruction to Follow (4/11) 

If you don't like something change it;
if you can't change it,
change the way you think about it.
-Mary Engelbreit
 

JF
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Neulasta - Wednesday, February 09, 2011 9:47 PM
Hello and thanks for the welcomes.  I will get my act together and get my stats set out...spent the whole day at the hospital with appts and tests ... I found out that my situation (low ONCO with teensy micromet) is part of a new study, started in 2007 ... there won't be results for me, but I am glad to see that the studies are happening, like with the axial dissection report released today. 
Anyway - I am wondering about how long neulasta bone pain typically lasts - my dr said 24 hours but I wanted to see what those who have had it say and whether or not you were given pain meds or could use tylenol ... yes the unknowns are rough for newbies.  Thanks ...
Judy

Tricia Keegan
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Re:Neulasta - Thursday, February 10, 2011 4:56 AM
Judy I was one of the lucky one's who did'nt experience any bone pain from neulasta but know many do, maybe you too will be lucky!
Tricia Keegan...From Ireland Dx July '05 IDC 3/9 nodes pos..triple positive..a/c x 4..Taxol/herceptin x 12
Herceptin 1yr ..rads x35 oophorectomy Aug '06
Currently taking Arimidex /Zometa 1 x yearly
Carepage- survivortricia

Cindy D.
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Re:Neulasta - Thursday, February 10, 2011 6:13 AM
No bone pain for me either with the neulasta shot... hope it's the same for you.

take care,
cindy d.
Mass. 
56 yrs old
dx 1/10/07
Stage IIIa
ER/PR +,Her2 -
chemo: 4ac/4 taxol  5/24/07
lump: 6/18/07
mast: 7/16/07
tamoxifen: 7/25/07-2/9/09
rads:  10/25/07
clinical trial: avastin and xeloda, 12/07-11/08
arimidex/lupron: 2/09/09-12/28/11
clinical trial: femara 1/1/12 9 months on, 3 months off

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